Clinical Psychologist, 3 years’ experience, UK
This chapter assesses the idea that patients with Non-Epileptic Seizures (NES) are “difficult.” Anger is an emotion that people feel in the context of perceived injustice: if something is taken from someone, if someone is treated differently, or if someone is not given what he or she deserves. Often, individuals with NES have been treated badly by the people who should have shown them care. This is not a universal truth by any stretch, but research has shown there to be a high incidence of trauma within NES populations. Experiencing symptoms affecting movement and awareness that are outside of conscious control often means that people with NES miss out on opportunities and lose their jobs and driving licenses as well as their independence. Unfortunately, for someone who experiences NES, the journey to a final diagnosis could take years. As such, patients’ anger is not simply attributable to an interaction with one professional or to an explanation that people with NES are inherently difficult. Instead, it is important to look beyond the clinic room to acknowledge that the system as a whole is not meeting the needs of people who experience NES and that this is not fair. One way to make a difference, then, is to provide access to information and training for healthcare professionals.