scholarly journals Considerations for Deploying Web and Mobile Technologies to Support the Building of Patient Self-Efficacy and Self-Management of Chronic Illness

2008 ◽  
pp. 1053-1064 ◽  
Author(s):  
Elizabeth Cummings ◽  
Paul Turner
Keyword(s):  
Information And Communication Technologies ◽  
Health Professionals ◽  
Self Efficacy ◽  
Care Delivery ◽  
Respiratory Illness ◽  
Mobile Technologies ◽  
Self Management ◽  
Chronic Obstructive ◽  
School Of Nursing ◽  
Department Of Health

This chapter examines issues relating to the introduction of information and communication technologies that have emerged as part of planning for the Pathways Home for Respiratory Illness project. The project aims to assist patients with chronic respiratory conditions (chronic obstructive pulmonary disease and cystic fibrosis) to achieve increased levels of self-management and self-efficacy through interactions with case mentors and the deployment of ICTs. The chapter highlights that in deploying ICTs, it is important to ensure that solutions implemented are based on a detailed understanding of users, their needs and complex interactions with health professionals, the health system, and their wider environment. Achieving benefits from the introduction of ICTs as part of processes aimed at building sustainable self-efficacy and self-management is very difficult, not least because of a desire to avoid simply replacing patient dependency on health professionals with dependency on technology. More specifically, it also requires sensitivity toward assumptions made about the role, impact, and importance of information per se given that it is often only one factor among many that influence health attitudes, perceptions, actions, and outcomes. More broadly, the chapter indicates that as ICT-supported patient-focused interventions become more common, there is a need to consider how assessments of benefit in terms of a cohort of patients inform us about an individual patient’s experience and what this implies for terms like individualized care or patient empowerment (Muir Gray, 2004). At this level, there are implications for clinical practice and one-size-fits-all care-delivery practices. This collaborative project involves a multidisciplinary team of researchers from the University of Tasmania’s School of Medicine, School of Nursing and Midwifery, and School of Information Systems. The project is supported by the Tasmanian Department of Health and Human Services and funded by the Commonwealth Department of Health and Ageing, and is due for completion in June 2008.

scholarly journals Considerations for Deploying Web and Mobile Technologies to Support the Building of Patient Self-Efficacy and Self-Management of Chronic Illness

2011 ◽  
pp. 258-273 ◽  
Author(s):  
Elizabeth Cummings ◽  
Paul Turner
Keyword(s):  
Information And Communication Technologies ◽  
Health Professionals ◽  
Self Efficacy ◽  
Care Delivery ◽  
Respiratory Illness ◽  
Mobile Technologies ◽  
Self Management ◽  
Chronic Obstructive ◽  
School Of Nursing ◽  
Department Of Health

This chapter examines issues relating to the introduction of information and communication technologies that have emerged as part of planning for the Pathways Home for Respiratory Illness project. The project aims to assist patients with chronic respiratory conditions (chronic obstructive pulmonary disease and cystic fibrosis) to achieve increased levels of self-management and self-efficacy through interactions with case mentors and the deployment of ICTs. The chapter highlights that in deploying ICTs, it is important to ensure that solutions implemented are based on a detailed understanding of users, their needs and complex interactions with health professionals, the health system, and their wider environment. Achieving benefits from the introduction of ICTs as part of processes aimed at building sustainable self-efficacy and self-management is very difficult, not least because of a desire to avoid simply replacing patient dependency on health professionals with dependency on technology. More specifically, it also requires sensitivity toward assumptions made about the role, impact, and importance of information per se given that it is often only one factor among many that influence health attitudes, perceptions, actions, and outcomes. More broadly, the chapter indicates that as ICT-supported patient-focused interventions become more common, there is a need to consider how assessments of benefit in terms of a cohort of patients inform us about an individual patient’s experience and what this implies for terms like individualized care or patient empowerment (Muir Gray, 2004). At this level, there are implications for clinical practice and one-size-fits-all care-delivery practices. This collaborative project involves a multidisciplinary team of researchers from the University of Tasmania’s School of Medicine, School of Nursing and Midwifery, and School of Information Systems. The project is supported by the Tasmanian Department of Health and Human Services and funded by the Commonwealth Department of Health and Ageing, and is due for completion in June 2008.

