scholarly journals Quality of life of hemodialysis patients in selected teaching hospitals of Chitwan

2017 ◽  
Vol 7 (1) ◽  
pp. 29-34 ◽  
Author(s):  
Srijana Ghimire ◽  
Milan Lopchan
Keyword(s):  
Quality Of Life ◽  
Physical Component Summary ◽  
Mental Component Summary ◽  
Positive Impact ◽  
Short Form ◽  
Hemodialysis Patients ◽  
T Test ◽  
Teaching Hospitals ◽  
Average Score

The quality of life (QOL) needs to be regularly assessed in hemodialysis patients. Hemodialysis patients suffer from average quality of life and survival. A descriptive research design was used, 96 respondents who had received haemodialysis treatment after completion of 1 month duration of hemodialysis in two different teaching hospital at Bharatpur, Chitwan. Data was collected by using standard tool Short Form-36 version2 through face to face structure interview schedule. The objective of study is to find out the quality of life (QOL) of haemodialysis patients. Various test such as one sample t-test, ANOVA test, independent t-test, Kruskal-Wallis test and Mann-Whittney U test, Pearson’s correlation was applied. The findings showed that higher proportion of respondents were from 40-59 years (41.0%) and male (62.2%). The mean±SD was 57.45±16.25, 55.72±22.41 and 60.04±11.50 in overall QOL, physical and mental component summary respectively which was slightly above the average. All dimention and sub scale was satistically significant. Younger respondents had statistically significant with overall QOL (p<0.001) and physical component summary (p<0.001). Non diabetics had better in overall QOL (p=0.040) and physical component summary (p=0.033). Level of educational had also positive impact in overall QOL(p=0.010), physical (p=0.006) and mental component summary (p<0.001). Employment status (p=0.020) and sex (p=0.037) was also statistically significant with mental component summary. There was correlation between physical and mental component summary with overall QOL 0.970(p<0.001) and 0.698(p<0.001), and between the physical and mental component summary was 0.502(p<0.001). Below average score were seen in the general health (32.86±25.74) and vitality (41.53±13.98) sub scale. In order to improve quality of life family, physician, nurses and policy makers can use this finding.

scholarly journals Coping strategies predicting quality of life in diabetic and obese NAFLD patients

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
J Funuyet-Salas ◽  
A Martín-Rodríguez ◽  
M A Pérez-San-Gregorio ◽  
M Romero-Gómez
Keyword(s):  
Quality Of Life ◽  
Liver Disease ◽  
Coping Strategies ◽  
Physical Component Summary ◽  
Fatty Liver Disease ◽  
Mental Component Summary ◽  
Active Coping ◽  
Self Blame ◽  
Positive Reframing

Abstract Background To date, coping strategies have not been studied in patients with nonalcoholic fatty liver disease (NAFLD), despite evidence of their relevance in chronic liver pathology, Type 2 diabetes mellitus (T2DM) and obesity (OB). We therefore analyzed which coping strategies predicted quality of life in diabetic and obese NAFLD patients. Methods Four hundred and ninety-two biopsy-proven NAFLD patients (290 men and 202 women, mean age 54.90±11.74) were evaluated using The Brief COPE, 12-Item Short-Form Health Survey (SF-12) and Chronic Liver Disease Questionnaire-Non-Alcoholic Fatty Liver Disease (CLDQ-NAFLD). A stepwise multiple linear regression analysis was performed on four groups (G1, n = 335, absence of T2DM; G2, n = 157, presence of T2DM; G3, n = 249, absence of OB; and G4, n = 243, presence of OB) to analyze which coping strategies predicted patient quality of life (physical component summary SF-12, mental component summary SF-12, and total CLDQ-NAFLD). Results In both diabetic and obese patients, active coping (T2DM, p = 0.003, β = 0.26; OB, p = 0.000, β = 0.33) and denial (T2DM, p = 0.027, β=-0.19; OB, p = 0.004, β=-0.18) predicted the physical component summary. Denial (T2DM, p = 0.000, β=-0.30; OB, p = 0.001, β=-0.19), positive reframing (T2DM, p = 0.000, β = 0.28; OB, p = 0.000, β = 0.29), self-blame (T2DM, p = 0.000, β=-0.24; OB, p = 0.000, β=-0.26) and self-distraction (T2DM, p = 0.033, β=-0.13; OB, p = 0.023, β=-0.11) predicted the mental component summary. Denial (T2DM, p = 0.000, β=-0.34; OB, p = 0.000, β=-0.31), positive reframing (T2DM, p = 0.000, β = 0.30; OB, p = 0.005, β = 0.15) and self-blame (T2DM, p = 0.000, β=-0.26; OB, p = 0.000, β=-0.28) also predicted the total CLDQ-NAFLD in both groups. Conclusions Active coping and positive reframing predicted better quality of life, while denial, self-blame and self-distraction predicted worse quality of life in diabetic and obese NAFLD patients, suggesting the inclusion of coping strategies in future multidisciplinary NAFLD treatments. Key messages Importance of coping strategies for NAFLD patients: active coping and positive reframing predicted better quality of life, while denial, self-blame and self-distraction predicted worse quality. This study shows the need to design multidisciplinary strategies for managing NAFLD and improving patient quality of life, in which intervention in coping strategies should be a major element.

