scholarly journals Overcoming the Issue of Language Barriers with Cantonese Speaking Families When Researching the Impact of Developmental Disability.

2020 ◽  
pp. 1-12
Keyword(s):  
Developmental Disability ◽  
Research Participation ◽  
Language Barriers ◽  
Entire Family ◽  
The Family ◽  
English Speaking ◽  
Impact On Family ◽  
Script Reading ◽  
Health Status Questionnaires ◽  
The Impact

Abstract Cross-cultural studies in East-Asia are needed in educational psychology research because past-studies have found that having a child in the family with a developmental disability can induce feelings of stress, impose major psychological and social adjustments, increase the burden of care and place the entire family at risk. Chinese participants have been under-represented in family studies for some time and language issues have been identified as a recurrent barrier to research participation by Chinese samples. The three major reasons for non-participation are the lack of translated materials, feeling intimidated by English, and the lack of translation of key words. To increase participation in survey research projects, it is clear that first one must remove language barriers. The Impact on Family Scale [1] is a measure that has repeatedly shown good construct validity in assessing the impact of chronic illness on family functioning. Like many health status questionnaires, the Impact on Family Scale was developed in an English-speaking country. The aim of the present study was to develop a Hong Kong Chinese version of the Impact on Family Scale for parents of children with autism to make it culturally viable for Cantonese speaking and traditional script reading participants.

scholarly journals The impact of cancer on healthy siblings

2018 ◽  
Vol 71 (4) ◽  
pp. 1992-1997
Author(s):  
Goreti Marques ◽  
Beatriz Araújo ◽  
Luís Sá
Keyword(s):  
Social Support ◽  
Satisfaction Scale ◽  
Family Social Support ◽  
The Family ◽  
Healthy Siblings ◽  
Disease Impact ◽  
Impact On Family ◽  
Quantitative Descriptive ◽  
The Impact ◽  
Family Functionality

ABSTRACT Objective: The objective is to identify the variables that influence the impact of cancer on healthy siblings. Method: This is a quantitative, descriptive and correlational study with 83 families of children with cancer. We used the “Questionnaire to Assess the Impact of the Children's Cancer on the Family”, “Social Support Satisfaction Scale”, “Graffar Scale” and “Apgar Scale”. Results: The results show a relation between social support (X²=5.031, gl=1, p=0.025), expenses (t=-2.009, gl=81, p=0.048), disease impact on family structure (t=-3.210, gl=81, p=0.002) and the impact of the disease on healthy siblings. Conclusion: Social support plays an important role in these families, especially in the impact of the disease on healthy siblings. Nurses should identify the support systems that families have available, as well as their family functionality and the implications for healthy siblings.

Teen Suicide Attempt: The Subjective Experience of the Family

2021 ◽  
Vol 6 (4) ◽  
Author(s):  
Szmulewicz T ◽  
◽  
Echávarri O ◽  
Morales S ◽  
Maino M de la P ◽  
...  
Keyword(s):  
Suicide Attempt ◽  
Subjective Experience ◽  
Family System ◽  
Metropolitan Region ◽  
Relational Dynamics ◽  
Entire Family ◽  
Analysis Process ◽  
The Family ◽  
Before And After ◽  
The Impact

This study aimed to understand the impact of a teenage child’s suicide attempt at a family level, based on the subjective experience of the family as a whole. A qualitative study based on an hour and a half interview with the entire family was performed within two weeks of the suicide attempt. Ten adolescents hospitalized in a psychiatric unit of a Health Service of the Metropolitan Region, in Chile, and their families, were interviewed. The interviews were recorded, transcribed and analyzed using the Grounded Theory methodology. Three major categories emerge from the analysis: Process Vision, Family Dynamics and Hospitalization Experience. Families perceive a before and after of the suicide attempt in the subsequent evolution of the family system. Changes occur in the way they ‘read’ the experiences and signs prior to the suicide attempt, in the understanding of what happened, and in the transformations of the relational dynamics as a consequence. Family resilience will depend on their history and how they have learned to cope with difficulties. Although one of the most recurrent reports regarding the suicide attempt refers to the traumatic component that it had in all the family members, they also state that this event has meant great learning as a family and an opportunity to grow, to get to know each other better and help each other. The benefits for the family of having a safe space to talk about how they feel and elaborate on what happened, without fear of being judged, has been highlighted. This enhance the need to incorporate the family as a whole when we think about an adolescent suicide attempt, both in understanding the phenomenon and in intervention and treatment.

Applicability of the Impact on Family Scale for Assessing Families with Behaviorally Difficult Children

1992 ◽  
Vol 71 (1) ◽  
pp. 155-159 ◽  
Author(s):  
Lisa B. Sheeber ◽  
James H. Johnson
Keyword(s):  
Child Behavior ◽  
Child Temperament ◽  
Potential Usefulness ◽  
The Family ◽  
Assessment Approach ◽  
Impact On Family ◽  
The Impact ◽  
Difficult Children

The present paper reports a series of studies on the potential usefulness of the Stein and Riessman Impact on Family Scale for assessing the effects of behaviorally difficult children on their families. Subjects were parents of 54 clinic and 76 nonclinic children who completed a child behavior or child temperament questionnaire in addition to the Impact on Family Scale. Findings suggest that, while the scale was developed for assessing the influence of a physically ill child on the family, this general assessment approach may also have value in assessing family-related changes associated with having a child who is difficult to look after.

