scholarly journals “When I hear my language, I travel back in time and I feel at home”: Intersections of culture with social inclusion and exclusion of persons with dementia and their caregivers

2021 ◽  
pp. 136346152110017
Author(s):  
Rossio Motta-Ochoa ◽  
Paola Bresba ◽  
Jason Da Silva Castanheira ◽  
Chelsey Lai Kwan ◽  
Shaindl Shaffer ◽  
...  

Individuals with dementia and their carers often experience a rupture of relationships that co-occurs with declining functional and cognitive abilities, leading to their increased social exclusion in both intimate relationships and community settings. While initiatives have been developed to support meaningful interaction and participation in society, they have broadly ignored the significance of how cultural factors influence experiences of inclusion/exclusion of these individuals. An ethnographic study was conducted by an interdisciplinary research team between April 2018 and January 2019 to explore the intersections of culture and social inclusion/exclusion in a culturally diverse group of persons with dementia, caregivers and staff members of a non-profit organization located in a multicultural neighborhood of a bilingual Canadian city. The participants’ culture was inextricably linked to their experiences in three overarching themes of social inclusion/exclusion: transformation of the person with dementia and the caregiver; participation in social networks and meaningful relations; and styles of care provision in health and social services. Cultural mandates that prescribe practices of intergenerational care shape the way certain caregivers perceive their role and mitigated experiences of exclusion. Culturally specific notions and views associated with dementia prevalent in certain communities increased experiences of inclusion or exclusion. Engagement with the cultural elements of individuals with dementia was shown to be an effective and underexplored tool for fostering inclusion. The results of this study highlight the value of the ethnographic methods for incorporating the perspective of persons with dementia in research.

2021 ◽  
Vol 13 (15) ◽  
pp. 8608
Author(s):  
Antonio Baselice ◽  
Maurizio Prosperi ◽  
Antonio Lopolito

Agriculture can be a possible provider of social services of relevant importance for the whole society. In order to generate a valuable social service, a multi-actor approach is often applied, based on an active collaboration among public institutions, non-profit organizations, and private firms, and capable of generating multiple positive impacts. This new approach may both favorite agricultural diversification and enhance the quality of life of rural communities. However, in order to enable policymakers in motivating the public support to these types of initiatives, an evaluation method capable of disentangling the multiple benefits generated by social agricultural projects is required. In this paper, we adapted the evaluation method previously developed by the SIMRA consortium for Social Innovation initiatives, to a project aimed at the employability of NEETs in the south of Italy. A selection grid, framed by cross-referencing the national policy objectives of social agriculture and the criteria of eligibility adopted in public calls is proposed, to choose the suitable indicators for the evaluation. The evaluation experience allowed the measurement of 34 indicators of performance. The results prove that 12 indicators are positive, while 12 are moderate, and 10 are low and are mainly related to the enhancement of social inclusion. The evaluation exercise may be useful to disentangling the multiple outcomes generated by initiatives based on social innovation, which are highly based on intangible assets, and exert a positive effect on the internal cohesion and the engagement of the civil society.


2007 ◽  
Vol 3 (1) ◽  
Author(s):  
Prof. Vanda Rideout ◽  
Dr. Andrew Reddick ◽  
Dr. Susan O'Donnell ◽  
Dr. William McIver, Jr. ◽  
Sandy Kitchen ◽  
...  

The aim of the Community Intermediaries Research Project (CIRP) was to investigate the social challenges and needs addressed by Canadian non-profit community-based organizations, the social and community contexts in which they operate, and the information and services they provide to citizens. These organizations are “community intermediaries” because they act as links between the various levels of government (federal, provincial, and municipal) and citizens, providing social services and information to their clients and communities.The CIRP research team used a case-study, mixed methods approach. In-depth case studies of four types of community organizations in different parts of Canada were performed. These employed: onsite observations; in-depth interviews with managerial and staff members; focus group discussions with staff (paid staff and volunteers) and with clients; and self-directed surveys with the organization’s staff, volunteers and clients. Quantitative analysis produced in-depth community profiles using secondary Statistics Canada census data. Data were also  gathered from the various forms of content generated by the organizations to deliver the services and information they provide to their respective clients (web pages, pamphlets, newsletters, etc.).This is an invited re-publication of the CIRP final report .


