scholarly journals A Study on the Life Experiences of Adolescents Who Grew up with Younger Siblings with Developmental Disabilities: Focusing on Phenomenological Analysis Methods

2021 ◽  
Vol 11 (6) ◽  
pp. 798
Author(s):  
Sunwon Park ◽  
Wonjung Ryu ◽  
Hyerin Yang
Keyword(s):  
Developmental Disabilities ◽  
Life Experiences ◽  
Phenomenological Research ◽  
Phenomenological Analysis ◽  
Developmentally Disabled ◽  
Persons With Disabilities ◽  
The Family ◽  
The Disabled ◽  
High Level ◽  
Depth Interviews

This study aims to explore specific life experiences and what it means to “live as a sibling of a disabled person”, by focusing on the brothers and sisters of persons with disabilities; this is a cohort that has been relatively marginalized in the field of welfare for the disabled. To this end, the author conducted 1:1 in-depth interviews with four adolescents who grew up with younger siblings who have developmental disabilities, and analyzed the meaning underlying their life experiences through phenomenological research methods. As a result, a total of five core themes of those life experiences were identified: (1) the birth of a disabled younger sibling, wherein their trials began; (2) surviving differentiation within the family; (3) ambivalence toward parents; (4) adolescence, with resurfaced psychological conflicts and relieving emotions; and (5) a future to be planned around a life of coexisting with disabled siblings. This study aims to provide basic data for social welfare intervention through an illuminating and deeper understanding of the lives of siblings of the developmentally disabled who require a high level of care.

scholarly journals Life Experiences which Shape Dual Roles of Indonesian Women

2018 ◽  
Vol 6 (07) ◽  
Author(s):  
Christina Ekawati ◽  
Ma’ruf Akbar ◽  
Yetti Supriati
Keyword(s):  
Women Entrepreneurs ◽  
Interpretative Phenomenological Analysis ◽  
Life Experiences ◽  
Deep Understanding ◽  
Phenomenological Research ◽  
Phenomenological Analysis ◽  
Dual Roles ◽  
The Family ◽  
Phenomenological Research Method ◽  
Depth Interviews

This study aims to gain a deep understanding of life experiences of the Indonesian women entrepreneur and educator figures in carrying out their dual roles by applying phenomenological research method. Research participants were Indonesian women figures who are not only considered success in their profession but also in family life, which make them being recognized by the society. Drawing on data collected from semi-structured in-depth interviews supported by an examination of documents and observation. Using interpretative phenomenological analysis, the findings in this study explore that the experience of life in their family, school, and the community before their marriage form dual roles of women entrepreneurs and educators figures. Meanwhile, the experiences of having variety of roles in the family, workplace, and society environment form the dual roles of women figures in this study after their marriage. Based on the results of this study suggests, among others, the importance of giving a woman a chance to study both formal and non formal even after she married. This study is limited to the women figures who work as an entrepreneur and an educator. So that research on women figures in other professions is very recommended.  

scholarly journals Disability and work intensity in Italian households

2021 ◽  
Author(s):  
Elena Calegari ◽  
Enrico Fabrizi ◽  
Chiara Mussida
Keyword(s):  
Labour Market ◽  
Social Services ◽  
Family Relationship ◽  
Market Participation ◽  
Work Intensity ◽  
Persons With Disabilities ◽  
Labour Market Participation ◽  
The Family ◽  
Welfare Systems ◽  
The Disabled

AbstractThe 2030 Agenda of the United Nations clearly sets the inclusion of persons with disabilities in the labour market as a main goal. However, especially in care welfare systems characterized by a low level of social services, disability not only impacts the labour market participation of disabled people themselves but may also affect the labour opportunities of other members of their household. Using EU-SILC data to compute individual work intensity-as a better measure of the actual level of labour attainment-this paper aims to disentangle direct and indirect correlations between disability and labour market participation in Italian households. In confirming the negative direct correlation between disability and labour market participation, the results also show a negative indirect correlation that depends on the family relationship between the disabled person and household members.

