Evaluation of Family functioning among parents of epileptic patients

2021 ◽  
Vol 15 (11) ◽  
pp. 3090-3092
Author(s):  
Rukhsana Kousar ◽  
Hajra Sarwar ◽  
Kousar Perveen ◽  
Sadia Khan
Keyword(s):  
Problem Solving ◽  
Family Functioning ◽  
Social Life ◽  
Age Of Onset ◽  
Educational Programme ◽  
Seizure Type ◽  
Behavior Control ◽  
Keywords Epilepsy ◽  
Epileptic Patients ◽  
Affective Involvement

Epilepsy has aggregate of risk characteristic’s as, age of onset, triggering factors, genetics, natural history, prognosis, and it is not a condition based on single aspect or cause. Due to social problems, family functioning of epileptic patients suffers badly. The basic purpose of the study is to investigate the role of family functioning of the parents who has epileptic patients. Methods: Across-sectional study was conducted at Muzaffargarh Hospital Neurology OPD department. Total 36 parents were enrolled. All parents of children, who have 8 to18 years of age, which are diagnosis of epilepsy, were included in current study Data was collected on a predesign questionnaire and for family functioning the Family Assessment Device (FAD) was used. Statistical analysis was performed by using the Statistical Package for Social Sciences (spss) version 26. The frequencies, proportions were calculated for Qualitative variables and Mean + SD were calculated for quantitative variables. Results: The mean age of parents was 38.58+7.55 and children were 12.31+3.34. Out of 36 participants 12(33.3%) were males whereas 24(66.7%) were females. Majority of parents were holding secondary degree 13(36.1%), were unemployed 24(66.7%), 21(58.3%) were from rural area and dealing with generalized seizure type children 24(66.7%). The average seizures frequency per month was 2.64+1.15. The families of epileptic patients were more dysfunctional, especially in terms of problem solving (2.66+0.43), behavior control (2.68+0.49), affective involvement (2.62+0.64) and also family’s faces difficulties in finding their role (2.48+0.56). Conclusion: The families of epileptic patients have more dysfunctional, especially in terms of problem solving, behavior control, affective involvement and also families faces difficulties in finding their role. Therefore educational programme focusing on the importance of family functioning should be provided so that the aspect of treatments and social life of patients get improved. Keywords: Epilepsy, Family functioning, Social Support, Family support

FAMILY FUNCTION LEVELS OF TURKISH FATHERS WITH CHILDREN AGED BETWEEN 0 – 6

2007 ◽  
Vol 35 (4) ◽  
pp. 429-442 ◽  
Author(s):  
Seher Balci Çelik
Keyword(s):  
Problem Solving ◽  
Behavior Control ◽  
Family Structures ◽  
Family Function ◽  
Family Assessment Device ◽  
Level Of Education ◽  
Significant Difference ◽  
The Family ◽  
And Behavior ◽  
Affective Involvement

Family function levels of fathers with children aged 0–6 in Samsun, Turkey were compared on the basis of length of marriage, level of education, family structure, and type of marriage. The sample consisted of 171 fathers aged between 24–36 (average age 29.2). The Family Assessment Device (Epstein, Baldwin, & Bishop, 1983) was used to measure family function levels of fathers and t-test and one way ANOVA were used to analyze the data. There was a significant difference in family function levels of the fathers, according to length of their marriage, in the subdimensions of problem solving, communication, affective involvement, behavior control and general functionings, according to their level of education. In all the subdimensions of affective involvement and behavior control, according to the family structures of fathers, significant differences were found between groups and total general points; according to fathers' types of marriage, a significant difference was found between the groups regarding problem solving, communication, affective involvement, behavior control and general total points.

