scholarly journals Public opinion on sharing data from UK health services for clinical and research purposes without explicit consent

2021 ◽  
Author(s):  
Linda A. Jones ◽  
Jenny R. Nelder ◽  
Joseph M. Fryer ◽  
Philip H. Alsop ◽  
Michael R. Geary ◽  
...  
Keyword(s):  
Public Opinion ◽  
Data Sharing ◽  
Large Scale ◽  
Online Survey ◽  
Clinical Care ◽  
Public Support ◽  
Direct Care ◽  
Free Text ◽  
Healthcare Organizations ◽  
Explicit Consent

BACKGROUND. In the UK, National Health Service (NHS/HSC) data is variably shared between healthcare organizations for direct care, and increasingly used in de-identified forms for research. Few large-scale studies have examined public opinion on sharing, including the treatment of mental health (MH) versus physical health (PH) data. METHODS. Pre-registered anonymous online survey open to all UK residents, recruiting Feb-Sep 2020. Participants were randomized to one of three framing statements regarding MH versus PH data. FINDINGS. Participants numbered 29275; 40% had experienced a MH condition. A majority supported identifiable data sharing for direct clinical care without explicit consent, but 20% opposed this. Preference for clinical/identifiable sharing decreased with distance and was slightly less for MH than PH data, with a small framing effect. Preference for research/de-identified data sharing without explicit consent showed the same small PH/MH and framing effects, plus greater preference for sharing structured data than de-identified free text. There was net support for research sharing to the NHS, academic institutions, and national research charities, net ambivalence about sharing to profit-making companies researching treatments, and net opposition to sharing to other companies (similar to sharing publicly). De-identified linkage to non-health data was generally supported, except to data held by private companies. We report demographic influences on preference. A clear majority supported a single NHS mechanism to choose uses of their data. Support for data sharing increased during the pandemic. INTERPRETATION. Support for healthcare data sharing for direct care without explicit consent is broad but not universal. There is net support for the sharing of de-identified data for research to the NHS, academia, and the charitable sector, but not the commercial sector. A single national NHS-hosted system for patients to control the use of their NHS data for clinical purposes and for research would have broad public support. FUNDING. MRC.

Asymmetric Accountability: An Experimental Investigation of Biases in Evaluations of Governments’ Election Pledges

2019 ◽  
Vol 52 (13-14) ◽  
pp. 2207-2234 ◽  
Author(s):  
Elin Naurin ◽  
Stuart Soroka ◽  
Niels Markwat
Keyword(s):  
Experimental Investigation ◽  
Political Behavior ◽  
Large Scale ◽  
Online Survey ◽  
Public Support ◽  
Survey Experiments ◽  
The Cost

Governments often fulfill election pledges to remain in power; yet, it is unclear how pledge fulfillment and breakage actually affect public support for government. This article explores the tendency for governments to be penalized for unfulfilled pledges more than they are rewarded for fulfilled pledges. In two large-scale highly realistic online survey experiments ( N = 13,000, 10,000), performed at the beginning and middle of a government’s term in office, respondents are presented with a range of (real) election pledges. We find that broken pledges often are more important to government evaluations than fulfilled pledges, and that pledge fulfillment can produce decreases in support from nonsupporters that more than offset the marginal gains among supporters. Findings provide valuable evidence on asymmetries in political behavior, and a unique account of the “cost of ruling,” the seemingly inevitable tendency for governments to lose support during their time in office.

scholarly journals Revealing the “Hidden welfare state”: How policy information influences public attitudes about tax expenditures

2020 ◽  
Vol 3 (1) ◽  
Author(s):  
Matt Guardino ◽  
Suzanne Mettler
Keyword(s):  
Public Opinion ◽  
Welfare State ◽  
News Media ◽  
Online Survey ◽  
Public Awareness ◽  
Public Attitudes ◽  
Public Support ◽  
Specific Information ◽  
Tax Expenditures ◽  
Policy Information

In this article, we explore how specific policy information shapes public opinion toward the “hidden welfare state” of tax expenditures. These politically and socioeconomically consequential policies—most of which bestow their greatest benefits on upper-income people—are complex and opaque, and scholars’ understanding of citizen attitudes toward them is limited. In response, we use a randomized, general population, online survey experiment to test the effects of providing people with varying amounts and kinds of information about three policies. We find that learning the basic design and rationale of key tax expenditures tends to increase public support for them. However, when informed of the distributive effects of the two policies that favor upper-income people, subjects become much less supportive of these policies. Moreover, policy-specific information appears to help subjects align their preferences with their immediate material interests. Learning the upward tilt of tax expenditures especially makes lower- and middle-income people less supportive of the policies. Our results suggest that if political elites, government administrators and news media routinely offered clear information about tax expenditures, public opinion toward the hidden welfare state would be more firmly grounded. By virtue of their design, these policies discourage public awareness of their mechanisms and distributive effects. Still, greater informational outreach regarding complicated and arcane tax expenditures could bolster public accountability for government actions that favor economically narrow and privileged segments of the population.

