scholarly journals Impact of Stroke on Quality of Life of Stroke Survivors and Their Caregivers: A Qualitative Study from India

2021 ◽  
Author(s):  
Sharad Tiwari ◽  
Ankur Joshi ◽  
Nirendra Rai ◽  
Parmeshwar Satpathy
Keyword(s):  
Stroke Care ◽  
Stroke Survivor ◽  
Stroke Survivors ◽  
Global Public Health ◽  
Psychosocial Needs ◽  
Public Health Challenge ◽  
Major Factors ◽  
Depth Interviews ◽  
And Training

Abstract Objectives Stroke is a significant global public health challenge attributable to an array of disabilities it causes alongside an impairment in cognition. The monetary impact of stroke care includes acute treatment expenses as well as outrageous expenses of postdischarge chronic hospital care and rehabilitation services. The current study aimed to study the perceptions along with experiences of stroke survivors and caregivers. Materials and Methods In-depth interviews (IDIs) of stroke survivors and their primary caregivers were conducted at their home 2 months after their discharge from the hospital in Bhopal, India. These IDIs were later analyzed. Results The following eight themes emerged: pervasive and irreversible, multifunction loss and dependency, holistic impact on the health of person and family, money and matter, nonaccommodative cost and baffled belief, professional paralysis, social crisis, and slow and obscured progress. The added obligation of taking care of a disabled stroke survivor along with adjusting their own lifestyle with financial apprehensions, worry about future, prolonged hours of care, and stress are major factors that increase the burden of the caregivers. Conclusion Caregivers should be sensitized with proper counseling and training through health care institutions to ensure appropriate care and management of stroke survivors at home, as it will also help in addressing their psychosocial needs, and minimizing the knowledge gap, doubts and uncertainties about the disease and its aftereffects.

Determinants of caregiving burden and quality of life of informal caregivers of African stroke survivors: literature review

2017 ◽  
Vol 16 (3) ◽  
Author(s):  
Umaru M. Badaru ◽  
Omoyemi O. Ogwumike ◽  
Ade F. Adeniyi ◽  
Ekechukwu E. Nelson
Keyword(s):  
Quality Of Life ◽  
Functional Status ◽  
Physical Function ◽  
Informal Caregivers ◽  
Stroke Survivors ◽  
Inclusion Criteria ◽  
Caregiving Burden ◽  
Provision Of Care ◽  
And Training

AbstractBackground:The involvement of informal caregivers (CGs) in the provision of care for stroke survivors always ensures the success of stroke rehabilitation.Aims:The aim of this review was to find the determinants of caregiving burden and quality of life (QOL) of CGs of African stroke survivors.Methods:The literature was searched in Google Scholar and PUBMED, AJOL and Cochrane Databases using selected search strategies without date restriction.Results:A total of eight African studies met the inclusion criteria. There were more female stroke CGs (55.6%) than their male counterparts. The determinants of CG QOL were duration and burden of caregiving, the CG’s age and functional status of the stroke survivors. The determinants of caregiving burden were functional status of stroke survivors and having intimate relationship with them.Conclusion:Impairment of physical function in African stroke survivors was the consistent determinant of increased caregiving burden and deterioration of CG QOL. CG education and training is needed in order to enhance their ability to cope effectively with the burden of providing care to stroke survivors who have impairment of physical function and this may help to improve CG QOL.

Quality Assessment of Economic Evaluations of Suicide and Self-Harm Interventions

Crisis ◽  
2018 ◽  
Vol 39 (2) ◽  
pp. 82-95 ◽  
Author(s):  
Lizell Bustamante Madsen ◽  
Michael Eddleston ◽  
Kristian Schultz Hansen ◽  
Flemming Konradsen
Keyword(s):  
Cost Effective ◽  
Poor Quality ◽  
Economic Evaluations ◽  
Global Public Health ◽  
Quality Appraisal ◽  
Public Health Challenge ◽  
Self Harm ◽  
Harm Prevention ◽  
Appraisal Tool

Abstract. Background: Death following self-harm constitutes a major global public health challenge and there is an urgent need for governments to implement cost-effective, national suicide prevention strategies. Aim: To conduct a systematic review and quality appraisal of the economic evaluations of interventions aimed at preventing suicidal behavior. Method: A systematic literature search was performed in several literature databases to identify relevant articles published from 2003 to 2016. Drummond's 10-item appraisal tool was used to assess the methodological quality of the included studies. Results: In total, 25 documents encompassing 30 economic evaluations were included in the review. Of the identified evaluations, 10 studies were found to be of poor quality, 14 were of average quality, and six studies were considered of good quality. The majority of evaluations found the interventions to be cost-effective. Limitations: Several limitations were identified and discussed in the article. Conclusion: A notable few economic evaluations were identified. The studies were diverse, primarily set in high-income countries, and often based on modeling, emphasizing the need for more primary research into the topic. The discussion of suicide and self-harm prevention should be as nuanced as possible, including health economics along with cultural, social, and political aspects.

