Identifying Service and Care Needs from the Users’ Perspective in Treatment-Resistant Schizophrenia

2017 ◽  
Vol 41 (S1) ◽  
pp. S68-S68
Author(s):  
K. Rubinstein
Keyword(s):  
Psychosocial Functioning ◽  
Treatment Resistant ◽  
Time Data ◽  
General Will ◽  
Care Needs ◽  
Individual Interviews ◽  
Advantages And Disadvantages ◽  
Technological Developments ◽  
Competing Interest ◽  
Informal Carers

Exploring service and care needs of patients with treatment-resistant schizophrenia is necessary for a better understanding of their psychosocial functioning, in order to develop rehabilitation goals as well as to provide them with better care.m-RESIST is an innovative project aimed to empower patients with resistant schizophrenia, to personalize treatment by integrating pharmacological and psycho-social approaches, and to develop knowledge related to the illness using predictive models designed to exploit historical and real-time data, based on environmental factors and treatment outcomes.m-RESIST is a system based on computer and cellular applications and wearable computing devices. The system will serve patients, caregivers and clinicians, and include the following functions: Information, Assessment, Monitoring, Communication, and Intervention.The first step in the development process included definition of the end user needs and preferences, in order to involve users in the design of the system. Outpatients with treatment-resistant schizophrenia, informal carers (relatives), and clinicians were included in the sample. There were a total of 9 focus groups, 3 in each pilot country. Each group was composed of one of the participant profiles. Additionally, 35 individual interviews were performed, which were unevenly distributed throughout the 3 institutions.The current workshop section will present the outcomes of this process: perceived advantages and disadvantages of the technological solution, as well as conclusions for further development. In addition, methodological issues, future challenges, relevant for the evolution of the m-RESIST project, in particular, as well as technological developments in the field of mental health, in general, will be discussed.1Disclosure of interestThe author has not supplied his declaration of competing interest.

The investigation of nurses’ sociotropic-autonomic personality features levels in the context of emotional habitus

2017 ◽  
Vol 41 (S1) ◽  
pp. S693-S694
Author(s):  
B. Malak Akgun
Keyword(s):  
Positive Development ◽  
Structural Factors ◽  
Care Needs ◽  
Individual Interviews ◽  
Personal Character ◽  
Competing Interest ◽  
Personality Features ◽  
Individual Self ◽  
Optimal Behaviour

IntroductionResearchers who plan to debate the nursing practice habits and nurses’ professional-individual self and identity can study out nurse habitus. Habitus affects how the nurses understand care needs of patients. Also, sociotropy-autonomy is important for both the personal and professional development of nurses. According to researchers, professional criteria are autonomy, commitment to the profession and unity consciousness.ObjectivesThe study was designed to investigate of nurses’ sociotropic-autonomic personality features levels in the context of emotional habitus.MethodsInformation form, sociotropy-autonomy scale were applied to 10 nurses. Also, semi-structured thorough individual interviews were made with them.ResultsSeven nurses have voluntarily chosen their profession and the others are not. Nurses’ sociotropy levels were 59.2 ± 22. Sixteen and autonomy levels were 83.9 ± 22.41. According to the results of the MWU test (U = .0 P < .05), anxiety about disapproval of eight undergraduate nurse (MR = 4.5) is lower than two graduated from health school nurse (MR = 9.5). Five nurses stated that nursing is appropriate for their personal character. Six nurses stated that nursing influenced the positive development of personal character. With content analysis, similarities and differences between nursing identity and social identity, optimal behaviour in expressing feelings of nurses and emotional habitus themes were reached.ConclusionsNurse habitus is developed by both of individual and structural factors which are complex and diversity. So, it affects nurses’ career and motivation to provide services. That the researcher assesses them from this aspect affects positively the quality of care.Disclosure of interestThe author has not supplied his/her declaration of competing interest.