scholarly journals Microdosing as a response to the meaning crisis

2020 ◽  
Author(s):  
Rotem Petranker ◽  
Juensung Kim ◽  
Thomas Anderson
Keyword(s):  
Large Scale ◽  
Online Survey ◽  
Meaning Making ◽  
Future Research ◽  
Free Text ◽  
Double Blind ◽  
Research Directions ◽  
Optimal Dosing ◽  
Social Media Platforms ◽  
Future Research Directions

Background: The use of psychedelic substances like LSD and magic mushrooms in research and to treat mental health conditions has been increasing in the last decade. In particular, the practice of microdosing – using sub-hallucinogenic amounts of psychedelics – has been increasing (Anderson et al., 2019), but large-scale systemic qualitative analyses are still scant.Aims: This study attempted to recognize emergent themes in qualitative reports regarding the experience of microdosing so as to enrich the theoretical landscape in psychedelics research and propose future research directions for both basic and clinical research.Methods: This study used qualitative analysis to analyze free-text responses from individuals who participated in an online survey disseminated on various social media platforms. Participants had reported microdosing at least once in the past year.Results: Data from 118 informative responses suggested four main emergent themes: reasons for microdosing, the practice of microdosing, outcomes linked to microdosing, and meta-commentary about microdosing. Participants mostly reported microdosing for clinical reasons and to improve productivity, and mentioned that the practice is often challenging due to unknown optimal dosing regimen. The outcomes of microdosing varied widely between strong endorsement of the practice and disappointment at the lack of effect. Meta-commentary included warning against overexcitement with the practice. We couch our findings in meaning-making theory and propose that, even at low doses, psychedelic substances can provide a sense of meaning currently lacking in Western culture.Conclusion: Our results suggest that there many of the reported benefits occur regardless of motivation to microdose and are likely due to the enhanced psychological flexibility and sense of connectedness made possible due to the use of psychedelics. Double-blind, placebo controlled experiments are required in order to substantiate these reports.

scholarly journals Effect of ‘lifestyle stigma’ on public support for NHS-provisioned pre-exposure prophylaxis (PrEP) and preventative interventions for HPV and type 2 diabetes: a nationwide UK survey

BMJ Open ◽  
2019 ◽  
Vol 9 (8) ◽  
pp. e029747 ◽  
Author(s):  
Timothy Hildebrandt ◽  
Leticia Bode ◽  
Jessica S C Ng
Keyword(s):  
Type 2 Diabetes ◽  
Public Opinion ◽  
Online Survey ◽  
Public Attitudes ◽  
Public Support ◽  
Hiv Treatment ◽  
Control Treatment ◽  
Lifestyle Treatment ◽  
Exposure Prophylaxis

ObjectivesThis study examines how the perceived role of poor lifestyle and irresponsible behaviour in contracting HIV, human papilloma virus (HPV) and diabetes affects public support for government-provisioned prevention efforts in Britain. It assesses whether public attitudes on healthcare spending are broadly sensitive to ‘lifestyle stigmas’.MethodsWe conducted an online survey of 738 respondents in Britain and embedded three separate survey experiments to measure support for government-provisioned interventions for HIV, HPV and type 2 diabetes. In each experiment, we manipulated language used to describe the extent to which the diseases are caused by lifestyle choices. Most respondents participated in all three experiments, but assignment was randomised within each condition. Analysis compared support among respondents exposed to ‘lifestyle’ treatment (information emphasising the disease’s lifestyle causes) versus control treatment. We estimated three separate t-tests in which support for government provision of interventions is the dependent variable.ResultsSupport for government-provisioned prevention was high for all three diseases. There was no statistical difference between treatment and control conditions for HIV (treatment mean=3.73, control mean=3.86, p=0.38). But in both HPV (treatment mean=3.96, control mean=4.43, p<0.01) and type 2 diabetes (treatment mean=3.53, control mean=4.03, p<0.01) experiments, support for government-provisioned interventions was significantly lower under lifestyle treatment conditions.ConclusionsPublic opinion on healthcare expenditures in Britain is unexpected and uneven. Consistent participant support for pre-exposure prophylaxis (PrEP) shows public attitudes are not always sensitive to lifestyle stigmas—but for other diseases, perceived relationships between individual behaviour and poor health can still shape public opinion about health expenditures. Policymakers and practitioners should remain attentive to how health problems are framed and discussed to ensure broad public support, and take advantage of policy windows like with PrEP as they may close.

