scholarly journals Life stories of caregivers looking after a child with autism in Vietnam

2020 ◽  
Vol 4 (2) ◽  
pp. 177-194
Author(s):  
Dung Thi Nguyen ◽  
Keyword(s):  
Life Stories ◽  
Life Story ◽  
Comparative Method ◽  
Research Strategies ◽  
Daily Lives ◽  
Psychological Consultation ◽  
Life Story Interview ◽  
Wide Range ◽  
Constant Comparative Method ◽  
Depth Interviews

This study aimed to explore how autistic children form the lives of people who were raising them through life stories shared by caregivers. The research participants included 11 Vietnamese caregivers who were taking care of children diagnosed with autism. A preliminary interview prior to the study was conducted to determine caregivers who would participate in the research and in-depth interviews were carried out with volunteer caregivers. To determine aspects of life stories that shape caregivers’ lives, the study implemented the "Life Story Interview" list. Grounded theory and the constant comparative method, effective research strategies were used to collect and analyze the data. Interviews were conducted in the Vietnamese language. As a result, 6 broad categories of themes were identified related to caregivers’ life stories: (1) psychological consultation, (2) emotions, (3) worries, (4) duties, (5) essential virtues, and (6) hopes. Analyses exposed that although caregivers whose children were autistic underwent a wide range of challenges in their daily lives and had concerns for the future of children, they did a big shot to reorganize their family lives, required themselves highly, and never stopped hoping for a better life.

scholarly journals Life Stories of Parents with Autistic Children

2018 ◽  
Vol 6 (3) ◽  
pp. 26
Author(s):  
Oya Onat Kocabıyık ◽  
Yeşim Fazlıoğlu
Keyword(s):  
Life Stories ◽  
Life Story ◽  
Children With Autism ◽  
Coping Skill ◽  
Autistic Children ◽  
Daily Lives ◽  
Life Story Interview ◽  
The Family ◽  
Using Data ◽  
Depth Interviews

The major aim of this study was to determine how children diagnosed with autism shapes their parents’ lives by specifying parents’ life stories. The study group consisted of 10 parents who have children with autism. Parents who have participated in the study were determined through a preliminary interview prior to the study and in-depth interviews were conducted with volunteer parents. In the study, "Life Story Interview" list was implemented to examine the content of life stories that shape parents’ lives. The data obtained from the research were analyzed using data analysis phases of interpretative phenomenology which is one of the qualitative research models. By analyzing the data obtained in the research, 10 major themes emerged. These major themes include; diagnosis, feeling, hopes and plans, concerns and questions, social reactions / stigmatization, parenting roles, coping with, sensitivity to disease, meaning of life and development. Analyses revealed that parents with autistic children undergo through a wide variety of emotions, challenges and difficulties during their daily lives and also that good coping skill is the key to normal functioning within the family which had an autistic child.

scholarly journals The Obstacles that Parents Encountered when Taking Children to Psychological Clinic in Vietnam

2020 ◽  
Vol 1 (2) ◽  
pp. 151-156
Author(s):  
Nguyen Thi Dung
Keyword(s):  
Data Analysis ◽  
Life Stories ◽  
Life Story ◽  
Financial Problems ◽  
Research Participants ◽  
Life Story Interview ◽  
Psychological Examination ◽  
Interpretative Phenomenology ◽  
Depth Interviews

This study aimed to explore difficulties that parents faced when bringing their children to psychological examination in Vietnam through their life stories. The research participants included 5 fathers and 3 mothers having children diagnosed with autism. A preliminary interview prior to the study and in-depth interviews were carried out with their voluntariness. To collect and analyze the data, "Life Story Interview" list was implemented, data analysis phases of interpretative phenomenology was used in this study. As a result, key problems that parents met on this tough journey so that their children could be examined were (1) financial problems, (2) tiredness, and (3) unexpected behaviors of the children. Analyses showed that despite the challenges, parents tried their best in order to know exactly the name of their children’s problem.