Family Functioning Affected by Adolescent Idiopathic Scoliosis in China: a Cross-sectional Survey

2020 ◽  
Author(s):  
Yue Huang ◽  
Tao Li ◽  
Wangshu Yuan ◽  
Hai Wang ◽  
Jianxiong Shen
Keyword(s):  
Risk Factors ◽  
Risk Factor ◽  
Family Functioning ◽  
Independent Risk Factor ◽  
Behavior Control ◽  
Coronal Imbalance ◽  
The Family ◽  
The Mean ◽  
And Behavior ◽  
Affective Involvement

Abstract Backgrounds: Adolescent idiopathic scoliosis(AIS) is a common chronic disease in youths, presenting with spinal deformity. Previous studies reported that family functioning of family members will be affected after a child is diagnosed with a chronic health condition. Family functioning would be evaluated in AIS patients and their parents in this study.Methods: 54 AIS patients (age=14.9±1.9 years old; F:M=51:3) who underwent conservative or surgical treatments in our hospital from April 2017 to March 2018, and their parents (age=43.0±4.1 years old; F:M=40:14) were enrolled in this study. Family functioning of both the patients and their parents was evaluated using McMaster family assessment device (FAD). The relationship of family functioning between the patients and their parents was first accessed using paired-samples t-test. Family functioning was defined to be “Unhealthy” if the family FAD scores (the mean scores of the patients and their parents) were above the cut-off. The potential risk factors of the unhealthiest subscales were analyzed using the chi-squared test or the independent t-test. Then, the effects of independent risk factors were analyzed using the logistic regression model if more than two risk factors were identified.Results: There is no significant difference between the AIS patients (1.90±0.42~2.23±0.32) and their parents (1.92±0.35~2.21±0.29) in all seven subscales (p≥0.05). The scores of the parents were moderately/strongly correlated with those of the AIS patients in all seven subscales (𝛄=0.456~0.696, p<0.05). 20.4% to 87.0% of the families experienced unhealthy family functioning, and affective involvement (57.4%), and behavior control (87.0%) were the unhealthiest subscales with the mean scores above the cut-off. Coronal imbalance (p=0.041, Odds ratio [OR]=3.685) was the independent risk factor of unhealthy affective involvement.Conclusions: 20.4%~ 87.0% families reported unhealthy family functioning, especially for affective involvement and behavior control. Coronal imbalance (body image) was an independent risk factor of unhealthy affective involvement. These facts suggest a potential need of the family for assistance with establishing and maintaining near-normal daily routines after a child is diagnosed with AIS. Medical workers should provide some practical suggestions for AIS families to improve their family functioning.

scholarly journals PROFIL PENYANDANG EPILEPSI DI POLIKLINIK SARAF RSUP PROF. DR. R.D. KANDOU MANADO PERIODE JUNI 2013 – MEI 2014

e-CliniC ◽  
2015 ◽  
Vol 3 (1) ◽  
Author(s):  
Rhiza Khasanah ◽  
Corry N. Mahama ◽  
Theresia Runtuwene
Keyword(s):  
Focal Epilepsy ◽  
Public Health Problem ◽  
Economic Life ◽  
Seizure Type ◽  
Major Public Health Problem ◽  
Age Group ◽  
Keywords Epilepsy ◽  
Adult Age ◽  
Epileptic Patients ◽  
Patients With Epilepsy

Abstract: Epilepsy is one of the oldest neurological diseases, found in all ages, and can cause impairment and mortality. Epilepsy is still a major public health problem, not only because of its health implications but also for its connotations in social, cultural, psychological, and economic life. This study aimed to obtain a description of patients with epilepsy in Neurology Clinic of Prof. Dr. RD Kandou Manado General Hospital, period of June 2013 - May 2014. The method used in this study was descriptive retrospective. The results showed that the number of epileptic patients was higher in males than in females. By the age group age, it was found that epileptic patients in young adult age group were the most frequent. By the level of education, it was found that patients with epilepsy were more common high school graduated. By the type of work; it was found that a lot of patients with epilepsy had no ocuupation yet and were still students/college students. Patients with partial seizure type (focal) epilepsy were the most commonly found. By past medical history, it was found that most patients had experienced seizures. The most common treatment for epileptic patients was monotherapy antiepileptic drugs..Keywords: epilepsy, seizureAbstrak: Epilepsi adalah salah satu penyakit neurologi tertua, ditemukan pada semua umur dan dapat menyebabkan hendaya serta mortalitas. Epilepsi masih menjadi masalah kesehatan masyarakat yang utama, bukan hanya karena implikasi kesehatan tetapi juga untuk konotasi sosial, budaya, psikologis dan ekonomi. Penelitian ini bertujuan untuk memperoleh gambaran penyandang epilepsi di Poliklinik Saraf RSUP Prof. DR. R. D. Kandou Manado periode Juni 2013 – Mei 2014. Penelitian ini bersifat deskriptif retrospektif. Hasil penelitian menunjukkan penyandang epilepsi laki-laki lebih banyak dibandingkan dengan perempuan. Berdasarkan golongan usia, terbanyak ditemukan pada golongan usia dewasa muda. Berdasarkan tingkat pendidikan, terbanyak ditemukan pada lulusan SMA. Dilihat dari jenis pekerjaannya, banyak penyandang epilepsi yang belum bekerja dan masih berstatus sebagai pelajar/mahasiswa. Penyandang epilepsi dengan jenis bangkitan parsial (fokal) paling banyak ditemukan dari pada penyandang epilepsi dengan jenis bangkitan umum. Berdasarkan riwayat penyakit dahulu terbanyak terdapat pada riwayat penyakit dahulu dengan kejang. Pengobatan tersering yang dilakukan terhadap penyandang epilepsi ialah dengan monoterapi obat-obat anti epilepsi.Kata kunci: epilepsi, kejang

