Routine use of the Bath Adolescent Pain Questionnaire in a paediatric pain clinic

2020 ◽  
pp. 204946372092706
Author(s):  
John M Goddard ◽  
Jane Robinson ◽  
Rachel Hiscock
Keyword(s):  
Administrative Support ◽  
Self Report ◽  
Pain Clinic ◽  
Initial Assessment ◽  
Pain Questionnaire ◽  
Study Planning ◽  
Significant Difference ◽  
A Prospective Study ◽  
Multiple Domains ◽  
The Impact

Introduction: Assessment of outcomes from health interventions are of increasing importance, primarily to identify effective and safe treatment, but also to justify funding decisions. The Bath Adolescent Pain Questionnaire (BAPQ) is a self-report questionnaire, validated in 11–18 year olds, assessing the impact of pain in multiple domains of adolescent life. The similarly validated Bath Adolescent Pain Questionnaire for Parents (BAPQ-P) uses the same domains as the BAPQ, assessing the functioning and development of the adolescent from the parents’ perspective. Methods: We conducted a prospective study, planning to routinely collect BAPQ/BAPQ-P data at initial assessment and 6 months later. All patients aged between 5 and 19 attending our chronic pain clinic for the first time between December 2009 and December 2014 were mailed BAPQ and BAPQ-P questionnaires before the first appointment and 6 months after the first appointment. Results: In total, 376 of 386 families returned questionnaires at time 0 and 96 after 6 months, 26% of those responded at time 0. We found statistically significant differences on patients’ BAPQ questionnaires from 0 to 6 months showing improvement in all domains. A different result was found on parents’ questionnaires where we only found a statistically significant difference on daily and emotional functioning. When comparing patient and parent questionnaires at 0 and 6 months, we found statistically significant differences between patients’ and parents’ questionnaires in the daily functioning and development domains. Conclusion: We believe BAPQ and BAPQ-P measurement proved useful tools to assess response to pain management input in adolescents over a 6-month period. Our experience and results suggest that these tools can, with appropriate administrative support, be used in routine clinical practice to assess patient outcomes. We also believe that BAPQ and BAPQ-P measurements have a utility to audit pain clinic activity and potentially a use in demonstrating beneficial outcomes to commissioners.

scholarly journals Psychoeducation as a strategy to improve family support perceived from patient with alcohol dependence and personality disorder

2012 ◽  
Vol 5 (1) ◽  
pp. 18-24
Author(s):  
José Miguel Martínez González ◽  
Natalia Albein Urios ◽  
Pilar Munera ◽  
Antonio Verdejo García
Keyword(s):  
Group Therapy ◽  
Alcohol Dependence ◽  
Personality Disorders ◽  
Relapse Prevention ◽  
Behavioral Therapy ◽  
Individual Therapy ◽  
Psychoeducational Intervention ◽  
Self Report ◽  
Significant Difference ◽  
The Impact

The aim of this study was to prospectively analyze the impact of psychoeducation with relatives of addicted patients with personality disorders. We measured the impact of the psychoeducational intervention using a self-report questionnaire designed to assess perceived familiar support. The sample was composed by 37 patients with alcohol dependence following outpatient treatment. They underwent a cognitive-behavioral therapy relapse prevention program especially tailored for addicted individuals with comorbid personality disorders. 56.8% of patients followed individual therapy, and 43.2% followed group therapy. The relatives of the subgroup patients following group therapy simultaneously received the psychoeducational intervention. The analyses of the familiar support questionnaire across treatment showed a significant difference between groups as a function of treatment modality. Patients whose relatives followed the psychoeducational intervention had greater perception of familiar support throughout the treatment process.

