Power, Participation and Political Renewal

2007 ◽  
Author(s):  
Marian Barnes ◽  
Janet Newman ◽  
Helen Sullivan
Keyword(s):  
Health Care ◽  
Social Care ◽  
Ethical Issues ◽  
Research Policy ◽  
Policy And Practice ◽  
Research And Practice ◽  
The Social ◽  
The Subject ◽  
Theory Research

Ethics has been addressed in health care, but relatively little attention has been paid to the subject in the social care sector. This book redresses the balance by examining theory, research, policy and practice in both fields. The importance of this approach is reflected in the growing emphasis on ethical issues in research and practice.

scholarly journals COVID-19 and Co-production in Health and Social Care Research, Policy and Practice: Volume 2: Co-production Methods and Working Together at a Distance

2021 ◽  
Keyword(s):  
Social Care ◽  
Research Policy ◽  
Practice Volume ◽  
Policy And Practice ◽  
Production Methods ◽  
Rapid Responses ◽  
Health And Social Care ◽  
Working Together ◽  
Global North ◽  
North And South

EPDF and EPUB available Open Access under CC-BY-NC-ND licence. Groups most severely affected by COVID-19 have tended to be those marginalised before the pandemic and are now being largely ignored in developing responses to it. This two-volume set of Rapid Responses explores the urgent need to put co-production and participatory approaches at the heart of responses to the pandemic and demonstrates how policymakers, health and social care practitioners, patients, service users, carers and public contributors can make this happen. The second volume focuses on methods and means of co-producing during a pandemic. It explores a variety of case studies from across the global North and South and addresses the practical considerations of co-producing knowledge both now - at a distance - and in the future when the pandemic is over.

Reconciling practice, research and reality of integrated care. Critical reflections on the state of a discipline

2020 ◽  
Vol 28 (3) ◽  
pp. 311-318 ◽  
Author(s):  
Axel Kaehne
Keyword(s):  
Health Care ◽  
Design Methodology ◽  
Health Care Policy ◽  
Practice Research ◽  
Integration Policy ◽  
Care Policy ◽  
Policy And Practice ◽  
Content Type ◽  
Research And Practice ◽  
Policy Practice

PurposeThe purpose of this paper is to critically reflect on the practice, rhetoric and reality of integrating care. Echoing Le Grand's framework of motivation, agency and policy, it is argued that the stories the authors tell themselves why the authors embark on integration programmes differ from the reasons why managers commit to these programmes. This split between policy rhetoric and reality has implications for the way the authors investigate integration.Design/methodology/approachExamining current integration policy, practice and research, the paper adopts the critical framework articulated by Le Grand about the underlying assumptions of health care policy and practice.FindingsIt is argued that patient perspectives are speciously placed at the centre of integration policy but mask the existing organizational and managerial rationalities of integration. Making the patient the measure of all things integration would turn this agenda back on its feet.Originality/valueThe paper discusses the underlying assumptions of integration policy, practice and research. Increasing the awareness about the gap between what the authors do, why the authors do it and the stories the authors tell themselves about it injects a much needed amount of criticality into research and practice.

scholarly journals Ethical issues related to eHealth: An integrative review

2020 ◽  
pp. 096973302094576
Author(s):  
Anu Jokinen ◽  
Minna Stolt ◽  
Riitta Suhonen
Keyword(s):  
Social Care ◽  
Ethical Issues ◽  
Empirical Studies ◽  
Cochrane Library ◽  
Service Users ◽  
The Social ◽  
User Access ◽  
Ehealth Services ◽  
Academic Search

Background: Identifying and safeguarding ethics in eHealth services from the service users’ perspective in social care and healthcare is important. The use of eHealth services should not prejudice the quality of services or the social interaction required in care. There is a lack of studies about the ethics of eHealth services from the service users’ perspective. Aim: The aim of this study is to identify and analyse ethical issues related to eHealth in social care and healthcare from the service users’ perspective. Research design: An integrative literature review. Ethical considerations: The review followed good scientific conduct. Research context and data sources: A systematic literature search was performed using CINAHL, Scopus, PubMed/MEDLINE, Web of Science, Cochrane Library and Academic Search Premier to find relevant empirical studies published in English from their earliest up to 30 November 2018. In addition, reference lists from the identified research papers were searched. A quality appraisal of each paper included in the review was conducted before thematic analysis. Results: In total, 26 studies were included in the review, and from these four ethical themes were identified: (1) privacy in eHealth, (2) beneficence and nonmaleficence in eHealth, (3) justice in eHealth and (4) trust in eHealth. The ethical issues within these themes were related to information sharing; ownership; access to information and data protection; informed consent; defence of rights; and equity, equality and proportionality of response. Conclusion: eHealth inequality occurs in social care and healthcare. eHealth service designers and social care and healthcare professionals need to act to maintain and improve user access and data accuracy and provide different levels of security in eHealth services, relative to the information stored. There is a need for further research about ethical issues of eHealth from the user’s perspective, including the customer-oriented availability and usability of eHealth services which avoid discrimination.

