scholarly journals Person-centred care in osteoarthritis and inflammatory arthritis: a scoping review of people’s needs outside of healthcare

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Jessica L. Fairley ◽  
Maheeka Seneviwickrama ◽  
Sabrina Yeh ◽  
Shane Anthony ◽  
Louisa Chou ◽  
...  
Keyword(s):  
Daily Living ◽  
Inflammatory Arthritis ◽  
Social Connectedness ◽  
Evidence Base ◽  
Financial Security ◽  
Health Seeking ◽  
Workplace Conditions ◽  
Healthcare Needs ◽  
Continue Work ◽  
Ability To Drive

Abstract Background Arthritis, regardless of cause, has significant physical, social and psychological impacts on patients. We aimed to identify the non-healthcare needs perceived by patients with inflammatory arthritis (IA) and osteoarthritis (OA), and to determine if these differ. Methods We electronically searched MEDLINE, PsycINFO, EMBASE and CINAHL (1990–2020) systematically to identify non-healthcare-related needs of people with IA or OA. All citations were screened and quality appraised by two reviewers. Data was extracted by a single reviewer. Results The search identified 7853 citations, with 31 studies included (12 for OA, 20 for IA). Six areas of need emerged and these were similar in both group These were: 1) Assistance with activities of daily living especially related to a lack of independence; 2) Social connectedness: need for social participation; 3) Financial security: worry about financial security and increased costs of health-seeking behaviours; 4) Occupational needs: desire to continue work for financial and social reasons, facilitated by flexibility of workplace conditions/environment; 5) Exercise and leisure: including limitation due to pain; 6) Transportation: limitations in ability to drive and take public transport due to mobility concerns. Many areas of need were linked; e.g. loss of employment and requiring support from family was associated with a sense of “failure” and loss of identity, as social isolation. Conclusions This review highlights the pervasive impact of arthritis on peoples’ lives, regardless of aetiology, albeit with a limited evidence base. Improved identification and targeting of non-healthcare needs of people with arthritis is likely to improve person-centred care.

scholarly journals Innovative solutions to enhance safe and green environments for ageing well using stakeholder co-design.

2020 ◽  
Author(s):  
Anna L Hatton ◽  
Catherine Haslam ◽  
Sarah Bell ◽  
Joe Langley ◽  
Ryan Woolrych ◽  
...  
Keyword(s):  
Older Adults ◽  
Small Group ◽  
Social Connectedness ◽  
Interdisciplinary Approach ◽  
Human Movement ◽  
Evidence Base ◽  
Ageing Population ◽  
Physical Environments ◽  
Innovative Solutions ◽  
The Uk

Abstract Background There is a need to develop innovative solutions to enhance safe and green physical environments, which optimise health, wellbeing and community participation among older adults. In order to develop solutions that meet the needs of a diverse ageing population, an interdisciplinary approach is needed. Our aim was to identify the needs of older people in relation to ageing well in the environment by bringing together knowledge from different stakeholder and interdisciplinary perspectives. Methods An international consortium (Retrofit living For ageing well through Understanding and Redesign of Built environments consortium: ReFURB) was established in April 2018, including ten core members, to (i) explore cutting-edge solutions to safe living for ageing populations and (ii) develop innovative approaches to everyday physical environments, which bring about health benefits. We used a co-design, interdisciplinary framework involving older adults, carers, physiotherapists, geriatricians, engineers, human movement experts, geographers and psychologists from the UK and Australia. This engaged people in a one day workshop that comprised a series of presentations from international speakers on urban design, social connectedness, hazards and injury prevention, and the physical environment. Small group discussions (facilitated by consortium members) followed presentations to consider the opportunities, challenges and barriers encountered with ageing, which included the use of creative engagement activities (LEGO® Serious Play, mind maps, poster gallery walk), to help participants share personal stories and reflect on the issues raised. Thematic coding was used to synthesise the outputs of the small group work. Results Five themes emerged across the workshops, comprising: access and transport; involvement of the whole community; restoration rather than redesign; assistive and digital technology; and intergenerational approaches. These dimensions related to the physical, social and nature-based qualities of everyday environments, as they pertain to ageing well. Conclusions Co-design was a valuable tool that helped understand the perceptions of stakeholders and essential to develop effective interventions and solutions. Participants highlighted several issues affecting people as they age and key environmental considerations to promote wellbeing, activity, and participation. The consortium identified gaps in the existing evidence base and are now planning activities to further develop research ideas in collaboration with our co-design participants.

