Parental relationships beyond the grave: Adolescents' descriptions of continued bonds

2015 ◽  
Vol 14 (4) ◽  
pp. 358-363 ◽  
Author(s):  
Dana M. Hansen ◽  
Denice K. Sheehan ◽  
Pamela S. Stephenson ◽  
M. Murray Mayo
Keyword(s):  
Content Analysis ◽  
Grounded Theory ◽  
Health Professionals ◽  
Parental Relationships ◽  
Loved One ◽  
Semistructured Interviews ◽  
Hospice Patients ◽  
Ongoing Relationship ◽  
Conventional Content Analysis ◽  
Creating Meaning

AbstractObjective:Many people experience an ongoing relationship with a deceased loved one. This is called a “continued bond.” However, little is known about the adolescent experience with continued bonds once a parent has died. This study describes three ways that adolescents continue their relationship with a parent after that parent's death.Method:Individual semistructured interviews were conducted with nine adolescent children of deceased hospice patients from a large hospice in northeastern Ohio as part of a larger grounded-theory study. The interviews were audiotaped, transcribed verbatim, and analyzed using a conventional content analysis approach.Results:Adolescents continued their bonds with deceased parents in one of three ways: experiencing encounters with the deceased parent, listening to the inner guide of the parent, and keeping mementos to remind them of the parent.Significance of results:The ways that the adolescents continued their bond with a deceased parent assisted them in creating meaning out of their loss and adjusting to life without that parent. Our results can be used by health professionals and parents to help adolescents after a parent has died.

Patients’ Privacy of the Person and Human Rights

2005 ◽  
Vol 12 (3) ◽  
pp. 273-287 ◽  
Author(s):  
Jay Woogara
Keyword(s):  
Human Rights ◽  
Grounded Theory ◽  
Acute Care ◽  
Health Professionals ◽  
Trust Hospital ◽  
Semistructured Interviews ◽  
Privacy Model ◽  
Human Rights Act ◽  
Human Rights Act 1998 ◽  
The Uk

The UK Government published various circulars to indicate the importance of respecting the privacy and dignity of NHS patients following the implementation of the Human Rights Act, 1998. This research used an ethnographic method to determine the extent to which health professionals had in fact upheld the philosophy of these documents. Fieldwork using nonparticipant observation, and unstructured and semistructured interviews with patients and staff, took place over six months in three acute care wards in a large district NHS trust hospital. Applying the principles of phenomenology and grounded theory, the data were analysed and the contents organized into 11 key categories, leading to the formulation of a privacy model. The level of intrusion into patients’ privacy by health professionals was measured against the benchmarking of the ‘dignity and privacy’ factors contained in the Department of Health’s The essence of care document and Article 8(2) of the Human Rights Act. The findings established that patients had little privacy in the wards, and that the terms ‘privacy of the person’ and ‘dignity’ are interrelated.

scholarly journals Walking on Eggshells: Parents’ First Year After Their Adolescent Completes Their Cancer Treatment

2020 ◽  
Vol 37 (4) ◽  
pp. 233-243
Author(s):  
Amy J. Walker ◽  
Frances M. Lewis ◽  
Abby R. Rosenberg
Keyword(s):  
Content Analysis ◽  
Grounded Theory ◽  
Cancer Treatment ◽  
Treatment Completion ◽  
First Year ◽  
The Core ◽  
Analysis Methods ◽  
Study Results ◽  
Semistructured Interviews ◽  
Core Construct

Background: Despite an awareness that parents experience distress and heightened uncertainty at the end of their adolescent’s treatment for cancer, little is known about the specific challenges and concerns parents hold for their adolescent survivors or how they manage these challenges. This study described challenges parents experience in the first year after their adolescent’s cancer treatment and what parents did to manage those challenges. Method: Single occasion semistructured interviews were conducted with parents and were transcribed verbatim. Data were coded using inductive content analysis methods adapted from grounded theory. Results: Participants were 30 parents of adolescent survivors (13-18 years) who were in the first year following treatment completion. The core construct, “Walking on Eggshells,” explained the processes and experiences parents faced once treatment was complete. Two additional domains captured how parents managed posttreatment challenges (“Doing What We Can”) and the ways parents helped their adolescents adjust (“Balancing”). Conclusion: Study results suggest that services and materials are needed to help parents know common struggles that arise after treatment and ways to mitigate the severity of distress parents experience.