Changes in Family Dynamics in Caregiving for People With Dementia in South Korea: A Qualitative Meta-Synthesis Study

2019 ◽  
Vol 30 (1) ◽  
pp. 60-72
Author(s):  
Seieun Oh ◽  
Mi Yu ◽  
Young Mi Ryu ◽  
Haejin Kim ◽  
Haeyoung Lee
Keyword(s):  
Family Dynamics ◽  
Qualitative Studies ◽  
Synthesis Methods ◽  
Dementia Caregivers ◽  
Entire Family ◽  
Dementia Caregiving ◽  
People With Dementia ◽  
The Family ◽  
Care Family ◽  
The Impact

Living with a person with dementia considerably affects the lives of both the primary caregiver and the entire family. This study aimed to synthesize the findings of qualitative studies that explored dementia caregivers’ experiences, to further understand the impact of dementia caregiving on family dynamics. Thirty-seven qualitative studies were analyzed and synthesized according to the meta-synthesis methods suggested by Sandelowski and Barroso. Four themes were identified to describe the impact of dementia caregiving on the family: cracked foundation of the family caused by dementia, voluntary or involuntary setup of a marked boundary of care, family as supportive foreground versus reluctant or interfering background, and re-established relationships within and outside the family. The findings illuminate that dementia caregiving has a destructive impact on the entire family, and therefore, it is imperative to develop interventions and infrastructures for both the caregiver and the entire family of individuals with dementia.

The Impact of Children with HIV Infection on the Family System

1997 ◽  
Vol 78 (3) ◽  
pp. 272-279 ◽  
Author(s):  
Sharon Lesar ◽  
Yvonne A. Maldonado
Keyword(s):  
Hiv Infection ◽  
Family System ◽  
Financial Burden ◽  
Hiv Status ◽  
Psychological Burden ◽  
Caregiver Relationship ◽  
Study Results ◽  
The Family ◽  
Impact On Family ◽  
The Impact

The authors examined the effects of HIV infection on the family system as reported by 48 caregivers of HlV-exposed children. Respondents completed the Impact on Family Scale (IFS) as part of their participation in the study. Results showed that the psychological burden of the illness was significantly related to the child's HIV status; financial burden, social/familial Impact, and psychological burden of the Illness were significantly related to the caregiver's HIV status; psychological burden and social/familial impact differed as a function of the child's and caregiver's HIV status; and the Impact of HIV infection differed as a function of the caregiver relationship. Implications of the findings for service delivery are discussed.

The Effect of Language Barriers at Discharge on Pediatric Adenotonsillectomy Outcomes and Healthcare Contact

2020 ◽  
pp. 000348942098017
Author(s):  
Xi Dai ◽  
Marisa A. Ryan ◽  
Anna Christina Clements ◽  
David E. Tunkel ◽  
Anne R. Links ◽  
...  
Keyword(s):  
Emergency Department ◽  
Critical Role ◽  
Tertiary Care ◽  
Language Barriers ◽  
Emergency Department Visits ◽  
Discharge Instructions ◽  
Phone Calls ◽  
English Speaking ◽  
The Impact ◽  
English Group

Objective: Effective delivery of discharge instructions and access to postoperative care play a critical role in outcomes after pediatric surgery. Previous studies in the pediatric emergency department suggest that caregivers with language barriers have less comprehension of discharge instructions despite use of interpretation services. However, the impact of language barriers during discharge on surgical outcomes in a pediatric surgical setting has not been studied. This study examined the effect of parental language during discharge on number and mode of healthcare contact following pediatric adenotonsillectomy. Methods: A retrospective cohort study was conducted on children who underwent adenotonsillectomy at a tertiary care pediatric academic medical center from July 1, 2016 to June 1, 2018. Data were collected on consecutive patients with non-English-speaking caregivers and a systematic sampling of patients with English-speaking caregiver. Surgery-related complications and healthcare contacts within 90 days after discharge were collected. Two-tailed t tests, χ2 tests, and logistic regression were performed to assess the association between parental primary language and incidence of healthcare contact after surgery. Results: A total of 136 patients were included: 85 English-speaking and 51 non-English-speaking. The groups were comparable in age, sex, and comorbidities. The non-English group had more patients with public insurance (86% vs. 56%; P < .001). Number of encounters and types of complications following discharge were similar, but the non-English group was more likely to utilize the emergency department compared to phone calls (OR, 9.3; 95% CI, 2.3-38.2), even after adjustment for insurance type (OR, 7.9; 95% CI, 1.6-39.4). Conclusion: Language barriers at discharge following pediatric otolaryngology surgery is associated with a meaningful difference in how patients utilized medical care. Interventions to improve comprehension and access may help reduce preventable emergency department visits and healthcare costs.