Accountability without Angst? Public Opinion and No Child Left Behind

2006 ◽  
Vol 76 (4) ◽  
pp. 587-610 ◽  
Author(s):  
FREDERICK HESS
Keyword(s):  
Public Opinion ◽  
Public Schools ◽  
No Child Left Behind ◽  
School Choice ◽  
Large Scale ◽  
Public Support ◽  
Achievement Gaps ◽  
The Public ◽  
Left Behind ◽  
Using Data

In this article, Frederick Hess discusses public opinion trends related to educational issues from the enactment of the No Child Left Behind Act (NCLB) in 2002 through 2006. Using data from three separate public opinion polls, Hess analyzes the general public's and parents' opinions on several issues, including the proper use of large-scale assessments, the appropriateness of punitive action for failing schools, the place of school choice, and the responsibility for closing achievement gaps across groups. Among many important findings, the author determines that NCLB has had little effect on the public's general opinion of public schools; that there is little public support for the sanctioning of struggling schools; and that while the public feels that schools should not be blamed for existing achievement gaps, schools should be responsible for closing them. He concludes with a discussion of implications for policymakers and practitioners.

Positively Resilient? How Framing Local Action Affects Public Opinion

2020 ◽  
Vol 57 (1) ◽  
pp. 70-103
Author(s):  
Sara Meerow ◽  
Fabian G. Neuner
Keyword(s):  
Public Opinion ◽  
Empirical Evidence ◽  
Local Governments ◽  
Online Survey ◽  
Public Support ◽  
Policy Support ◽  
Local Action ◽  
The Public ◽  
Perceived Importance ◽  
Survey Experiments

Cities face numerous environmental challenges. Local governments need the public’s support to tackle these problems, and scholars and practitioners have suggested that framing initiatives around resilience, as opposed to sustainability, reducing vulnerability, or adaptation, may increase public support for local action. Resilience, they argue, has a better social connotation, is more positive, and less polarizing than related concepts. Empirical evidence supporting these claims is lacking. In three online survey experiments, we test whether the public is more likely to support policies when they are framed in terms of “resilience.” We also examine public conceptualizations of these different terms and whether resilience has a more positive connotation. We find significant differences in policy support, perceived importance, and interpretations of the concepts. The study confirms that framing affects policy support, but complicates claims that resilience is inherently more appealing. These findings have implications for urban research and policymaking.

Quantifying empathy levels among UK undergraduate medical students: an online survey

2020 ◽  
Vol 70 (suppl 1) ◽  
pp. bjgp20X711293
Author(s):  
Sarah Garnett ◽  
Hajira Dambha-Miller ◽  
Beth Stuart
Keyword(s):  
Medical Students ◽  
Health Outcomes ◽  
Medical School ◽  
Curriculum Design ◽  
Online Survey ◽  
Mental Wellbeing ◽  
Reactivity Index ◽  
Free Text ◽  
Undergraduate Medical Students ◽  
Cross Sectional

BackgroundEmpathy is a key health care concept and refers to care that incorporates understanding of patient perspective’s, shared decision making, and consideration of the broader context in which illness is experience. Evidence suggests experiences of doctor empathy correlate with improved health outcomes and patient satisfaction. It has also been linked to job satisfaction, and mental wellbeing for doctors. To date, there is a paucity of evidence on empathy levels among medical students. This is critical to understand given that it is a key point at which perceptions and practices of empathy in the longer term might be formed.AimTo quantify the level of empathy among UK undergraduate medical studentsMethodAn anonymised cross-sectional online survey was distributed to medical students across three universities. The previously validated Davis’s Interpersonal Reactivity Index was used to quantify empathy. The survey also collected information on age, sex, ethnicity, year of medical school training and included a free-text box for ‘any other comments’.ResultsData analysis is currently underway with high response rates. Mean empathy scores by age, sex, year of study and ethnic group are presented. A correlation analysis will examine associations between age and year of study, and mean empathy sores.ConclusionThese data will help to provide a better understanding of empathy levels to inform the provision of future empathy training and medical school curriculum design. Given previous evidence linking experiences of empathy to better health outcomes, the findings may also be significant to future patient care

Applications of blockchain in healthcare (Preprint)

2020 ◽  
Author(s):  
Pranav C
Keyword(s):  
Decision Making ◽  
Large Scale ◽  
Review Paper ◽  
New Technology ◽  
Personal Identification ◽  
Healthcare Industry ◽  
Healthcare Organizations ◽  
Paper Briefly ◽  
Blockchain Technology ◽  
Audit Trails