scholarly journals Impact of Anxiety and Depression on Quality of Life among Patients Undergoing Hemodialysis: A Scoping Review

2020 ◽  
Vol 2 (3) ◽  
pp. 14
Author(s):  
Fatima I. AlNashri ◽  
Hayfa H. Almutary ◽  
Elham A. Al Nagshabandi
Keyword(s):  
Quality Of Life ◽  
Scoping Review ◽  
Short Form ◽  
Hemodialysis Patients ◽  
Anxiety And Depression ◽  
Depression And Anxiety ◽  
Life Threatening ◽  
Anxiety Depression ◽  
The Impact

Context: Chronic kidney disease (CKD) is a life-threatening problem of global concern. Living with CKD is associated with many psychological problems, including depression and anxiety, which can directly or indirectly affect the quality of life. Only one review in the existing literature has assessed these associations among CKD patients using different dialysis modalities. However, the experience of these symptoms could be higher among patients on hemodialysis therapy. In this purview, there is a need to narrow the previous work to be more focused on hemodialysis patients. Aim: This scoping review aims to determine the gaps in the knowledge about the impact of anxiety and depression concerning QOL among people undergoing hemodialysis. Methods: The studies selected were those examined the relationships between depression or/and anxiety with quality of life in adult patients on hemodialysis. The CINAHL, MEDLINE, and Pub Med databases were searched for literature published between January 2012 and December 2019. The quality of the included studies was also apprised. Eleven studies met the inclusion criteria. Results: Six studies examined the impact of depression and anxiety on the quality of life. Five studies identified from the review have examined the relationships between depression and quality of life. It was established that the prevalence of anxiety and depression was high among hemodialysis patients, and the same was associated with low quality of life. Conclusion: The literature review highlights the negative associations between anxiety, depression, and quality of life among hemodialysis patients. It is, therefore, essential to screen hemodialysis patients frequently for anxiety and depression using a short-form questionnaire. This screening would allow for providing early interventions, and the potential deterioration of quality of life could be prevented. Further longitudinal studies are needed to assess these relationships. Additionally, further research is needed to determine effective interventional programs to improve the overall quality of life.

P1075CONTROL AND MONITORING OF DIAGNOSTIC AND TREATMENT PROCESS IN HEMODIALYSIS CLINIC USING TELEMEDICINE TOOLS

2020 ◽  
Vol 35 (Supplement_3) ◽  
Author(s):  
Dmitriy Zinovev ◽  
Vladimir Novitskiy ◽  
Andrey Malkoch
Keyword(s):  
Quality Of Life ◽  
Reaction Time ◽  
Medical Staff ◽  
Positive Impact ◽  
Hemodialysis Patients ◽  
Patient’S Satisfaction ◽  
Average Value ◽  
Patients Satisfaction ◽  
Number Of Patients