The Experience of Occupational Disruption among Student Musicians

2007 ◽  
Vol 22 (4) ◽  
pp. 140-146 ◽  
Author(s):  
Shannon McCready ◽  
Denise Reid
Keyword(s):  
Health Care Providers ◽  
Sense Of Belonging ◽  
Qualitative Data ◽  
Comparative Method ◽  
Theory Approach ◽  
Care Providers ◽  
Constant Comparative Method ◽  
Grounded Theory Approach ◽  
Depth Interviews ◽  
Major Occupation

Student musicians frequently need to take breaks from playing their instruments because of physical playing-related injuries, yet little is known about their experiences with these occupational disruptions. We conducted a qualitative study that explored student musicians' lived experiences with unplanned disruptions stemming from engagement in their major occupation of playing an instrument. In-depth interviews with seven student musicians who attended either a special arts high school or a university were conducted. Consistent with a grounded theory approach to qualitative research, the constant comparative method of qualitative data analysis was implemented. A major finding related to the theme of “being and becoming,” where student musicians expressed a strong sense of belonging to a group of other like musicians who they learned from, relied on for support, and created music with. Another theme was motivation to excel, where students expressed a strong desire and motivation to improve and master their instrument. Occupational tensions and pressures emerged as another theme. Students were aware of the need to practice and the need to care for their bodies. A constant negotiation was required in which students struggled to find a good balance between the need to practice and to respect their bodies while maintaining an identity of a musician. These findings are discussed in relation to how health care providers and educators need to understand the demands and stresses associated with playing an instrument so that they can better support these young musicians.

Engagement valence duality and spillover effects in online brand communities

2017 ◽  
Vol 27 (4) ◽  
pp. 877-897 ◽  
Author(s):  
Jana Lay-Hwa Bowden ◽  
Jodie Conduit ◽  
Linda D. Hollebeek ◽  
Vilma Luoma-aho ◽  
Birgit Apenes Solem
Keyword(s):  
Comparative Method ◽  
Spillover Effect ◽  
Spillover Effects ◽  
Consumer Engagement ◽  
Content Type ◽  
Brand Communities ◽  
Brand Engagement ◽  
Online Brand Communities ◽  
Constant Comparative Method ◽  
Depth Interviews

Purpose Online brand communities (OBCs) are an effective avenue for brands to engage consumers. While engaging with the brand, consumers simultaneously interact with other OBC members; thus engaging with multiple, interrelated engagement objects concurrently. The purpose of this paper is to explore both positively and negatively valenced consumer engagement with multiple engagement objects, the interplay between these, and the spillover effect from consumers’ engagement with the OBC to their engagement with the brand. Design/methodology/approach Drawing on 16 in-depth interviews with OBC members of a luxury accessory brand, a constant comparative method was adopted using axial and selective coding procedures. The objective was to understand the nature of participants’ engagement with the brand, the OBC, and the interplay between individuals’ engagement with these objects. The coding framework and resultant interpretive frameworks address engagement valence, outcomes, and direction. Findings This study illustrates consumer expressions of consumers’ positively and negatively valenced engagement with a focal brand, and with the OBC. Further, it demonstrates the interplay (spillover effect) that occurs between consumers’ engagement with the OBC, to their engagement with the brand. While the existence of positively valenced engagement with the OBC was found to further enhance consumer brand engagement (i.e. reflecting an engagement accumulation effect), negatively valenced engagement with the OBC was found to reduce consumer brand engagement (i.e. reflecting an engagement detraction effect). Originality/value While consumer engagement has been recognized to have both positive and negative manifestations, this study demonstrates that consumers’ engagement valence may differ across interrelated engagement objects (i.e. the brand and the OBC). Further, we demonstrate the existence of engagement spillover effects from the OBC to the brand for both positively and negatively valenced engagement.

scholarly journals Making soft intelligence hard: a multi-site qualitative study of challenges relating to voice about safety concerns

2018 ◽  
Vol 27 (9) ◽  
pp. 710-717 ◽  
Author(s):  
Graham P Martin ◽  
Emma-Louise Aveling ◽  
Anne Campbell ◽  
Carolyn Tarrant ◽  
Peter J Pronovost ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Comparative Method ◽  
Employee Voice ◽  
Senior Leaders ◽  
Speaking Up ◽  
Academic Hospitals ◽  
Wide Range ◽  
Constant Comparative Method ◽  
Organisational Intervention

