scholarly journals Trust in Community-Engaged Research Partnerships: A Methodological Overview of Designing a Multisite Clinical and Translational Science Awards (CTSA) Initiative

2019 ◽  
Vol 43 (3) ◽  
pp. 180-192
Author(s):  
Mimi M. Kim ◽  
Ann Cheney ◽  
Anita Black ◽  
Roland J. Thorpe ◽  
Crystal Wiley Cene ◽  
...  

Community-engaged research (CEnR) builds on the strengths of the Clinical and Translational Science Awards (CTSA) framework to address health in underserved and minority communities. There is a paucity of studies that identify the process from which trust develops in CEnR partnerships. This study responds to the need for empirical investigation of building and maintaining trust from a multistakeholder perspective. We conducted a multi-institutional pilot study using concept mapping with to better understand how trust, a critical outcome of CEnR partnerships, can act as “social capital.” Concept mapping was used to collect data from the three stakeholder groups: community, health-care, and academic research partners across three CTSAs. Concept mapping is a mixed-methods approach that allows participants to brainstorm and identify factors that contribute to a concept and describe ways in which those factors relate to each other. This study offers important insights on developing an initial set of trust measures that can be used across CTSAs to understand differences and similarities in conceptualization of trust among key stakeholder groups, track changes in public trust in research, identify both positive and negative aspects of trust, identify characteristics that maintain trust, and inform the direction for future research.

2021 ◽  
pp. 152483992110389
Author(s):  
Adrienne Martinez-Hollingsworth ◽  
Jacqueline Hernández ◽  
Cristina Edwards ◽  
Keosha Partlow

Purpose To describe a mural-based intervention that can be implemented in partnership with community members in Latino neighborhoods in order to improve awareness of barriers to recruitment/retention of U.S. Latinos in clinical research, while augmenting researchers’ access to sensitizing concepts critical for rigorous study design. Background Latinos in the United States suffer disproportionately from several chronic illnesses but are underrepresented as researchers and participants in National Institutes of Health–funded research. This lack of representation inhibits a nuanced awareness of the health needs of U.S. Latinos and hampers efforts to address a persistent lack of health equity among U.S. Latinos and other communities of color. Art-based interventions implemented in Latino communities are increasingly being recognized for their ability to bridge this gap and positively affect the quality and quantity of research partnerships between clinical researchers and U.S. Latinos. Method This article describes a mural-based intervention piloted in two predominantly Latino neighborhoods between 2016 and 2020. The design of this method was guided by community partnered participatory research practices and involved an Assessment–Diagnosis–Planning–Implementation–Evaluation approach. Results Mural painting addressed many of the participation challenges often associated with underrepresentation of Latinos in academic research and allowed for sensitizing interviews with key community members surrounding topics of interest to the research team. Conclusion Research methods that acknowledge traditional art forms, such as mural painting, create a space for building trust and spark interest in future research participation, while augmenting researchers’ access to sensitizing concepts that may improve the cultural competence of future studies, projects, and interventions.


2019 ◽  
Vol 3 (s1) ◽  
pp. 86-87
Author(s):  
Susan J Woolford ◽  
Ayse G. Buyuktur ◽  
Patricia Piechowski ◽  
Aalap Doshi ◽  
Erica E. Marsh

OBJECTIVES/SPECIFIC AIMS: Background: The importance of engaging community in research and fostering community-academic research partnerships is increasingly acknowledged by Clinical and Translational Science Award (CTSA) institutes. However, forming and maintaining such collaborations is often hampered by numerous challenges. It is critical to investigate the barriers to effective community-academic partnerships and to develop novel approaches to overcome these barriers. Objective: To explore community and academic perspectives of the challenges faced by community-academic research partnerships and potential solutions to these identified challenges. METHODS/STUDY POPULATION: Methods: In an effort to explore creative approaches to address these issues, the Community Engagement Program at the Michigan Institute for Clinical & Health Research (MICHR), the CTSA site that serves Michigan, hosted a retreat to elicit the input of community members and academics from across the state. There was a mix of participants ranging from those with established community-academic partnerships to others who were new to community-engaged research and in early stages of forming partnerships. At the retreat, attendees were randomly divided into groups and asked to answer the specific question, “What are your barriers to partnering in research?” After each group identified a set of barriers and reported their findings to the entire room, attendees were asked to work again in their small groups to discuss potential solutions to these barriers. Ideas for solutions were also shared with the entire room. As part of the process of brainstorming about these questions, attendees were asked to document their ideas --- for both barriers and solutions --- on post-it notes which were then grouped by category. Artifacts from the retreat were saved digitally and transcripts made from these records. The findings were then analyzed to identify common themes. RESULTS/ANTICIPATED RESULTS: Results: Eighty-six participants attended the retreat from across the state of Michigan. Forty-three represented community organizations that focus on addressing a wide array of social determinants of health issues. The remaining forty-three participants represented various academic institutions. The most frequently mentioned challenges to community-academic partnerships were related to communication and relationship building. To overcome barriers in these areas, participants noted that it is critical to collaboratively and explicitly identify shared goals, values and norms in the early stages of partnership development. This was closely linked to the need for additional funding to help foster and strengthen relationships by allowing partners to spend time together to both work and socialize informally, preferably in face-to-face settings. These were deemed crucial for building trust and common ground. In addition, more equitable funding and role distribution --- including shared leadership and governance of research projects between community and academia--- that recognizes and supports the true costs of involvement in research for community members was viewed as important. Other frequently noted issues on the part of community members were the need for greater respect for community partners and for more training opportunities to build capacity within communities to participate in research. Participants from academic institutions emphasized that the current requirements and timeline for promotion in academia make it harder for them to participate in community-engaged research, especially as early career researchers. They maintained that wider recognition of the value of community-engaged research is necessary and that this requires the support of home departments. Finally, participants underscored the importance of building infrastructure to better connect potential partners from the community and academia by making it easier to identify common interests and reciprocal strengths. DISCUSSION/SIGNIFICANCE OF IMPACT: Conclusion: The problems faced by community-academic partnerships may be alleviated by working with community and academic members to identify potential solutions. Further work is needed to systematically examine barriers and the efficacy of solutions to enhance community-academic partnerships. Acknowledgements: We thank all attendees of the MICHR Community Engagement retreat for their participation in this activity that explored barriers to effective community-academic partnerships. Their honest and frank feedback was essential to broaching sensitive topics related to partnership development, and to identify realistic and practical solutions. We also thank all members of the planning committee and our colleagues in the Community Engagement Program for their work on bringing together community and academic members for this retreat. This project was supported by grant number UL1TR002240 from the National Center for Advancing Translational Sciences (NCATS).


