Background: Transition from pediatric to adult
care can be a difficult time for adolescents with epilepsy. This period is
often a period of extreme vulnerability and stress. As a result, research
has recommended transition clinics to help these adolescents develop needed
transition skills. However, the skills that need to be focused on remain
unclear. Methods: Baseline transition skills in 113
adolescents with epilepsy, aged 14 to 18 (M= 16.46, male= 56) were analyzed.
Results: Analyses showed that older adolescents
showed significantly more transition skills than younger adolescents
(F(4,108)=5.522, p=000). Although positive, older adolescents only scored,
on average, 16.3/28 on the transition questionnaire; suggesting that many
skills are still lacking, even at the time of transition. Specifically,
although the majority of these older adolescents demonstrated being able to
manage their condition independently (e.g., summarizing medical history,
taking/knowing medications), these adolescents were less likely to
demonstrate skills needed to be advocates for themselves and their health
(e.g., asking questions, discussing concerns, speaking to the doctor instead
of letting their parents). Conclusions: Results
suggest it may be beneficial to restructure adolescent clinic visits;
encouraging these patients to attend the initial portion of visits
independently to help them feel more comfortable and confident championing
for themselves.