BackgroundHealthcare organisations often fail to harvest and make use of the ‘soft intelligence’ about safety and quality concerns held by their own personnel. We aimed to examine the role of formal channels in encouraging or inhibiting employee voice about concerns.MethodsQualitative study involving personnel from three academic hospitals in two countries. Interviews were conducted with 165 participants from a wide range of occupational and professional backgrounds, including senior leaders and those from the sharp end of care. Data analysis was based on the constant comparative method.ResultsLeaders reported that they valued employee voice; they identified formal organisational channels as a key route for the expression of concerns by employees. Formal channels and processes were designed to ensure fairness, account for all available evidence and achieve appropriate resolution. When processed through these formal systems, concerns were destined to become evidenced, formal and tractable to organisational intervention. But the way these systems operated meant that some concerns were never voiced. Participants were anxious about having to process their suspicions and concerns into hard evidentiary facts, and they feared being drawn into official procedures designed to allocate consequence. Anxiety about evidence and process was particularly relevant when the intelligence was especially ‘soft’—feelings or intuitions that were difficult to resolve into a coherent, compelling reconstruction of an incident or concern. Efforts to make soft intelligence hard thus risked creating ‘forbidden knowledge’: dangerous to know or share.ConclusionsThe legal and bureaucratic considerations that govern formal channels for the voicing of concerns may, perversely, inhibit staff from speaking up. Leaders responsible for quality and safety should consider complementing formal mechanisms with alternative, informal opportunities for listening to concerns.

scholarly journals Exploring underexposed stories: the experienced lifecourse of financially excluded older adults

2019 ◽  
pp. 1-22 ◽  
Author(s):  
Sofie Van Regenmortel ◽  
An-Sofie Smetcoren ◽  
Sara Marsillas ◽  
Deborah Lambotte ◽  
Bram Fret ◽  
...  
Keyword(s):  
Older Adults ◽  
Coping Strategies ◽  
Quantitative Research ◽  
Life Stories ◽  
Life Story ◽  
Classical Education ◽  
Cultural Life ◽  
Life Story Interview ◽  
Individualised Care ◽  
Uncertain Future

AbstractTo gain insights into vulnerable lifecourses and give a voice to those often underrepresented in quantitative research, this study examines the life stories (past, present and future) of 19 financially excluded older adults using an adapted version of McAdams’ life-story interview scheme. Although these life stories demonstrate an accumulation of many disadvantages and an uncertain future because of current financial situations, the stories also reflect the generativity, resilience, coping strategies and agency of financially excluded older adults. We demonstrate how the experienced lifecourse is built around both negative and positive turning points and transitions which go beyond the classical education–work–retirement triumvirate, and how socio-cultural life scripts are used as a framework to build one's own life story in order to achieve continuity. The discussion highlights the potential for deploying the life-story method as a qualitative resource for providing individualised care.

scholarly journals What Do You Want Us to Know?: Learning From Life Stories to Improve Veterans’ Healthcare Experiences

2022 ◽  
Vol 9 ◽  
pp. 237437352110698
Author(s):  
Miriam Rosen ◽  
Breanna A. Nguyen ◽  
Susheel Khetarpal ◽  
Gaetan Sgro
Keyword(s):  
Military Service ◽  
Life Stories ◽  
Life Story ◽  
Healthcare Providers ◽  
Economic Disadvantage ◽  
Veterans Health ◽  
Health Administration ◽  
Civilian Life ◽  
Life Story Interview ◽  
Healthcare Experiences

My Life My Story (MLMS) is a national Veterans Health Administration (VA) life story interview program that aims to provide more humanistic care for veterans by focusing on the patient as a person. Our project took place at the Pittsburgh VA Healthcare System and had 3 main goals: (1) describe themes that emerge in MLMS interviews from the prompting question, what do you want your healthcare provider to know about you?; (2) identify topics of importance to veterans and suggest ways for healthcare providers to explore them; and (3) foster a culture at the Pittsburgh VA that places not only the health but also the personal triumphs, hardships, and aspirations of veterans at the center. Veterans provided verbal consent to have their previously recorded stories used in this study. Stories were coded and then analyzed for patterns and themes. A total of 17 veterans participated in our study. Themes that emerged from the stories include (1) Early Hardships; (2) Economic Disadvantage; (3) Polaroid Snapshots; (4) Around the World; (5) Haunted by Combat; (6) Life-altering Moments; (7) Homecoming; (8) Romantic Beginnings & Obstacles; (9) Inequity across Gender & Race; and (10) Facing Mortality. This study's findings underscore the need to address the traumas associated with military service, as well as the challenges faced with re-integration into civilian life, when working with veterans. The MLMS interviews explored in this study can help clinicians identify topics of importance to veterans, strengthen their relationships with their patients, and improve the care that veterans receive.

scholarly journals Links Between Life Stories and Identity Profiles in Emerging Adults From Georgia

2017 ◽  
Vol 6 (6) ◽  
pp. 422-433 ◽  
Author(s):  
Nino Skhirtladze ◽  
Nino Javakhishvili ◽  
Seth J. Schwartz ◽  
Koen Luyckx
Keyword(s):  
Identity Development ◽  
Identity Formation ◽  
Emerging Adults ◽  
Personal Identity ◽  
Life Stories ◽  
Life Story ◽  
Case Examples ◽  
Life Story Interview ◽  
Dual Cycle ◽  
Quantitative And Qualitative Methods