Abstract TMP49: Depressive Symptoms After Stroke are Linked Longitudinally between Stroke Survivors and Their Family Caregivers

Stroke ◽  
2017 ◽  
Vol 48 (suppl_1) ◽  
Author(s):  
David L Roth ◽  
Orla C Sheehan ◽  
Jin Huang ◽  
J. D Rhodes ◽  
Suzanne E Judd ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Depressive Symptoms ◽  
Family Caregivers ◽  
Short Form ◽  
Well Being ◽  
Stroke Survivor ◽  
Stroke Survivors ◽  
Post Stroke ◽  
Clinically Significant

Background: Multiple previous investigations have documented persistent elevations in depressive symptoms after stroke for stroke survivors and for family caregivers. However, relatively few studies have examined both groups simultaneously, and none have tested for possible predictive linkages in longitudinal analyses. Methods: We collected interview data from 248 stroke survivors and their primary family caregivers who were enrolled in the Caring for Adults Recovering from the Effects of Stroke (CARES) project. CARES is an ancillary study to the national REasons for Geographic and Racial Differences in Stroke (REGARDS) study. Stroke survivors and caregivers were interviewed at 9-, 18-, 27- and 36-months after an adjudicated stroke event. Measures administered to both groups included the 20-item Center for Epidemiological Studies Depression Scale (CESD) and the 12-item Short Form Health Survey (SF-12) of health-related quality of life. Cross-lagged panel analyses were used to investigate linkages between stroke survivors and caregivers over time on these measures. Results: Clinically significant levels of depressive symptoms, as defined by a score of 16 or more on the CESD, were found for 17.0% of the stroke survivors and 13.7% of the caregivers at 9-months after stroke. Longitudinal models revealed that high stroke survivor depressive symptoms at 9-months post-stroke predicted increases in caregiver depressive symptoms at 18-months post-stroke (standardized adjusted regression coefficient = 0.18, p = 0.003). No longitudinal predictive effects were found for caregiver depressive symptoms on stroke survivor outcomes or for the SF-12 measures. Conclusions: Clinically significant levels of depressive symptoms were relatively rare 9-months after stroke in this population-based sample of stroke survivors and family caregivers. Stroke survivor depressive symptoms longitudinally predict caregiver depressive symptoms, but caregiver well-being was not found to longitudinally predict stroke survivor depression or quality of life. Treating elevated depressive symptoms in stroke survivors may also improve caregiver well-being.

scholarly journals Stroke Survivor and Caregiver Perspectives on Post-Stroke Visual Concerns and Long-Term Consequences

2018 ◽  
Vol 2018 ◽  
pp. 1-8 ◽  
Author(s):  
Theresa M. Smith ◽  
Monique R. Pappadis ◽  
Shilpa Krishnan ◽  
Timothy A. Reistetter
Keyword(s):  
Quality Of Life ◽  
Community Support ◽  
Stroke Survivor ◽  
The United States ◽  
Stroke Survivors ◽  
Care Providers ◽  
Post Stroke ◽  
Vision Care

Approximately 800,000 people in the United States have a stroke annually. Up to two thirds of stroke survivors have some visual problems, which result in disability and can affect survivors’ overall rehabilitation outcomes. Although some post-stroke visual impairments can be corrected and respond well to intervention, ocular signs can be subtle and may not be recognized or reported by the stroke survivor but rather by a vigilant caregiver. The purpose of this study was to explore the post-stroke visual concerns and consequences expressed by stroke survivors and caregivers. This study employed a qualitative design using semistructured interviews conducted with a convenience sample of stroke survivors and caregivers recruited from either a community support group or skilled nursing and long-term care facilities. Interviews were recorded and transcribed verbatim. Comparative content analysis was used to identify vision-related themes by two independent coders. All research team members completed quality checking of coding. Twenty participants (11 stroke survivors and 9 caregivers) expressed visual concerns or consequences following stroke: (1) eye movement problems, (2) perceptual issues, and (3) consequences of vision problems or issues, which affected their daily life/quality of life. Stroke survivors and caregivers reported receiving vision care from (1) eye doctors, (2) occupational therapists, and (3) other healthcare professionals. All vision care providers need to be observant of potential post-stroke visual concerns. Stroke survivors should have a thorough vision evaluation to optimize their independence in everyday activities and quality of life.

scholarly journals Diagnosis Value of the Serum Amyloid A Test in Neonatal Sepsis: A Meta-Analysis

