scholarly journals Examples of lived experiences assessed by participative research

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
L van Houtum ◽  
S Concincion ◽  
F Fernald
Keyword(s):  
Lived Experiences ◽  
Personal Development ◽  
Evaluation Research ◽  
Healthcare Providers ◽  
Target Population ◽  
System Thinking ◽  
Participatory Action ◽  
Local Practices ◽  
Participative Research ◽  
Action Programme

Abstract Wicked problems and system thinking require solutions that are about changing the system dynamics in favourable ways. Randomized controlled trials (RCT), which traditionally have been seen as the 'gold standard' in evaluation research, are not the solution for this type of problem, as they are merely suited to evaluate single and multi-component interventions in a controlled setting. With system thinking, we recognize the complexity of the problem with multiple, interacting factors that are adaptive and dynamic over time. Crucial is participation of the target population. Participatory action research (PAR) is an approach to research in communities that emphasizes participation and action of the target group. PAR increases feasibility and validity of research, and eventually the chance of designing successful interventions, as they are more likely to meet the target population specific needs and to change local practices. In addition, it contributes to personal development and self-efficacy among the stakeholders by prompting them to reflect on their lives and take shared action. We will present three examples of lived experiences assessed by PAR, with a focus on childhood obesity. In the first project, we aim to develop, implement and evaluate an integrated action programme for 10-14-year-old adolescents in Amsterdam at the level of family, school, neighbourhood, health care and city, based upon a detailed insight into the characteristics of the population at stake (LIKE). The second project (Food4Smiles) aims to give children in their first 1000 days a good start in life regarding food, exercise, sleep and overall wellbeing. In this project, we work together with parents, grandparents and healthcare providers. The third project focuses on the healthcare for children with obesity. Goal is to understand which factors contribute to successful self-management behavior in children with obesity and their family and how youth nurses can empower and support this behavior.

Development of an Equity, Diversity, Inclusion, and Anti-racism Pledge as the Foundation for Action in an Academic Department of Neurology

Neurology ◽  
2021 ◽  
Vol 97 (15) ◽  
pp. 729-736 ◽  
Author(s):  
Gillian L. Gordon Perue ◽  
Susan E. Fox-Rosellini ◽  
Nicole B. Sur ◽  
Erika Marulanda-Londono ◽  
Jason Margolesky ◽  
...  
Keyword(s):  
Law Enforcement ◽  
Lived Experiences ◽  
Personal Development ◽  
Socioeconomic Inequality ◽  
Well Being ◽  
Faculty Members ◽  
Systemic Racism ◽  
National Conversation ◽  
The Impact ◽  
Grand Rounds

Recent racial inequities as illustrated by the health disparities in COVID-19 infections and deaths, the recent killings of Black men and women by law enforcement, and the widening socioeconomic inequality and have brought systemic racism into a national conversation. These unprecedented times may have deleterious consequences, increasing stress, and trauma for many members of the neurology workforce. The Equity, Diversity, Inclusion and Anti-Racism Committee within our Department of Neurology provides infrastructure and guidance to foster a culture of belonging and addresses the well-being of faculty, staff, and trainees. Here, we present the creation and implementation of our Equity, Diversity, Inclusion, and Anti-Racism (EDIA) Pledge, which was central to our committee's response to these unprecedented times. We outline the process of developing this unique EDIA Pledge and provide a roadmap for approaching these important topics through a Continuing Medical Education Neurology Grand Rounds aimed at fostering a diverse, inclusive, equitable, and antiracist work environment. Through the lived experiences of 4 faculty members, we identify the impact of bias and microaggressions and encourage allyship and personal development for cultural intelligence. We hope that these efforts will inspire neurology departments and other academic institutions across the globe to make a similar pledge.

scholarly journals Lived experiences of frontline healthcare providers offering maternal and newborn services amidst the novel corona virus disease 19 pandemic in Uganda: A qualitative study