Abstract Background and Aims Quality of life of hemodialysis patients and adequacy of hemodialysis therapy in general, is defined by the number and duration of incidents during hemodialysis procedures. In this study we examined the effect of telemedical system for control and monitoring of hemodialysis procedures on patients’ condition and their quality of life. Method The system described in this work included: doctor/patient video call functionality initiated from both ends; functionality of hemodialysis procedure parameters and patient’s condition parameters monitoring and registration; functionality of alerting medical staff about registered incidents, functionality of visual control of hemodialysis procedure. The effect of control and monitoring system usage was studied on population of 2300 hemodialysis patients (at the start of the study) with median follow-up of 2 years. The primary end-point was doctor’s reaction time on patient’s complaint, medical staff reaction time on intradialysis hypertension incidents. Secondary end-points were: number of patients who left the clinic due to reasons besides lethality, patients’ satisfaction by hemodialysis therapy (according to survey), number of incidents of intradialysis and interdialysis hypertension. Results During the study we observed that as a result of system deployment average doctor’s reaction time on patient’s complaint (defined as the time from emergence of the complaint to start of patient/doctor communication) reduced from 8 to 1.5 minutes, average staff reaction time on intradialysis hypertension incidents (defined as time from registration of hypertension incident to start of blood pressure normalization actions) reduced from 5 to 2 minutes. Number of patients who left the clinic due to reasons besides lethality reduced from 2.5 per 100 patients before system deployment to 1.7 per 100 patients at the end of the study. Average value of patient’s satisfaction by dialysis therapy increased from 7.2 to 9.1 points on 10-point scale (according to survey conducted at the beginning and at the end of the study). By the end of the study, average number (across population) of hypertension incidents per month reduced from 8.3 to 6.2 and from 20.7 to 16.5 episodes for intradialysis and interdialysis hypertension correspondingly. Conclusion The use of telemedical tools of hemodialysis procedures control and monitoring has positive impact on patients’ satisfaction level by the dialysis procedure and on duration/frequency of incidents registered by these tools, which, in return may improve the quality of patient’s life.

scholarly journals Taking Charge after Stroke: A randomized controlled trial of a person-centered, self-directed rehabilitation intervention

2020 ◽  
Vol 15 (9) ◽  
pp. 954-964 ◽  
Author(s):  
Vivian Fu ◽  
Mark Weatherall ◽  
Kathryn McPherson ◽  
William Taylor ◽  
Anna McRae ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Randomized Controlled Trial ◽  
Physical Component Summary ◽  
Short Form ◽  
Controlled Trial ◽  
Short Form 36 ◽  
Randomized Controlled ◽  
Rehabilitation Intervention ◽  
Related Quality

Background and purpose “Take Charge” is a novel, community-based self-directed rehabilitation intervention which helps a person with stroke take charge of their own recovery. In a previous randomized controlled trial, a single Take Charge session improved independence and health-related quality of life 12 months following stroke in Māori and Pacific New Zealanders. We tested the same intervention in three doses (zero, one, or two sessions) in a larger study and in a broader non-Māori and non-Pacific population with stroke. We aimed to confirm whether the Take Charge intervention improved quality of life at 12 months after stroke in a different population and whether two sessions were more effective than one. Methods We randomized 400 people within 16 weeks of acute stroke who had been discharged to institution-free community living at seven centers in New Zealand to a single Take Charge session (TC1, n = 132), two Take Charge sessions six weeks apart (TC2, n = 138), or a control intervention (n = 130). Take Charge is a “talking therapy” that encourages a sense of purpose, autonomy, mastery, and connectedness with others. The primary outcome was the Physical Component Summary score of the Short Form 36 at 12 months following stroke comparing any Take Charge intervention to control. Results Of the 400 people randomized (mean age 72.2 years, 58.5% male), 10 died and two withdrew from the study. The remaining 388 (97%) people were followed up at 12 months after stroke. Twelve months following stroke, participants in either of the TC groups (i.e. TC1 + TC2) scored 2.9 (95% confidence intervals (CI) 0.95 to 4.9, p = 0.004) points higher (better) than control on the Short Form 36 Physical Component Summary. This difference remained significant when adjusted for pre-specified baseline variables. There was a dose effect with Short Form 36 Physical Component Summary scores increasing by 1.9 points (95% CI 0.8 to 3.1, p < 0.001) for each extra Take Charge session received. Exposure to the Take Charge intervention was associated with reduced odds of being dependent (modified Rankin Scale 3 to 5) at 12 months (TC1 + TC2 12% versus control 19.5%, odds ratio 0.55, 95% CI 0.31 to 0.99, p = 0.045). Conclusions Confirming the previous randomized controlled trial outcome, Take Charge—a low-cost, person-centered, self-directed rehabilitation intervention after stroke—improved health-related quality of life and independence. Clinical trial registration-URL http://www.anzctr.org.au . Unique identifier: ACTRN12615001163594

scholarly journals Validity of the Spanish 8-item Short-form Generic Health-related Quality-of-Life Questionnaire in Surgical Patients