Author(s):  
Robin Lindquist-Grantz ◽  
Lisa M Vaughn

Research partnerships between community members and academics are dynamic microsystems that aim to increase community wellbeing within complex environments. Efforts to improve health and social outcomes in communities are challenging in their own right, but even the most experienced researchers or engaged community members can have difficulty navigating the collaborative terrain of community-academic research partnerships. Proponents of participatory research models that engage community members as co-researchers are still examining how the collaborative process interacts with, and impacts, both short- and long-term outcomes. As a result, there has been a call for additional studies that employ qualitative and quantitative methods to contribute to a holistic understanding of this approach to research. This pilot study utilized the participatory tenets of co-researcher models to explore how members of community-academic research partnerships think about partnership processes and outcomes, including how they delineate between the two. Web-based concept mapping methodology was combined with individual interviews in an innovative mixed methods research study to further the field’s understanding of how community and academic members define partnership success and evaluate the impact of their work. Our findings suggest that in the early stages of a partnership members rely on informal and intuitive evaluation of success based on how the partnership is functioning. These partnership processes, which serve as intermediate outcomes, largely influence member engagement in the work, but partnerships are ultimately deemed successful if intended community-based research outcomes are achieved.Keywords: community-academic research partnerships, participatory research, concept mapping methodology, mixed methods, partnership process, outcomes   


2018 ◽  
Vol 66 ◽  
pp. 70-78 ◽  
Author(s):  
Gaurav Dave ◽  
Leah Frerichs ◽  
Jennifer Jones ◽  
Mimi Kim ◽  
Jennifer Schaal ◽  
...  

2020 ◽  
pp. 073346481989864 ◽  
Author(s):  
Britteny M. Howell ◽  
Mariah Seater ◽  
Daniel McLinden

This exploratory research project captured a multidimensional model of healthy aging in Anchorage, Alaska, by utilizing the Concept Mapping (CM) methodology with a sample of 53 older adults (aged 55+), aging advocates, public health professionals, and senior service providers. Multidimensional scaling and cluster analyses were conducted to map the relationship between 100 aspects of healthy aging, resulting in 12 distinct concepts of healthy aging. Study participants identified both lifestyle factors and aspects of their environment, providing results that can inform future research and policy development. The perspectives of older adults are scarce in the literature, but how they conceptualize the factors that contribute to healthy aging can have profound influence on behaviors and health outcomes. In addition, CM is a little-used methodology in gerontology that fosters community capacity building, meaningful contributions, and trusting research partnerships. We also provide recommendations for using these methods with older adults.


2016 ◽  
Vol 44 (1) ◽  
pp. 182-191 ◽  
Author(s):  
Leah Frerichs ◽  
Mimi Kim ◽  
Gaurav Dave ◽  
Ann Cheney ◽  
Kristen Hassmiller Lich ◽  
...  

