scholarly journals Primary Caregivers of People with Severe Mental Illness Experience of Anti-Psychotic Medication: Findings from the Semi-Structured Interviews

2018 ◽  
Vol 10 (3) ◽  
pp. 20
Author(s):  
Abdalhadi Hasan ◽  
Hussein Tumah

BACKGROUND: Management of schizophrenia is now shifted to the community setting and family caregivers are the primary caregivers. Managing medications is a complex responsibility of family caregivers caring for patients with mental illness. Medication compliance contributes to improve health outcomes and reduced hospitalization for the care service users; however, little is known about attitudes and perception of family caregivers.METHODS: A purposeful sample of 21 family caregivers were included in the study. Semi-structured interview was employed to collect data from the participants between May and October 2015. Thematic analysis approach was used to identify the common pattern in the data.RESULTS: Four main themes emerged from the study: insight into illness (poor understanding of illness), treatment factor (thinking about medication, poor guidance for medication compliance), resources and support (availability of medication and cost of medication), health care provider factors (communication gap and poor assessment with follow-up, social dysfunction (social isolation, disruption in life routine).CONCLUSIONS: Responsibility for providing care for patients with mental illness are taken place in the community setting and cared by family caregivers. More information resources are required for this role, which requires specific medication management skills and knowledge.

2016 ◽  
Vol 4 (1) ◽  
Author(s):  
Aditi Rana

Mental illness is a growing reality of our times. Usually in a typical Indian family, the parents act as the primary caregivers for the child suffering from mental disorder. For adult sufferers, it can also be siblings or offspring, and  at times even spouse or partner. Research on the experiences of families of mentally ill people has been minimal in the Indian context. This study aims to shift the focus from the mentally ill patients to the suffering of the caregivers and families of the patient keeping in mind the interconnected well being of the family in a collectivist culture. Following a qualitative approach, narratives have been taken from the family members of mentally ill (narratives of 8 families with mentally ill person) and also the mental health professionals (two) through semi structured interviews. The findings suggest that the family members suffer from a significant amount of stress accompanied by burden. Also, they feel secluded from the society and experience a lack of assistance to deal with the mentally ill member of the family.


2017 ◽  
Vol 29 (5) ◽  
pp. 765-776 ◽  
Author(s):  
Ashley Macleod ◽  
Gemma Tatangelo ◽  
Marita McCabe ◽  
Emily You

ABSTRACTBackground:Family caregivers of people with dementia have significant unmet needs in regard to their caregiving role. Despite this, they are reluctant to utilize services to reduce their burden. The aim of this study was to examine the barriers and facilitators of service use among family caregivers of people with dementia.Method:Semi-structured interviews were conducted with 24 family caregivers of community-dwelling people with dementia. Of these, 12 were partner caregivers (4 men, 8 women) and 12 were offspring caregivers (2 men, 10 women). The interviews were transcribed and analyzed using thematic analysis.Results:Six main barriers and three facilitators were identified. These barriers and facilitators were relevant across many types of services and supports. The barriers were: the inability to find information about relevant services or support, the poor quality or mistrust of the services, the inflexibility of services, caregivers’ beliefs about their obligations to the caregiving role and resistance by the care recipient. Key facilitators were: having good communication with the care recipient, having an “expert” point of contact, and having beliefs about the caregiving role that enabled the use of services.Conclusion:Given the significant changes in the aged care service-system, it is important to discuss the barriers faced by family caregivers of people with dementia. This will inform the development of targeted strategies to address the lack of service use among these family caregivers.