2010 ◽  
Vol 112 (5) ◽  
pp. 1164-1174 ◽  
Author(s):  
Jordi Vallès ◽  
Magda Guilera ◽  
Zahara Briones ◽  
Carmen Gomar ◽  
Jaume Canet ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Component Summary ◽  
Short Form ◽  
Population Based ◽  
Life Questionnaire ◽  
Health Related Quality ◽  
Quality Of Life Questionnaire ◽  
Related Quality ◽  
Health Related

Background Health-related quality of life is usually reported for specific rather than heterogeneous populations such as those treated in routine anesthesia practice. The 8-item short-form generic health-related quality-of-life questionnaire (SF-8) is a candidate instrument for this setting. The authors evaluated the feasibility, reliability, validity, and responsiveness to change of the Spanish version of SF-8 in a population-based surgical cohort. Methods Recruiting patients from a large population-based study of risk factors for pulmonary complications, before surgery, the authors administered the 1-week recall SF-8 to 2,991 patients undergoing nonobstetric elective or emergency surgery in 59 hospitals, each of which collected data on seven randomly assigned days in 2006. The SF-8 was administered again 3 months later. Reliability was evaluated using the Cronbach alpha coefficient and validity by comparing physical and mental component summary SF-8 scores with clinical variables. Responsiveness after surgery was evaluated using the standardized response mean. Results Cronbach alpha for the overall test was 0.92. Physical and mental component summary scores and all individual scores were lower (worse quality of life) in women (P &lt; 0. 01) and decreased with age (P &lt; 0.01). Preoperative scores were lower for those in worse clinical condition (higher body mass index, American Society of Anesthesiologists physical status class, or surgical risk scores), with preoperative respiratory symptoms, and in emergency situations (P &lt; 0.01). The standardized response mean ranged from 0.1 to 0.5. Conclusions The SF-8 is a feasible, reliable, valid, and responsive instrument for assessing health-related quality of life in a broad-spectrum surgical population.

scholarly journals Educational supportive group therapy and the quality of life of hemodialysis patients

2020 ◽  
Vol 14 (1) ◽  
Author(s):  
Sajad Mansouri ◽  
Amir Jalali ◽  
Mahmoud Rahmati ◽  
Nader Salari
Keyword(s):  
Quality Of Life ◽  
Group Therapy ◽  
Short Form ◽  
Hemodialysis Patients ◽  
Control Group ◽  
Chronic Patients ◽  
Significant Difference ◽  
Supportive Group ◽  
Experimental Group

Abstract Background In addition to physical, mental, and social condition, ESRD and hemodialysis affect the quality of life of patients as well. Psychotherapy and non-pharmaceutical interventions are effective measures to add meaning to life, create a goal and motivation in life, and improve the quality of life in chronic patients. The effect of educational and supportive group therapy on the quality of life (QOL) of hemodialysis patients was examined. Methods The study was carried out as an interventional quasi-experimental study with the participation of 64 patients who were selected through convenience sampling and based on the patient’s hemodialysis days (Saturday, Monday, and Wednesday patients as an experimental group and Sunday, Tuesday, and Thursday patients as a control group). There were 32 patients in each group. The experimental group received eight 50 min sessions including two sessions per week. The control group received the normal interventions. The participants were assessed using a demographics form and Kidney Disease Quality of Life Short Form before, immediately after, and 1 month after the intervention. The collected data was analyzed using SPSS (v.24). Results The mean QOL scores of the experimental group before, immediately after, and 4 weeks after the intervention were 36.99, 43.3, and 44.9 respectively. Those of the control group were 36.39, 37.2, and 37.1 respectively. There was no significant difference between the two groups before the intervention (P > 0.05); however, the difference between the two groups was significant immediately after and 4 weeks after the intervention (P = 0.0001). The trend of score change in the experimental group was also significant (p < 0.05), and Tukey ad-hoc test showed significant differences between the scores before intervention and those immediately after and 4 weeks after the intervention (p < 0.05). Conclusion In general, educational and supportive group therapy can expand the interpersonal relationships of hemodialysis patients and positively affect their quality of life.