PLoS ONE ◽  
2021 ◽  
Vol 16 (12) ◽  
pp. e0259835
Author(s):  
Herbert Kayiga ◽  
Diane Achanda Genevive ◽  
Pauline Mary Amuge ◽  
Andrew Sentoogo Ssemata ◽  
Racheal Samantha Nanzira ◽  
...  
Keyword(s):  
Service Delivery ◽  
Health Systems ◽  
Personal Protective Equipment ◽  
Lived Experiences ◽  
Healthcare Providers ◽  
Newborn Care ◽  
Health Facilities ◽  
Protective Equipment ◽  
Depth Interviews ◽  
Maternal And Newborn

Background The COVID-19 pandemic has brought many health systems in low resource settings to their knees. The pandemic has had crippling effects on the already strained health systems in provision of maternal and newborn healthcare. With the travel restrictions, social distancing associated with the containment of theCOVID-19 pandemic, healthcare providers could be faced with challenges of accessing their work stations, and risked burnout as they offered maternal and newborn services. This study sought to understand the experiences and perceptions of healthcare providers at the frontline during the first phase of the lockdown as they offered maternal and newborn health care services in both public and private health facilities in Uganda with the aim of streamlining patient care in face of the current COVID-19 pandemic and in future disasters. Methods Between June 2020 and December 2020, 25 in-depth interviews were conducted among healthcare providers of different cadres in eight Public, Private-Not-for Profit and Private Health facilities in Kampala, Uganda. The interview guide primarily explored the lived experiences of healthcare providers as they offered maternal and newborn healthcare services during the COVID-19 pandemic. All of the in depth interviews were audio recorded and transcribed verbatim. Themes and subthemes were identified using both inductive thematic and phenomenological approaches. Results The content analysis of the in depth interviews revealed that the facilitators of maternal and newborn care service delivery among the healthcare providers during the COVID-19 pandemic included; salary bonuses, the passion to serve their patients, availability of accommodation during the pandemic, transportation to and from the health facilities by the health facilities, teamwork, fear of losing their jobs and fear of litigation if something went wrong with the mothers or their babies. The barriers to their service delivery included; lack of transport means to access their work stations, fear of contracting COVID-19 and transmitting it to their family members, salary cuts, loss of jobs especially in the private health facilities, closure of the non-essential services to combat high patient numbers, inadequate supply of Personal Protective equipment (PPE), being put in isolation or quarantine for two weeks which meant no earning, brutality from the security personnel during curfew hours and burnout from long hours of work and high patient turnovers. Conclusion The COVID-19 Pandemic has led to a decline in quality of maternal and newborn service delivery by the healthcare providers as evidenced by shorter consultation time and failure to keep appointments to attend to patients. Challenges with transport, fears of losing jobs and fear of contracting COVID-19 with the limited access to personal protective equipment affected majority of the participants. The healthcare providers in Uganda despite the limitations imposed by the COVID-19 pandemic are driven by the inherent passion to serve their patients. Availability of accommodation and transport at the health facilities, provision of PPE, bonuses and inter professional teamwork are critical motivators that needed to be tapped to drive teams during the current and future pandemics.

scholarly journals Community Immersion, Trust-Building, and Recruitment among Hard to Reach Populations: A Case Study of Muslim Women in Detroit Metro Area

2018 ◽  
Vol 14 (3) ◽  
pp. 24-44 ◽  
Author(s):  
Mehri Mohebbi (Mehrsa) ◽  
Annulla Linders ◽  
Carla Chifos
Keyword(s):  
Target Population ◽  
Trust Building ◽  
Muslim Community ◽  
Participatory Action ◽  
Building Trust ◽  
Research Relationship ◽  
Study Population ◽  
Hard To Reach Populations

