scholarly journals The Relative Merits of an Individualized Versus a Generic Approach to Rating Functional Performance in Childhood Dystonia

Children ◽  
2020 ◽  
Vol 8 (1) ◽  
pp. 7
Author(s):  
Hortensia Gimeno ◽  
Jessica Farber ◽  
Jessica Thornton ◽  
Helene Polatajko
Keyword(s):  
Young People ◽  
Movement Disorders ◽  
Best Practice ◽  
Rating Scale ◽  
Childhood Onset ◽  
Post Intervention ◽  
Children And Young People ◽  
Change Scores ◽  
Significant Difference ◽  
And Performance

Aims. The Performance Quality Rating Scale (PQRS) is an observational measure that captures performance at the level of activity and participation. Developed for use with the Cognitive Orientation to daily Occupational Performance (CO-OP), it is a highly individualized approach to measurement. CO-OP is currently being studied in childhood-onset hyperkinetic movement disorders (HMD) and deep brain stimulation. The purpose of this study was to compare two different approaches to rating performance, generic (PQRS-G) and individualized (PQRS-I), for children with childhood-onset hyperkinetic movement disorders (HMD) including dystonia. Method. Videotaped activity performances, pre and post intervention were independently scored by two blind raters using PQRS-G PQRS-I. Results were examined to determine if the measures identified differences in e performance on goals chosen by the participants and on change scores after intervention. Dependent t-tests were used to compare performance and change scores. Results. The two approaches to rating both have moderate correlations (all data: 0.764; baseline: 0.677; post-intervention: 0.725) and yielded some different results in capturing performance. There was a significant difference in scores at pre-intervention between the two approaches to rating, even though post-intervention score mean difference was not significantly different. The PQRS-I had a wider score range, capturing wider performance differences, and greater change between baseline and post-intervention performances for children and young people with dystonic movement. Conclusions. Best practice in rehabilitation requires the use of outcome measures that optimally captures performance and performance change for children and young people with dystonic movement. When working with clients with severe motor-performance deficits, PQRS-I appears to be the better approach to capturing performance and performance changes.

Effectiveness of duloxetine on severity of pain and quality of life in chronic low back pain in patients who had posterior spinal fixation

2021 ◽  
pp. 221049172098333
Author(s):  
Arezoo Samadi ◽  
Razieh Salehian ◽  
Danial Kiani ◽  
Atefeh Ghanbari Jolfaei
Keyword(s):  
Quality Of Life ◽  
Back Pain ◽  
Rating Scale ◽  
Low Back ◽  
Spinal Fixation ◽  
Post Intervention ◽  
Significant Difference ◽  
Hamilton Anxiety Rating Scale ◽  
Hamilton Anxiety

Background: In this study, we want to search the effectiveness of Duloxetine on the severity of pain and quality of life in patients with chronic low back pain who had posterior spinal fixation. Methods: In this randomized, placebo-controlled trial done in 6 months 50 patients who had CLBP and were candidates for PSF surgery selected and divided into two groups (drug and placebo). They filled the VAS, SF-36, and Hamilton questionnaires before surgery and after 6 weeks from using 30 mg of duloxetine or placebo. Results: Significant differences were evidenced among groups for the Visual Analogue Scale (P = 0.005) and Verbal Analogue Scale (p = 0.003). Patients in the Duloxetine group have more visual and verbal pain scores than the placebo group. In the quality of life, there was a significant difference between the two groups before the intervention. Also, significant differences were evidenced among groups for the Hamilton Anxiety Rating Scale (p = 0.17). After the intervention, only the Hamilton Anxiety Rating Scale (p = 0.001) and ‘bodily pain’ and ‘general health’ subscales of quality of life (p = 0.008, 0.004, respectively) have a significant difference between the two groups. There was a significant difference between pre and post-intervention in the Hamilton Anxiety Rating Scale only in the duloxetine group. Also, in terms of quality of life, the subscales of ‘physical role’, ‘emotional role’, ‘physical pain’ and ‘total score of quality of life’ in the duloxetine and placebo groups were significantly different between pre and post-intervention. However, the subscales of ‘physical function’ and ‘general health’ were significantly different only in the duloxetine group between pre and post-intervention. Conclusion: The results suggest that the use of duloxetine in patients who had spinal surgery can help to better control back pain, on the other hand, it can cause a better psychological condition that affects the quality of life.