UNSTRUCTURED The word blockchain elicits thoughts of cryptocurrency much of the time, which does disservice to this disruptive new technology. Agreed, bitcoin launched in 2011 was the first large scale implementation of blockchain technology. Also, Bitcoin’s success has triggered the establishment of nearly 1000 new cryptocurrencies. This again lead to the delusion that the only application of blockchain technology is for the creation of cryptocurrency. However, the blockchain technology is capable of a lot more than just cryptocurrency creation and may support such things as transactions that require personal identification, peer review, elections and other types of democratic decision-making and audit trails. Blockchain exists with real world implementations beyond cryptocurrencies and these solutions deliver powerful benefits to healthcare organizations, bankers, retailers and consumers among others. One of the areas where blockchain technology can be used effectively is healthcare industry. Proper application of this technology in healthcare will not only save billions of money but also will contribute to the growth in research. This review paper briefly defines blockchain and deals in detail the applications of blockchain in various areas particularly in healthcare industry.

Euroscepticism and the Future of European Integration

2018 ◽  
Author(s):  
Catherine E. De Vries
Keyword(s):  
Public Opinion ◽  
European Integration ◽  
Public Support ◽  
The European Union ◽  
Political Systems ◽  
National Politics ◽  
Public Preferences ◽  
Novel Theory ◽  
The Eu

The European Union (EU) is facing one of the rockiest periods in its existence. At no time in its history has it looked so economically fragile, so insecure about how to protect its borders, so divided over how to tackle the crisis of legitimacy facing its institutions, and so under assault by Eurosceptic parties. The unprecedented levels of integration in recent decades have led to increased public contestation, yet at the same the EU is more reliant on public support for its continued legitimacy than ever before. This book examines the role of public opinion in the European integration process. It develops a novel theory of public opinion that stresses the deep interconnectedness between people’s views about European and national politics. It suggests that public opinion cannot simply be characterized as either Eurosceptic or not, but rather that it consists of different types. This is important because these types coincide with fundamentally different views about the way the EU should be reformed and which policy priorities should be pursued. These types also have very different consequences for behaviour in elections and referendums. Euroscepticism is such a diverse phenomenon because the Eurozone crisis has exacerbated the structural imbalances within the EU. As the economic and political fates of member states have diverged, people’s experiences with and evaluations of the EU and national political systems have also grown further apart. The heterogeneity in public preferences that this book has uncovered makes a one-size-fits-all approach to addressing Euroscepticism unlikely to be successful.

scholarly journals Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives’ experiences during the COVID-19 pandemic

2021 ◽  
pp. 026921632110198
Author(s):  
Catriona R Mayland ◽  
Rosemary Hughes ◽  
Steven Lane ◽  
Tamsin McGlinchey ◽  
Warren Donnellan ◽  
...  
Keyword(s):  
Public Health ◽  
Family Support ◽  
Online Survey ◽  
Free Text ◽  
Professional Networks ◽  
Dying Patients ◽  
The Face ◽  
Individualised Care ◽  
The Impact ◽  
Informative Communication

Background: COVID-19 public health restrictions have affected end-of-life care experiences for dying patients and their families. Aim: To explore bereaved relatives’ experiences of quality of care and family support provided during the last days of life; to identify the impact of factors associated with perceived support. Design: A national, observational, open online survey was developed and disseminated via social media, public fora and professional networks (June–September 2020). Validated instruments and purposively designed questions assessed experiences. Analysis used descriptive statistics, logistic regression and thematic analysis of free-text responses. Participants: Individuals (⩾18 years) who had experienced the death of a relative/friend (all care settings) within the United Kingdome during the COVID-19 pandemic. Results: Respondents ( n = 278, mean 53.4 years) tended to be female ( n = 216, 78%); over half were ‘son/daughter’ (174, 62.6%) to the deceased. Deceased individuals (mean 81.6 years) most frequently died in their ‘usual place of care’ ( n = 192, 69.3%). Analysis established five conceptual themes affecting individualised care: (1) public health restrictions compounding the distress of ‘not knowing’; (2) disparate views about support from doctors and nurses; (3) challenges in communication and level of preparedness for the death; (4) delivery of compassionate care; (5) emotional needs and potential impact on grief. Male respondents (OR 2.9, p = 0.03) and those able to visit (OR 2.2, p = 0.04) were independently associated with good perceptions of family support. Conclusion: Despite public health restrictions, individualised care can be enabled by proactive, informative communication; recognising dying in a timely manner and facilitating the ability to be present before death.

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