Scholars have identified a range of factors that influence the ability of researchers to access hard-toreach groups and the willingness of their members to participate in research. In this paper, we draw on insights from both ethnographic methods and participatory action research to demonstrate the importance of building trust in our relationships with hard-to-reach participants in research based on interviews. Such trust-building, we show, is greatly facilitated by pre-recruitment immersion that aids not only the recruitment of individual participants but also improves the quality of the data collected. These methodological concerns emerged from an interview study focusing on Muslim women’s use of urban public recreational spaces in South-East Michigan. Although the first author of this paper, as a woman and a Muslim, is a formal insider in the study population, her experiences with recruitment demonstrate that the access granted by insider status is insufficient as grounds for a research relationship based on trust. This is so especially when the target population is as marginalized and embattled as the post 9/11 immigrant Muslim community. With more than two years of community immersion, however, she was able to foster enough trust to secure a large number of committed participants that spoke freely and thoughtfully about the issues at stake (78 in all).

scholarly journals The Use of Smart Devices by Care Providers in Emergency Departments: A Cross-Sectional Study (Preprint)

2019 ◽  
Author(s):  
Mohamad Alameddine ◽  
Hussein Soueidan ◽  
Maha Makki ◽  
Hani Tamim ◽  
Eveline Hitti
Keyword(s):  
Health Center ◽  
Healthcare Providers ◽  
Target Population ◽  
Academic Health Center ◽  
Care Quality ◽  
Smart Devices ◽  
Smart Device ◽  
Care Providers ◽  
Cross Sectional ◽  
Academic Health

BACKGROUND The use of smart devices (SD) by healthcare providers in care settings is a common practice nowadays. Such use is not restricted to applications related to the care of patients but often extends to personal calls and applications with frequent prompts and interruptions. This enhances the risk of distractions caused by SD in the hospital settings and raises concerns on service quality and patient safety. Such concerns are exacerbated in complex care settings like the Emergency Department (ED). OBJECTIVE This study measured the frequency and patterns of SD use among healthcare providers in the ED of a large academic health center in Lebanon. The perceived consequences of care providers on using SDs on the provider-provider communication and the care quality of patients in ED were further assessed. The study further examined the factors associated with the use of smart devices and measured the approval for regulating such use. METHODS The study was carried at the ED of an academic health center in Lebanon. The ED received the highest volume of patient visits in the country. Data was collected using a cross-sectional electronic survey sent to all ED healthcare providers (n=236). The target population included core ED faculty members, attending physicians, residents, medical students, and the nursing care providers. RESULTS Half of the target population responded to the questionnaire. A total of 85.6% of the respondents use one or more medical applications on their smart devices. The respondents believed that using the SD in the ED improved the coordination among the care team (81.6%) and that it was beneficial to patient care (78.9%). In addition, 41.1% of the respondents acknowledged they were distracted when using their SD for non-work purposes. Furthermore, 54.8% of the respondents acknowledged having witnessed their colleagues committed a near miss or an error due to the smart device-caused distractions. Regression analysis revealed that age and missing information due to using the SD are major predictors of committing an error at the ED (p<0.05). Interestingly, more than 40% of the respondents were significantly addicted to using SD and more than third of them felt the need to cut down on such use. CONCLUSIONS The findings of this study make it imperative to safeguard the safety and wellbeing of patients, particularly in high intensity, high volume department such as the ED. Irrespective of the positive role the SD play in the healthcare process, the negative effects of its use mandate proper regulation. This is an ethical mandate taking into consideration the important consequences such use may have on care processes and outcomes.

scholarly journals Emerging public health challenge in UK: perception and belief on increased COVID19 death among BAME healthcare workers

2020 ◽  
Vol 42 (3) ◽  
pp. 486-492 ◽  
Author(s):  
Arumugam Moorthy ◽  
Thangasamy K Sankar
Keyword(s):  
Mental Health ◽  
Healthcare Providers ◽  
Work Force ◽  
Well Being ◽  
Target Population ◽  
Front Line ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Co Morbidity ◽  
Adequate Provision