scholarly journals Effect of Training Program to Improve Observational Skills of Psychiatric Nursing Students

2020 ◽  
Author(s):  
Atallah Khalaf Alenezi
Keyword(s):  
Nursing Students ◽  
Training Program ◽  
Rating Scale ◽  
Training Programs ◽  
Psychiatric Nursing ◽  
Chi Square ◽  
Psychiatric Institution ◽  
Significant Difference ◽  
Observational Skills ◽  
And Performance

Introduction: Training program is believed to enhance nursing students’ knowledge and performance in observational skills, which can be an essential factor in their future practice as nurses working in a psychiatric institution. Aim: This study aimed to assess the effect of training program for psychiatric nursing students to improve their observational skills. Materials and Methods: This study used an interventional design. The study sample included 80 nursing students undergoing clinical practice in psychiatric nursing during 2019-20 (10 months). The tools used for data collection were questionnaire to assess nursing student’s knowledge and an observational checklist to measure the performance. Percentage distribution, chi-square, and correlation coefficient were used to determine influence of training program on nursing students. Results: The training program imparted to students was effective as indicated by a highly significant difference between pre/post-training programs in all items of psychiatric nursing students’ knowledge. Furthermore, a highly significant difference between pre/post-training programs in all elements of students’ observational rating scale was also evident. Conclusion: The training program improved nursing students’ knowledge and performance. Particularly, their observational skills have brought confidence in their exposure and boast their ability in caring for their patients.

scholarly journals Conservation Education Impacts of Animal Ambassadors in Zoos

2021 ◽  
Vol 3 (1) ◽  
pp. 1-18
Author(s):  
Megan Marie Clifford-Clarke ◽  
Katherine Whitehouse-Tedd ◽  
Clare Frances Ellis
Keyword(s):  
Repeated Measures ◽  
Best Practice ◽  
Rating Scale ◽  
Public Awareness ◽  
Conservation Education ◽  
Control Group ◽  
Significant Difference ◽  
Conservation Actions ◽  
Quasi Experimental ◽  
Pair Wise Comparison

To mitigate the effects of anthropogenic environmental impacts, conservation education (CE) aims to increase public awareness of biodiversity and encourage the uptake of pro-environmental behaviours (PEB). One way of achieving this goal is the use of controlled animal interactions with animal ambassadors to promote CE goals. This study aimed to determine how differing experiences with ambassador Humboldt penguins (Spheniscus humboldti) affected visitors’ knowledge of conservation actions (CA) and their likelihood to perform PEBs in a UK zoo. A quasi-experimental repeated measures questionnaire was used to investigate this aim. Visit types were categorised as (a) ‘penguin parade’, (b) ‘animal encounter’, (c) ‘exhibit viewing’ and (d) a ‘control’ groups. A Kruskal–Wallis test was used to determine if responses to rating scale items related to PEBs differed according to experience. No significant (p > 0.05) differences were detectable between groups. Qualitative data provided in open ended questions relating to CAs were coded into themes and the percentage of responses were calculated for each theme. Whilst the ‘exhibit viewing’ group mentioned sustainable fish significantly more (p = 0.017) than the ‘control’ group, no significant difference was found for any other pair-wise comparison (p > 0.05 in all cases). Overall, this study highlights that zoo visitors gained specific conservation-based knowledge and had higher behavioural intentions towards PEBs than they previously had. However, no evidence was found to suggest that animal encounters improved CE outcomes. To ensure best practice is followed and CE outcomes are considered equally alongside ambassador animal welfare concerns, further research is recommended.

scholarly journals Problemi ponašanja kod djece i mladih - doprinos sociodemografskih obilježja, zadovoljstva obitelji i socijalne podrške