scholarly journals Effects of self-management education programmes on self-efficacy for osteoarthritis of the knee: a systematic review of randomised controlled trials

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Daisuke Uritani ◽  
Hitoshi Koda ◽  
Sho Sugita
Keyword(s):  
Health Professionals ◽  
Self Efficacy ◽  
Randomised Controlled Trials ◽  
Management Education ◽  
Self Management ◽  
Controlled Trials ◽  
Face To Face ◽  
Knee Oa ◽  
Wide Range ◽  
Randomised Controlled

Abstract Background Enhancing self-efficacy to manage symptoms and functions is an important aspect of self-management for patients with knee osteoarthritis (OA). Many reports have investigated the effects of self-management education programmes for arthritis patients. However, a study that exclusively focuses on patients with OA in the same joints is required to clarify the effects of self-management programmes because individuals with knee OA experience physical and psychological difficulties different from those experienced by individuals with other arthritis diseases. Furthermore, previous studies have reported a wide range of delivery styles of self-management education programmes. This systematic review aimed to evaluate the effects of group-based and face-to-face self-management education programmes conducted by health professionals targeting self-efficacy for knee OA exclusively. Methods The MEDLINE, CENTRAL, EMBASE, CINAHL, Web of Science, and PEDro databases were searched to identify quantitative measures used in randomised controlled trials (RCTs) to assess the effects of self-management education programmes targeting self-efficacy in patients with knee OA. We included studies in which medical professional-delivered self-management education programmes were conducted in a group-based and face-to-face manner in community or outpatient settings. Results Seven RCTs from five countries were included in this review. Our retrieved studies included various types of self-management education programmes such as cognitive behavioural counselling, pain management education, physical education, weight management education, and arthritis self-efficacy management education, and control arms. They assessed various aspects of self-efficacy, including pain, physical function, arthritis symptoms excluding pain, weight management, mobility, and self-regulation. The total score of the Arthritis Self-Efficacy Scale was also measured. Some studies have reported beneficial effects of group-based and face-to-face self-management education programmes on self-efficacy for management of pain and other symptoms and for self-regulatory, knee OA. However, the results of the included studies were varied and inconsistent. Conclusions The current review only included seven studies, and there was a wide range of clinical heterogeneity among these studies. Thus, the effects of group-based and face-to-face self-management education programmes conducted by health professionals on self-efficacy for knee OA exclusively are inconclusive to date. Therefore, high-quality studies are required to provide significant information on clinicians, patients, and healthcare professionals in the future.

Action plans in idiopathic pulmonary fibrosis: a qualitative study—‘I do what I can do’

2021 ◽  
pp. bmjspcare-2020-002831
Author(s):  
Meena Kalluri ◽  
Sarah Younus ◽  
Nathan Archibald ◽  
Janice Richman-Eisenstat ◽  
Charlotte Pooler
Keyword(s):  
Qualitative Study ◽  
Idiopathic Pulmonary Fibrosis ◽  
Pulmonary Fibrosis ◽  
Lung Disease ◽  
Self Efficacy ◽  
Symptom Management ◽  
Management Strategies ◽  
Self Management ◽  
Chronic Obstructive ◽  
Action Plans

