scholarly journals Walking on Eggshells: Parents’ First Year After Their Adolescent Completes Their Cancer Treatment

2020 ◽  
Vol 37 (4) ◽  
pp. 233-243
Author(s):  
Amy J. Walker ◽  
Frances M. Lewis ◽  
Abby R. Rosenberg

Background: Despite an awareness that parents experience distress and heightened uncertainty at the end of their adolescent’s treatment for cancer, little is known about the specific challenges and concerns parents hold for their adolescent survivors or how they manage these challenges. This study described challenges parents experience in the first year after their adolescent’s cancer treatment and what parents did to manage those challenges. Method: Single occasion semistructured interviews were conducted with parents and were transcribed verbatim. Data were coded using inductive content analysis methods adapted from grounded theory. Results: Participants were 30 parents of adolescent survivors (13-18 years) who were in the first year following treatment completion. The core construct, “Walking on Eggshells,” explained the processes and experiences parents faced once treatment was complete. Two additional domains captured how parents managed posttreatment challenges (“Doing What We Can”) and the ways parents helped their adolescents adjust (“Balancing”). Conclusion: Study results suggest that services and materials are needed to help parents know common struggles that arise after treatment and ways to mitigate the severity of distress parents experience.

Author(s):  
Mary Ellen Shands ◽  
Frances Marcus Lewis

Background: Parents with advanced cancer struggle initiating conversations with their children about the cancer. When parents do not have the tools to talk with their children, they silently watch their children attempt to navigate their illness but can only wonder but not know what their children are thinking. The objective of the current study is to describe, from parents living with advanced cancer, the worries and concerns parents wonder their child holds, but has not spoken, about the parent’s cancer. Methods: Twenty-seven parents with incurable cancer enrolled in a 5 session telephone intervention pilot study during which they were asked, “What questions do you have about what your child is thinking or feeling about the cancer?” Data were transcribed and inductively coded using content analysis methods adapted from grounded theory. Results: Analysis yielded 14 categories of parent concerns organized into 6 larger conceptual domains: Being Concerned and Scared about My Cancer; Worrying about Me; Changing How We Talk and Live Day-to-Day; Not Knowing What Will Happen; Having Unanswered Questions about My Cancer; and Understanding My Disease Is Terminal. Conclusions: Study results add to our understanding of the magnitude of the emotional burden parents with advanced cancer carry as they struggle to balance their diagnosis and treatment and their life as parents.


2015 ◽  
Vol 14 (4) ◽  
pp. 358-363 ◽  
Author(s):  
Dana M. Hansen ◽  
Denice K. Sheehan ◽  
Pamela S. Stephenson ◽  
M. Murray Mayo

AbstractObjective:Many people experience an ongoing relationship with a deceased loved one. This is called a “continued bond.” However, little is known about the adolescent experience with continued bonds once a parent has died. This study describes three ways that adolescents continue their relationship with a parent after that parent's death.Method:Individual semistructured interviews were conducted with nine adolescent children of deceased hospice patients from a large hospice in northeastern Ohio as part of a larger grounded-theory study. The interviews were audiotaped, transcribed verbatim, and analyzed using a conventional content analysis approach.Results:Adolescents continued their bonds with deceased parents in one of three ways: experiencing encounters with the deceased parent, listening to the inner guide of the parent, and keeping mementos to remind them of the parent.Significance of results:The ways that the adolescents continued their bond with a deceased parent assisted them in creating meaning out of their loss and adjusting to life without that parent. Our results can be used by health professionals and parents to help adolescents after a parent has died.


2020 ◽  
Vol 15 ◽  
pp. 259-262
Author(s):  
Natalya Tokareva ◽  
Anzhelika Kolly-Shamne

The article is devoted to the analysis of the problem of cognitive-semantic modelling of the subjective image of adulthood by schoolchildren of adolescence. The research procedure involved the use of conceptual analysis methods, analysis of vocabulary definitions, content analysis. Based on the results of 4207 text fragments and respondents’ answers study, quantification units of the semantic field of the studied conceptosphere, the core and the peripheral part were identified. It has been stated that in the formatting of the subjective image of adulthood by schoolchildren of adolescence, there is a transition from empirical identification and awareness of predominantly «external» attributes of adulthood to a generalization of the internal relevant subsystems for assessing the world, oneself and other people.


2021 ◽  
pp. 009579842110365
Author(s):  
Quenette L. Walton

Empirical evidence consistently has linked the identification and treatment of depression among low-income Black women. Research on depression and Black women also suggests Black women are a monolithic group who experience depression similarly. The purpose of this qualitative study was to gain a deeper understanding of how the identity of middle-class Black women may shape their experiences with depression. Using grounded theory as the guiding method, I conducted 30 in-depth, semistructured interviews with Black women between 30 and 45 years old who self-identified as middle class. The core experience of depression among middle-class Black women was “living in between” because they straddled two worlds—one Black world and one White world—with competing sociocultural messages about depression. Two major categories emerged that informed the experiences of depression among the middle-class Black women in this study: (a) strategies to deal with depression and (b) minimizing depression. Each of these categories highlighted consequences for the women’s mental health. The women also described coping strategies for managing these experiences. Implications for research and practice are included.