Contingency Help: The Main Strategy of Iranian Nurses in Dealing With the Family of the End-of-Life Patients

2019 ◽  
pp. 003022281985490
Author(s):  
Reza Norouzadeh ◽  
Monireh Anoosheh ◽  
Fazlollah Ahmadi
Keyword(s):  
Content Analysis ◽  
End Of Life ◽  
Spiritual Needs ◽  
Communication Management ◽  
Semistructured Interviews ◽  
The Family ◽  
Care Policies ◽  
Conventional Content Analysis ◽  
Family Nurses ◽  
Main Strategy

Families are struggling with many challenges in the final stages of patient life. It is important to understand what actions nurses do for the family of the end-of-life (EOL) patients. This study aimed to explain the main strategy of nurses’ dealing with the family of the EOL patients. Data were analyzed using conventional content analysis. Semistructured interviews were conducted on 32 nurses from hospitals in Tehran. Nurses used six measures of explaining the bitter reality, effective communication, management of violence, referral, consolation, and reinforcement. “Contingency help” was conceptualized as the main strategy. Nurses through “contingency help” were involved in solving the emotional, physical, financial, and spiritual needs of the family. Nurses will be able to apply the results of this study to the development of care policies for the family of the EOL patients.

scholarly journals Families' Experiences of Life in the Year after a Child's Critical Illness: Navigating the Road to a “New Normal”

2020 ◽  
Vol 09 (03) ◽  
pp. 188-195
Author(s):  
Ellie K. Atkins ◽  
Mary John ◽  
Gillian Colville
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Grounded Theory ◽  
Critical Illness ◽  
Intensive Care Unit Admission ◽  
Health Professionals ◽  
New Normal ◽  
The Road ◽  
Admission Data ◽  
Semistructured Interviews

AbstractSemistructured interviews were conducted with patients and family members (n = 18) postdischarge to examine how they managed their recovery in the year following a child's intensive care unit admission. Data were analyzed using the grounded theory. Participants described an ongoing need to develop and adapt their narratives about admission and recovery. Other key themes were as follows: just getting through, recognizing they had changed, striving for normality, and finding positive aspects related to their experiences. It took longer than they expected for families to build a coherent narrative of events postdischarge and to adjust to the “new normal.” Implications for health professionals are discussed.

scholarly journals AB0912-HPR AMIGOS DE FIBRO (FIBRO FRIENDS): EDUCATIONAL PROGRAM TO PROMOTE THE HEALTH OF PEOPLE WITH FIBROMYALGIA IN BRAZIL

2021 ◽  
Vol 80 (Suppl 1) ◽  
pp. 1478.1-1478
Author(s):  
M. Antunes ◽  
A. Schmitt ◽  
A. Pasqual Marques
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Content Analysis ◽  
Health Education ◽  
Health Professionals ◽  
Educational Program ◽  
Self Care ◽  
Link Type ◽  
Primary Health

Background:Health education is pointed out as the front line in non-pharmacological approaches in fibromyalgia.Objectives:To develop an interdisciplinary educational program to promote the health of individuals with fibromyalgia in Brazil.Methods:This is a qualitative study, through a focus group, carried out in a Basic Health Unit in the city of São Paulo, SP. The guiding questions were about the needs and demands exposed by patients with fibromyalgia and health professionals who work in primary health care. 12 individuals with fibromyalgia and 10 health professionals participated. The data were analyzed using the content analysis method proposed by Bardin, specifically the thematic content analysis.Results:Amigos de Fibro (Fibro Friends) should be conducted through lectures, dynamics and conversation circles. The educational program must include 15 meetings with weekly frequency. The meetings are: 1st to present the program and socialization activities. 2nd: Doctor presents the concepts of fibromyalgia. 3rd: Nurse informs about practices and environments that favor self-care. 4th: Social Worker shows the importance of support. 5th: Physiotherapist shows the main body practices and physical activity. 6th: Nutritionist presents an adequate and healthy diet. 7: Psychologist shows mental health practices. 8th: Pharmacist informs about medicines. 9, 11 and 13: participants perform activities at home. 10: Naturologist presents integrative and complementary practices. 12th: Occupational Therapist encourages methods to save energy. Day 14: Speech therapist helps in the quality of sleep. 15: closing activity.Conclusion:Amigos de Fibro is a program that presents interdisciplinary educational information for individuals with fibromyalgia, being considered a trend of care for the future. The next step is to conduct a clinical trial to verify the effect of this intervention and then implement it in the health service in Brazil. Fibro Friends was created from the conjunct action of patients and healthcare professionals, it can be an effective educational tool to be implemented at primary health attention centers, promoting the self-care, life quality and the promotion of health in individuals with Fibromyalgia. Fibro Friends is an excellent tool for patient education and counseling in Brazil.References:[1]Antunes M, Ferreira A, Oliveira D, Júnior JN, Bertolini S, Marques AP. There is association between the level of physical activity and quality of life of women with fibromyalgia?. Annals of rheumatic diseases. 2019;78(2)650-1. http://dx.doi.org/10.1136/annrheumdis-2019-eular.2835.[2]García-Ríos MC, Navarro-Ledesma S, Tapia-Haro RM, Toledano-Moreno S, Casas-Barragán A, Correa-Rodríguez M et al. Effectiveness of health education in patients with fibromyalgia: a systematic review. European Journal of Physical and Rehabilitation Medicine. 2019;55(2):301-13. https://doi.org/10.23736/S1973-9087.19.05524-2.[3]Oliveira DV, Ferreira AAM, Oliveira DCD, Leme DEDC, Antunes MD, Nascimento Júnior JRAD. Association of the practice of physical activity and of health status on the quality of life of women with fibromyalgia. Journal of Physical Education. 2019;30(1): e3027. https://doi.org/10.4025/jphyseduc.v30i1.3027.[4]Stuifbergen AK, Blozis SA, Becker H, Phillips L, Timmerman G, Kullberg V, et al. A randomized controlled trial of a wellness intervention for women with fibromyalgia syndrome. Clinical Rehabilitation. 2010;24(4):305-18. https://doi.org/10.1177/0269215509343247.Acknowledgements:This study was financed in part by the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - Brasil (CAPES) - Finance Code 001.Disclosure of Interests:None declared