Impact of diabetes on caregiver stress in patients with Alzheimer's disease: data from the ICTUS study

2018 ◽  
Vol 30 (8) ◽  
pp. 1109-1117 ◽  
Author(s):  
Jun Li ◽  
Matteo Cesari ◽  
Natalia Del Campo ◽  
Sandrine Andrieu ◽  
Birong Dong ◽  
...  
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Self Report ◽  
Personal Life ◽  
Diabetic Patients ◽  
Psychological Burden ◽  
Factorial Model ◽  
The Social ◽  
Significant Difference ◽  
The Impact

ABSTRACTBackground:To estimate the impact of comorbid diabetes on caregiver stress in Alzheimer's disease (AD) patients from the Impact of Cholinergic Treatment Use (ICTUS) study.Methods:Using the Data from the ICTUS study, diabetes mellitus (DM) was recorded at baseline and caregiver burden was assessed twice per year using the Zarit Burden Interview (ZBI) scale. The three-factorial model of ZBI (the effect on the social and personal life of caregivers, the psychological burden and the feelings of guilt) was adopted. Linear mixed models were used to examine the relation between DM and the scores of ZBI.Results:The present analyses were conducted on 1,264 AD subjects. A total of 156 patients (12.3%) had DM with taking antidiabetic medication and/or self-report of a history. At baseline, the caregivers of patients with or without DM had similar ZBI global scores and similar scores of three different factors of ZBI. Unadjusted and adjusted models both indicated that ZBI global score increased over a 24-month follow-up without significant effect of DM. Similarly, unadjusted model showed that DM was not determining any significant difference in the score of any factor. However, adjusted model indicated that in diabetic patients, the scores of the social and personal life of caregivers and the psychological burden increased more slowly than those in non-diabetic patients (p = 0.04 and 0.01, respectively).Conclusions:DM may affect the caregivers’ daily social and personal life and psychological burden in AD patients. It is necessary for further research.

scholarly journals A usability and feasibility study of a computerized version of the Bath Adolescent Pain Questionnaire: the BAPQ-C

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Abbie Jordan ◽  
Fiona M. Begen ◽  
Lisa Austin ◽  
Rhiannon T. Edwards ◽  
Hannah Connell
Keyword(s):  
Chronic Pain ◽  
Electronic Version ◽  
Self Report ◽  
Thinking Aloud ◽  
Pain Questionnaire ◽  
Paper Version ◽  
Home Based ◽  
Functional Aspects ◽  
Ideal Tool ◽  
The Impact

Abstract Background Pain is a common experience in adolescence, with up to 44% of adolescents reporting chronic pain. For a significant minority, severe pain becomes an ongoing disabling problem. Treatment of adolescent chronic pain aims to reduce the impact of pain on adolescents’ lives. Efficient, accurate assessment of the impact of pain is essential to treatment. The ‘Bath Adolescent Pain Questionnaire’ (BAPQ) is a psychometrically robust multidimensional self-report measure of adolescent functioning. Whilst widely used, the paper-based format of the BAPQ can present completion difficulties for adolescents experiencing chronic pain. To increase the accessibility and clinical utility of the BAPQ, an electronic version of the measure is needed. This study assesses the usability and feasibility of a computerized version of this measure (BAPQ-C) in an adolescent chronic pain population. Methods Fourteen adolescents (13 females; 13–16 years) were recruited from a hospital-based residential pain management programme. Participants completed a qualitative ‘thinking aloud task’ whilst completing the BAPQ-C. and, an acceptability questionnaire regarding the BAPQ-C. Data were analysed using thematic analysis, a widely used qualitative method of data analysis . Results Two themes labelled ‘engagement and technological appeal’ and ‘accessibility and independence’ were generated. Themes revealed numerous factors contributing to participants’ preference for the BAPQ-C compared with the paper version of the BAPQ. Participants reported that the BAPQ-C was ‘quicker’ and ‘easier’ to complete than the BAPQ. Functional aspects of the BAPQ-C which included use of a touch screen rather than a pen and paper, font colours/styles, the zoom function and the spellchecker, provided participants with improved access. This subsequently increased participants’ independence and confidence when completing the measure. Conclusion The BAPQ-C is a feasible multidimensional tool for the assessment of functioning in adolescents who experience chronic pain. It was well-received by participants who were able to complete the measure more quickly, independently and confidently than the paper-based BAPQ. Increased speed, ease and accuracy of completion make the BAPQ-C an ideal tool for use in busy clinical and research settings. Findings highlight the potential benefits of adopting the BAPQ-C when assessing the impact of chronic pain on adolescents in clinic and home-based settings.