2013 ◽  
Vol 2013 ◽  
pp. 1-9 ◽  
Author(s):  
Haining Yuan ◽  
Jie Huang ◽  
Bokun Lv ◽  
Wenying Yan ◽  
Guang Hu ◽  
...  
Keyword(s):  
Neonatal Sepsis ◽  
Serum Amyloid A ◽  
Meta Analysis ◽  
Serum Amyloid ◽  
Cochrane Library ◽  
Global Public Health ◽  
Amyloid A ◽  
Public Health Challenge ◽  
The Cochrane Library

Neonatal sepsis (NS), a common disorder for humans, is recognized as a leading global public health challenge. This meta-analysis was performed to assess the accuracy of the serum amyloid A (SAA) test for diagnosing NS. The studies that evaluated the SAA test as a diagnotic marker were searched in Pubmed, EMBASE, the Cochrane Library, and Google Network between January 1996 and June 2013. A total of nine studies including 823 neonates were included in our meta-analysis. Quality of each study was evaluated by the quality assessment of diagnostic accuracy studies tool (QUADAS). The SAA test showed moderate accuracy in the diagnosis of NS both at the first suspicion of sepsis and 8–96 h after the sepsis onset, both withQ*=0.91, which is similar to the PCT and CRP tests for the diagnosis of NS in the same period. Heterogeneity between studies was also explained by cut-off point, SAA assay, and age of included neonates. On the basis of our meta-analysis, therefore, SAA could be promising and meaningful in the diagnosis of NS.

scholarly journals Factors Affecting the Ability of the Stroke Survivor to Drive Their Own Recovery outside of Therapy during Inpatient Stroke Rehabilitation

2014 ◽  
Vol 2014 ◽  
pp. 1-8 ◽  
Author(s):  
Xue Wen Eng ◽  
Sandra G. Brauer ◽  
Suzanne S. Kuys ◽  
Matthew Lord ◽  
Kathryn S. Hayward
Keyword(s):  
Stroke Rehabilitation ◽  
Inpatient Rehabilitation ◽  
Stroke Survivor ◽  
Clinical Staff ◽  
Stroke Survivors ◽  
Active Engagement ◽  
Factors Affecting ◽  
Daily Routines ◽  
Depth Interviews ◽  
Ability To Drive

Aim. To explore factors affecting the ability of the stroke survivor to drive their own recovery outside of therapy during inpatient rehabilitation.Method. One-on-one, in-depth interviews with stroke survivors (n=7) and their main carer (n=6), along with two focus groups with clinical staff (n=20). Data was thematically analysed according to group.Results. Stroke survivors perceived “dealing with loss,” whilst concurrently “building motivation and hope” for recovery affected their ability to drive their own recovery outside of therapy. In addition, they reported a “lack of opportunities” outside of therapy, with subsequent time described as “dead and wasted.” Main carers perceived stroke survivors felt “out of control … at everyone’s mercy” and lacked knowledge of “what to do and why” outside of therapy. Clinical staff perceived the stroke survivor’s ability to drive their own recovery was limited by the lack of “another place to go” and the “passive rehab culture and environment.”Discussion. To enable the stroke survivor to drive their own recovery outside of therapy, there is a need to increase opportunities for practice and promote active engagement. Suggested strategies include building the stroke survivor’s motivation and knowledge, creating an enriched environment, and developing daily routines to provide structure outside of therapy time.

scholarly journals Propuestas para la mejora de las Escuelas Taller, Casas de Oficios y Talleres de Empleo

2014 ◽  
Vol 19 (3) ◽  
pp. 316
Author(s):  
Mario De Miguel Díaz ◽  
Marisa Pereira González ◽  
Julián Pascual Díez ◽  
Eva María Carrio Fernández
Keyword(s):  
Focus Groups ◽  
Training Programs ◽  
Support Personnel ◽  
Working Students ◽  
Administrative Personnel ◽  
Training Programmes ◽  
Depth Interviews ◽  
And Training

RESUMENEn este artículo presentamos las propuestas derivadas de la reflexión de los participantes en 100 proyectos, desarrollados en Asturias entre 2001 y 2004, pertenecientes a programas de empleo-formación. Directores, profesores, monitores, personal de apoyo, personal administrativo y alumnos-trabajadores participaron en esta evaluación mediante entrevistas en profundidad, cuestionarios, entrevistas telefónicas y grupos de discusión. Como resultado de esta colaboración, se identificaron diversas medidas que pueden contribuir a incrementar la calidad de los programas de empleo-formación.ABSTRACTIn this article we present the proposals derived from the reflection of the participants in 100 projects, developed in Asturias between 2001 and 2004, in the context of the employment and training programmes. Directors, teachers, monitors, support personnel, administrative personnel and working students participated in this evaluation through in-depth interviews, questionnaires, phone interviews and focus groups. As a result of this collaboration, the measures that can contribute to increase the quality of the employment and training programs were identified.