2009 ◽  
pp. 73-87
Author(s):  
Flavia Franzoni

- A vast and complex legislation for disabled and disadvantaged people regulates the work inclusion of psychiatric patients. However, the implementation of this legislation - particularly in the case of mentally distressed persons - is difficult to enforce, for inclusion requires continuity and collaboration, comprising: different local mental health and social services, the non-profit sector, and the companies that take on the new "social responsibility" of integrating disabled persons. Community networks are valuable resources for implementing work and social inclusion. The author explores ways of collaboration between all stakeholders in order to strengthen social and work integration processes, based on a common culture of social inclusion.Key Words: service network, targeted employment, employability, social and educational inclusion, corporate social responsibility, competent community.Parole Chiave: rete dei servizi, collocamento mirato, occupabilitŕ, integrazione socio-sanitaria ed educativa, responsabilitŕ sociale di impresa, comunitŕ competente.


2018 ◽  
Vol 52 (1) ◽  
pp. 70-84
Author(s):  
Zdenka Šándorová

Abstract The theme of the paper is very topical in global and European context. It brings theoretical information on the concept of asocial model of early care in the Czech Republic and practical case studies and final reports related to the early care provision which demonstrate tangible activities within the system of the complex support and assistance to children with disability and their families. The author applies the theoretical-practical approach as she is of the opinion that „the practice without theory is as a blind person on the road and the theory without practice is as a cart without an axle”. The aim of the paper is to extend theoretical information on the topic in the Czech Republic by individual examples of final reports related to the provision of social prevention of the early care in the Czech Republic. The overall aim of the paper is to justify topicality and eligibility of early care in its broad reference framework, including its practical impact. The theoretical basis of the paper is elaborated with respect to the analysis and comparison of Czech and foreign literature, legislation, methodology document and other relevant written resources. The practical level is elaborated with respect to 3 cases and final reports of the provider of an early care of the social prevention. The early care in the Czech Republic represents a professional, modern and recognized system in European and global comparison and is legally anchored in the Act 108/2006 Coll. on social services. It aims on the minimization of child´s disability impact upon child´s development, especially the social inclusion of a child and a family and their capability to cope with limitating disability in natural environ, i.e. by the preservation of standard way of life. It represents a multi-dimensional model, overcoming limitation of sectoral division of the early care and facilitating complex assistance from a series of subject fields at the same time. Services for families with an endangered child in early age are the background for social, educational and pedagogical inclusion of a child and the re-socialisation and re-inclusion of a family. Early care is considered preventive, from the point of the prevention of the second disability (i.e. is effective), in the prevention of institutionalized and asylum care (i.e. is economical), in the prevention of segregation (i.e. is ethical).


2015 ◽  
Vol 1 (1) ◽  
Author(s):  
Abdul Azeez. E.P

Social Capital is the most crucial asset which significantly influence the efficacy and resilience of any community. Social capital is a dependent variable that depends upon the competence and coherence of the individuals in the community and mode of social relationships, trust and networks they maintain. It is one of the most sustainable social resources that originate from human relations and results on the mutual support of people. Utilization of Social capital has a wide applicability in the process of social inclusion, especially in dealing with the vulnerable and disadvantaged sections in the community itself. Voluntary organizations are very keen to utilize the social capital for community/social services and community development in a sustainable manner. Community based de-institutionalized Palliative Care is one of the foremost among such organizations that made social capital in a strategic way for social inclusion and community well being. This paper analyses the extent to which different elements of social capital helps in initiating the sustainable community based palliative care movement by assessing the unique intervention strategies carried out by the palliative care. This paper explores conceptual questions of how social capital and voluntary community based services are correlated. A case study method was adopted for the study in which ten palliative care units were analyzed. The results show that a number of social capital elements are playing a vital role in the sustainability of community palliative care movement in Kerala.


Author(s):  
Giménez‐Bertomeu ◽  
Domenech‐López ◽  
Mateo‐Pérez ◽  
de‐Alfonseti‐Hartmann

This study examines the social exclusion characteristics of a sample of users of primary care social services in two local entities in Spain. The objective of this study was to identify the intensity and scope of social exclusion in an exploratory way and to look at the typology of existing exclusionary situations to inform policy making and professional practice. Data from 1009 users were collected by primary care social services professionals, completing the Social Exclusion Scale of the University of Alicante (SES-UA). The dimensions with the greatest levels of social exclusion in the study population were those related to work/employment, income and education and training. The dimensions with an intermediate level of exclusion were those related to housing and social isolation. Social acceptance, family and social conflict and health were the dimensions with the lowest levels of exclusion. The analysis also showed the existence of five significantly different groups, that showed five different life trajectories along the continuum between social exclusion and social inclusion. The results show the importance and utility of developing professional and policy intervention protocols based on research evidence, with the objective of improving the quality of life of the users.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 182-183
Author(s):  
James Faraday ◽  
Clare Abley ◽  
Catherine Exley ◽  
Joanne Patterson