scholarly journals Understanding Where We Are Well: Neighborhood-Level Social and Environmental Correlates of Well-Being in the Stanford Well for Life Study

2019 ◽  
Vol 16 (10) ◽  
pp. 1786 ◽  
Author(s):  
Benjamin W. Chrisinger ◽  
Julia A. Gustafson ◽  
Abby C. King ◽  
Sandra J. Winter
Keyword(s):  
Mental Health ◽  
Physical Health ◽  
Social Connectedness ◽  
Well Being ◽  
Median Income ◽  
Financial Security ◽  
Neighborhood Factors ◽  
Hospital Stays ◽  
Zip Code ◽  
Neighborhood Level

Individual well-being is a complex concept that varies among and between individuals and is impacted by individual, interpersonal, community, organizational, policy and environmental factors. This research explored associations between select environmental characteristics measured at the ZIP code level and individual well-being. Participants (n = 3288, mean age = 41.4 years, 71.0% female, 57.9% white) were drawn from a registry of individuals who completed the Stanford WELL for Life Scale (SWLS), a 76-question online survey that asks about 10 domains of well-being: social connectedness, lifestyle and daily practices, physical health, stress and resilience, emotional and mental health, purpose and meaning, sense of self, financial security and satisfaction, spirituality and religiosity, and exploration and creativity. Based on a nationally-representative 2018 study of associations between an independent well-being measure and county-level characteristics, we selected twelve identical or analogous neighborhood (ZIP-code level) indicators to test against the SWLS measure and its ten constituent domains. Data were collected from secondary sources to describe socio-economic (median household income, percent unemployment, percent child poverty), demographic (race/ethnicity), and physical environment (commute by bicycle and public transit), and healthcare (number of healthcare facilities, percent mammogram screenings, percent preventable hospital stays). All continuous neighborhood factors were re-classified into quantile groups. Linear mixed models were fit to assess relationships between each neighborhood measure and each of the ten domains of well-being, as well as the overall SWLS well-being measure, and were adjusted for spatial autocorrelation and individual-level covariates. In models exploring associations between the overall SWLS score and neighborhood characteristics, six of the twelve neighborhood factors exhibited significant differences between quantile groups (p < 0.05). All of the ten SWLS domains had at least one instance of significant (p < 0.05) variation across quantile groups for a neighborhood factor; stress and resilience, emotional and mental health, and financial security had the greatest number of significant associations (6/12 factors), followed by physical health (5/12 factors) and social connectedness (4/12 factors). All but one of the neighborhood factors (number of Federally Qualified Health Centers) showed at least one significant association with a well-being domain. Among the neighborhood factors with the most associations with well-being domains were rate of preventable hospital stays (7/10 domains), percent holding bachelor’s degrees (6/10 domains), and median income and percent with less than high school completion (5/10 domains). These observational insights suggest that neighborhood factors are associated with individuals’ overall self-rated well-being, though variation exists among its constituent domains. Further research that employs such multi-dimensional measures of well-being is needed to determine targets for intervention at the neighborhood level that may improve well-being at both the individual and, ultimately, neighborhood levels.

Examination of the Effects of Video Prompting Across Different Types of Tasks

2017 ◽  
Vol 41 (4) ◽  
pp. 200-211
Author(s):  
Helen I. Cannella-Malone ◽  
Eliseo D. Jimenez ◽  
John M. Schaefer ◽  
Megan Miller ◽  
Hollie Byrum
Keyword(s):  
Skill Acquisition ◽  
Daily Living ◽  
Severe Disabilities ◽  
Evidence Base ◽  
Task Type ◽  
Future Research ◽  
Video Prompting ◽  
Different Types ◽  
Living Skills ◽  
Students With Severe Disabilities

Video prompting has a strong evidence base as an effective strategy to teach students with severe disabilities a variety of skills including daily living skills. This study examined whether differences in daily living tasks (i.e., multistep, multicomponent, and sequential tasks) would impact skill acquisition using video prompting by three participants with severe to profound disabilities. Results indicated that although video prompting was effective broadly, aspects of task type taught may affect the pace of an individual’s acquisition. Implications for future research and practice are discussed.

scholarly journals Examining Stakeholder’s Views On Refugee Healthcare Needs, Current Barriers in Accessing Healthcare Services and Future Healthcare Direction in New Zealand: A Qualitative Phenomenological Approach