Businesses, nonprofits and strategic bridging: the case of workforce integration in Israel

2017 ◽  
Vol 12 (2) ◽  
pp. 121-135 ◽  
Author(s):  
Hagai Katz ◽  
Uzi Sasson
Keyword(s):  
Developmental Disabilities ◽  
Nonprofit Organizations ◽  
Social Services ◽  
Actor Network Theory ◽  
Intellectual And Developmental Disabilities ◽  
Persons With Disabilities ◽  
Content Type ◽  
Workforce Integration ◽  
The Relationship ◽  
Depth Interviews

Purpose Many social services today are provided through solutions that require interaction between nonprofits and business. The purpose of this study is to examine the nature of the relationship between the different players in such mixed markets. One such market is workforce integration programs for persons with disabilities. The authors studied the relationships and interactions between collaborating nonprofits and business firms within the context of actor–network theory (ANT) by examining the process of workforce integration. Design/methodology/approach The study included in-depth interviews and questionnaires with 47 managers of employers that were hiring persons with intellectual and developmental disabilities, as well as in-depth interviews with ten senior managers in five nonprofit organizations involved in work integration of persons with intellectual and developmental disabilities. The interview data were analyzed using qualitative thematic analysis and content analysis. Findings The authors found an intricate relationship between employers and nonprofits promoting workforce integration. While it seemed that both players were involved in different and complementary aspects and phases of the integration process, the relationship revealed complicated power relations, interdependencies and imbalanced collaborative patterns, resulting in relatively symmetric relations, known as strategic bridging. Practical implications Business compliance with workforce integration depends on continued support by nonprofit services. Social implications Findings are essential for promoting workforce integration, and policies need to support the role of nonprofit services. Originality/value The study highlights the co-dependence between nonprofits and businesses, contrary to common views that nonprofits are dependent on businesses.

scholarly journals IMPLEMENTASI AKSESIBILITAS FASILITAS PUBLIK BAGI PENYANDANG DISABILITAS

2021 ◽  
Vol 10 ◽  
Author(s):  
Jane Kartika Propiona
Keyword(s):  
Public Service ◽  
Research Method ◽  
People With Disabilities ◽  
Social Awareness ◽  
Persons With Disabilities ◽  
Public Facilities ◽  
Physical Infrastructure ◽  
High Level ◽  
Depth Interviews ◽  
Service Theory