Treatment-resistant schizophrenia during life span : Epidemiology, outcomes and innovative M-Health treatments within M-RESIST Project

2016 ◽  
Vol 33 (S1) ◽  
pp. S35-S35
Author(s):  
K. Rubinstein
Keyword(s):  
Psychotic Disorders ◽  
Clinical Importance ◽  
Treatment Resistance ◽  
The European Union ◽  
Treatment Resistant ◽  
Time Data ◽  
Information And Communication ◽  
Competing Interest ◽  
Definition Of ◽  
Psychosocial Approaches

Treatment-resistant symptoms of schizophrenia (TRS) complicate the clinical course of the illness, and a large proportion of patients do not reach functional recovery (Englisch and Zink, 2012). Out of the estimated 5 million people (0.2–2.6 %) suffering from psychotic disorders in the European Union, 30-50 % can be considered resistant to treatment, and 10–20 % ultra-resistant (Essock et al., 1996 ; Juarez-Reyes et al., 1995). The complexity of standard intervention within this population, along with the presence of persistent positive symptomatology, extensive periods of hospital care and greater risk of multi-morbidity, lead to a high degrees of suffering for the patients, family and social environment, and a high proportion of costs to the healthcare system (Kennedy et al., 2014).At present, a uniform definition of treatment resistance in the pharmacotherapy of schizophrenia is not available (Suzuki et al., 2011), as well as generally recommendable evidence-based treatment methods (Dold and Leucht, 2014).A recent systematic review on the topic showed that TRS is poorly a studied and understood condition, contrasted to its high prevalence, clinical importance and poor prognosis. There is lack of studies on epidemiology and risk factors of this disorder, as well as on outcomes and longitudinal course. Most of the available literature focuses on medication treatments, while very few examine efficacy of adjunctive therapeutic options (Seppala et al., in preparation).Treatments based on information and communication technology (ICT) present novel possibilities to improve the outcomes of schizophrenia. Previous studies have indicated suitability and promising results of such intervention techniques (Granholm et al., 2012 ; Ben-Zeev et al., 2013). m-RESIST is an innovative project aimed to empower patients with resistant schizophrenia, to personalize treatment by integrating pharmacological and psychosocial approaches, and to further develop knowledge related to the illness using predictive models designed to exploit historical and real-time data based on environmental factors and treatment outcomes.Disclosure of interestThe author has not supplied his declaration of competing interest.

Impact of an Intervention of Neuro-cognitive Rehabilitation in Treatment Resistant Schizophrenia (TRS) Compared to Schizophrenia Responder Patients

2017 ◽  
Vol 41 (S1) ◽  
pp. S266-S267
Author(s):  
L. D’Ambrosio ◽  
E. Prinzivalli ◽  
N. Oliviero ◽  
R. Balletta ◽  
G. Callovini ◽  
...  
Keyword(s):  
Psychosocial Functioning ◽  
Cognitive Rehabilitation ◽  
Rating Scales ◽  
Cognitive Remediation ◽  
Treatment Resistant ◽  
Training Task ◽  
Competing Interest ◽  
And Performance ◽  
The Impact ◽  
To Receive

IntroductionSchizophrenia is a condition with high impact in terms of disability, also because between 30% and 60% affected individuals do not respond to treatment. It has been proposed that cognitive functioning is strongly impaired in schizophrenia and even more in TRS patients. Cognitive dysfunctions are regarded to worsen psychopathology, psychosocial functioning, and overall course of the illness.ObjectivesTo investigate the impact of Cognitive Remediation (CR) on psychopathology and psychosocial functioning in TRS vs. schizophrenia responder patients.AimsTo determine whether a CR intervention could improve functional outcomes in TRS patients.MethodsWe evaluated proximal and distal effects of CR on approximately 20 schizophrenia responders and 20 TRS patients. Patients in each group were randomized to receive CR or not. Patients were assessed in training task performance, neurocognition, functional capacity, symptoms and psychosocial functioning. Evaluations were conducted at baseline, at the end of the 4-month intervention, and at 6-month, 1 and 2 year-follow-ups. The study is still in active recruitment phase.ResultsBoth TRS and schizophrenia responder patients exposed to CR exhibited a significant improvement in specific neurocognitive domains, and in psychosocial functioning as assessed by either rating scales (SLOF and PSP) and performance-based measures (UPSA) at the 4-month time-point.ConclusionsCR improved psychosocial functioning in both group of patients, however, they were more pronounced in TRS patients.Disclosure of interestThe authors have not supplied their declaration of competing interest.