2019 ◽  
Vol 13 (1) ◽  
pp. 70-90
Author(s):  
Mira Klarin ◽  
Martina Miletić ◽  
Slavica Šimić Šašić
Keyword(s):  
Social Support ◽  
Young People ◽  
Primary School ◽  
Behavioral Problems ◽  
Family Satisfaction ◽  
Hierarchical Regression ◽  
Measuring Instruments ◽  
Children And Young People ◽  
Significant Difference ◽  
Primary School Pupils

The aim of this research was to determine the role of sociodemographic features, family satisfaction and social support for behavioral problems in children and young people. For this purpose, a survey was conducted on 208 fourth grade primary school pupils (average age of 10.12) and 8th grade primary school pupils (14.14 years of age in average) using the following measuring instruments: Social support scales, Financial availability scales, Behavior self assessment scales for youth and Scales of family satisfaction. The results obtained by this research lead to the conclusion that externalized behavioral problems are more common among older children/young people who are also less satisfied with their family than younger children. There was no significant difference in internalized behavioral problems due to age. Gender differences have also not been recorded. When examining correlations with internalized behavioral problems, there is a significant correlation with family satisfaction, financial availability and social support. Hierarchical regression analysis shows that family satisfaction and social support alone explain 31% of the common variance of internalized behavioral problems in children and youth. Significant correlates of externalized behavioral problems are family satisfaction and social support, and in the final step, family satisfaction independently contributes to explaining 18% of the variance of externalized behavioral problems in children and young people.

scholarly journals Reducing Patient Risk for Suicidal Behaviors with a Safety Bundle of Best Practices with Non-Psychiatric Patients

2021 ◽  
Author(s):  
◽  
Olayemi Akindele
Keyword(s):  
Best Practices ◽  
Risk Score ◽  
Rating Scale ◽  
Suicidal Behaviors ◽  
Suicidal Risk ◽  
Post Intervention ◽  
Severity Rating ◽  
Significant Difference ◽  
Self Harm ◽  
Surgical Unit

Practice Problem: Suicide is a public health condition that affects people globally. The increased suicidal behaviors of patients in a medical-surgical unit demanded an effective screening protocol to identify high-risk patients. PICOT: In patients 18 years and older on a medical-surgical unit, does the implementation of the Columbia Suicide Severity Rating Scale (C-SSRS) tool and application of a Safety Bundle of Best Practices (SBBP) increase early identification of suicide risk with decreased patient self-harm behaviors, compared to the current standard practice of no assessment tool or safety bundle of best practices within 12 weeks? Evidence: Ten studies served as evidence that assessment of early suicidal-risk behaviors decreased patient self-harm. The evidence supported the implementation of the C-SSRS tool and application of the Safety Bundle of Best Practices for the project intervention. Intervention: The intervention consisted of three phases (pre-intervention, intervention, and post-intervention): a) patients were screened with the Columbia-Suicide Severity Rating Scale (C-SSRS); b) suicidal patients were managed with Collaborative Assessment and Management of Suicidality (CAMS); and c) a Safety Plan Intervention (SPI) was employed to manage suicidal behaviors. Outcome: At the start of the assessment period, pre-intervention data yielded a C-SSRS risk score mean of 0.81; following the eight-week implementation period, post-intervention data yielded a C-SSRS risk score mean of 0.75. There was a marginally significant difference between the means at pre- and post-intervention, showing a lower suicidal risk at post-intervention, p = 0 .07, t-test result (31) = 1.87. Conclusion: The decrease in patient self-harm behaviors with the implementation of the C-SSRS tool and application of SBBP was not statistically significant (SBBP). However, the decrease did indicate a clinically meaningful improvement in suicidal behavior outcomes after implementation of the intervention.

scholarly journals GPs’ role in caring for children and young people with life-limiting conditions: a retrospective cohort study