<p class="AbstractText"><em>People with disabilities</em><em> </em><em>in their lives still experience various</em><em> </em><em>obstacles that come from their environment. The lack of opportunities given to them leads to</em><em> </em><em>limited access in meeting their needs,both as individuals and as part of citizens. As a result, the participation of people with disabilities in the community becomes low so</em><em> </em><em>that it is only considered as a burden and as an object of compensation (charity) so that in the end the creation of social   exclusion in society. Since the state ratified the Convention on The Rights of Person with Disabilities and contained it into Law No. 19 of</em><em> </em><em>2011</em><em> </em><em>it is expected that social awareness about people with disabilities begins to   grow. One of the areas that</em><em> </em><em>also adopted is Jakarta Province through Regulation No. 10 of 2011 on The Protection of Persons with Disabilities.     The number of people with disabilities in Jakarta in 2019 as many as 14,459 people. The high level of mobilization in Jakarta should also be balanced with the fulfillment of accessibility of public facilities for</em><em> </em><em>all its citizens without exception.</em><em> </em><em>The availability of physical infrastructure that is friendly for people with disabilities can improve their capabilities.</em><em> This research aims to see how to fulfill the accessibility of public facilities for people with    disabilities in Jakarta through Regulation No.</em><em> </em><em>10 </em><em>of 2011. The research method used is descriptive qualitative</em><em> </em><em>by using inclusive public service theory, and accessibility theory.</em><em> </em><em>While</em><em> collecting the data through observations, in depth interviews and literature studies. </em></p><p> </p><p><strong><em>Keywords</em></strong><strong><em>: </em></strong><strong><em>Accessibility, Public Facilities, Implementation, Persons With Disabilities.</em></strong><strong><em></em></strong></p><p><strong><em> </em></strong></p><h2>Abstrak</h2><p class="AbstractText">Penyandang disabilitas dalam kehidupannya masih mengalami berbagai hambatan yang berasal dari lingkungannya. Minimnya kesempatan yang diberikan kepada mereka menyebabkan mengalami keterbatasan akses dalam pemenuhan kebutuhannya, baik yang menyangkut sebagai individu maupun sebagai bagian dari warga negara. Akibatnya, partisipasi penyandang disabilitas di tengah masyarakat menjadi rendah sehingga hanya dianggap sebagai beban dan sebagai obyek santunan (<em>charity</em>) sehingga pada akhirnya terciptanya eksklusi sosial dimasyarakat. Sejak negara turut meratifikasi CRPD (<em>Convention on The Rights of Person with Disabilities</em>) dan memuatnya ke dalam Undang-Undang Nomor 19 Tahun 2011 diharapkan <em>social awareness </em>tentang penyandang disabilitas mulai tumbuh. Salah satu daerah yang turut mengadopsi adalah Provinsi DKI Jakarta melalui Perda Nomor 10 Tahun 2011 tentang Perlindungan Penyandang Disabilitas.  Jumlah penyandang disabilitas di DKI Jakarta tahun 2019 sebanyak 14.459 jiwa. Tingginya tingkat mobilisasi di DKI Jakarta sepatutnya turut diimbangi dengan pemenuhan aksesibilitas fasilitas publik bagi semua warganya tanpa terkecuali.  Ketersediaan infrastruktur fisik yang ramah bagi penyandang disabilitas dapat meningkatkan kapabilitasnya. Penelitian ini mempunyai tujuan untuk melihat bagaimana pemenuhan aksesibilitas fasilitas publik bagi penyandang disabilitas di DKI Jakarta melalui Perda Nomor 10 Tahun 2011. Metode penelitian yang dipergunakan adalah deskriptif kualitatif dengan menggunakan teori pelayanan publik inklusif, dan teori aksesibilitas.  Sedangkan pengumpulan datanya melalui observasi, wawancara <em>indepth</em> dan studi kepustakaan. Penelitian menunjukkan bahwa implementasi perda terkait fasilitas publik bagi penyandang disabilitas masih belum optimal. Masih ditemukannya fasilitas publik yang belum ramah dan tidak dapat diakses oleh penyandang disabilitas.</p><p> </p><p><strong>Kata </strong><strong>K</strong><strong>unci: </strong><strong>Aksesibilitas</strong><strong>, </strong><strong>Fasilitas Publik</strong><strong>,</strong><strong> Implementasi</strong><strong>,</strong><strong> Penyandang Disabilitas</strong><strong>.</strong><strong><em></em></strong></p>

scholarly journals CREATION OF COMPASSION" - FAMILY EXPERIENCE IN CARING FOR PATIENT WITH MENTAL DISORDERS

2021 ◽  
Vol 13 (2) ◽  
Author(s):  
Nining Wuri Lestari ◽  
Setyawati Soeharto ◽  
Dwi Windarwati
Keyword(s):  
Qualitative Research ◽  
Mental Disorders ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Approach ◽  
Structured Interview ◽  
Phenomenological Analysis ◽  
Family Experience ◽  
Family Experiences ◽  
The Family ◽  
Depth Interviews

Background: Caring for people with post-pasung (post seclusion and restraint of patient) mental disorders can provide special experience for families who act as caregivers. Objective: To explore family experiences in rehabilitating people with post-pasung mental disorders in Trenggalek Regency. Methods: This research is a qualitative research with an interpretive phenomenological approach. Data were obtained through in-depth interviews using semi-structured interview guidelines. Participants in this study were twelve in number who treated people with post-pasung mental disorders in Trenggalek Regency. Results: Analysis of data using IPA (Interpretative Phenomenological Analysis), found eight themes, namely having compassion for patients, having the responsibility of caring for patients, repaying the kindness of patients and others who have helped, having the hope that patients can recover, feel the need to supervise the independence of patients, realize the condition of mental patients, resigned to accept, thankful that the patient can improve and upset. Conclusion: Family is a determinant of the success of rehabilitation in people with post-pasung mental disorders. Family compassion and attention support the patient's recovery. The family hopes that the patient can recover and be independent in self-care, take medicine and work so that it does not depend on the family. This study produced eight themes and answered the research objectives.

