scholarly journals Family Support: A Caregiver Experience in Caring for Nasopharynx Cancer Patients in Yogyakarta

2021 ◽  
Vol 9 (T4) ◽  
pp. 245-252
Author(s):  
Ema Waliyanti ◽  
Harumi Iring Primastuti

BACKGROUND: Increasing the incidence of nasopharyngeal cancer causes an increase mortality in sufferers. Family support is an important aspect of the treatment of patients that very helpful to strengthen psychologically and make patients more enthusiastic about undergoing treatment. Patients who have high enthusiasm will improve their quality of life so that family support is needed in treating patients. AIM: This study aims to explore family experiences in providing support in the care of nasopharyngeal cancer patients in Yogyakarta. METHODS: This research uses qualitative method with phenomenological approach. Data collected through in-depth interviews. Informants in this study amounted to 12 people consisting of patients and families determined by purposive sampling. This research was conducted in Sleman Regency from January to April 2019. Data validity uses source triangulation, member checking, and peer debriefing. Analysis of the data in this study using the help of OpenCode 4.02 software. RESULTS: The results showed that the treatment of patients with nasopharyngeal cancer was influenced by several factors, namely, family perceptions in caring for patients, family knowledge about the disease, and family information sources. These factors will affect the family process in providing care to patients including family support, family communication, and medication that have been undertaken. Family support is provided in the care of nasopharyngeal cancer patients in the form of emotional, informational, instrumental, appreciation, and spiritual support. In addition, in carrying out patient care, there are several obstacles, namely, transportation, administrative, and financial obstacles. CONCLUSION: The family is expected to always provide support to patients in the form of emotional support, informational, instrumental, and appreciation as well as spiritual support for the success of treatment of the patient.

2019 ◽  
Vol 2 (1) ◽  
pp. 21
Author(s):  
Theresia Ika ◽  
Eni Hidayati

Background: This epilepsy is considered a burden for the patient, the family and is considered an embarrassing disease, infectious disease and mental illness that makes the epileptic patient difficult to live a normal life, often experiencing discrimination in terms of learning, work, or in marriage. Objective: to know family support for the occurrence of seizure frequency in epilepsy patients. Research Method: Type of qualitative research using the phenomenological approach. The sampling technique is done by using purposive sampling approach. Excavation of this data is done by conducting in-depth interviews with the object or the respondent. Results: The support provided by the family in the form of explaining and teaching the treatment of epilepsy, helping and protecting the respondents in the treatment of epilepsy, support in terms of providing treatment and financing and providing love and trust. It is expected that families can provide good support, so that will reduce the incidence of seizure frequency that appears and can improve the quality of life of respondents.


2018 ◽  
Vol 1 (2) ◽  
pp. 26-33
Author(s):  
Risa Nurhayati ◽  
Indasah Indasah ◽  
Byba Melda Suhita

Disease and hospitalization are often the main crises that children face, causing the child to experience trauma. The phenomenon of separation and experience of hospitalized children shows when a child is hospitalized will experience a change in emotional status, as well as parents crying, anxious, angry. Preschool age is very susceptible to the effects of tress during hospitalization, so there is a need for family support. The objective of the study was to explore the support of the family in order to decrease the hospitalization of preschool children in the orchid room of RSUD Nganjuk. The research method used qualitative research with phenomenological approach. Data collection using primary and secondary data then conducted in-depth interviews (indepth interview) with semi-structured questions. Informants as many as 5 people according to the inclusion criteria that researchers make are families who have preschool children, long day 1-3 care, family as the main caregiver, children with medical diagnosis group of internal medicine, children do not have terminal disease, the family is willing to become informants. The results show that family support includes informational support, assessment support, emotional support and instrumental support. But the support has not been maximal because it is influenced by the reaction of children and parents who are varied towards hospitalization along with influencing factors such as child adaptation process, the existence of rooming in, sibling reaction. The conclusion of the study was family support during the effort to decrease the hospitalization reactions of preschool children. Based on these studies it is necessary to conduct further research on family support in reducing the impact of pre-school children's hospitalization.


2020 ◽  
Vol 17 (7) ◽  
pp. 3041-3046
Author(s):  
Harmaniati ◽  
Tiyas Kusumaningrum ◽  
Ni Ketut Alit Amin

Chemotherapy is a treatment for patients with breast cancer. When the chemotherapy is undergoing, patients often feel uncomfortable due to pain and psychological disorders post chemotherapy. Family and environmental support can be a contributing factor to the life quality of breast cancer patients. This study aims to investigate the family support relationship to the compliance of breast cancer patients in conducting chemotherapy programs. This study was conducted using cross sectional approach. This Study observed the family support relationship in the event of instrumental, informational, emotional, and self-esteem against the compliance of chemotherapy program for breast cancer patient. Using sampling technique purposive sampling, the number of patients with 83 respondents. Retrieving sample data based on the primary data source of the patient’s family support questionnaire and patient compliance questionnaires in undergoing chemotherapy programs. The results showed 41 respondents (49.4%) quite obedience in chemotherapy programs has enough family support. The number of 2 respondents (2.4%) which disobedient has less family support. Statistical results showed a significant correlation between family support and the compliance of chemotherapy programs with P = 0.024 and r = 0.248 meaning there was a fairly positive correlation. It can thus be concluded that the family support in the instrumentals, informational, emotional, and self-esteem affects the compliance of chemotherapy programs for breast cancer.