BackgroundIdiopathic pulmonary fibrosis (IPF) is a progressive, incurable fibrotic lung disease in which patients and caregivers report a high symptom burden. Symptoms are often poorly managed and patients and caregivers struggle to alleviate their distress in the absence of self-management support.AimTo explore perceptions of symptoms, symptom management strategies and self-efficacy for patients with IPF and caregivers who received self-management education and action plans created and provided in a Multidisciplinary Collaborative Interstitial Lung Disease (MDC-ILD) Clinic.DesignA qualitative study was conducted with participants recruited from the MDC-ILD Clinic. Participants received an early integrated palliative approach; most attended ILD pulmonary rehabilitation and some received home care support. Semistructured interviews were conducted. Patient participants completed Measure Yourself Medical Outcome Profile (MYMOP) for symptom assessment and Chronic Obstructive Pulmonary Disease Self-Efficacy Scale to assess self-management efficacy.ResultsThirteen patients and eight self-declared caregiver participants were interviewed. IPF severity ranged from mild to advanced disease. Participants integrated and personalised self-management strategies. They were intentional and confident, focused on living well and engaged in anticipatory planning. Twelve participants completed the MYMOP. Five reported dyspnoea. Four reported fatigue as an additional or only symptom. One reported cough. Five declared no dyspnoea, cough or fatigue. Participants reported 80% self-efficacy in symptom management.ConclusionsThe approach to symptom self-management and education was beneficial to patients with IPF and caregiver participants. Participants personalised the strategies, focusing on living, and planned both in the moment and for the future. They were confident and expressed dignity and meaning in their lives.

scholarly journals Insights from Australians with respiratory disease living in the community with experience of self-managing through an emergency department ‘near miss’ for breathlessness: a strengths-based qualitative study

BMJ Open ◽  
2017 ◽  
Vol 7 (12) ◽  
pp. e017536 ◽  
Author(s):  
Tim Luckett ◽  
Jane Phillips ◽  
Miriam Johnson ◽  
Maja Garcia ◽  
Priyanka Bhattarai ◽  
...  
Keyword(s):  
Emergency Department ◽  
Self Efficacy ◽  
Near Miss ◽  
Self Management ◽  
Integrative Approach ◽  
Future Research ◽  
Management Approach ◽  
Chronic Obstructive ◽  
Pharmacological Management ◽  
Near Misses

ObjectivesBreathlessness ‘crises’ in people with chronic respiratory conditions are a common precipitant for emergency department (ED) presentations, many of which might be avoided through improved self-management and support. This study sought insights from people with experience of ED ‘near misses’ where they considered going to the ED but successfully self-managed instead.Design and methodsA qualitative approach was used with a phenomenological orientation. Participants were eligible if they reported breathlessness on most days from a diagnosed respiratory condition and experience of ≥1 ED near miss. Recruitment was through respiratory support groups and pulmonary rehabilitation clinics. Semistructured interviews were conducted with each participant via telephone or face-to-face. Questions focused on ED-related decision-making, information finding, breathlessness management and support. This analysis used an integrative approach and independent coding by two researchers. Lazarus and Cohen’s Transactional Model of Stress and Coping informed interpretive themes.ResultsInterviews were conducted with 20 participants, 15 of whom had chronic obstructive pulmonary disease. Nineteen interviews were conducted via telephone. Analysis identified important factors in avoiding ED presentation to include perceived control over breathlessness, self-efficacy in coping with a crisis and desire not to be hospitalised. Effective coping strategies included: taking a project management approach that involved goal setting, monitoring and risk management; managing the affective dimension of breathlessness separately from the sensory perceptual and building three-way partnerships with primary care and respiratory services.ConclusionsIn addition to teaching non-pharmacological and pharmacological management of breathlessness, interventions should aim to develop patients’ generic self-management skills. Interventions to improve self-efficacy should ensure this is substantiated by transfer of skills and support, including knowledge about when ED presentation is necessary. Complementary initiatives are needed to improve coordinated, person-centred care. Future research should seek ways to break the cyclical relationship between affective and sensory-perceptual dimensions of breathlessness.

scholarly journals Patients’ and healthcare professionals’ perceptions of self-management support interactions: Systematic review and qualitative synthesis