INTERPRETATIVE PHENOMENOLOGICAL ANALYSIS TO EXPLORE FATHERS’ EXPERIENCE WITH A CHILD IN PALLIATIVE CARE

2019 ◽  
Vol 7 ◽  
pp. 163
Author(s):  
Juris Zuitiņš ◽  
Anita Pipere ◽  
Velga Sudraba
Keyword(s):  
Health Psychology ◽  
Palliative Care ◽  
Interpretative Phenomenological Analysis ◽  
Life Experiences ◽  
Single Case ◽  
Phenomenological Research ◽  
Phenomenological Analysis ◽  
Health And Disease ◽  
Father's Experience ◽  
Methodological Aspects

Phenomenological research is commonly used worldwide in the field of health psychology to describe and explain the unique life experiences of health and disease. In Latvia, the phenomenological research in health psychology has not been performed yet. In this study, the methodological aspects of interpretative phenomenological analysis applied to explore the experience of fathers with a child in palliative care will be exemplified. The paper particularly aims to analyze the steps of interpretative phenomenological analysis applied during the study of one father’s experience. A single case will be presented detailing the disclosure of father’s experience and reflection on the process of interpretive phenomenological analysis on interview data. Conclusions in terms of the methodological aspects of interpretative phenomenological analysis will be provided.

Specialized Foster Care as System Approach, Deinstitutionalization of Social Protection in Case of Adults with Developmental Difficulties in the Republic of Srpska – a Case Stady

2017 ◽  
Vol 3 (1) ◽  
pp. 15
Author(s):  
Andrea Rakanović Radonjić ◽  
Ljubo Lepir
Keyword(s):  
Foster Care ◽  
Developmental Disabilities ◽  
Residential Care ◽  
Social Protection ◽  
Persons With Disabilities ◽  
Adults With Disabilities ◽  
The Family ◽  
The Republic ◽  
Specialized Foster Care ◽  
Adults With Developmental Disabilities

Bosnia and Herzegovina, and thus its entities, has ratified the Convention on the Rights of Persons with Disabilities. In spite of that fact, adults with developmental disabilities daily face stigma and barriers in exercising their fundamental rights. Due to the inability of independent functioning, as well as the inability of the family to care for adults with developmental disabilities, a big number are placed in residential care. Foster care as a form of care in System of social protection can be functional for avoiding institutionalization, insurance of social inclusion of adults with disabilities, and enable them to function independently. Specialized foster care is one of the possible solutions in the deinstitutionalization of adults with developmental disabilities who are placed in residential care. This paper is focused on the particularities of specialized foster care for adults with developmental disabilities in the Republic of Srpska, which is regulated by the Social Protection Law and the foster care Rule book. Foster care, in terms of the Law, implies takin care the care users in the family that provides fulfillments of basic needs, family that takes care of the person and helps in the rights exercise and the obligations fulfillment. This normative definition of foster care opens space for adults and the elderly foster care, which is not developed nor sufficiently represented in the countries of the region, Europe and the world as well. Foster care for adults with disabilities in the Republic of Srpska is performing through a form of specialized foster care. This paper presents case studie of the specialized foster care as a posibility for adequate care of adults with developmental disabilities, with special points to the ability of supporting deinstitutionalization through specialized foster care. This case study is an example of a systemic approach to deinstitutionalization of adults with developmental disabilities. The study and results that were presented in the case has shown that it is possible to perform the deinstitutionalization of persons with developmental disabilities after twenty years spent in an institution.

scholarly journals Reason for the Family Doing Confinement on People with Mental Disorders

2020 ◽  
Vol 2 (3) ◽  
pp. 277-284
Author(s):  
Nining Wuri Lestari ◽  
Setyawati Soeharto ◽  
Heni Dwi Windarwati
Keyword(s):  
Data Analysis ◽  
Mental Disorders ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Approach ◽  
Phenomenological Analysis ◽  
The Family ◽  
Interpretative Phenomenological Approach ◽  
Depth Interviews