2021 ◽  
Vol 9 (T4) ◽  
pp. 199-205
Author(s):  
Indah Wulandari ◽  
Kusnanto Kusnanto ◽  
Sony Wibisono ◽  
Ani Haryani

BACKGROUND: Perspectives of diabetes mellitus patients on family support received during the treatment of their disease at home has high complexity. The family’s intention to help patients to take care of themselves at home can lead to misperceptions or is not well accepted by diabetes mellitus patients. AIM: The aim of the study was to explore the support provided by families in the care of diabetes mellitus patients at home based on the patient’s perspective. METHODS: A phenomenological study using semi-structured questions was chosen as a design in this study. A total of 19 participants were recruited using criteria including being diagnosed with diabetes mellitus for at least 1 year, outpatient, and willing to participate in the study. Data analysis used seven steps of descriptive phenomenological analysis from Colaizzi including data recognition, identification of significant statements, formulating meanings, grouping themes, developing complete descriptions, producing fundamental structures, and seeking verification of fundamental structures. RESULTS: This research shows that the support needed by participants comes from the nuclear family. The first theme identified is the family function as participants’ perceived support. The second theme identified is the family role as participants’ perceived support. The fourth third theme identified is perceptions of family support received. Moreover, the final theme found in this study is perception of spiritual support by the family. CONCLUSION: This research implies that diabetes mellitus patients need support from their families to accept the disease and eventually volunteer to carry out their disease care at home.


2018 ◽  
Vol 9 (2) ◽  
pp. 144-151
Author(s):  
Yusniarita Yusniarita

The Rejang Lebong district prevalence of breast cancer in women of reproductiveage or premenopausal compare with women who had menopause also affects of treatmentsuch as chemotherapy and lack of family support in the from of spiritual support couldinfluence quality of the life of patients. The purpose of this study to determine the effect ofspiritual support to the quality of life of breast cancer patients post chemotherapy at RejangLebong district. Metode Quasi Experiment One Group Pre dan Post Test. The was population33 and sampel was 12 respondents. There are differnences in the quality of research results tosupport the spiritual life of breast cancer patients after chemotherapy in Rejang lebong district2014. This discusstions are expected to patients in order to inprove the quality of life andspiritual breast cancer patients for example thorough spiritual activities such as recitation andfor health workers in order to conduof health education about breast cancer


2019 ◽  
Vol 11 (2) ◽  
pp. 87-92
Author(s):  
Dwi Indah Iswanti ◽  
Fery Agusman Motuho Mendrofa ◽  
Diyanto Diyanto

Kemandirian bukanlah keterampilan yang muncul secara tiba-tiba tetapi perlu diajarkan dan dilatih pada anak agar tidak menghambat tugas- tugas perkembangan anak selanjutnya. Terutama pada anak yang mengalami retardasi mental akan sangat membutuhkan dukungan dari keluarga. Tujuan penelitian untuk mengetahui hubungan  dukungan keluarga dengan tingkat kemandirian anak retardasi mental di SLB Negeri Semarang. Penelitian ini menggunakan metode kuantitatif dengan pendekatan cross sectional. Populasi dalam penelitian ini adalah seluruh orang tua siswa kelas IV-VI di SLB Negeri Semarang yang berjumlah 64 siswa. Teknik sampling yang digunakan adalah total sampling. Dukungan keluarga pada anak retardasi mental sebagian besar adalah mendukung yaitu sebanyak 53,1%, kemandirian anak retardasi mental sebagian besar adalah kurang mandiri yaitu sebanyak 53,1%. Hasil uji statistik menemukan ada hubungan antara dukungan keluarga dengan kemandirian anak retardasi mental di SLB Negeri Semarang, dengan p value sebesar 0,000.   Kata kunci : dukungan keluarga, kemandirian anak retardasi mental THE CORRELATION BETWEEN FAMILY SUPPORT AND THE LEVEL OF INDEPENDENCE OF MENTALLY RETARDED CHILDREN   ABSTRACT Independence is not a skill that emerges suddenly but needs to be taught and trained in children so as not to inhibit the tasks of further child development. Especially for children who are mentally retarded, they will need support from the family. Research objectives to find out the correlation between family support and the level of independence of mentally retarded children in extraordinary school State of Semarang. This study uses a quantitative method with a cross sectional approach. The population in this study were all parents of students in class IV-VI in Semarang State SLB, amounting to 64 students. The sampling technique used is total sampling. Family support for mentally retarded children was mostly supportive, as much as 53.1%, the independence of most mentally retarded children was less independent, which was as much as 53.1%. The results of statistical tests found that there was a correlation between family support and the independence of mentally retarded children in Semarang State SLB, with a p value of 0,000.   Keywords: family support, independence of mentally retarded children


2021 ◽  
Vol 20 ◽  
pp. 153473542199490
Author(s):  
Iván Ruiz-Rodríguez ◽  
Isabel Hombrados-Mendieta ◽  
Anabel Melguizo-Garín ◽  
Mª José Martos-Méndez

Introduction: The aim of the present study is to carry out a multidimensional analysis of the relationship of social support with quality of life and the stress perceived by cancer patients. Methods: The participants were 200 patients with cancer. Data was gathered on sociodemographic characteristics, health, quality of life, social support and perceived stress. Results: Frequency of and satisfaction with different sources and types of support are related positively with improvement of quality of life and negatively with perceived stress. The emotional support from the partner and the emotional and informational support from the family are significant predictors of quality of life. Emotional support from the family reduces patients’ perceived stress. Satisfaction with emotional support from the partner and with the informational support from friends and family increases quality of life. Satisfaction with emotional support from the family and with informational support from friends decreases patients’ perceived stress. Instrumental support and support provided by health professionals are not good predictors of quality of life and perceived stress. Satisfaction with the support received is more significantly related with quality of life and stress than the frequency with which the sources provide support. Conclusions: These results have important practical implications to improve cancer patients’ quality of life and reduce their perceived stress through social support. Designing intervention strategies to improve satisfaction with the support provided to patients by their closest networks results in a global benefit for the patient’s quality of life.


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