scholarly journals Analisis dan Evaluasi Penerapan Sistem Informasi Smart Library AMIKOM Resource Centre dengan Metode Pieces Framework

2019 ◽  
Vol 3 (2) ◽  
pp. 109
Author(s):  
Dwiyantoro Dwiyantoro
Keyword(s):  
Information System ◽  
Information Control ◽  
Performance Information ◽  
Non Profit ◽  
Advantages And Disadvantages ◽  
Technological Developments ◽  
Descriptive Approach ◽  
Effectiveness And Efficiency ◽  
Quantitative Descriptive ◽  
The Times

Technological developments are currently running so fast along with the times. The information system is one of the technological developments. With the existence of information system of course very give big influence to institute or institution good of profit and non profit like library. Of course, the system used has advantages and disadvantages that need to be done a renewal so that the system can work effectively and efficiently. For that we need an analysis of the level of effectiveness and efficiency of a system. One of the methods that can be used in analyzing the system is PIECES Fremwork where there are 6 related indicators about performance, information, control / scuritu, efficiency, service. This study uses quantitative descriptive approach, with data collection techniques using questionnaires and observations. The results of this study in the form of statements about the information system in carefully. With PICES method is expected to be able to provide an overview of the shortcomings of the system used so that later the system can be improved and developed towards a better direction again.

Assessment of cognitive impairment with the cognitive assessment interview (CAI) was useful for identifying poor psychosocial functioning outcome in patients with psychosis

2016 ◽  
Vol 33 (S1) ◽  
pp. S106-S107
Author(s):  
A. Sánchez-Torres ◽  
M.R. Elosúa ◽  
R. Lorente-Omeñaca ◽  
L. Moreno-Izco ◽  
V. Peralta ◽  
...  
Keyword(s):  
Social Cognition ◽  
Cognitive Functioning ◽  
Verbal Memory ◽  
Psychosocial Functioning ◽  
Cognitive Assessment ◽  
Daily Functioning ◽  
Everyday Functioning ◽  
Cognitive Domains ◽  
Assessment Interview ◽  
Competing Interest

IntroductionCognitive impairments clearly impact the daily functioning of patients with psychosis.ObjectivesTo assess cross-sectionally whether there are differences in the cognitive domains assessed with the CAI, for considering the real-world functioning of a sample of patients with psychosis.MethodsThe sample consisted of 76 patients with a DSM-IV psychotic disorder. Patients were assessed with the cognitive assessment interview (CAI), which is an interview-based measure of cognitive functioning that is intermediate between cognitive functioning and daily functioning, and three subscales of the specific levels of functioning (SLOF), an informant-rated measure of functioning. The CAI was used to assess the patient and an informant, and these scores were integrated into a rater composite score. We divided the sample by a median-split procedure for each of the three functional domains, and then applied ANOVAs to compare the two groups (impaired/not impaired) in the six cognitive domains of the CAI: working memory, attention, verbal memory, problem solving, processing speed, and social cognition.ResultsWe found significant differences between the impaired vs. non-impaired groups in most of the cognitive domains assessed with the CAI (Fig. 1).ConclusionsInterview-based assessment of cognition with the CAI allows for the prediction of everyday functioning in patients with psychosis. Impairment in almost all CAI cognitive domains, except for social cognition, was associated with poorer psychosocial functioning.Disclosure of interestThe authors have not supplied their declaration of competing interest.