Outcomes of Flank-Free Modified Supine Percutaneous Nephrolithotomy Based on BMI

2020 ◽  
pp. 1-6
Author(s):  
Esam Desoky ◽  
Khaled M. Abd Elwahab ◽  
Islam M. El-Babouly ◽  
Mohammed M. Seleem
Keyword(s):  
Percutaneous Nephrolithotomy ◽  
Supine Position ◽  
Normal Weight ◽  
Significant Difference ◽  
Group A ◽  
Morbid Obese ◽  
Group B ◽  
A Prospective Study ◽  
Nonobese Patients ◽  
The Impact

<b><i>Objective:</i></b> To evaluate the impact of body mass index (BMI) on the outcomes of percutaneous nephrolithotomy (PCNL) in the flank-free modified supine position. <b><i>Patients and Methods:</i></b> A prospective study was carried out in the urology department during the period from May 2015 to October 2019 on 464 patients admitted for PCNL. The patients were divided into 4 matched groups according to their BMI: group A, normal weight with 18.5 ≤ BMI &#x3c;25 kg/m<sup>2</sup>; group B, overweight with 25 ≤ BMI &#x3c;30 kg/m<sup>2</sup>; group C, obese with 30 ≤ BMI &#x3c;40 kg/m<sup>2</sup>; and group D, morbid obesity with BMI ≥40 kg/m<sup>2</sup>. All operative data as well as postoperative outcomes are recorded and compared to each other. <b><i>Results:</i></b> The 4 studied groups were matched regarding age. The comorbidities were slightly higher in groups C and D. The operative time and fluoroscopy time were slightly high in obese and morbid obese groups but with no significant difference. The rate of complications either major or minor was comparable in all groups. No significant difference was seen among all groups regarding hemoglobin loss, stone-free rate, hospital stay, and need for auxiliary procedures. <b><i>Conclusions:</i></b> The outcome of PCNL in flank-free modified supine position is not affected by changes in BMI. The procedure can be performed in obese and morbid obese patients safely with results similar to and comparable to nonobese patients.

Electronic self-report assessment for cancer: Results of a multisite randomized trial.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. 9008-9008
Author(s):  
Donna Lynn Berry ◽  
Fangxin Hong ◽  
Barbara Halpenny ◽  
Qian Wang ◽  
Ann H. Partridge ◽  
...  
Keyword(s):  
Web Sites ◽  
Self Care ◽  
Symptom Distress ◽  
Self Report ◽  
Control Group ◽  
Cell Transplant ◽  
Cancer Therapies ◽  
Significant Difference ◽  
Distress Scale ◽  
The Impact

9008 Background: Attending to symptoms and side effects promotes safe and effective delivery of cancer therapies. Providing focus to the patient’s report in the clinic can efficiently address the most important concerns, without extending visit times. The web-based electronic self report assessment for cancer (ESRA-C) and clinician summary has been shown to improve patient-clinician communication about symptoms and quality of life issues (SQI). The purpose of this trial was to evaluate the impact of an enhanced ESRA-C intervention (ESRA-C INT) on symptom outcomes. Methods: Patients (planned N=702) with all cancer types treated in stem cell transplant, medical oncology and radiation oncology at two comprehensive cancer centers used ESRA-C to self-report SQI during and after new anti-cancer therapy, with summary reports delivered to clinicians. Patients were randomized to standard ESRA-C (control) or ESRA-C INT adding the opportunity to self-monitor SQI between clinic visits and receive self-care SQI management education, plus custom coaching on how to report SQI to clinicians, all delivered via a secure web sites. We analyzed the intervention effect on Symptom Distress Scale (SDS) scores using a two-sided t-test and multivariate linear regression, adjusting for pre-selected covariates, including baseline SDS, age, service, and work status. Results: Among 757 patients (increased N due to involuntary attrition), demographic variables were balanced between groups except age (t=2.13; p=.03) with a younger INT group (mean 1.97 year difference). Of the 562 patients who completed final reports, the control group reported significantly higher SDS scores (t= 1.98; p = .048). A significant interaction between study group and age was observed; significantly lower SDS scores were found in the ESRA-C INT group among patients > 50 years (-1.95; p=.002), and no significant difference among patients < 50. Conclusions: Adding self-care and communication coaching to ESRA-C, a system to allow self-report and clinician notification of SQI, reduced symptom distress in a large sample of patients during and after active cancer treatment compared with ESRA-C alone. Patients over the age of 50, in particular, may benefit from the intervention.

