Patient Participation in Decision Making at the End of Life as Seen by a Close Relative

2000 ◽  
Vol 7 (4) ◽  
pp. 296-313 ◽  
Author(s):  
Eva Sahlberg-Blom ◽  
Britt-Marie Ternestedt ◽  
Jan-Erik Johansson

The aim of the present study was to describe variations in patient participation in decisions about care planning during the final phase of life for a group of gravely ill patients, and how the different actors’ manner of acting promotes or impedes patient participation. Thirty-seven qualitative research interviews were conducted with relatives of the patients. The patients’ participation in the decisions could be categorized into four variations: self-determination, co-determination, delegation and nonparticipation. The manner in which patients, relatives and caregivers acted differed in the respective variations; this seemed either to promote or to impede the patients’ opportunities of participating in the decision making. The possibility for participation seems to be context dependent and affected by many factors such as the dying patient’s personality, the social network, the availability of different forms of care, cultural values, and the extent to which nurses and other caregivers of the different forms of care can and want to support the wishes of the patients and relatives in the decision-making process.

Author(s):  
Widian Nicola

Self-determination is a pathway by which individuals can safeguard as well as define their sense of safety. However, when an individual’s sense of safety is placed at risk, particularly within the context of community, safety can become illusive. Due to safety’s subjective nature, social workers and healthcare providers are invited to examine closely the roles they play to uphold a client’s self-determination, as well as manage risk as instruments of the healthcare programmes we represent, within the context of community and amid our clients’ challenging and oftentimes complex life circumstances. These ethical junctures offer practitioners an opportunity to examine how personal and collective ethical decisions are made, particularly through the lens of the ethics of care, which aims to place relationality at the forefront of the decision-making process. This clinical ethnographic narrative examines several ethical junctures I faced as the social worker to an elderly client diagnosed with schizophrenia.


2016 ◽  
Vol 3 (1) ◽  
pp. 37
Author(s):  
Mundi Rahayu

This paper explores the image of women in Chinua Achebe novel’s Things Fall Apart. As the prominent postcolonial writer, Achebe has a vivid expression describing the social cultural values of the Ibo community in Nigeria, Africa. Analysis of the novel is done through the perspective of postcolonial feminism. Postcolonial feminism finds the relation and intersection between Postcolonialism and feminism. This interplay is interesting to observe. The findings show that in traditional patriarchal culture as in the novel, women are portrayed happy, harmonious members of the community, even when they are repeatedly beaten and barren from any say in the communal decision-making process and constantly reviled in sayings and proverbs. However some other interesting findings are that the women also have big role in the belief system of the community, and in Achebe’s novel he made it an amusement, for example by punishing Okonkwo because of his beating to his wife in the sacred time. Keywords: Postcolonial Feminism;  Traditional Patriarchal Culture;  Community 


2016 ◽  
Vol 3 (1) ◽  
Author(s):  
Mundi Rahayu

This paper explores the image of women in Chinua Achebe novel’s Things Fall Apart. As the prominent postcolonial writer, Achebe has a vivid expression describing the social cultural values of the Ibo community in Nigeria, Africa. Analysis of the novel is done through the perspective of postcolonial feminism. Postcolonial feminism finds the relation and intersection between Postcolonialism and feminism. This interplay is interesting to observe. The findings show that in traditional patriarchal culture as in the novel, women are portrayed happy, harmonious members of the community, even when they are repeatedly beaten and barren from any say in the communal decision-making process and constantly reviled in sayings and proverbs. However some other interesting findings are that the women also have big role in the belief system of the community, and in Achebe’s novel he made it an amusement, for example by punishing Okonkwo because of his beating to his wife in the sacred time.  


1970 ◽  
pp. 53-57
Author(s):  
Azza Charara Baydoun

Women today are considered to be outside the political and administrative power structures and their participation in the decision-making process is non-existent. As far as their participation in the political life is concerned they are still on the margins. The existence of patriarchal society in Lebanon as well as the absence of governmental policies and procedures that aim at helping women and enhancing their political participation has made it very difficult for women to be accepted as leaders and to be granted votes in elections (UNIFEM, 2002).This above quote is taken from a report that was prepared to assess the progress made regarding the status of Lebanese women both on the social and governmental levels in light of the Beijing Platform for Action – the name given to the provisions of the Fourth Conference on Women held in Beijing in 1995. The above quote describes the slow progress achieved by Lebanese women in view of the ambitious goal that requires that the proportion of women occupying administrative or political positions in Lebanon should reach 30 percent of thetotal by the year 2005!