Managing Digital Identities: A Grounded Theory of Mental Health Professionals’ Participation in Online Social Networking

2021 ◽  
pp. 104438942110144
Author(s):  
Kara S. Lopez ◽  
Susan P. Robbins
Keyword(s):  
Mental Health ◽  
Grounded Theory ◽  
Social Networking ◽  
Mental Health Professionals ◽  
Health Professionals ◽  
Social Process ◽  
Main Concern ◽  
Research Interviews ◽  
Glaserian Grounded Theory ◽  
Digital Identities

Despite the meteoric rise of social media, little is known about how clinical social workers and other mental health professionals respond to this new form of communication. This study used classic (Glaserian) grounded theory methodology to explore the experiences and concerns of mental health professionals on social networking websites such as Facebook, Twitter, and LinkedIn. The main concern that emerged out of research interviews with 26 mental health professionals was a loss of control over others’ perceptions and the loss of ability to compartmentalize the different parts of identities associated with personal and professional selves. Participants resolved these concerns through the author-identified basic social process of “managing digital identities.” This study highlights practice implications for professionals as they manage online identity.

Helping Women Victims of Intimate Partner Violence: Comparing the Approaches of Two Health Care Settings

2009 ◽  
Vol 24 (2) ◽  
pp. 193-203 ◽  
Author(s):  
Judy C. Chang ◽  
Raquel Buranosky ◽  
Diane Dado ◽  
Patricia Cluss ◽  
Lynn Hawker ◽  
...  
Keyword(s):  
Intimate Partner Violence ◽  
Women Victims ◽  
Health Professionals ◽  
Partner Violence ◽  
General Medicine ◽  
Intimate Partner ◽  
Comfort Level ◽  
Clinical Settings ◽  
Health Care Settings ◽  
Semistructured Interviews

Health professionals from two different clinical settings were asked about their comfort level in dealing with intimate partner violence (IPV). Focus groups and semistructured interviews were used to gather information. Staff in an obstetrics and gynecology setting relatively rich in IPV resources described feeling capable dealing with IPV. The staff in a general medicine setting dedicated to women’s health but without a focus on IPV and with fewer supports described discomfort and difficulty dealing with IPV. Presence of systemic prioritization of and resources for IPV were described as contributing to the confidence in addressing the issue. Other necessary elements identified included (a) on-site resources, (b) adequate time, (c) focused IPV training, and (d) a team or systemic approach.

scholarly journals Fears and concerns related to menstruation: a qualitative study from the perspective of gender

2015 ◽  
Vol 24 (1) ◽  
pp. 13-21 ◽  
Author(s):  
Alicia Botello-Hermosa ◽  
Rosa Casado-Mejia
Keyword(s):  
Content Analysis ◽  
Grounded Theory ◽  
Data Collection ◽  
Qualitative Study ◽  
Structured Interview ◽  
Oral Transmission ◽  
Rural And Urban ◽  
Education Campaigns ◽  
Data Collection Technique ◽  
Harmful Effects