Abstract Background Coronavirus infection Disease 19 impacted every part of the world and routine life. Recent report from the Office of national statistics in UK reported disproportionate death among Black Asian and minority ethnic (BAME) population. NHS is heavily relied on the BAME work force both in front line and in the community. We attempted to explore the beliefs and perception about reported worrying issue among BAME health work force in a Diverse city of Leicester. Methods This is a cross-sectional survey using 20 questions in an electronic format. The target population was identified through Leicester Asian Doctors Society and Leicester Asian Nurses Society. The questionnaire was then distributed electronically to the members. Survey questionnaire was accessed by 372, incomplete response (172) were excluded and 200 completed responses were analysed. Results Majority of BAME workforce are routinely involved in front line duties. More than 70% were anxious about their role during this pandemic. The Personal Protective Equipment (PPE) supply was adequate, and the support received from the local healthcare providers was more than satisfactory. The work force perceived co-morbidity, lack of PPE and testing were one of the few reasons for increased death in BAME. BAME group felt adequate provision of PPE, increased testing and improving mental health well-being is required to alleviate concerns and improve BAME working life in NHS. Conclusion BAME workforce are routinely involved in front line work and current anxiety level is very high. Adequate provision of mental health support with clear risk stratification for return to work is required urgently.

A participatory action research process with a rural Indigenous men's group: monitoring and reinforcing change

2004 ◽  
Vol 10 (3) ◽  
pp. 130 ◽  
Author(s):  
Komla Tsey ◽  
Mark Wenitong ◽  
Janya McCalman ◽  
Mary Whiteside ◽  
Leslie Baird ◽  
...  
Keyword(s):  
Action Research ◽  
Participatory Action Research ◽  
Personal Development ◽  
Research Process ◽  
Community Action ◽  
Participatory Action ◽  
Group Leaders ◽  
Family Responsibilities ◽  
Medical Practitioners ◽  
Health Group

Since 2001 a team of academic researchers and medical practitioners have been collaborating with Yarrabah Men?s Health Group leaders to implement a participatory action research (PAR) process designed to support the men to (in their own words) ?take their rightful place? in contemporary Australian society. The formative stages of the PAR process and progress over the first 12 months have been documented in previous papers in order to provide much needed direction for others interested in undertaking similar community action-oriented research (Tsey, Patterson, Whiteside, Baird, & Baird, 2002; Tsey et al., 2004). The present paper addresses the need for innovative evaluation methodologies to enable participants in the PAR process to monitor and reinforce the small improvement they are making towards achieving their goals, and to maintain their vision for the future. Participation in men?s group activities resulted in modest but significant change in the men?s personal development and growth and in their response to family responsibilities. Men had the opportunity to dialogue and reflect on their gender responsibilities such as housework, which constitutes a major source of conflict in the family. Several men also gained the confidence and motivation to stand for local government. The study highlights the value of demystifying and making research more relevant to people?s day-to-day living experiences.

scholarly journals Fortalecimiento de las capacidades interpersonales de los recicladores de Cuenca

UDA AKADEM ◽  
2021 ◽  
pp. 294-319
Author(s):  
Daniel Bravo-Blandín
Keyword(s):  
Organizational Development ◽  
Interpersonal Relationships ◽  
Personal Development ◽  
Research Work ◽  
Target Population ◽  
Group Behavior ◽  
Great Opportunity ◽  
Community Needs ◽  
Calidad De Vida ◽  
Cristo Rey