scholarly journals Family functioning and satisfaction: A comparative study between hookah users and non-users

2019 ◽  
Vol 11 (1) ◽  
Author(s):  
Nicolette Roman ◽  
Edna Rich ◽  
Charl Davids ◽  
Fatiema Benjamin ◽  
Matthew Taylor
Keyword(s):  
Family Functioning ◽  
Age Of Onset ◽  
Economic Status ◽  
Family Satisfaction ◽  
Global Scale ◽  
Intervention Strategies ◽  
Family Context ◽  
The Family ◽  
Resilient Communities ◽  
Addiction Risk

Background: Although there has been an exponential growth in hookah use on a global scale, research within the context of South Africa is very limited. While hookah use is known internationally to be a health and addiction risk, the focus is on university students and not on families.Aim: This study aims to compare the family functioning and family satisfaction among hookah users and non-users.Setting: This study was conducted in low or middle-high class socio-economic status areas of Cape Town, South Africa.Methods: A quantitative method was employed to test for significant differences with a sample of 1193 participants, in which each participant represented a family. An independent t-test was used to test for significant differences between hookah users and non-users.Results: One-third (34%) of the participants indicated that they smoked hookah pipe, with the general age of onset being 16.5 years. In trying to understand the family context, it was found that 28% of hookah users indicated that the hookah pipe was used as a means of socialising with others in the family, and 24% of parents indicated that they were more accepting of family members smoking the hookah pipe. Findings also suggest that families of hookah users have less cohesion, expressiveness and family satisfaction, and more conflict and permissiveness than families of non-users.Conclusion: This study provides and extends knowledge regarding the family in hookah pipe use. This information could assist in reducing hookah pipe use, and building healthier and more resilient communities by formulating prevention and intervention strategies to reduce hookah use.

6. Problems

2016 ◽  
Author(s):  
David Garland
Keyword(s):  
Problem Solving ◽  
Welfare State ◽  
Labour Market ◽  
Social Life ◽  
Welfare States ◽  
The Real ◽  
Moral Hazards ◽  
The Welfare State

The welfare state is, at its core, a problem-solving apparatus, designed to manage dysfunctions that are endemic to the economic and social life of modern nations. But welfare states also generate problems of their own—such as moral hazards, excessive bureaucracy, soaring costs, and labour market rigidities—that sometimes threaten to bring the whole enterprise into disrepute. ‘Problems’ shows that these issues are troubling and consequential, but in weighing their significance we ought always to ask: ‘what can be done?’ and ‘what are the alternatives?’ That the welfare state has its problems is undeniable. The real question is whether these problems are manageable and how they compare to those of other arrangements.