In this study, we examine personal identity formation using two approaches: a dual-cycle model of identity development and a narrative life-story model. We used quantitative and qualitative methods for studying personal identity: Luyckx et al.’s Dimensions of Identity Development Scale and D. P. McAdams’ life-story interview. Using six cases selected from a sample of 62 Georgian emerging adults, we illustrate how identity profiles created using six identity dimensions (exploration in breadth, commitment-making, identification with commitment, reflective exploration in depth, reconsideration of commitment, and ruminative exploration) are reflected in life stories depicting participants’ paths toward identity commitments and their ideas about the future and life themes. This article demonstrates how identity dimensions are connected to the context and how this connection is manifested in their life stories. The research illustrates theoretical exemplification by case studies and exemplifies the manifestation of dual-cycle identity development theorizing in case examples through narratives.

scholarly journals THE PRINCIPALS’ EFFORTS IN FACILITATING THE FREEDOM TO LEARN BY ENHANCING COMMUNITY PARTICIPATION IN INDONESIA

2021 ◽  
Vol 40 (1) ◽  
pp. 196-207
Author(s):  
Maisyaroh Maisyaroh ◽  
Juharyanto Juharyanto ◽  
Ibrahim Bafadal ◽  
Bambang Budi Wiyono ◽  
Nova Syafira Ariyanti ◽  
...  
Keyword(s):  
Community Participation ◽  
Role Models ◽  
Comparative Method ◽  
Community Empowerment ◽  
Educational Institutions ◽  
The Social ◽  
Constant Comparative Method ◽  
The Republic ◽  
Depth Interviews ◽  
Case Data

The latest ‘freedom to learn’ policy, issued by the Minister of Education and Culture of the Republic of Indonesia, must be implemented by educational institutions at various levels. The principals played significant roles such as community empowerment to utilize all resources in the schools to support the policy. The research aimed to describe the principals’ efforts in improving community participation in the school and to describe the social involvement in facilitating the freedom to learn at schools. This study employed a qualitative approach with a multi-case research design, and it was conducted in Indonesia, particularly in Tana Tidung Regency in North Kalimantan, Bondowoso Regency in East Java, and Malang City in East Java. The data collection techniques included in-depth interviews and document studies, and to validate the data used a credibility technique. The data validation through the credibility technique was carried out by conducting triangulation, checking members, and improving the persistence and adequacy of reference materials. The cross-case data analysis in this study applied a constant comparative method. The analysis was conducted in all three cases resulted in the provisional findings, continued by data comparison that would later be found by the three cases. The results of this research were the principals’ efforts in enhancing community participation through cooperation with several related parties. The principals were regarded as role models in supporting the ‘freedom to learn’ policy and building cooperation with related partners. The kind of community participation varied based on the uniqueness of each region.

scholarly journals Adjusting the family’s life: A grounded theory of caring for children with special healthcare needs in rural areas, Thailand

PLoS ONE ◽  
2021 ◽  
Vol 16 (10) ◽  
pp. e0258664
Author(s):  
Katemanee Moonpanane ◽  
Salisa Kodyee ◽  
Chomnard Potjanamart ◽  
Eva Purkey
Keyword(s):  
Grounded Theory ◽  
Health Care Professionals ◽  
Rural Areas ◽  
Comparative Method ◽  
Negative Effects ◽  
Disease Trajectory ◽  
Healthcare Needs ◽  
Constant Comparative Method ◽  
Emergent Theory ◽  
Depth Interviews

This study aims to understand the experiences of families of children with special healthcare needs in rural areas in Thailand. Grounded theory (GT) was employed to understand families’ experiences when caring for children with special healthcare needs (CSHCN) in rural areas. Forty-three family members from thirty-four families with CSHCN participated in in-depth interviews. Interviews were recorded and transcribed. The constant comparative method was used for data analysis and coding analysis. Adjusting family’s life was the emergent theory which included experiencing negative effects, managing in home environment, integrating care into a community health system, and maintaining family normalization. This study describes the process that families undergo in trying to care for CSHCN while managing their lives to maintain a sense of normalcy. This theory provides some intervention opportunities for health care professionals when dealing with the complexities in their homes, communities and other ambulatory settings throughout the disease trajectory, and also indicates the importance of taking into consideration the family’s cultural background.

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