The family perspective

2015 ◽  
Author(s):  
Carrie Lethborg ◽  
David W. Kissane
Keyword(s):  
Information Provision ◽  
Open Communication ◽  
Entire Family ◽  
Emotional Suffering ◽  
Family Perspective ◽  
The Family ◽  
Supportive Interventions ◽  
Family Based ◽  
Caregiver Role ◽  
The Impact

In considering cancer as an illness that affects not only the patient but their entire family, this chapter offers a model of family-centred care to encourage an understanding of the impact of illness on the family, the family in the caregiver role, and the needs of family-based caregivers. From a clinical perspective, the authors offer a guide for assessing these families for interventions, including the use of open communication and information provision, the recognition of past patterns of relating, the encouragement of acceptance of support, discussions with the family as a whole, and support during unpreventable emotional suffering that families experience. Specific interventions described include preventive and supportive interventions, interventions that challenge dysfunction, and interventions with the family when a patient is dying. Family-centred care is challenging as a paradigm but a useful harness to improved quality of life, one that warrants the effort involved to ease the suffering of all.

Family dynamics in the context of serious illness

2021 ◽  
pp. 295-302
Author(s):  
Carrie Lethborg ◽  
David W. Kissane
Keyword(s):  
Information Provision ◽  
Open Communication ◽  
Entire Family ◽  
Emotional Suffering ◽  
Patterns Of Relating ◽  
The Family ◽  
Supportive Interventions ◽  
Family Based ◽  
Caregiver Role ◽  
The Impact

In considering cancer as an illness that affects not only the patient but their entire family, recent research offers further insight into the depth of this impact and the complexity of culture, specific family challenges, and the patient–carer dyad. This chapter offers a model of family-centred care to encourage an understanding of the impact of illness on the family, the family in the caregiver role, and the needs of family-based caregivers. From a clinical perspective, the authors offer a guide for assessing these families for interventions, including the use of open communication and information provision, the recognition of past patterns of relating, the encouragement of acceptance of support, discussions with the family as a whole, and support during unpreventable emotional suffering that families experience. Specific interventions described include preventive and supportive interventions, interventions that challenge dysfunction, and interventions with the family when a patient is dying. Family-centred care is challenging as a paradigm but a useful harness to improved quality of life, one that warrants the effort involved to ease the suffering of all.

scholarly journals The Impact on Family Functioning of Social Media Use by Depressed Adolescents: A Qualitative Analysis of the Family Options Study

2015 ◽  
Vol 6 ◽  
Author(s):  
Andrew J. Lewis ◽  
Tess Knight ◽  
Galit Germanov ◽  
Michelle Lisa Benstead ◽  
Claire Ingrid Joseph ◽  
...  
Keyword(s):  
Social Media ◽  
Family Functioning ◽  
Qualitative Analysis ◽  
Media Use ◽  
Social Media Use ◽  
The Family ◽  
Impact On Family ◽  
The Impact

Research Participation Experiences of Informants of Suicide and Control Cases

Crisis ◽  
2010 ◽  
Vol 31 (5) ◽  
pp. 238-246 ◽  
Author(s):  
Paul W. C. Wong ◽  
Wincy S. C. Chan ◽  
Philip S. L. Beh ◽  
Fiona W. S. Yau ◽  
Paul S. F. Yip ◽  
...  
Keyword(s):  
Ethical Issues ◽  
Research Participation ◽  
Self Report ◽  
Initial Contact ◽  
Psychological Autopsy ◽  
Autopsy Study ◽  
The People ◽  
And Control ◽  
The Impact

Background: Ethical issues have been raised about using the psychological autopsy approach in the study of suicide. The impact on informants of control cases who participated in case-control psychological autopsy studies has not been investigated. Aims: (1) To investigate whether informants of suicide cases recruited by two approaches (coroners’ court and public mortuaries) respond differently to the initial contact by the research team. (2) To explore the reactions, reasons for participation, and comments of both the informants of suicide and control cases to psychological autopsy interviews. (3) To investigate the impact of the interviews on informants of suicide cases about a month after the interviews. Methods: A self-report questionnaire was used for the informants of both suicide and control cases. Telephone follow-up interviews were conducted with the informants of suicide cases. Results: The majority of the informants of suicide cases, regardless of the initial route of contact, as well as the control cases were positive about being approached to take part in the study. A minority of informants of suicide and control cases found the experience of talking about their family member to be more upsetting than expected. The telephone follow-up interviews showed that none of the informants of suicide cases reported being distressed by the psychological autopsy interviews. Limitations: The acceptance rate for our original psychological autopsy study was modest. Conclusions: The findings of this study are useful for future participants and researchers in measuring the potential benefits and risks of participating in similar sensitive research. Psychological autopsy interviews may be utilized as an active engagement approach to reach out to the people bereaved by suicide, especially in places where the postvention work is underdeveloped.

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