scholarly journals The impact of outpatient clinical care on the survival and hospitalisation rate in patients with alcoholic liver cirrhosis

2017 ◽  
Vol 52 (1) ◽  
pp. 75-82
Author(s):  
Dejan Majc ◽  
Bojan Tepes
Keyword(s):  
Liver Cirrhosis ◽  
Alcohol Consumption ◽  
Clinical Care ◽  
Hospitalisation Rate ◽  
Control Group ◽  
Study Group ◽  
Alcoholic Liver Cirrhosis ◽  
Significant Difference ◽  
A Prospective Study ◽  
The Impact

AbstractBackgroundIn the study, we aimed to determine whether regular outpatient controls in patients with alcoholic liver cirrhosis have an impact on their survival and hospitalisation rates.Patients and methodsWe included patients with liver cirrhosis and regular outpatient controls as a prospective study group and patients with liver cirrhosis who were admitted to hospital only in cases of complications as a retrospective control group. The study was conducted between 2006 and 2011.ResultsWe included 98 patients in the study group and 101 patients in the control group. There were more outpatient controls in the study group than in the control group (5.54 examinations vs. 2.27 examinations, p = 0.000). Patients in the study group had 25 fewer hospitalisations (10.2%; p = 0.612). The median survival rate was 4.6 years in the study group and 2.9 years in the control group (p = 0.021). Patients with Child A classification had an average survival of one year longer in the study group (p = 0.035). No significant difference was found for Child B patients. Patients with Child C classification had longer survival by 1.6 years in the study group (p = 0.006). Alcohol consumption was lower in the study group than in the control group (p = 0.018).ConclusionsWe confirmed that patients with regular outpatient controls had lower alcohol consumption, a lower hospitalisation rate and significantly prolonged survival time. We confirmed the necessity for the establishment of regular outpatient controls in patients with alcoholic liver cirrhosis.

scholarly journals Implications of Disagreement Between Self-Reporting and Objective Measures: A Scoping Review

2018 ◽  
Vol 10 (6) ◽  
pp. 199
Author(s):  
Hilal Al Shamsi ◽  
Abdullah Ghthaith Almutairi ◽  
Sulaiman Salim Al Mashrafi
Keyword(s):  
Risk Factors ◽  
Health Services ◽  
Scoping Review ◽  
Emotional Health ◽  
Self Report ◽  
Objective Measures ◽  
Utilization Of Health Services ◽  
Significant Difference ◽  
Self Reports ◽  
The Impact