2017 ◽  
Vol 14 (2) ◽  
pp. 79-103 ◽  
Author(s):  
Marika Franklin ◽  
Sophie Lewis ◽  
Karen Willis ◽  
Helen Bourke-Taylor ◽  
Lorraine Smith
Keyword(s):  
Systematic Review ◽  
Healthcare Professionals ◽  
Care Delivery ◽  
Individual Responsibility ◽  
Self Management ◽  
Chronic Obstructive ◽  
Traditional Model ◽  
Management Support ◽  
Model Of Care ◽  
Qualitative Synthesis

Objective To review studies examining the experience of self-management support in patient–provider interactions and the shaping of goals through interactions. Methods We undertook a systematic review and thematic synthesis of the qualitative literature. We searched six databases (2004–2015) for published studies on the provision of self-management support in one-to-one, face-to-face, patient–provider interactions for obesity, type 2 diabetes mellitus and chronic obstructive pulmonary disease, with 14 articles meeting inclusion criteria. Results Themes identified from studies were (1) dominance of a traditional model of care, encompassing the provision of generic information, exclusion of the psychosocial and temporal nature of interactions and (2) a context of individual responsibility and accountability, encompassing self-management as patients’ responsibility and adherence, accountability and the attribution of blame. Interactions were constrained by consultation times, patient self-blame and guilt, desire for autonomy and beliefs about what constitutes ‘effective’ self-management. Discussion Encounters were oriented towards a traditional model of care delivery and this limited opportunity for collaboration. These findings suggest that healthcare professionals remain in a position of authority, limiting opportunities for control to be shared with patients and shared understandings of social context to be developed.

Wireless and Mobile Technologies Improving Diabetes Self-Management

2011 ◽  
pp. 136-156 ◽  
Author(s):  
Eirik Årsand ◽  
Naoe Tatara ◽  
Gunnar Hartvigsen
Keyword(s):  
Information And Communication Technologies ◽  
Communication Technologies ◽  
Mobile Technologies ◽  
Self Management ◽  
Future Research ◽  
Management Tools ◽  
Information And Communication ◽  
Future Research Directions

The technological revolution that has created a vast health problem due to a drastic change in lifestyle also holds great potential for individuals to take better care of their own health. This is the focus of the presented overview of current applications, and prospects for future research and innovations. The presented overview and the main goals of the systems included are to utilize information and communication technologies (ICT) as aids in self-management of individual health challenges, for the disease Diabetes, both for Type 1 and Type 2 diabetes. People with diabetes are generally as mobile as the rest of the population, and should have access to mobile technologies for managing their disease. Forty-seven relevant studies and prototypes of mobile, diabetes-specific self-management tools meeting our inclusion criteria have been identified; 27 publicly available products and services, nine relevant patent applications, and 31 examples of other disease-related mobile self-management systems are included to provide a broader overview of the state of the art. Finally, the reviewed systems are compared, and future research directions are suggested.

eHealth Systems, Their Use and Visions for the Future

2009 ◽  
pp. 346-353
Author(s):  
Pirkko Nykänen
Keyword(s):  
Information And Communication Technologies ◽  
Health Professionals ◽  
Care Delivery ◽  
Communication Technologies ◽  
The Internet ◽  
Related Information ◽  
The Future ◽  
Health Related ◽  
Information And Communication ◽  
Physician Patient

eHealth refers to use of information and communication technologies to improve or enable health and healthcare. eHealth broadens the scope of health care delivery, citizens are in the center of services and services are offered by information systems often via the Internet. In this chapter eHealth systems are classified on the basis of their use and their functionality and the use is discussed from the viewpoints of citizens and health professionals. Citizens are increasingly using Internet and eHealth systems to search for medicine or health related information, and they become better informed and may take more responsibility of their own health. Health professionals are more reluctant to use the Internet and eHealth systems in physician-patient communication due to power and responsibility problems of decisions. In the future the socio-technical nature of eHealth should be considered and future systems developed for real use and user environment with user acceptable technology.

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