The families of anorexia nervosa and cystic fibrosis patients

1995 ◽  
Vol 25 (5) ◽  
pp. 985-993 ◽  
Author(s):  
C. Blair ◽  
C. Freeman ◽  
A. Cull
Keyword(s):  
Cystic Fibrosis ◽  
Anorexia Nervosa ◽  
Problem Solving ◽  
Family Functioning ◽  
Direct Observation ◽  
Expressed Emotion ◽  
Illness Severity ◽  
Self Report ◽  
Family Problem ◽  
Problem Solving Task

SYNOPSISThe objective of the study was to determine whether the families of anorexia nervosa (AN) patients were more dysfunctional than those of cystic fibrosis (CF) patients and well controls. Data were collected from self-report questionnaires, from an interview rated for Expressed Emotion (EE) and from direct observation of a family problem solving task which was rated for evidence of Minuchin's ‘psychosomatic family’ dimensions. A total of 87 families participated. Most self-report measures of family functioning did not distinguish between groups. There were no differences in levels of EE criticism. AN and CF households showed more EE emotional over-involvement than did the well households. Over-involvement correlated with illness severity. More households in the AN group were enmeshed, over-protective and poor at problem solving than in the CF and well groups. Minuchin's conceptualization of the anorexia nervosa family was partly supported.

A group psychoeducational intervention for parents of individuals with schizophrenia

2011 ◽  
Vol 26 (S2) ◽  
pp. 1516-1516 ◽  
Author(s):  
I. Tsiouri ◽  
A. Gena ◽  
O. Mouzas
Keyword(s):  
Problem Solving ◽  
Family Functioning ◽  
Psychoeducational Intervention ◽  
Family Burden ◽  
Family Rituals ◽  
Ongoing Research ◽  
Problem Solving Skills ◽  
General Family ◽  
Standard Clinical Practice ◽  
Psychoeducational Interventions

IntroductionFamilies of individuals with schizophrenia experience disempowerment and helplessness because of unique stressors in their everyday life, mainly derived from the positive and negative symptoms of the illness (Bauml, et al., 2006). Another line of research provides evidence that working with families of people with schizophrenia is effective in reducing family burden and distress levels, through structured psychoeducational interventions (Falloon, 2003; Bauml, et al., 2006).Objectives, aimsDespite evidence of their efficacy, psychoeducational interventions have not been widely implemented in standard clinical practice. The goal of this ongoing research project is to investigate the efficacy of a group psychoeducational intervention for parents of individuals with schizophrenia in reducing family burden and in improving their communication and problem solving skills, as well as their general family functioning.MethodsThe theoretical foundations of family psychoeducation is mainly derived from behavioral family therapy. Four couples (all parents of one or two individuals with schizophrenia) participated in this psychoeducational intervention program. Twenty three group sessions were conducted, organized around three primary goals: a) provision of information about the nature and the treatment of schizophrenia b) management of social and self-stigmatization and c) teaching family members problem-solving and communication skills (Solomon, 2000).Results and conclusionsPre and post treatment measures, as well as direct measures during treatment, were used to quantitatively assess family burden, family rituals, knowledge about the nature of the disorder, coping with stigma, communication and problem solving skills and general family functioning. Findings will be discussed.

scholarly journals Profil penyandang epilepsi di Poliklinik Saraf RSUP Prof. Dr. R.D. Kandou Manado periode Juli 2015 – Juni 2016

e-CliniC ◽  
2016 ◽  
Vol 4 (2) ◽  
Author(s):  
Mughni H. Hasibuan ◽  
Corry N. Mahama ◽  
Rizal Tumewah
Keyword(s):  
Focal Epilepsy ◽  
Neurological Diseases ◽  
Public Health Problem ◽  
Economic Life ◽  
Seizure Type ◽  
Major Public Health Problem ◽  
Adult Age ◽  
Epileptic Patients ◽  
Neurology Clinic ◽  
Patients With Epilepsy