INTRODUCTION: Researchers and health specialists generally collect data and information about chronic diseases from self-reports. However, the accuracy of self-reports has been questioned as they depend on the respondents' ability to recall information and their understanding of pathological conditions. Therefore, an objective diagnosis is usually regarded as a more accurate indication of the presence of diseases.OBJECTIVE: A scoping review will examine the extent of the disagreement between self- reports and objective measures, focusing on the implications of this disagreement in terms of indicators of physical and emotional health as well provision and planning of health services.METHOD: There are few publications on the impact of disagreements between self-reporting and objective measures. In this case, a scoping review was chosen as an efficient tool to explore the issue, due to the limited amount of available evidence. This review was conducted in two major research databases: Scopus and Medline databases. The criteria of the study included all genders, age groups, and geographic areas. The source of information for the scoping review included existing literature such as guidelines, letters, meta-analyses, systematic reviews, and primary research studies.RESULT: In the 12 studies, the total participants were 155,939 and each study’s sample size ranged from 77 to 118,553. Four out of twelve studies showed a significant difference between self-reported ailments and objective diagnosis for (kappa=0.17 to 0.3), whereas the agreement was moderate for the utilization of health services and quality of ambulatory care (kappa=0.43 to 0.5), however, the agreement on whether counselling and referrals were needed was low (kappa= 0.3, 95% CI [0.3-0.3]). The disagreements between self-report and objective measures had implications regarding prevalence of diseases (20% less by self-reported) or risk factors (such as physical activity [PA]), costs of treatments (15 EUR high by reports), risk factors such as car accidents for elderly (useful field of view in elderly drivers was a risk over four times larger than obtained from self-reported [OR= 13.7 vs OR=3.4]), and utilization of health services (34.1% higher by reported).CONCLUSION: In most health domains, we found there was low to moderate disagreement between self-reporting and objective measures for diagnosing illnesses and utilization of health services.  The prevalence of disease was lower when self-reported, while the utilization of health services and cost of health services were higher when self-reported than when objectively measured. This disagreement has implications regarding the increasing the cost of health services and provides a misleading basis for health planning.

scholarly journals Increase of internalized mental health symptoms among adolescents during the last three decades

2019 ◽  
Vol 29 (5) ◽  
pp. 925-931 ◽  
Author(s):  
Ida Blomqvist ◽  
Eva Henje Blom ◽  
Bruno Hägglöf ◽  
Anne Hammarström
Keyword(s):  
Mental Health ◽  
Conduct Problems ◽  
Internalizing Symptoms ◽  
Response Rate ◽  
Self Report ◽  
Mental Health Symptoms ◽  
Cross Sectional ◽  
Health Symptoms ◽  
Significant Difference ◽  
The Impact

Abstract Background Previous studies suggest an overall increase of adolescent mental health symptoms globally since the 1980s until today, especially an increase of internalizing symptoms in girls. Due to methodological limitations of these studies, further studies are warranted to obtain a more solid knowledgebase. Methods This study was cross-sectional and compared two separate but geographically identical groups of adolescents in a middle-sized industrial municipality in Northern Sweden at two time-points [(i) 1981, n = 1083, (505 girls, 577 boys), response rate 99.7%; (ii) 2014, n = 682, (338 girls, 344 boys), response rate 98.3%]. All students in their last year of compulsory school were included. The same self-report questionnaire, consisting of four sub-scales (functional somatic-, anxiety-, depressive symptoms and conduct problems), was used at both occasions. Data were analyzed with descriptive statistics, two-way ANOVA and general linear model. Results Symptoms of anxiety and depression and functional somatic symptoms, increased among both boys and girls from 1981 until 2014 (P < 0.001 for all subscales), and the increase of these symptoms was higher in girls. Conduct problems were significantly higher in boys in 1981 and decreased over time so that in 2014 there was no longer a significant difference between boys and girls regarding conduct problems (P = 0.286). Conclusion In this population-based study spanning over 30 years, both girls and boys showed increasing internalizing problems, while conduct problems decreased. To halt this trend, we need a deeper understanding of the impact of the major societal changes that have occurred during the last three decades.

scholarly journals Antimullerian Hormone Changes after Laparoscopic Ovarian Cystectomy for Endometrioma Compared with the Nonovarian Conditions