La investigación tuvo como población objetivo a 107 recicladores de las siete asociaciones de Cuenca: Cristo Rey, AREV, El Chorro, ARUC, Feria Libre, Pichacay y San Alfonso. El proyecto fue realizado por profesores y estudiantes de la Escuela de Psicología Organizacional de la Universidad del Azuay. Su principal objetivo fue brindar una alternativa de fortalecimiento dentro del ámbito del comportamiento humano, en competencias tales como el liderazgo, comunicación efectiva, trabajo en equipo, motivación y desarrollo personal, para fomentar la productividad y el desarrollo organizacional. Mediante encuestas, entrevistas a profundidad y grupos focales se realizó un diagnóstico situacional de las relaciones interpersonales de los recicladores, para determinar las oportunidades de mejora, tanto a nivel personal como colectivo. Como principales resultados de este proyecto social, se evidenciaron problemas intrapersonales e interpersonales dentro de sus asociaciones. Para contribuir a mejorar la calidad de vida de esta población vulnerable, se implementaron talleres de capacitación relacionados a la psicología organizacional y adaptada al diagnóstico situacional. El proyecto permitió que los recicladores mejoren sus competencias necesarias para el correcto desenvolvimiento en su ambiente de trabajo y en sus hogares. Asimismo, fue una gran oportunidad para que los estudiantes participen activamente en las necesidades de la comunidad.Palabras clave: comportamiento de grupo, desarrollo de competencias, psicología organizacional, recicladores. Abstract The present research work had a target population of 107 recyclers from the seven associations in the city of Cuenca: Cristo Rey, AREV, El Chorro, Feria Libre, Pichacay y San Alfonso. This project was realized by teachers and students of the Organizational Psychology’s school of the Universidad del Azuay and had as its main purpose offer to waste pickers with a strengthening alternative within the field of human behavior, in skills such as leadership, effective communication, teamwork, motivation and personal development; through them, promote productivity and organizational development into the associations they are part of. Through surveys, in-depth interviews and focus groups, a situational diagnosis of the interpersonal relationships of each association was carried out in order to determine opportunities for improvement, both personally and collectively level. As main results of this project of engagement with society, intrapersonal problems were evidenced in the recyclers, as well as interpersonal problems within associations. Looking to contribute for improving the quality of life of this vulnerable group, training organizational workshops were elaborated and implemented, adapting them to the situational diagnosis. The project allowed people to improve their abilities and skills necessary for the proper development in their work environment and in their homes. It was also a great opportunity for students to form by participating and actively serving in the community needs. Keywords: group behavior, trai- ning, recyclers, skills develop- ment, work psychology.

scholarly journals Knowledge Attitudes of Nurses towards the Use of Nursing Diagnosis in Clinical Practice

2021 ◽  
Vol 3 (3) ◽  
pp. 58-68
Author(s):  
Kanwal Kauser Parveen
Keyword(s):  
Personal Development ◽  
Target Population ◽  
Unique Contribution ◽  
Clinical Practices ◽  
Policy And Practice ◽  
Cross Sectional ◽  
Body Of Knowledge ◽  
Nursing Diagnosis ◽  
Level Of Knowledge ◽  
Knowledge And Attitude

Purpose: Assess the knowledge and attitude towards the nurses in the clinical practices to identify the level of awareness of nurses and improve their practice to minimize and prevent the risk of complications, as well as to improve patient outcomes. Methodology: The cross sectional descriptive study design was used in the research. Target population was the staff nurses of the Govt hospital Lahore. The inclusion criteria was cardiac surgery ICU nurses in the hospital Lahore expressed the willingness of participation for this study were included after taking the consent. The sample size of the study was 100 nurses Results: The study showed variations in the level of knowledge, attitude and practice of nurses, most of which reflected in their nursing practice their knowledge between the poor and the average. Many nurses have not been aware of the suggested practice and amounts have shown possibly of practice. The research also raised concern about all aspects of Nursing Diagnosis and highlighted the criteria for practice improvements and developed body of knowledge. Unique contribution to theory, policy and practice: The study recommended the need for extensive improvements in the knowledge and practice of nurses by using the nursing diagnosis in the clinical for each nurse., It is the duty of nurses to develop a body of knowledge in their field of work, to promote the growth and personal development of local practice, to recognize knowledge gaps, to pursue appropriate training and resources, and to base all practice on facts.