Relationship and Family Therapy for Newly-resettled Refugees: A Qualitative Inquiry of an Innovative, Needs-adapted Approach in Sydney, Australia

2017 ◽  
Vol 41 (S1) ◽  
pp. S622-S623
Author(s):  
A. Karageorge ◽  
P. Rhodes ◽  
R. Gray ◽  
R. Papadopoulos
Keyword(s):  
Family Therapy ◽  
Psychological Needs ◽  
Qualitative Inquiry ◽  
Counselling Service ◽  
Individual Interviews ◽  
Refugee Families ◽  
Family Counselling ◽  
Service Staff ◽  
Competing Interest ◽  
Sydney Australia

IntroductionThe needs of refugees are of pivotal concern internationally. Relational trauma, in particular, is an area that is under-emphasised and under-researched. The strength to strength program (STS) was a rare, innovative relationship and family counselling service for recently-arrived refugees in Sydney, Australia during 2006–2014. The service model built on post-Milan systemic family therapy principles to include innovative cultural and trauma-informed aspects of care.ObjectivesWe were interested in the experiences of staff who delivered the program, and the ways in which more traditional, Western-informed modes of family therapy were transformed by the needs of refugee clients.AimsTo identify and describe transformations to the delivery of relationship and family counselling with refugees that enabled care, from the perspective of staff.MethodsA thematic analysis, guided by interpretive description, of individual interviews and focus groups with STS service staff (n = 20), including family therapists, bicultural workers and managers.ResultsKey themes pertaining to innovative aspects of the relationship and family counselling service provided by STS staff will be outlined and lessons for future service provision in this space considered.ConclusionsSTS is an example of staff-driven innovation to the therapeutic care of refugee families resettling in Western countries, taking into account the unique and complex set of cultural, practical and psychological needs. Important and timely lessons for future service delivery can be drawn from qualitative inquiry into the experiences of staff who deliver such programs, with refugee numbers continuing to increase internationally.Disclosure of interestThe authors have not supplied their declaration of competing interest.

Everyday Experience of Front-Line Professionals and In/Formal Carers

2012 ◽  
Vol 2 (3) ◽  
pp. 27-39 ◽  
Author(s):  
Henglien Lisa Chen
Keyword(s):  
Older People ◽  
Needs Assessment ◽  
Well Being ◽  
Care Needs ◽  
Term Care ◽  
Face To Face ◽  
Care Services ◽  
Care Systems ◽  
Informal Carers ◽  
The Impact

To address the risks to families of the availability of care for their older family members, this paper explores the impact of different care systems on the way that relevant care actors contribute to the long-term care of older people. It is based on an empirical study of the care needs assessment and care provision in England, the Netherlands and Taiwan. The participants in the study include 143 care actors at national, regional and local levels across the countries. It found that the objective of providing care needs is similar in each of the countries studied. However, the everyday life of professionals and in/formal carers differs based on the care culture and care policy in each country. Overall, care professionals and formal carers experience satisfaction in their caring role when sufficient time is available for them to work with individuals. Face-to-face contact with older people is important to care professionals if adequate needs assessment could be performed. Helping informal carers extend their ability to carry out their role may improve their well-being as carers and reduce the demand for formal care services.

Advanced Techniques for Travel Time Data Collection

1996 ◽  
Vol 1551 (1) ◽  
pp. 51-58 ◽  
Author(s):  
Shawn M. Turner
Keyword(s):  
Data Collection ◽  
Travel Time ◽  
Real Time ◽  
Cellular Phone ◽  
License Plate ◽  
Time Data ◽  
Video Imaging ◽  
Advantages And Disadvantages ◽  
Travel Time Data ◽  
Time Information

Travel time information is becoming more important for applications ranging from congestion measurement to real-time travel information. Several advanced techniques for travel time data collection are discussed, including electronic distance-measuring instruments (DMIs), computerized and video license plate matching, cellular phone tracking, automatic vehicle identification (AVI), automatic vehicle location (AVL), and video imaging. The various advanced techniques are described, the necessary equipment and procedures are outlined, the applications of each technique are discussed, and the advantages and disadvantages are summarized. Electronic DMIs are low in cost but typically limited to congestion monitoring applications. Computerized and video license plate matching are more expensive and would be most applicable for congestion measurement and monitoring. Cellular phone tracking, AVI, and AVL systems may require a significant investment in communications infrastructure, but they can provide real-time information. Video imaging is still in testing stages, with some uncertainty about costs and accuracy.