scholarly journals Measuring Quality of Life in Stroke Survivors

2020 ◽  
Vol 25 (3) ◽  
pp. 11-16
Author(s):  
M. Tsalta-Mladenov ◽  
D. Georgieva ◽  
S. Andonova
Keyword(s):  
Quality Of Life ◽  
Treatment Options ◽  
Stroke Care ◽  
Stroke Survivors ◽  
Stroke Patients ◽  
Post Stroke ◽  
High Dependency ◽  
Evaluation Time ◽  
Number Of Patients

Introduction: The number of patients living with the consequences of stroke is increasing worldwide due to the improving stroke care and the modern differentiated treatment options for ischemic stroke – thrombolysis and thrombectomy. Hence, a significant interest has arisen in quality of life (QOL) measurement in post-stroke patients. Objectives. Measuring QOL in stroke survivors can be achieved by using various generic and stroke specific questionnaires. All tools should assess different domains of health such as physical acting, communication, daily activities and others. This article describes the most commonly used scales for measuring post-stroke QOL. Methods. We searched the PubMed electronic databases with the keywords — Quality of life, Stroke, Measuring for the period from January 2000 to May 2020. Results. Various generic and specific scales for quality of life measuring are available. The advantages of the specific scales include high accuracy and detailed information for the assessed domains. The limitations are due to numerous items, long evaluation time and high dependency on patient’s compliance. The generic scales give the ability to compare the QOL in patients with different diseases. The disadvantage is lack of detailed information for the health status in certain disease or condition. Conclusion. Measuring the different aspects of QOL in post-stroke patients is powerful tool in order to focus the further efforts to the most affected domains. A combination between generic and stroke-specific measure might be considered in order to overcome the limitations. The choice of measuring scales must be balanced in the terms of lengthy and repetitive surveys.

Effectiveness of dyadic interventions to improve stroke patient–caregiver dyads’ outcomes after discharge: A systematic review and meta-analysis study

2020 ◽  
pp. 147451512092606
Author(s):  
Gianluca Pucciarelli ◽  
Marzia Lommi ◽  
Gayenell S Magwood ◽  
Silvio Simeone ◽  
Sofia Colaceci ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Physical Functioning ◽  
Data Extraction ◽  
Meta Analysis ◽  
Intervention Group ◽  
Stroke Survivor ◽  
Male Gender ◽  
Stroke Survivors

Background Because of the importance of a dyadic approach, it is necessary to conduct a systematic review to identify which dyadic intervention could be implemented for stroke survivor–caregiver dyads after discharge from the rehabilitation hospital to improve outcomes. Aims The aims were to systematically review the evidence to identify which dyadic interventions have been implemented in stroke survivor–caregiver dyads to improve stroke survivor–caregiver dyads’ outcomes and to analyse, through a meta-analysis, which intervention was found to be the most effective. Methods A systematic review and meta-analysis were conducted using the following electronic databases: PubMed, CINAHL and PsycInfo. Randomized controlled trials (RCTs) and quasi-RCT studies published within the last 10 years were included. Quantitative data were extracted from papers included in the review using the standardized data extraction tool from JBI-MAStARI. Pooled effects were analysed between the experimental and control groups for each outcome. Results Sixteen studies involving 2997 stroke survivors (male gender=58%) and 2187 caregivers (male gender=25%) were included in this review. In 16 studies, which were subdivided into three quasi-RCTs and 13 RCTs, the application of dyadic interventions for stroke survivors and caregivers was systematically reviewed, but only a few of these identified a significant improvement in the stroke survivors’ and caregivers’ outcomes of its intervention group. Dyadic interventions showed a significant effect on stroke survivors’ physical functioning ( p=0.05), memory ( p<0.01) and quality of life ( p=0.01) and on caregivers’ depression ( p=0.05). Conclusions This study provides moderate support for the use of a dyadic intervention to improve stroke survivors’ physical functioning, memory and quality of life and caregiver depression.

scholarly journals Review on current concepts of myopia and its control strategies

2021 ◽  
Vol 14 (4) ◽  
pp. 606-615
Author(s):  
Raju Kaiti ◽  
◽  
Indra Prasad Sharma ◽  
Manish Dahal ◽  
◽  
...  
Keyword(s):  
Control Strategies ◽  
Global Public Health ◽  
Management Options ◽  
Pharmaceutical Management ◽  
Significant Burden ◽  
Public Health Challenge ◽  
Changing Times ◽  
Near Work ◽  
And Control

Myopia poses a significant burden on the healthcare system, economy and quality of life. It is an emerging global public health challenge and requires interventions to delay or stop onset and progression. With changing times and evidence, the concepts of myopia are changing along with the treatment and control strategies. Behavioural modifications including increased outdoors time and reduced near work, optical and pharmaceutical management options are reviewed. This paper presents a current overview on the concepts of myopia, and is expected to summarize updates on myopia control methods.

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