2016 ◽  
Vol 54 (4) ◽  
pp. 285-294 ◽  
Author(s):  
Martin Agran ◽  
William E. MacLean ◽  
Katherine Anne Kitchen Andren

Abstract Despite a strong societal commitment to ensuring that individuals with intellectual disability (ID) fully participate in their communities, few people with ID vote. Little is known about voting experiences from the perspective of people with ID. In-person, semistructured interviews were conducted with 28 adults with ID (Mage = 37 years) to obtain their input on voting. Constant comparison and content analysis methods were used to characterize themes. Results indicated that people with ID are interested in voting and desire to be included in the voting process yet receive little education on political issues or on how to make voting-related decisions. Support from family or service providers and self-advocacy facilitated their ability to vote. Implications of these findings and recommendations for future research are discussed.


2021 ◽  
Vol 28 (10) ◽  
pp. 1-15
Author(s):  
Salima Suleman ◽  
Mark Hall ◽  
Geoffrey Bostick ◽  
Teresa Paslawski ◽  
Cori Schmitz ◽  
...  

Background/aims The skills and attributes that facilitate the transition from student to professional (also known as work readiness) have not been fully explored in rehabilitation medicine. The aim of this study was to develop a model of work readiness for new rehabilitation medicine professionals that allows for a successful transition to the workplace. Methods A qualitative approach was used to explore the perspectives of 26 clinicians, regulators and employers about work readiness in rehabilitation disciplines. Transcripts were coded and analysed using content analysis methods. Results At the core of work readiness for rehabilitation medicine professionals were three complex endeavours that were framed as professional challenges. Each endeavour integrated one or more foundational skills and could improve context-bound applied skills. Conclusions Work readiness in rehabilitation requires active and ongoing commitment from students, post-secondary programmes and employers.


2014 ◽  
Vol 2014 ◽  
pp. 1-6
Author(s):  
Majid Najafi Kalyani ◽  
Raziyeh Illon Kashkooli ◽  
Zahra Molazem ◽  
Nahid Jamshidi

Background and Objectives. Awareness about the patients’ needs and expectations is quite important in improving the quality of the services they are provided with. Since meeting the needs and expectations of the patients is one of the basic issues in patient care, the present study aimed to investigate the patients’ expectations from nurses and nursing care. Methods. In this qualitative study, 20 hospitalized patients were interviewed. The data were gathered through deep, semistructured interviews. Then, all the recorded interviews were transcribed, reviewed for several times, and analyzed using qualitative content analysis approach. Results. By analyzing of data, three main categories were extracted. The main categories of the patients’ expectations from nurses and nursing care were comprehensive care, ethical performance, and having proper individual characteristics. Discussion and Conclusion. The study results revealed that the patients expected comprehensive care from the nurses. In addition, the nurses were required to apply the ethical principles in what they do as their duties. The findings of the study can be helpful in improving the patient care.


2018 ◽  
Vol 19 (2) ◽  
pp. 48-64
Author(s):  
Umi Baroroh

Abstract: This research was conducted to find out how reward and punishment according to Irawati certainly does not conflict with the value of Islamic education. This is a library research the data of which were taken from several works of Irawati Istadi and direct interviews with her. The researcher also took some data from several researchers who discussed Irawati Istadi's thoughts and from Islamic education figures whose thoughts had relevance to the research theme. Content analysis methods is applied to draw conclusions. From this research, it can be concluded that the concept of reward and punishment according to Irawati Istadi turns out to be compatible with the Islamic education. However, in Irawati's thought, there are also some differences shows the development of thoughts from previous figures of Islamic education and certainly did not conflict with the values of Islamic education. Keywords: reward, punishment, Islamic education, Irawati Istadi, educator.


2015 ◽  
Vol 12 (2) ◽  
pp. 97
Author(s):  
Gun Faisal ◽  
Dimas Wihardyanto

The Talang Mamak tribe, one of Indonesian tribe, still practices the hunting and gathering of natural produce despite the fact that among them have chosen to settle permanently and doing farming activities. The aim of this research is to study the characteristics of the Talang Mamak house. The method used in this research is grounded theory method, based on the open coding, axial coding as well selective coding techniques. The method used to find the variation layout of the houses and then evaluate the characters and concept of the layouts. The conclusion of this study is that the core of the Talang Mamak house is based on the connectivity of four rooms namely: Ruang Haluan, Ruang Tangah, Ruang Tampuan and Pandapuran. The house has an open layout where all daily household activities are done without barriers. The social status of the owner is identified by houses furniture and staf


2018 ◽  
Vol 15 (2) ◽  
pp. 1
Author(s):  
Joy Joshua Maina

The clamour for better quality graduates by architects in the Nigerian Construction Industry (NCI) necessitates a look into the core competencies and the adequacy of architecture education in preparing architecture graduates for professional practice. 116 self-report likertscale questionnaires from architecture graduates (2009-2015), academics and employers were analysed to establish core competencies developed by the graduates while in school. Descriptive statistics, t-tests as well as Mann-Whitney tests for differences in ratings were employed for the study. Results reveal the perceived adequacy of architecture education for the future career of graduates from the academic perspective. Graduates were most proficient at design related competencies while AutoCAD was still considered the most important CAD competency for architecture graduates in the NCI. The study recommends more frequent evaluations of competencies for employability in collaboration with industry as well as embracing BIM related software in line with global best practices. Keywords: Academics, Architecture, Employers, Graduates, Professional competencies, NCI


Sign in / Sign up

Export Citation Format

Share Document