Community–academic research partnerships aim to build stakeholder trust in order to improve the reach and translation of health research, but there is limited empirical research regarding effective ways to build trust. This multisite study was launched to identify similarities and differences among stakeholders’ perspectives of antecedents to trust in research partnerships. In 2013-2014, we conducted a mixed-methods concept mapping study with participants from three major stakeholder groups who identified and rated the importance of different antecedents of trust on a 5-point Likert-type scale. Study participants were community members ( n = 66), health care providers ( n = 38), and academic researchers ( n = 44). All stakeholder groups rated “authentic communication” and “reciprocal relationships” the highest in importance. Community members rated “communication/methodology to resolve problems” ( M = 4.23, SD = 0.58) significantly higher than academic researchers ( M = 3.87, SD = 0.67) and health care providers ( M = 3.89, SD = 0.62; p < .01) and had different perspectives regarding the importance of issues related to “sustainability.” The importance of communication and relationships across stakeholders indicates the importance of colearning processes that involve the exchange of knowledge and skills. The differences uncovered suggest specific areas where attention and skill building may be needed to improve trust within partnerships. More research on how partnerships can improve communication specific to problem solving and sustainability is merited.


2007 ◽  
Vol 25 (1) ◽  
pp. 317-337 ◽  
Author(s):  
Janna Lesser ◽  
Manuel Angel Oscós-Sánchez

Community-academic research partnerships have evolved as a multidisciplinary approach to involve those communities experiencing health disparities in the development, implementation, and evaluation of health interventions. Community-academic partnerships are intended to bring together academic researchers and communities to share power, establish trust, foster colearning, enhance strengths and resources, build community capacity, and address community-identified needs and health problems. The purpose of this chapter is to review the current state of community-academic research partnerships in the United States and Canada. We discuss contextual issues; present a review of the current literature; identify the major strengths, challenges, and lessons learned that have emerged during the course of these research collaborations; and explore implications for future research and policy.


2016 ◽  
Vol 30 (2) ◽  
pp. 255-275 ◽  
Author(s):  
Jean Bédard ◽  
Paul Coram ◽  
Reza Espahbodi ◽  
Theodore J. Mock

SYNOPSIS The Public Company Accounting Oversight Board (PCAOB), the International Auditing and Assurance Standards Board (IAASB), and the U.K. Financial Reporting Council (FRC) have proposed or approved standards that significantly change the independent auditor's report. These initiatives require the auditor to make additional disclosures intended to close the information gap; that is, the gap between the information users desire and the information available through the audited financial statements, other corporate disclosures, and the auditor's report. They are also intended to improve the relevancy of the auditor's report. We augment prior academic research by providing standard setters with an updated synthesis of relevant research. More importantly, we provide an assessment of whether the changes are likely to close the information gap, which is important to financial market participants and other stakeholders in the audit reporting process. Also, we identify areas where there seems to be a lack of sufficient research. These results are of interest to all stakeholders in the audit reporting process, as the changes to the auditor's report are fundamental. Additionally, our summaries of research on the auditor's report highlight where there is limited research or inconsistent results, which will help academics identify important opportunities for future research.


Author(s):  
Takeuchi Ayano

AbstractPublic participation has become increasingly necessary to connect a wide range of knowledge and various values to agenda setting, decision-making and policymaking. In this context, deliberative democratic concepts, especially “mini-publics,” are gaining attention. Generally, mini-publics are conducted with randomly selected lay citizens who provide sufficient information to deliberate on issues and form final recommendations. Evaluations are conducted by practitioner researchers and independent researchers, but the results are not standardized. In this study, a systematic review of existing research regarding practices and outcomes of mini-publics was conducted. To analyze 29 papers, the evaluation methodologies were divided into 4 categories of a matrix between the evaluator and evaluated data. The evaluated cases mainly focused on the following two points: (1) how to maintain deliberation quality, and (2) the feasibility of mini-publics. To create a new path to the political decision-making process through mini-publics, it must be demonstrated that mini-publics can contribute to the decision-making process and good-quality deliberations are of concern to policy-makers and experts. Mini-publics are feasible if they can contribute to the political decision-making process and practitioners can evaluate and understand the advantages of mini-publics for each case. For future research, it is important to combine practical case studies and academic research, because few studies have been evaluated by independent researchers.


Author(s):  
Livio Cricelli ◽  
Michele Grimaldi ◽  
Silvia Vermicelli

AbstractIn recent years, Open Innovation (OI) and crowdsourcing have been very popular topics in the innovation management literature, attracting significant interest and attention, and inspiring a rich production of publications. Although these two topics share common themes and address similar managerial challenges, to the best of our knowledge, there is no systematic literature review that digs deep into the intersection of both fields. To fill in this gap a joint review of crowdsourcing and OI topics is both timely and of interest. Therefore, the main objective of this study is to carry out a comprehensive, systematic, and objective review of academic research to help shed light on the relationship between OI and crowdsourcing. For this purpose, we reviewed the literature published on these two topics between 2008 and 2019, applying two bibliometric techniques, co-citation and co-word analysis. We obtained the following results: (i) we provide a qualitative analysis of the emerging and trending themes, (ii) we discuss a characterization of the intersection between OI and crowdsourcing, identifying four dimensions (strategic, managerial, behavioral, and technological), (iii) we present a schematic reconceptualization of the thematic clusters, proposing an integrated view. We conclude by suggesting promising opportunities for future research.


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