Abstract More and more people with dementia are living in nursing homes (NH). Often, they depend on NH staff for help with eating and drinking. It is important that staff have the skills and support they need to provide good care at mealtimes. This qualitative study explores mealtime care for people with dementia, from the perspective of NH staff. Semi-structured interviews with NH staff (n=16) were carried out in two nursing homes. The homes were chosen to have diverse characteristics: one home had a large number of beds and was part of a small local organization; the other had a small number of beds and was part of a large national organization. Various staff members were interviewed, including direct care staff, senior carers, nurses, managers, and kitchen staff. Interviews were audio-recorded and transcribed verbatim. A constant comparison approach was taken, so that data from early interviews were explored in more depth subsequently. From the analysis, five themes emerged as important in mealtime care for people with dementia living in nursing homes: Setting the right tone; Working well as a team; Knowing the residents; Promoting autonomy and independence; Gently persevering. This work forms part of a larger ethnographic study on the topic, which includes data from residents with dementia, and family carers. Results will inform the development of a staff training intervention to optimize mealtime care for this population.


Dementia ◽  
2016 ◽  
Vol 16 (1) ◽  
pp. 67-78 ◽  
Author(s):  
Kesstan Blandin ◽  
Renee Pepin

Previous literature reveals a high prevalence of grief in dementia caregivers before physical death of the person with dementia that is associated with stress, burden, and depression. To date, theoretical models and therapeutic interventions with grief in caregivers have not adequately considered the grief process, but instead have focused on grief as a symptom that manifests within the process of caregiving. The Dementia Grief Model explicates the unique process of pre-death grief in dementia caregivers. In this paper we introduce the Dementia Grief Model, describe the unique characteristics of dementia grief, and present the psychological states associated with the process of dementia grief. The model explicates an iterative grief process involving three states— separation, liminality, and re-emergence—each with a dynamic mechanism that facilitates or hinders movement through the dementia grief process. Finally, we offer potential applied research questions informed by the model.


BMJ Open ◽  
2019 ◽  
Vol 9 (7) ◽  
pp. e027590 ◽  
Author(s):  
Ann Hägg-Martinell ◽  
Håkan Hult ◽  
Peter Henriksson ◽  
Anna Kiessling

ObjectivesAlmost all healthcare today is team-based in collaboration over professional borders, and numerous students have work-based learning in such contexts. However, interprofessional learning (IPL) in clinical settings has mostly been systematically explored in specially designed contexts dedicated to interprofessional education (IPE). This study aimed to explore the possibilities for IPL activities, and if or how they occur, in an acute ward context not dedicated to IPE.Design and settingBetween 2011 and 2013 ethnographic observations were performed of medical and nursing students’ interactions and IPL during early clerkship at an acute internal medicine ward in Sweden. Field notes were taken and analysed based on the framework of IPE:learning with, from and about.Participants21 medical, 4 nursing students and 30 supervisors participated.ResultsLearning with—there were no organised IPE activities. Instead, medical and nursing students learnt in parallel. However, students interacted with staff members from other professions.Learning from—interprofessional supervision was frequent. Interprofessional supervision of nursing students by doctors focused on theoretical questions and answers, while interprofessional supervision of medical students by nurses focused on the performance of technical skills.Learning about—students were observed to actively observe interactions between staff and learnt how staff conducted different tasks.ConclusionThis study shows that there were plenty of possibilities for IPL activities, but the potential was not fully utilised or facilitated. Serendipitous IPL activities differed between observed medical and nursing students. Although interprofessional supervision was fairly frequent, students were not learning with, from or about each other over professional borders.


2020 ◽  
Vol 3 (3) ◽  
pp. 13-34
Author(s):  
Daria A. Omelchenko ◽  
Svetlana G. Maximova ◽  
Oksana E. Noyanzina

Contemporary Russian social policy is marked by intensive development of state-public partnership as an important instrument for identifying and responding to social issues, improving quality of social services, protecting rights and freedoms of the Russian citizens. Shouldering some of the state functions on the provision of social services, organization of socially significant events and activities, NPOs are often more efficient and effective, they react faster on social needs and provide population with opportunities to participate in resolution of their problems and change their lives for the better way. The analysis of dynamic characteristics of civil society, fulfilled by the authors on the base of expert evaluations in the three border regions of the Siberian federal district (the Altai region, the Novosibirsk oblast, the Republic of Altai, n = 180), allowed to reveal their structure and relationships with peculiarities of the functioning and interaction with other NPOs and governmental bodies at different levels. Our findings suggest that processes in civil society are strongly interconnected, and that the assessment of their actual state and dynamics is very subjective, affected by professional experience and peculiarities of expert organization.


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