The number of retention is still high in Indonesia to find out the reasons for the family doing confinement on people with mental disorders in Trenggalek Regency. This research is a qualitative with an interpretative phenomenological approach. Data were obtained through in-depth interviews with twelve families who treated people with post-pasung mental disorders in Trenggalek Regency. Data analysis using IPA (Interpretative Phenomenological Analysis), obtained four themes namely feeling frustrated with the patient's condition, feeling annoyed because of the patient's disobedience, the helplessness of the family doing something, bored because there is no meaningful development in the patient the family put up on people with mental disorders because they feel frustrated and helpless to face the patient's condition.

SDG’s Indicators Framework and Disability in India

2017 ◽  
Vol 11 (2) ◽  
pp. 232-250
Author(s):  
Surajit Deb
Keyword(s):  
United Nations ◽  
Age Distribution ◽  
Disabled Persons ◽  
Persons With Disabilities ◽  
The Sustainable Development ◽  
Development Framework ◽  
The Disabled ◽  
Disability Prevalence ◽  
Development Goals ◽  
High Level

The post-2015 development framework endorsed disability as an issue of social rights that is in accordance with the guidelines of United Nations Convention on the Rights of Persons with Disabilities. The United Nations Statistical Commission has worked through the Inter-agency and Expert Group and the High-level Group in the formation of the indicators framework to measure the progress made by the disabled persons in the implementation of the Sustainable Development Goals (SDGs). The main objective of this article is to assess the disability prevalence in India and subsequently examine its preparedness towards developing the disability indicators. We consider the Census 2011 data to provide an account of disability situations along with information on state-wise composition, types, age distribution, literacy and employment aspects. We then explain as to how the indicators framework would result in data and information demands on India’s part, which are essential for monitoring the progress of disability inclusion in the country.

Specialized Foster Care as System Approach, Deinstitutionalization of Social Protection in Case of Adults with Developmental Difficulties in the Republic of Srpska – a Case Stady

2017 ◽  
Vol 7 (1) ◽  
pp. 15
Author(s):  
Andrea Rakanović Radonjić ◽  
Ljubo Lepir
Keyword(s):  
Foster Care ◽  
Developmental Disabilities ◽  
Residential Care ◽  
Social Protection ◽  
Persons With Disabilities ◽  
Adults With Disabilities ◽  
The Family ◽  
The Republic ◽  
Specialized Foster Care ◽  
Adults With Developmental Disabilities

Bosnia and Herzegovina, and thus its entities, has ratified the Convention on the Rights of Persons with Disabilities. In spite of that fact, adults with developmental disabilities daily face stigma and barriers in exercising their fundamental rights. Due to the inability of independent functioning, as well as the inability of the family to care for adults with developmental disabilities, a big number are placed in residential care. Foster care as a form of care in System of social protection can be functional for avoiding institutionalization, insurance of social inclusion of adults with disabilities, and enable them to function independently. Specialized foster care is one of the possible solutions in the deinstitutionalization of adults with developmental disabilities who are placed in residential care. This paper is focused on the particularities of specialized foster care for adults with developmental disabilities in the Republic of Srpska, which is regulated by the Social Protection Law and the foster care Rule book. Foster care, in terms of the Law, implies takin care the care users in the family that provides fulfillments of basic needs, family that takes care of the person and helps in the rights exercise and the obligations fulfillment. This normative definition of foster care opens space for adults and the elderly foster care, which is not developed nor sufficiently represented in the countries of the region, Europe and the world as well. Foster care for adults with disabilities in the Republic of Srpska is performing through a form of specialized foster care. This paper presents case studie of the specialized foster care as a posibility for adequate care of adults with developmental disabilities, with special points to the ability of supporting deinstitutionalization through specialized foster care. This case study is an example of a systemic approach to deinstitutionalization of adults with developmental disabilities. The study and results that were presented in the case has shown that it is possible to perform the deinstitutionalization of persons with developmental disabilities after twenty years spent in an institution.

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