2017 ◽  
Vol 6 (3) ◽  
pp. 781
Author(s):  
Fatma Kenevir

<p><strong>Abstract</strong></p><p>       This study consists of the results of the research conducted with convicted female prisoners who committed crimes against the immunity and body immunity in Ankara (Sincan), İzmir (Şakran) and İstanbul (Bakırköy) women's closed prisons. The scope of the research includes women convicted of crimes against life and body immunity, who are more religious than prisoners convicted of theft, drugs etc. In this respect, the factors that lead to the criminality of women, who were convicted of murder or attempt murder, convicted of wounding offenses and who defined themselves as religious, are determined. Another aim is to demonstrate the crime and victim relationship, how convicts explain criminal actions to themselves and their surroundings and how they justify themselves. Questionnaires and semi-structured interview techniques were used as a method. In this direction, the findings obtained from the results of the questionnaire conducted with 151 women convicts were evaluated by descriptive statistical method and the results of semi-structured interviews with 8 women were included in the results. These types of explanations, included in neutralization techniques, are: commitment to values, the role of the victim, and rejection of responsibility. In the first place, the victim sees the situation as a matter of honor and explains the guilt involved with their beliefs / beliefs. Secondly, the violence (domestic problems) that is experienced is said to be the result, as in the opposite party deserves it. In the third place, the victim rejects the responsibility, indicating that the mental illness or depression is the result of suicide.</p><p><strong>Öz</strong></p><p>     Bu çalışma, Ankara (Sincan), İzmir (Şakran) ve İstanbul (Bakırköy) kadın kapalı ceza infaz kurumlarında bulunan hayata ve vücut dokunulmazlığına karşı suç işlemiş hükümlü kadın mahkûmlarla yapılan araştırma sonuçlarından oluşmaktadır. Araştırmanın kapsamı ise, hırsızlık, uyuşturucu vs. gibi suç türlerinden hüküm giymiş mahkûmlara kıyasla dindarlığı daha yüksek olan, hayata ve vücut dokunulmazlığına karşı suçlardan hüküm giymiş kadın mahkûmlarla sınırlandırılmıştır. Bu doğrultuda, adam öldürme veya adam öldürmeye teşebbüs, yaralama suçlarından hüküm giymiş olup, kendilerini dindar olarak tanımlayan kadınların, suça yönelmesindeki etken faktörler ele alınmış olup; kadın mahkûmlarda suç ve mağdur ilişkisi, suç eylemini kendisine ve çevresine açıklayıp, gerekçelendirme biçimlerinin ortaya çıkarılması amaçlanmıştır. Yöntem olarak anket ve yarı yapılandırılmış mülakat teknikleri beraber kullanılmıştır. Bu doğrultuda 151 kadın mahkûma uygulanan anket sonuçlarından elde edilen bulgular, tanımlayıcı istatistiksel metot ile değerlendirilmiş, ayrıca 8 kadınla yapılan yarı yapılandırılmış görüşme sonuçlarına yer verilmiştir. Bulguların değerlendirilmesi sonucunda, hayata ve vücut dokunulmazlığına karşı suç işlemiş kadın mahkûmların karıştıkları suçu dindarlıkları içinde genellikle üç şekilde açıkladığı sonucuna ulaşılmıştır. Nötrleştirme teknikleri içinde yer alan bu açıklama tipleri, değerlere bağlılık, mağdurun rolü ve sorumluluğu reddetme şeklindedir. Birincisinde, durumu namus meselesi olarak görme ve sahip olduğu değerlerle/inançla karıştıkları suçu açıklama söz konusudur. İkincisinde, maruz kalınan şiddet (aile içi sorunlar) sonucu, karşı tarafın bunu hak etmesi olarak açıklanmaktadır. Üçüncüsü ise, akli hastalık ya da bunalım sonucu bu suça karıştığını belirterek, sorumluluğu reddetme şeklindedir.</p>


2020 ◽  
Vol 30 (10) ◽  
pp. 1529-1545
Author(s):  
Trang Nguyen ◽  
Sue Levkoff

In this article, we explore the psychological process through which Vietnamese family caregivers adjust to their role as primary caregivers for their relatives with dementia. The study adopted a constructivist grounded theory approach to collect data with 30 face-to-face, semi-structured interviews with 20 self-identified primary caregivers of older adults with dementia in Vietnam. The core adjustment process, consisting of four stages ( Experience, Acknowledgment, Experiment, and Acceptance [ EAEA]), to caregiving role emerged from the data. The EAEA process highlights the importance of self-perception, self-perception focused strategies, and acceptance of caregivers and suggests an adjustment process to their “becoming self” in caregiving. The EAEA process was reflected in the transactional relationship with caregiver personal factors (demographic and relational characteristics with care recipients, personal beliefs in and commitments to caregiving, and personal history of caregiving and coping with past adversity) and structural factors (cultural values and norms, social support, and social pressure).