Two Sides of the Same Coin: The Positive and Negative Impact of Spiritual Religious Coping on Quality of Life and Depression in Dialysis Patients

2017 ◽  
Vol 36 (4) ◽  
pp. 332-340 ◽  
Author(s):  
Luciano Magalhães Vitorino ◽  
Renata de Castro e Santos Soares ◽  
Ana Eliza Oliveira Santos ◽  
Alessandra Lamas Granero Lucchetti ◽  
Jonas Preposi Cruz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Depressive Symptoms ◽  
Religious Coping ◽  
Depressive Symptomatology ◽  
Short Form ◽  
Hemodialysis Patients ◽  
Sf 36 ◽  
Two Sides

Background: Studies have shown that spiritual/religious beliefs are associated with mental health and health-related quality of life (HRQoL). However, few studies evaluated how spiritual/religious coping (SRC) could affect hemodialysis patients. Objectives: The present study investigated the role of SRC behaviors on HRQoL and depressive symptoms in hemodialysis patients. Design and Participants: This was cross-sectional study with 184 patients. Patients completed the Beck Depression Inventory, Brief SRC Scale, Medical Outcomes Study 36-Item Short-Form Health Survey (SF-36), and a Sociodemographic and Health Characterization Questionnaire. Results: From 218 patients, 184 (84.4%) were included (53.8% male with a median age of 55.9 years). Negative SRC, but not positive SRC, was associated with depressive symptoms. Positive SRC presented significant effects in SF-36 pain and physical and social functioning. On the other hand, negative SRC exhibited significant effects in SF-36 role emotional, energy/fatigue, pain, and physical functioning. Conclusion: SRC influences the mental health and HRQoL in Brazilian hemodialysis patients in two distinct ways. If used positively, it may have positive outcomes. However, if used negatively, it may lead to dysfunctional consequences such as greater depressive symptomatology and affect HRQoL. Health professionals must be aware of these “two sides of the same coin.”

scholarly journals Oral Health-Related Quality of Life of Greek Adults: A Cross-Sectional Study

2011 ◽  
Vol 2011 ◽  
pp. 1-7 ◽  
Author(s):  
William Papaioannou ◽  
Constantine J. Oulis ◽  
Demetra Latsou ◽  
John Yfantopoulos
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Rural Areas ◽  
Positive Impact ◽  
Short Form ◽  
Functional Limitation ◽  
Greek Language ◽  
The Impact ◽  
Greek Adults

Purpose. The aim of the present study was to investigate the impact of oral health status on the quality of life of adults in different regions of Greece, using the Oral Health Impact Profile-short form (OHIP-14).Methods. A random sample consisting of a total of 504 Greek adults between the ages of 35–44 years (mean 39.1 ± 3.5) was selected from different urban and rural areas, and face-to-face interviews were conducted using the validated Greek language OHIP-14. Associations of the total OHIP-14 score and its 7 sub-scales along with the self-perceived quality of life were evaluated with Spearman's correlations.Results. The subjects had an overall weighted OHIP-14 score of 1.1 (sd 1.9). No significant differences were found for either rural or non-metropolitan areas when compared to urban or metropolitan regions. High scores of above 2 were determined for functional limitation, physical pain, handicap, and the psychological discomfort scales. The education level of the subjects had a significant positive impact on the quality of life of the subjects.Conclusions. Dental and oral health conditions are factors that do impact on the quality of life of individuals.

scholarly journals Exercise programme to improve quality of life for patients with end-stage kidney disease receiving haemodialysis: the PEDAL RCT

2021 ◽  
Vol 25 (40) ◽  
pp. 1-52
Author(s):  
Sharlene A Greenwood ◽  
Pelagia Koufaki ◽  
Jamie H Macdonald ◽  
Catherine Bulley ◽  
Sunil Bhandari ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Kidney Disease ◽  
Usual Care ◽  
Physical Component Summary ◽  
Short Form ◽  
Physical Component Summary Score ◽  
Improve Quality ◽  
Maintenance Haemodialysis ◽  
Intradialytic Exercise