2020 ◽  
Vol 70 (693) ◽  
pp. e221-e229
Author(s):  
Stuart Jarvis ◽  
Roger C Parslow ◽  
Catherine Hewitt ◽  
Sarah Mitchell ◽  
Lorna K Fraser
Keyword(s):  
Primary Care ◽  
Cohort Study ◽  
Young People ◽  
Retrospective Cohort Study ◽  
Secondary Care ◽  
Retrospective Cohort ◽  
Clinical Practice Research Datalink ◽  
Children And Young People ◽  
Attendance Patterns ◽  
Significant Difference

BackgroundGPs are rarely actively involved in healthcare provision for children and young people (CYP) with life-limiting conditions (LLCs). This raises problems when these children develop minor illness or require management of other chronic diseases.AimTo investigate the association between GP attendance patterns and hospital urgent and emergency care use.Design and settingRetrospective cohort study using a primary care data source (Clinical Practice Research Datalink) in England. The cohort numbered 19 888.MethodCYP aged 0–25 years with an LLC were identified using Read codes (primary care) or International Classification of Diseases 10 th Revision (ICD-10) codes (secondary care). Emergency inpatient admissions and accident and emergency (A&E) attendances were separately analysed using multivariable, two-level random intercept negative binomial models with key variables of consistency and regularity of GP attendances.ResultsFace-to-face GP surgery consultations reduced, from a mean of 7.12 per person year in 2000 to 4.43 in 2015. Those consulting the GP less regularly had 15% (95% confidence interval [CI] = 10% to 20%) more emergency admissions and 5% more A&E visits (95% CI = 1% to 10%) than those with more regular consultations. CYP who had greater consistency of GP seen had 10% (95% CI = 6% to 14%) fewer A&E attendances but no significant difference in emergency inpatient admissions than those with lower consistency.ConclusionThere is an association between GP attendance patterns and use of urgent secondary care for CYP with LLCs, with less regular GP attendance associated with higher urgent secondary healthcare use. This is an important area for further investigation and warrants the attention of policymakers and GPs, as the number of CYP with LLCs living in the community rises.

An Open Trial of Immersive Reality Experiences (IRE) Technology for Reducing Social Isolation and Improving the Social Connectedness and Well-Being of Hospitalized Children and Young People (Preprint)

2021 ◽  
Author(s):  
Hiran Thabrew ◽  
Christa Fouché ◽  
Laura Ann Chubb ◽  
Stacey Yates ◽  
Harshali Kumar ◽  
...  
Keyword(s):  
New Zealand ◽  
Young People ◽  
Social Isolation ◽  
Social Inclusion ◽  
Social Connectedness ◽  
Well Being ◽  
Hospitalized Children ◽  
Post Intervention ◽  
Children And Young People ◽  
The Social

BACKGROUND Hospitalized children and young people can feel disconnected from their peers and families, which can in turn predispose them to psychological problems including anxiety and depression. Immersive Reality Experiences (IRE) technology, recently developed by the New Zealand Patience Project Charitable Trust may help to overcome these issues. IRE technology uses immersive 360-degree live-streaming and a virtual reality (VR) headset to enable hospitalized children and young people to connect with cameras located in either their school or home environment. OBJECTIVE This trial was undertaken to 1) quantitatively evaluate the effectiveness of IRE technology in reducing social isolation and improving social connectedness and wellbeing using validated outcome measures and 2) expand qualitative findings from a previous smaller ‘proof of concept’ trial to ascertain the views of hospitalized New Zealand children and young people, their caregivers and teachers regarding IRE technology. METHODS An open trial of IRE technology was conducted between December 2019 and December 2020 and included 19 New Zealand children and young people aged 13-18, who had been hospitalized at Starship Hospital, a specialist pediatric hospital in Auckland, for at least 2-weeks. All participants completed the Short Warwick-Edinburgh Mental Well-Being Scale (SWEMWBS), an abbreviated version of the Social Connectedness Scale (SCS) and the Social Inclusion Scale (SIS) and at baseline. Ten participants used IRE technology as often as they wished over a 6-week period and completed post-intervention measures. Semi-structured interviews with a subset of participants, caregivers and teachers were conducted immediately post-intervention. RESULTS Participants reported improvements in social inclusion (mean change 3.9, SD 2.8, p 0.057), social connectedness (mean change 14.2, SD 10.0, p 0.002) and well-being (mean change 5.7, SD 4.0, p 0.003). Key themes from interviews with participants, caregivers and teachers were: the importance of support for using IRE technology, connecting vs connectedness, choice and connection, and the value of setting it up and getting it right. A number of recommendations for improving connectedness via IRE and related technology were also provided. CONCLUSIONS IRE technology can improve the social inclusion, social connectedness and well-being of hospitalized New Zealand children and young people. With some technological modifications and simplified implementation, IRE technology could become part of standard care and support hospitalized children and young people in New Zealand and elsewhere to sustain family and peer cohesion, experience fewer psychological problems and more easily return to normal life following completion of treatment. CLINICALTRIAL This study has been registered with the Australian New Zealand Clinical Trials Network Registry: ACTRN12619000252112p