2020 ◽  
Vol 73 (suppl 3) ◽  
Author(s):  
Rosangela Aparecida Elerati Silva ◽  
Camila do Nascimento Silva ◽  
Patrícia Pinto Braga ◽  
Denise Barbosa de Castro Friedrich ◽  
Ricardo Bezerra Cavalcante ◽  
...  

ABSTRACT Objective: To understand the management of home care by family caregivers of dependent elderly people after hospital discharge. Methods: Qualitative research guided by hermeneutics-dialectic, anchored in the theory of communicative action. Data collection took place using a semi-structured interview with 11 participants. Results: Two categories were constructed: Management of the many types of care by the caregiver and the relationship between family caregiver and health care network. Care and management actions carried out routinely cause major changes in the family caregiver’s life. He/she does not recognize planning, home care periodicity or support in required procedures. Final Considerations: The management of home care for dependent elderly people after hospital discharge is complex, involving physical and emotional overloads, as well as difficulties in getting support from health services. The planning shared between the health team and the family since the discharge is required, and the better visibility of the role of primary care when the patient is assisted by a home care service.


2021 ◽  
pp. 089198872110429
Author(s):  
Jiska Cohen-Mansfield ◽  
Hava Golander

We examined how family caregivers react, and what interventions they use in response to delusions exhibited by relatives with dementia in a community setting. Structured interviews were conducted with 68 family caregivers whose relatives were described as experiencing delusions based on the BEHAVE-AD or the NPI. Quantitatively, we cross-tabulated the type of response to delusion by the type of person providing the response and by the type of delusion manifested. Qualitatively, we analyzed open-ended responses to understand the types of caregivers’ responses to delusions, the contextual circumstances, and the impact of the responses. Caregiver responses to delusions included “Explaining that the delusion was wrong” (34% of responses), “Trying to calm down” (27%), “Agreeing with the delusion” (13%), “Distracting” (12%), and “Ignoring” (10%). Responses including “Anger, yelling or scolding,” were rare. The vast majority of reactions were by family caregivers of the persons with dementia. The relative frequency of the type of reaction tended to be consistent across delusion types. The qualitative analyses added some categories of reactions, but mostly highlighted issues to be considered when examining responses and their efficacy, including the use of multiple responses, and the manner and mood in which responses are conveyed. To cope with delusions, family caregivers develop intuitive intervention techniques. Understanding those interventions and reactions by caregivers and their relative efficacy can inform guidance programs for family caregivers. Improved support for family caregivers has the potential to positively influence the behavior of caregivers and older adults with dementia and improve their respective quality of life.


2019 ◽  
Vol 65 (7-8) ◽  
pp. 589-602
Author(s):  
Manila Mathews ◽  
Poornima Bhola ◽  
Hesi Herbert ◽  
Santosh K Chaturvedi

Background: Understanding the explanatory models of family caregivers is particularly important in interdependent contexts like India, where they often play a significant role in the help-seeking behaviours, treatment decision-making and long-term care of those diagnosed with mental illness. Aims: This study was planned to explore the diversity of explanatory models among family caregivers at a centre for recovery-oriented rehabilitation services in South India. Methods: The sample for this study included 60 family caregivers of patients referred to Psychiatric Rehabilitation Services within a tertiary-care hospital for mental health and neurosciences. Bart’s Explanatory Model Inventory, including a semi-structured interview and a checklist, assessed the family caregivers’ explanatory model of distress on five domains: identity, cause, timeline, consequences and control/cure/treatment. Results: The results indicated the coexistence of multiple causal explanatory models including psychosocial, supernatural, situational and behavioural contributors. While 36.7% of the caregivers displayed two explanatory models, 33.3% of the caregivers held three explanatory models and 16.6% of the caregivers endorsed four explanatory models. Caregivers shared their concerns about varied consequences of mental illness but less than half of them were aware of the name of the psychiatric disorder. While they accessed various forms of treatments and adjunctive supports such as prayer, medication was the most frequently used treatment method. Conclusions: The findings have implications for collaborative goal setting in recovery-oriented services for persons with mental illness and their families.