Background Whether or not clinically implementable exercise interventions in haemodialysis patients improve quality of life remains unknown. Objectives The PEDAL (PrEscription of intraDialytic exercise to improve quAlity of Life in patients with chronic kidney disease) trial evaluated the clinical effectiveness and cost-effectiveness of a 6-month intradialytic exercise programme on quality of life compared with usual care for haemodialysis patients. Design We conducted a prospective, multicentre randomised controlled trial of haemodialysis patients from five haemodialysis centres in the UK and randomly assigned them (1 : 1) using a web-based system to (1) intradialytic exercise training plus usual-care maintenance haemodialysis or (2) usual-care maintenance haemodialysis. Setting The setting was five dialysis units across the UK from 2015 to 2019. Participants The participants were adult patients with end-stage kidney disease who had been receiving haemodialysis therapy for > 1 year. Interventions Participants were randomised to receive usual-care maintenance haemodialysis or usual-care maintenance haemodialysis plus intradialytic exercise training. Main outcome measures The primary outcome of the study was change in Kidney Disease Quality of Life Short Form, version 1.3, physical component summary score (from baseline to 6 months). Cost-effectiveness was determined using health economic analysis and the EuroQol-5 Dimensions, five-level version. Additional secondary outcomes included quality of life (Kidney Disease Quality of Life Short Form, version 1.3, generic multi-item and burden of kidney disease scales), functional capacity (sit-to-stand 60 and 10-metre Timed Up and Go tests), physiological measures (peak oxygen uptake and arterial stiffness), habitual physical activity levels (measured by the International Physical Activity Questionnaire and Duke Activity Status Index), fear of falling (measured by the Tinetti Falls Efficacy Scale), anthropometric measures (body mass index and waist circumference), clinical measures (including medication use, resting blood pressure, routine biochemistry, hospitalisations) and harms associated with intervention. A nested qualitative study was conducted. Results We randomised 379 participants; 335 patients completed baseline assessments and 243 patients (intervention, n = 127; control, n = 116) completed 6-month assessments. The mean difference in change in physical component summary score from baseline to 6 months between the intervention group and control group was 2.4 arbitrary units (95% confidence interval –0.1 to 4.8 arbitrary units; p = 0.055). Participants in the intervention group had poor compliance (49%) and very poor adherence (18%) to the exercise prescription. The cost of delivering the intervention ranged from £463 to £848 per participant per year. The number of participants with harms was similar in the intervention (n = 69) and control (n = 56) groups. Limitations Participants could not be blinded to the intervention; however, outcome assessors were blinded to group allocation. Conclusions On trial completion the primary outcome (Kidney Disease Quality of Life Short Form, version 1.3, physical component summary score) was not statistically improved compared with usual care. The findings suggest that implementation of an intradialytic cycling programme is not an effective intervention to enhance health-related quality of life, as delivered to this cohort of deconditioned patients receiving haemodialysis. Future work The benefits of longer interventions, including progressive resistance training, should be confirmed even if extradialytic delivery is required. Future studies also need to evaluate whether or not there are subgroups of patients who may benefit from this type of intervention, and whether or not there is scope to optimise the exercise intervention to improve compliance and clinical effectiveness. Trial registration Current Controlled Trials ISRCTN83508514. Funding This project was funded by the National Institute for Health Research (NIHR) Health Technology Assessment programme and will be published in full in Health Technology Assessment; Vol. 25, No. 40. See the NIHR Journals Library website for further project information.

scholarly journals Examination of the quality of life according to the physical activity status of parents who have disabled individualEngelli bireye sahip ebeveynlerin fiziksel aktivite durumlarına göre yaşam kalitelerinin incelenmesi

2017 ◽  
Vol 14 (1) ◽  
pp. 724 ◽  
Author(s):  
Gizem Karakaş ◽  
Çetin Yaman
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Short Form ◽  
T Test ◽  
World Health ◽  
Activity Levels ◽  
Chi Square ◽  
World Health Organization Quality ◽  
Social Area