The Use of Palliative Sedation to Treat Existential Suffering: A Scoping Review on Practices, Ethical Considerations, and Guidelines

2019 ◽  
Vol 35 (1) ◽  
pp. 13-20 ◽  
Author(s):  
Allysa L. Ciancio ◽  
Raza M. Mirza ◽  
Amy A. Ciancio ◽  
Christopher A. Klinger
Keyword(s):  
Health Care ◽  
Scoping Review ◽  
Research Policy ◽  
Grey Literature ◽  
Palliative Sedation ◽  
Ethical Considerations ◽  
Policy And Practice ◽  
Refractory Symptoms ◽  
Existential Suffering ◽  
The Impact

Context: Though palliative sedation has been recognized as an acceptable practice in Canada for many years now, there is a lack of clinical research and guidelines pertaining to its use as a treatment of existential refractory symptoms in the terminally ill. Objectives: This scoping review aimed to survey the literature surrounding palliative sedation and existential suffering and to inform research, policy, and practice. Methods: To address the main research question: Is palliative sedation an acceptable intervention to treat existential refractory symptoms in adults aged 65 and older? a scoping review following Arksey and O’Malley’s framework was performed, spanning electronic databases of the peer reviewed and grey literature. Articles were screened for inclusion, and a thematic content analysis allowed for a summary of key findings. Results: Out of 427 search results, 71 full text articles were obtained, 20 of which were included. Out of these articles, four themes were identified as key findings. These included: (1) Ethical considerations; (2) The role of the health care provider; looking specifically at the impact on nurses; (3) The need for multidisciplinary care teams; and (4) Existential suffering’s connection to religiosity and spirituality. Conclusion: Palliative sedation to treat existential refractory symptoms was labelled a controversial practice. A shortage of evidence-based resources limits the current literature’s ability to inform policy and clinical practice. There is a need for both qualitative and quantitative multi-center research so health care professionals and regional-level institutions have firm roots to establish proper policy and practice.

scholarly journals Analysing local public health action plans: development of a tool for the French CLoterreS Study

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
Y Le Bodo ◽  
R Fonteneau ◽  
C Harpet ◽  
H Hudebine ◽  
F Jabot ◽  
...  
Keyword(s):  
Public Health ◽  
Health Care ◽  
Health Promotion ◽  
Social Determinants Of Health ◽  
Social Determinants ◽  
Social Care ◽  
Local Health ◽  
The Social ◽  
Prevention And Health Promotion ◽  
Living Circumstances

Abstract Background The potential contribution of local authorities to prevention and health promotion is well recognized. In France, since 2009, Local Health Contracts (LHCs) are mobilising Regional Health Agencies, local elected officials and stakeholders to intervene in 4 areas: health promotion, prevention, health care and social care. LHCs remain poorly documented policy instruments. Methods As part of the CLoterreS study, a multidimensional coding tool was developed and tested by two coders to explore the place of prevention and health promotion in LHCs. Its development was based on the WHO conceptual framework for action on the social determinants of health and the Self-assessment tool for the evaluation of essential public health operations in the WHO European Region. Preliminary results concern a random sample of 17 LHCs from as many French regions selected among the 165 LHCs signed between 2015 and March 2018. Results On average, the LHCs featured 26 action forms (AF) (min: 5; max: 56). In a LHC, the average proportion of AF addressing either the social determinants of health, living circumstances or other determinants targeted by health protection, promotion or primary prevention interventions (SDoH-HPP-P1) was 79% while 44% of the AF address secondary/tertiary prevention, social care or the organization of health care and services. Among the SDoH-HPP-P1 themes (double coding permitted): psychosocial life circumstances were addressed in the 17 LHCs and concerned, on average, 31% of their AF; material living circumstances were addressed to a lesser extent (16 LHCs, 13%); other key themes include environmental health (12, 14%), mental health (16, 12%), alcohol abuse (15, 11%), drug use (14, 11%), smoking (13, 9%), physical activity (13, 12%), healthy eating (12, 12%). Conclusions This work confirms that LHCs are instruments with prevention and health promotion at their core. Explanation of the differing investments in this area across our sample will be further explored. Key messages Local Health Contracts are promising instruments to address locally a broad range of health determinants. The CLoterreS analytical tool has proven effective in capturing multiple themes and shedding light on differences between Local Health Contracts’ action plans.

Social care, the personal passport, and reasonable adjustments

2018 ◽  
Author(s):  
Traolach S. Brugha
Keyword(s):  
Health Care ◽  
Risk Management ◽  
Social Worker ◽  
Health Professionals ◽  
Social Care ◽  
Care Planning ◽  
The Social ◽  
Wide Range ◽  
Adult Autism

Where treatment and health care is no longer able to bring relief and improve functioning, social care should take over. In this chapter, we discuss the development of social care in the context of adult autism, and the range of its concerns and interests is considered. The key role of the social worker, particularly as a broker of social care, is developed. Health professionals define the need for reasonable adjustments to assessed disability, and the content of a personal passport, summarizing individual’s needs. Health professionals also have a key role in risk management, although the social worker may have a key co-ordinating role. A wide range of contexts for social care within and beyond health care is considered. The distinction between individual need and care planning, and the role of the wider society, which will be covered in Chapter 14, concludes this chapter.

CROSS-CULTURAL VALIDITY OF A MODEL OF SELF-WORTH: APPLICATION TO FINNISH CHILDREN

2000 ◽  
Vol 28 (2) ◽  
pp. 105-118 ◽  
Author(s):  
Heta-Maria Miller
Keyword(s):  
Social Support ◽  
Cross Cultural ◽  
Self Report ◽  
School Students ◽  
Cultural Validity ◽  
Research And Practice ◽  
The Social ◽  
Self Worth ◽  
Social Support Scale ◽  
Theory Research

This study investigated the cross-cultural validity of Harter's (1985, 1986a, 1986b, 1987b, 1987c) measures and model of self-worth in Finnish children. A total of 306 Finnish elementary school students participated in the study. Principal components analyses supported the original factor structures of Harter's (1985, 1986a) self-report questionnaires, the Self-Perception Profile for Children and the Social Support Scale for Children. Consistent with Harter's (1986b, 1987b, 1987c) model of the determinants of self-worth, multiple regression analysis indicated that both the competence-importance discrepancy and perceived social support explained the variability in self-worth. Implications of these findings for theory, research, and practice are discussed.

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