2014 ◽  
Vol 2014 ◽  
pp. 1-5
Author(s):  
Chamnan Tanprasertkul ◽  
Sakol Manusook ◽  
Charintip Somprasit ◽  
Sophapun Ekarattanawong ◽  
Opas Sreshthaputra ◽  
...  
Keyword(s):  
Ovarian Reserve ◽  
Negative Impact ◽  
Pelvic Surgery ◽  
Ovarian Cystectomy ◽  
Antimullerian Hormone ◽  
Significant Difference ◽  
The Mean ◽  
Antimüllerian Hormone ◽  
A Prospective Study ◽  
The Impact

Laparoscopic ovarian cystectomy is recommended for surgical procedure of endometrioma. The negative impact on ovarian reserve following removal had been documented. Little evidence had been reported for nonovarian originated effects.Objective.To evaluate the impact of laparoscopic ovarian cystectomy for endometrioma on ovarian reserve, measured by serum antimullerian hormone (AMH), compared to nonovarian pelvic surgery.Materials and Methods.A prospective study was conducted. Women who underwent laparoscopic ovarian cystectomy (LOC) and laparoscopic nonovarian pelvic surgery (NOS) were recruited and followed up through 6 months. Clinical baseline data and AMH were evaluated.Results.39 and 38 participants were enrolled in LOC and NOS groups, respectively. Baseline characteristics (age, weight, BMI, and height) and preoperative AMH level between 2 groups were not statistically different. After surgery, AMH of both groups decreased since the first week, at 1 month and at 3 months. However, as compared to the LOC group at 6 months after operation, the mean AMH of the NOS group had regained its value with a highly significant difference.Conclusion.This study demonstrated the negative impact of nonovarian or indirect effects of laparoscopic surgery to ovarian reserve. The possible mechanisms are necessary for more investigations.

scholarly journals Long-term Outcomes in Adolescents and Adults with a Cleft Lip and/or palate: Esthetics, Employment and Functioning

2021 ◽  
Author(s):  
Cassandra Alighieri ◽  
Evelien D'haeseleer ◽  
Kim Bettens ◽  
Katrien Bonte ◽  
Hubert Vermeersch ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Well Being ◽  
Self Report ◽  
Control Group ◽  
Older Individuals ◽  
Significant Difference ◽  
Adolescents And Adults ◽  
The Impact

Abstract Background. To date, there seems to be no consensus on the long-term quality of life outcomes in patients living with a cleft of the lip and/or palate (CL/P) with regard to well-being and functioning. Some studies report a substantial influence of having a cleft while other studies report no influence of living with a cleft. The purpose of this study was to investigate the impact of living with a CL/P on esthetics, employment and functioning in Dutch-speaking adolescents and adults with a CL/P. Methods. 30 Patients with a CL/P (19 men and 11 women) were included in the study. The mean age of the participants was 26.93 years (SD = 11.688 years, range = 15 – 66 years). An age and gender matched control group was included consisting of 30 participants (19 men and 11 women) without a CL/P with a mean age of 26.87 years (SD = 11.729 years, range = 16-67 years). Esthetics, employment and functioning were assessed using different standardized self-report questionnaires. Results. No statistically significant difference in educational level, employment, monthly net income, marital status and having children was found between participants with and without a CL/P. In addition, the quality of life scores did not differ between the two groups. Within the group of individuals with a CL/P, the findings revealed that the proportion of participants who reported an influence of the CL/P on daily functioning, general well-being, social contacts, family life, applying for a job, work, education and leisure time differed by age. Older individuals experienced more influence of their CL/P compared to younger individuals. With regard to esthetics, the findings revealed that participants without a CL/P were less satisfied with the appearance of their jaws compared to participants with a CL/P. Conclusion. In general, the findings of our study revealed no significant differences between adolescents and adults with and without a CL/P with regard to employment and functioning. Considering age within the group of participants with a CL/P, however, the results demonstrated that older individuals were more likely to experience a negative impact of their cleft on well-being and functioning. These findings suggest that older individuals with a CL/P might benefit from additional socio-emotional support, for example peer contacts and support groups or psychological guidance. Longitudinal research on this topic is highly needed to determine possible fluctuations in the impact of living with a CL/P.

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