The importance of parents in the lives of children in the care system

2003 ◽  
Vol 28 (2) ◽  
pp. 25-31 ◽  
Author(s):  
Jane Thomson ◽  
Ros Thorpe
Keyword(s):  
Young People ◽  
Home Care ◽  
Best Practice ◽  
Research Priorities ◽  
Future Research ◽  
Research Focus ◽  
Children And Young People ◽  
Natural Family ◽  
Out Of Home Care ◽  
Outcomes For Children

Research to date has found that natural parents may be an important source of identity and support for children in and young people leaving out-of-home care. There has, however, been limited research on natural parents themselves, both internationally and in Australia.This paper provides a justification for a research focus on parents, documents what is known from research to date, highlights current issues for parents and their children in out-of-home care, and concludes by identifying future research priorities in the area. The paper calls for recognition of the need to maintain positive links between natural family members in order to ensure best practice outcomes for children and young people in care.

Hospital-based education support for students with chronic health conditions

2016 ◽  
Vol 40 (2) ◽  
pp. 213 ◽  
Author(s):  
Liza J. Hopkins
Keyword(s):  
Young People ◽  
Support Services ◽  
Best Practice ◽  
Good Practice ◽  
Theory And Practice ◽  
Health Conditions ◽  
Educational Support ◽  
Children And Young People ◽  
Published Evidence ◽  
Education Support

Objective To examine the evidence for best practice in educational support to hospitalised students and describe the existing supports available across each Australian state and territory. Methods A descriptive approach to the diversity of current practice and a review of the published evidence for best practice. Results We have constructed a model of best-practice in education support to hospitalised students. We found that education support services in each state met some of the criteria for best practice, but no one state service met all of the criteria. Conclusions All Australian states and territories make provision for hospitalised students to continue with their education, however the services in some states are closer to the best-practice model than others. What is known about the topic? It is well known that children and young people living with health conditions are at higher risk of educational underachievement and premature disengagement from school than their healthy peers. Although each state and territory across Australia offers some form of educational support to students during periods of hospitalisation, this support differs widely in each jurisdiction in fundamentals such as which students are eligible for support, where the support is delivered, how it is delivered and who coordinates the support. Published evidence in the literature suggests that the elements of good practice in education support have been well identified but, in practice, lack of policy direction can hinder the implementation of coordinated support. What does this paper add? This paper draws together the different models in place to support students in hospital in each state and territory and identifies the common issues that are faced by hospital education support services, as well as identifying areas where practice differs across settings. It also identifies the elements of good practice from the literature and links the elements of theory and practice to present a model of education support that addresses the needs of students with health conditions in an integrated and child-centred way. What are the implications for practitioners? Education support has developed over many decades in a variety of different forms across the states and territories of Australia. This paper brings together for the first time the published evidence for good practice in this area with existing models of practice to identify ways in which both healthcare professionals and education professionals can work together to improve the health, well being and education of children and young people living with health conditions.

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