1988 ◽  
Vol 26 (2) ◽  
pp. 91-106 ◽  
Author(s):  
Evangelina P. Novero Blust ◽  
Rick J. Scheidt

This study assessed perceptions of filial responsibility among forty older Filipino mothers and their primary caregiver daughters from two urban and two rural barangays in the town of Los Banos (39 miles southeast of Manila). Using parallel standard structured interview measures, perceptions of filial expectations and filial behaviors were gathered across five categories of parental support: financial and material aid; personal care; service provision; respect; and warmth and affection. Intragenerational comparisons (analyses of variance) showed that widows' reports of actual amount of support received significantly exceeded their expectations for most forms of aid. In contrast, daughters' expectations for level of parental support exceeded their behaviors, but only for the more instrumental forms of aid. Intergenerational comparisons ( t-test analyses) revealed that daughters held reliably higher filial expectations for almost all forms of support than did their mothers. Comparisons of reports of actual support showed intergenerational consensus on the whole. Implications of these data for research and intervention in this area are discussed.


2020 ◽  
Author(s):  
Eleonora Gheduzzi ◽  
Cristina Masella ◽  
Niccolò Morelli ◽  
Guendalina Graffigna

Abstract Background: Co-production has been widely recognized as a plausible means to reduce the dissatisfaction of service users, the inefficacy of service providers, and conflicts in relations between the former and the latter. However, this enhancement of co-production has started to be questioned: co-production is not always a panacea, and its effects may not always be fruitful. To understand and prevent unsuccessful user and provider collaboration, the recent literature has begun to focus on the causes of co-destruction. This paper investigates how the possible limiting factors that arose during the co-production of a new social service with family caregivers of older patients living in a rural and remote area might influence the process of co-creation and/or co-destruction. Methods: To investigate this topic, we performed a single case study by considering a longitudinal project (Place4Carers) intended to co-produce a new social care service with and for the family caregivers of elderly patients living in a rural and remote area. We organised collaborative co-assessment workshops and semi-structured interviews to collect the views of family caregivers and service providers on the co-production process. As part of the research team that participated in the co-production process, we contributed to the analysis with a reflexive approach. Results: The results confirmed that the project experienced both the processes of co-creation and co-destruction. Some dimensions are crucial in such processes. In particular, the dimension related to trust in the promoter of a project and the other partners can determine its success or failure. Moreover, the level and effectiveness of engagement and creating a cohesive partnership among partners are key aspects for a co-creative project. Conclusions: Our article confirms that the co-creation and co-destruction processes coexist. The role of researchers and service providers is to prevent or remedy co-destruction effects. To this end, we suggest that in co-creative projects more time should be spent on creating mutual trust through conviviality among participants, and institutions should foster collaborative research in order to help organizations that are not used to working together. Hence, particular attention should be paid to internal evaluative procedures.


2018 ◽  
Author(s):  
Abu Sikder ◽  
Francis Yang ◽  
Rhiana Schafer ◽  
Glenna A. Dowling ◽  
Lara Traeger ◽  
...  

Objectives: Due to psychological and physical strain, family caregivers of patients with Alzheimer’s disease and related dementias are at high risk for depression and stress related disorders. We investigated the feasibility of a mobile application (App) intervention delivering Mentalizing Imagery Therapy (MIT), which incorporates guided imagery and mindfulness, to facilitate self-regulation and increase perspective on the mental life of self and others. Method: A 4-week pilot trial of an MIT App for family caregivers of people with dementia was conducted to assess feasibility of use, mood and depression symptom benefit, and relationship changes. Semi-structured interviews were conducted at the study’s conclusion to characterize participants’ perceived benefits. Results: 80% of 21 consented participants downloaded the App, utilized it at least once, and were further analyzed. Of these participants, average usage of audio recordings was 14 ± 10 (SD) days out of 28 possible, and 29 ± 28 individual sessions. Acute improvement in mood from before to after completion of exercises was uniformly observed (p &lt; .001), and after four weeks there was a significant increase in positive affect and a reduction in negative affect. Participants with severe levels of depression (n=3) at baseline exhibited an improvement in symptoms at 4 weeks averaging 30% (p &lt; .05). Semi-structured interviews revealed an increase in the ability to remain “centered" despite caregiving challenges, take the perspective of the loved one, and positively reframe the caregiver experience.Conclusion: App delivery of MIT is feasible for family dementia caregivers. Results showed moderate to high usage of the app for a majority of the users, and promising improvements in mood and depression. These data provide justification for larger, controlled trials.


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