In this research it was aimed to examine of the quality of life according to physical activity status of parents who have disabled individual. In the study using the descriptive survey model, convenience sampling was used for the creation of the sample. The parents of 164 disabled individuals(132 mother; =40,5±8,90) ve 32 father; =46,21±9,74) who attended to various special education institutions in Sakarya province participated in the research. The children of the participating families have autism, mental, visual, hearing and physical disabilities. In this study, a Family Information Form, which was prepared by the researcher, was used to reach the demographic informations of parents. With the aim of measuring the quality of life in parents, World Health Organization Quality of Life-Bref Form (WHOQOL-BREF), which was adopted to Turkish by Eser and his friends (1999) and for measuring the level of physical activity of parents, International Physical Activity Questionnaire-Short Form (IPAQ), which was adoped to Turkish by Öztürk (2005) were used in the study. All data were collected by face-to-face interview technique. WHOQOL-BREF scale consists of 5 sub-dimensions including the physical area, psychological area, social area, environmental area and environmental TR area created by adding a question in Turkish adaptation and 27 questions. The Cronbach's alpha coefficient of physical area subscale is .77., psychological area subscale is .71, social area is .61, environmental area is .81 and environmental area Turkey is .78. IPAQ self-administered 'last 7 days' short form was used in this study. The form provides information on time spent on walking, moderate-severe and violent activities. The calculation of the total score of the short form is based on the sum of time (minutes) and frequency (days) (Öztürk, 2005). After the descriptive statistical processes had been applied in the  analysis of datas, an independent t-test and chi-square test to detect from which groups the differences between the groups originate. Data was evaluated by using SPSS for Windows 15 software.As a result, the fact that the quality of life parents who have disabled individual and doing sport was found to be at a higher level of those who have individual but not doing sport. In addition to this doing sport was detected to increase the quality of life parents who have a disabled individual. As a result, it is thought that the parents of physically active parents have higher quality of life and physical activity levels and as a result they will provide a better and healthier life for their children.Their families are thought to be the first step in raising awareness and guiding them in order to enable them to live as healthy families and to raise healthy individuals. ÖzetBu araştırmada, engelli bireye sahip ebeveynlerin fiziksel aktivite durumlarına göre yaşam kalitelerinin incelenmesi amaçlanmıştır. Tarama modeli kullanılan çalışmada, örneklemin oluşturulmasında kolayda örnekleme yönteminden yararlanılmıştır. Araştırmaya Sakarya ilinde çeşitli özel eğitim kurumlarına devam eden 164 engelli bireyin ebeveynleri (132 anne ve 32 baba) katılmıştır. Çalışmaya katılan ailelerin çocukları otizm, zihinsel, görme, işitme, bedensel engele sahiptirler. Kişilerin demografik bilgilerine ulaşma amaçlı araştırmacı tarafından hazırlanan aile bilgi formu, ebeveynlerin yaşam kalitesini ölçmeye yönelik Eser vd.’nin (1999) Türkçe’ye uyarladığı Dünya Sağlık Örgütü Yaşam Kalitesi Ölçeği-Kısa Formu (WHOQOL-BREF) ve ebeveynlerin fiziksel aktivite düzeylerini ölçmek için Öztürk’ün (2005) Türkçe’ye uyarladığı Uluslararası Fiziksel Aktivite Anketi-Kısa Form (IPAQ) kullanılmıştır. Tüm veriler yüz yüze görüşme tekniği ile toplanmıştır. WHOQOL-BREF ölçeği bedensel alan, ruhsal alan, sosyal alan, çevresel alan ve Türkçe’ye uyarlamada bir sorunun eklenmesiyle oluşturulan çevresel TR alan olmak üzere toplam 5 alt boyuttan ve 27 sorudan oluşmaktadır. Alt boyutlara ait iç tutarlılık katsayıları sırasıyla, .77, .71, .61, .81, .78 olarak tespit edilmiştir. IPAQ ölçeği yürüme, orta-şiddetli ve şiddetli aktivitelerde harcanan zaman hakkında bilgi vermektedir ve skorunun hesaplanması süre (dakika) ve frekans (gün) toplamından yapılmaktadır. Elde edilen verilerin analizinde betimsel istatistiksel işlemler uygulandıktan sonra, değişkenler arası farklılıkları ölçmek amacıyla independent samples t-test ve ki-kare testi yapılmıştır. Veriler SPSS 15.0 programında değerlendirilmiş ve anlamlılık düzeyi olarak 0.05 kullanılmıştır. Analiz sonuçları incelendiğinde, fiziksel aktivite yapan engelli bireye sahip ebeveynlerin bedensel alan hariç tüm alanlarının ve fiziksel aktivite düzeylerinin fiziksel aktivite yapmayanlardan yüksek olduğu bulunmuştur. Dolayısıyla fiziksel aktivitenin ruhsal, sosyal, çevresel yaşam kalitesini olumlu yönde etkilediği ve fiziksel aktivitenin engelli bireye sahip ebeveynlerin yaşam kalitesini yükselttiği söylenebilir. Sonuç olarak, fiziksel aktivite yapan ebeveynlerin yaşam kalitelerinin ve fiziksel aktivite düzeylerinin daha yüksek olduğu buna bağlı olarak da çocukları için daha güzel ve sağlıklı bir yaşam sunabilme imkânları olacağı düşünülmektedir. Aileleri bu konuda bilinçlendirmek ve yönlendirmek onların daha sağlıklı aileler olarak yaşamasına ve sağlıklı bireyler yetiştirmesine imkân sağlamak için atılması gereken ilk adım olarak düşünülmektedir.

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