Participation of end users in the design of assistive technology for people with mild to severe cognitive problems; the European Rosetta project

2014 ◽  
Vol 26 (5) ◽  
pp. 769-779 ◽  
Author(s):  
F. J. M. Meiland ◽  
B. J. J. Hattink ◽  
T. Overmars-Marx ◽  
M. E. de Boer ◽  
A. Jedlitschka ◽  
...  
Keyword(s):  
Participatory Design ◽  
Ethical Issues ◽  
End Users ◽  
Community Dwelling ◽  
Modular System ◽  
Individual Interviews ◽  
Emergency Situations ◽  
People With Dementia ◽  
Expert Meeting ◽  
Informal Carers

ABSTRACTBackground:In the European Rosetta project three separate, previously developed, ICT systems were improved and integrated to create one modular system that helps community-dwelling people with mild cognitive impairment and dementia in different stages of the disease. The system aims to support them in daily functioning, monitor (deviations from) patterns in daily behaviour and to automatically detect emergency situations. The study aimed to inventory the end users’ needs and wishes regarding the development and design of the new integrated Rosetta system, and to describe the to be developed Rosetta system.Methods:Qualitative user-participatory design with in total 50 persons: 14 people with dementia, 13 informal carers, 6 professional carers, 9 dementia experts, 7 care partners within the project, and 1 volunteer. In the Netherlands user focus group sessions were performed and in Germany individual interviews. Dementia experts were consulted by means of a questionnaire, an expert meeting session, and interviews.Results:Persons with dementia and informal carers appreciated the following functionalities most: help in cases of emergencies, navigation support and the calendar function. Dementia experts rated various behaviours relevant to monitor in order to detect timely changes in functioning, e.g. eating, drinking, going to the toilet, taking medicine adequately, performance of activities and sleep patterns. No ethical issues regarding the use of sensors and cameras were mentioned.Conclusion:The user participatory design resulted in valuable input from persons with dementia, informal carers and professional carers/dementia experts, based on which a first prototype Rosetta system was built.

“Caught in a Generation Gap”: A Generation Perspective on Refugees Getting Old in Denmark—A Qualitative Study

2017 ◽  
Vol 29 (3) ◽  
pp. 265-273 ◽  
Author(s):  
Dorthe S. Nielsen ◽  
Lisbeth Minet ◽  
Lina Zeraig ◽  
Dlama Nggida Rasmussen ◽  
Morten Sodemann
Keyword(s):  
Moral Dilemmas ◽  
Generation Gap ◽  
Care Needs ◽  
Individual Interviews ◽  
Difficult Decision ◽  
Culturally Congruent ◽  
Health And Disease ◽  
Care Health ◽  
Group Interviews ◽  
Qualitative Exploration

Purpose: Older non-Western migrants in Europe are a vulnerable population, due to old age and multiple disadvantages related to language barriers and different understandings of care, health, and disease. Our aim was to gain a better understanding and insight into the care needs of families with refugee background Method: The study was designed as a qualitative exploration using semistructured individual interviews and family group interviews. Results: The results illustrate how vulnerability can “transmit” from one family member to another. Discrepancies between the older person’s expectations and needs and society’s expectations trap family members in ethical and moral dilemmas. This divides and stresses the family and results in difficult decision making, increased stress, and vulnerability. Conclusion and Implication: Migration and displacement can lead to ambivalent feelings among younger relatives regarding their role in caring for older relatives. Health professionals need to address and acknowledge this to be able to provide culturally congruent health care.

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