2012 ◽  
Vol 2012 (1) ◽  
pp. 163-192
Author(s):  
Sonja Rinofner-Kreidl

Autonomy is associated with intellectual self-preservation and self-determination. Shame, on the contrary, bears a loss of approval, self-esteem and control. Being afflicted with shame, we suffer from social dependencies that by no means have been freely chosen. Moreover, undergoing various experiences of shame, our power of reflection turns out to be severly limited owing to emotional embarrassment. In both ways, shame seems to be bound to heteronomy. This situation strongly calls for conceptual clarification. For this purpose, we introduce a threestage model of self-determination which comprises i) autonomy as capability of decision-making relating to given sets of choices, ii) self-commitment in terms of setting and harmonizing goals, and iii) self-realization in compliance with some range of persistently approved goals. Accordingly, the presuppositions and distinctive marks of shame-experiences are made explicit. Within this framework, we explore the intricate relation between autonomy and shame by focusing on two questions: on what conditions could conventional behavior be considered as self-determined? How should one characterize the varying roles of actors that are involved in typical cases of shame-experiences? In this connection, we advance the thesis that the social dynamics of shame turns into ambiguous positions relating to motivation, intentional content,and actors’ roles.


1981 ◽  
Vol 14 (2) ◽  
pp. 309-335 ◽  
Author(s):  
Micheline Plasse

This article first presents a brief survey of the role and functions filled by the personal aide (chef de cabinet) of a minister in Quebec. The analysis continues, in a comparative perspective, by tracing a sociological and professional portrait of the Liberal“chefs de cabinet” in April 1976 and their successors in the pequiste government in July 1977.We then test the hypothesis that the cleavage between the government and the dominant economic forces has increased since November 15, 1976 as a result of the ideology articulated by the“chefs de cabinet” regarding the social and economic aims of the state. This hypothesis was confirmed.The hypothesis that the pequiste“chefs de cabinet” exercise a more pronounced influence on the decision-making process is also confirmed. Nevertheless, one cannot argue that the pequiste“chefs de cabinet” usurped the power of the legislators; their influence is more political than technocratic. The growing influence of the pequiste“chefs de cabinet” neverthelsss helps to accentuate the tensions and conflicts between the higher civil service and the ministerial aides.


Author(s):  
Mykhailo Mozhaiev ◽  
Pavlo Buslov

The results of the development of an information model for the personality’s social portrait formation are presented. The modelling has been carried out using OSINT technology that is the technology of legal obtaining and using open source information. In the result of the analysis, it has been found out that the social portrait is a heterogeneous semantic network consisting of personalized data. It has been defined that people organize formal and official communities of various orientations and the number of such communities associated with a particular person is practically unlimited. When formalizing the decision-making process, the concept of a group social portrait (GSP) has been introduced, which takes into account the community’s social tendencies united by certain common properties, group members' interpersonal interactions and their behavioural patterns. The obtained information models of personal and group social portraits let to take into account all the main properties of the objects under study, their tonality and significance, as well as to conduct an analysis of the implicit dependencies determination. The next step is to move on to considering the diversity of the digital social environment elements.


2020 ◽  
Vol 13 (2) ◽  
pp. 1-7
Author(s):  
Nuraini Arifianti ◽  
Nunuk Adiarni

The social media is currently not only used for social friendship but also for business purpose.The people use line, whatshapp, instagram and facebook. Related to business goals, the content is made possible by availability of the applications to convey marketing messages to customers. This requires creative message and content creators, which work in team with decision maker and administrator. However, it’s need  to continuously manage it. This study was aimed to find out how the management of social media in XYZ businesses using descriptive qualitative. Instagram management implemented by XYZ starts from setting target customers to the content evaluation process. However, it has not comprehensively been managed unless it responds to negative comments from followers. The results of the study prove that using the social media such as Instagram in marketing requires management by planning, organizing and decision making process for creative content and followed by an evaluation and handling follower responses.


INFORMASI ◽  
2016 ◽  
Vol 46 (1) ◽  
pp. 49
Author(s):  
Rebekka Rismayanti

In an organization, decision making is anessential factor to achieve its goals. The decision-making process is a process of selecting the best alternative from many alternatives that systematically chosen as a way to resolve the problem. The decision is seen as a “choice between the alternatives” as well as a form of communication that fulfills the social expectations of the organization’s members. So the goal setting, onflow of information as well as individual’s values within the group affect the decisions made by the group itself. Then, the leadership-participation style in decision-making is the most important factor for creating the mutual understanding between both parties related to the decision.Dalam sebuah organisasi, pengambilan keputusan merupakan faktor penting untuk mencapai tujuannya. Proses pengambilan keputusan adalah proses pemilihan alternatif terbaik dari berbagai alternatif yang secara sistematis dipilih sebagai cara untuk menyelesaikan masalah. Keputusan ini dipandang sebagai “pilihan antara alternatif” serta bentuk komunikasi yang memenuhi harapan sosial dari anggota organisasi. Jadi penetapan tujuan, aliran informasi serta nilai-nilai individu dalam kelompok mempengaruhi keputusan yang dibuat oleh kelompok itu sendiri. Kemudiangaya kepemimpinan-partisipasi dalam pengambilan keputusan adalah faktor yang paling penting untuk menciptakan saling pengertian antara kedua belah pihak yang terkait dengan keputusan tersebut.


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