Abstract: Epilepsy is one of the most common neurological diseases that can be complicated due to behavioral, cognitive, and mental disorders. Approximately 50 million people currently live with epilepsy worldwide. Epilepsy is still a major public health problem, not only because of its health implications but also for its connotations in social, cultural, psychological, and economic life aspects. This study was aimed to obtain the profile of patients with epilepsy in the Neurology Clinic of Prof. Dr. R. D. Kandou Hospital Manado from July 2015 to June 2016. This was a descriptive retrospective study. The results showed that the number of epileptic patients was higher in males than in females. Epipleptic patients were more common in young adult age group, high school graduated, had no ocuupation yet and were still students. Majority of patients had partial seizure type (focal) epilepsy. Most epileptic patients were treated with monotherapy antiepileptic drugs. Based on the seizures, most patients had uncontrolled seizure.Keywords: epilepsy, seizure. Abstrak: Epilepsi merupakan salah satu penyakit saraf yang paling umum dan dapat menjadi rumit dengan gangguan perilaku, kognitif , dan mental. Sekitar 50 juta orang saat ini hidup dengan epilepsi di seluruh dunia. Epilepsi masih masalah kesehatan masyarakat yang utama, karena bukan hanya berdampak pada kesehatan tetapi juga berdampak pada sosial, ekonomi, psikologis dan budaya. Penelitian ini bertujuan untuk memperoleh profil penyandanfn epilepsi dalam 1 tahun di Poliklinik Saraf RSUP Prof. Dr. R. D. Kandou Manado periode Juli 2015-Juni 2016. Jenis penelitian ialah deskriptif retrospektif menggunakan data penderita Epilepsi yang tercatat di rekam medik RSUP Prof. Dr. R. D. Kandou Manado periode Juli 2015 hingga Juni 2016. Hasil penelitian menunjukkan penyandang epilepsi laki-laki lebih banyak dibandingkan dengan perempuan. Terbanyak ditemukan pada golongan usia dewasa muda, lulusan SMA, belum bekerja dan masih berstatus sebagai pelajar. Penyandang epilepsi dengan jenis bangkitan parsial (fokal) paling banyak ditemukan dari pada yanng dengan jenis bangkitan umum. Pengobatan tersering yang dilakukan terhadap penyandang epilepsi ialah dengan monoterapi obat-obat anti epilepsi. Berdasarkan terkontrolnya kejang pada pasien epilepsi, lebih banyak kejang tidak terkontrol. Kata kunci: epilepsi, kejang.

Clinical and Genetic Profile of Autism Spectrum Disorder–Epilepsy (ASD-E) Phenotype: Two Sides of the Same Coin!

2020 ◽  
Vol 51 (6) ◽  
pp. 390-398 ◽  
Author(s):  
Sudhakar Karunakaran ◽  
Ramshekhar N. Menon ◽  
Sruthi S. Nair ◽  
S. Santhakumar ◽  
Muralidharan Nair ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Age Of Onset ◽  
Focal Epilepsy ◽  
Diagnostic Yield ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Chromosomal Microarray ◽  
Seizure Type ◽  
Epilepsy Syndrome ◽  
Genetic Profile

The clinical phenotype of autism spectrum disorder and epilepsy (ASD-E) is a common neurological presentation in various genetic disorders, irrespective of the underlying pathophysiological mechanisms. Here we describe the demographic and clinical profiles, coexistent neurological conditions, type of seizures, epilepsy syndrome, and EEG findings in 11 patients with ASD-E phenotype with proven genetic etiology. The commonest genetic abnormality noted was CDKL5 mutation (3), MECP2 mutation (2), and 1p36 deletion (2). The median age of onset of clinical seizures was 6 months (range, 10 days to 11 years). The most common seizure type was focal onset seizures with impaired awareness, observed in 7 (63.6%) patients followed by epileptic spasms in 4 (30.8%), generalized tonic-clonic and atonic seizures in 3 (27.3%) patients each and tonic seizures in 2 (18.2%) patients and myoclonic seizures in 1 (9.1%) patient. Focal and multifocal interictal epileptiform abnormalities were seen in 6 (54.6%) and 5 (45.5%) patients, respectively. Epileptic encephalopathy and focal epilepsy were seen in 7 (63.6%) and 4 (36.4%) patients, respectively. The diagnostic yield of genetic testing was 44% (11 of 25 patients) and when variants of unknown significance and metabolic defects were included, the yield increased to 60% (15 of 25 patients). We conclude that in patients with ASD-E phenotype with an underlying genetic basis, the clinical seizure type, epilepsy syndrome, and EEG patterns are variable. Next-generation exome sequencing and chromosomal microarray need to be considered in clinical practice as part of evaluation of children with ASD-E phenotype.

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