The Language Warriors: Transcending ideologies on bilingualism in education

2020 ◽  
pp. 147675032093115
Author(s):  
Lara Alonso ◽  
Khanh Le
Keyword(s):  
Middle School ◽  
Critical Thinking ◽  
Action Research ◽  
Participatory Action Research ◽  
Lived Experiences ◽  
Participatory Action ◽  
Action Research Project ◽  
Eighth Grade Students ◽  
Middle School Youth ◽  
School Youth

This article explores how middle school youth view bilingualism and act on these views to transform their school and their communities. Following a post-structuralist perspective on language and society, a lens from raciolinguistic ideologies, and a creative justice approach, we developed a Participatory Action Research project in which seventh and eighth grade students became co-researchers as we explored how to make bilingualism more welcome in their school. In this paper, we reveal how bilingualism became a way to unite students and to fight deficit views of language minoritized communities. We show the students’ potential to engage in critical thinking about bilingualism and to become agents in their schools and communities. Our findings informed the school on how to acknowledge and leverage the students’ language practices and lived experiences based on a framework of armed and bilingual love.

Framework for community-based models for treating hepatitis C virus

2020 ◽  
Vol 44 (3) ◽  
pp. 459 ◽  
Author(s):  
Davoud Pourmarzi ◽  
Lisa Hall ◽  
Andrew Smirnov ◽  
Julie Hepworth ◽  
Tony Rahman ◽  
...  
Keyword(s):  
Hepatitis C Virus ◽  
Hepatitis C ◽  
Service Delivery ◽  
Healthcare Providers ◽  
Target Population ◽  
Care Providers ◽  
Hcv Treatment ◽  
Community Based ◽  
Related Services ◽  
Adherence Support

Objective Although community-based models for treating hepatitis C virus (HCV) are widely recognised for reaching more people who require treatment, little is known about their organisational and operational elements. This study aimed to address this gap and develop a framework for designing, implementing and evaluating community-based models for treating HCV. Methods This study was a systematic review in which 17 databases were searched for published and unpublished studies. The final search of databases was performed in September 2017. A qualitative inductive thematic approach was used to extract and categorise organisational and operational elements of community-based models for treating HCV. Results Data analysis yielded 13 organisational and operational elements that were categorised into three domains: support for patients, support for healthcare providers and service delivery facilitation. In the support for patients domain, support was categorised into four elements: peer support, psychological assessment and support, social assessment and support and adherence support. In the support for healthcare providers domain, the elements included the provision of educational opportunities for HCV care providers, specialist mentoring, decision making support and rewarding and recognition for HCV care providers. Finally, the service delivery facilitation domain included seven elements that target service-level enablers for community-based HCV treatment, including essential infrastructure, policy implementation and collocation and collaboration with other related services. Conclusion This framework for understanding the components of models of community-based HCV treatment may be used as a guide for designing, implementing and evaluating models of care in support of HCV elimination. HCV care providers and patients need to be supported to improve their engagement with the provision of community-based treatment. In addition, evidence-based strategies to facilitate service delivery need to be included. What is known about the topic? Community-based models for treating HCV are widely recognised as having the advantage of reaching more people who require treatment. These types of models aim to remove barriers related to accessibility and acceptability associated with tertiary centre-based HCV treatment. What does this paper add? Community-based models for treating HCV use various organisational and operational elements to improve the accessibility, effectiveness and acceptability of these services. The elements we identified target three main domains: support for patients with HCV, support for HCV care providers and service delivery facilitation. The importance of these organisational and operational elements designed to improve health and health services outcomes of community-based models for treating HCV is strongly influenced by context, and dependent on both the setting and target population. What are the implications for practitioners? Health policy makers and practitioners need to consider a patient’s psychosocial and economic status and provide support when needed. To successfully deliver HCV treatment in community settings, HCV care providers need to be trained and supported, and need to establish linkages, collaborations or colocations with other related services.

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