The aim of this article is to analyze the fears about menstruation and health that have been passed down to us by oral transmission from a gender perspective. A qualitative study, whose design was the Grounded Theory, performed in Seville, Spain, with 24 rural and urban women from different generations, young (18-25, 26-35 years), middle aged (36-45, 46-55, 56-65 years) and elderly (> 65 years). The semi-structured interview was used as a data collection technique. The discourses were subjected to content analysis, following the steps of Grounded Theory. The results highlight the abundant fears related to use of water during menstruation, with very harmful effects to health. As a conclusion to highlight the lack of women's knowledge about reproductive health and that despite Health Education campaigns there are still ancient misconceptions present about menstruation.

scholarly journals El duelo en medicina desde la visión y piel del profesional sanitario

2021 ◽  
Vol 2 (1) ◽  
pp. 92-100
Author(s):  
Erik Gabriel Díaz Avila ◽  
Marcela Fernández-Carrera Muchova ◽  
Teresa Sánchez Villanueva ◽  
Vega Sánchez Calvo ◽  
Jesús Francisco Mesonero Robles
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Health Professionals ◽  
Health Personnel ◽  
Natural Process ◽  
Future Health ◽  
Health Crisis ◽  
Loved One ◽  
Scientific Databases ◽  
Salud Mental

El duelo es un proceso natural que han de pasar las personas tras la pérdida de un ser querido. Durante la actual pandemia COVID-19 los profesionales sanitarios han sido víctimas, pues se han tenido que enfrentar a una situación sin precedentes en la que se ha puesto en juego su propia salud mental. El objetivo principal del estudio ha sido analizar el duelo en los profesionales sanitarios durante la actual pandemia COVID-19. Se realizó una revisión de la literatura, no sistemática, en las diferentes bases de datos científicas para analizar el duelo en el ámbito de la medicina ligado al duelo vivido por los profesionales sanitarios, centrado en la situación actual de crisis sanitaria, así como los problemas que añadió la pandemia COVID-19. La pandemia COVID-19 ha puesto de manifiesto la importancia del duelo y la despedida justa, la cual no se pudo dar en la mayoría de los casos. Es imperiosa la preparación que han de recibir los profesionales sanitarios para enfrentar dicho proceso e incluso, los futuros profesionales sanitarios. Queda de manifiesto la importancia de la capacitación y cuidado de la salud mental, tanto en pacientes, familiares, personal sanitario y futuros profesionales de la salud. A la vez que, se ha de garantizar la resiliencia enfocada a los aspectos relacionados con el duelo. Grief is a natural process that people go through after the loss of a loved one. During the current COVID-19 pandemic, health professionals have been victims, as they have had to face an unprecedented situation in which their own mental health has been put at stake. The main objective of the study has been to analyze the grief in health professionals during the current COVID-19 pandemic. A literatura review, non-systematic was carried out in the different scientific databases to analyze the grief in the field of medicine linked to the grief experienced by health professionals, focused on the current situation of health crisis, as well as the problems added by the COVID-pandemic. 19. The COVID-19 pandemic has highlighted the importance of mourning and a fair farewell, which could not be given in most cases. The preparation that health professionals must receive to face this process and even future health professionals is imperative. The importance of training and mental health care is evident, both in patients, relatives, health personnel and future health professionals. At the same time, resilience focused on aspects related to grief must be guaranteed.

scholarly journals Training Needs Measure for Health Care of the LGBT+ Public

2020 ◽  
Vol 30 ◽  
Author(s):  
Willian Roger Dullius ◽  
Lara Barros Martins
Keyword(s):  
Health Care ◽  
Content Analysis ◽  
Data Collection ◽  
Diagnostic Tool ◽  
Health Professionals ◽  
Training Needs ◽  
Factorial Structure ◽  
Validity And Reliability ◽  
Lgbt People ◽  
Two Stages

Abstract Inadequate and ineffective care provided by health professionals to the LGBT+ public can cause countless damages to those who demand care. An alternative to improve the service provided is to promote training actions for professionals that should be initiated by the Training Needs Analysis (TNA). This study aimed at building and validating, theoretically and statistically, a TNA instrument for health professionals related to humanized care for LGBT+ individuals for the Brazilian context. The data collection was done in two stages, in person and virtually, and had 449 professionals who responded to the TNA instrument built. The data was analyzed by means of content analysis, exploratory factors and internal consistency. The scale presented a uni-factorial structure with evidence of validity and reliability, and can be used as a diagnostic tool to verify the gaps in the competence of health professionals in the care of LGBT+ people.

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