2021 ◽  
Author(s):  
Bafreen Sherif ◽  
Ahmed Awaisu ◽  
Nadir Kheir
Keyword(s):  
New Zealand ◽  
Health Services ◽  
Qualitative Methodology ◽  
Healthcare Delivery ◽  
Healthcare Providers ◽  
Healthcare Services ◽  
Healthcare Personnel ◽  
Structured Interviews ◽  
Health Seeking ◽  
Healthcare Needs

Abstract Background The annual New Zealand refugee quota was increased to 1500 places from 2020 onwards as a response to the global refugee crisis. The specific healthcare needs of refugees are not clearly understood globally and communication between healthcare providers and refugees remains poor. Methods A phenomenological qualitative methodology was employed to conduct semi-structured interviews among purposively selected stakeholders who work in refugee organisations and relevant bodies in New Zealand. Results The participants indicated the need for a national framework of inclusion, mandating cultural competency training for frontline healthcare and non-healthcare personnel, creation of a national interpretation phone line, and establishing health navigators. Barriers to accessing health services identified included some social determinants of health such as housing and community environment; health-seeking behaviour and health literacy; and social support networks. Future healthcare delivery should focus on capacity building of existing services, including co-design processes, increased funding for refugee-specific health services, and whole government approach. Conclusion Policymakers and refugee organisations and their frontline personnel should seek to address the deficiencies identified in order to provide equitable, timely and cost-effective healthcare services for refugees in New Zealand.

scholarly journals Telehealth Nursing Research: Adding to the Evidence-base for Healthcare

2020 ◽  
Vol 8 ◽  
Author(s):  
Claudia C Bartz
Keyword(s):  
Systematic Reviews ◽  
Care Delivery ◽  
Post Partum ◽  
Evidence Base ◽  
Intervention Research ◽  
Care Needs ◽  
Research Papers ◽  
Healthcare Needs ◽  
Meta Analyses ◽  
Practice Methods

This paper reviews recent, nurse-led telehealth research with the goal of describing research findings that provide evidence for practice. Methods: Using an iterative search method, of eight electronic databases, 84 nurse-led research papers were separated into intervention research, systematic reviews and meta-analyses, and descriptive research. The main emphasis was on full text analysis of the intervention research. Results: Fifteen intervention research papers reported findings related to cardiovascular disease, diabetes mellitus, older age, young adults, early adolescents, children with special health care needs, people with a stoma, post-partum mothers and nurses. Also reviewed for useable evidence for practice were 10 systematic reviews, two meta-analyses and two papers that described reviews plus meta-analyses. Resuts: Fifty-five papers with descriptive designs are briefly described. Nurse-led intervention research is increasing knowledge about the use of telehealth technology and applications in care delivery. People with healthcare needs do better with individual attention and increased follow-up. People have a tolerance for technology used with them to advance their quality of life and healing but there is a point at which too much technology is overwhelming. Clinical research is a challenge due to the number of extraneous variables that are difficult to control and that can affect a person’s response to the research intervention. Conclusion: Continuation of nurse-led telehealth intervention research will help to ensure that technology used to support and advance care delivery will be evidence-based.

scholarly journals Psychometric Properties of Flourishing Scales From a Comprehensive Well-Being Assessment

2021 ◽  
Vol 12 ◽  
Author(s):  
Dorota Weziak-Bialowolska ◽  
Piotr Bialowolski ◽  
Matthew T. Lee ◽  
Ying Chen ◽  
Tyler J. VanderWeele ◽  
...  
Keyword(s):  
Social Connectedness ◽  
Discriminant Validity ◽  
Emotional Health ◽  
Human Life ◽  
Well Being ◽  
World Health ◽  
Financial Security ◽  
Human Flourishing ◽  
Psychological Well Being ◽  
Over Time

In this article, we develop a measure of complete well-being. The framework is derived from the theoretical model of human flourishing understood as a state in which all aspects of a human life are favorable. The approach extends beyond psychological well-being and reflects the World Health Organization definition of health that not only considers the health of body and mind but also embraces the wholeness of the person. The Well-Being Assessment (WBA) is a comprehensive instrument designed to assess holistic well-being in six domains: emotional health, physical health, meaning and purpose, character strengths, social connectedness, and financial security. Although each of these domains is distinct, all of them are nearly universally desired, and all but financial security constitute ends in themselves. Data were collected from a representative sample of working adults. A sample of 276 employees participated in the pilot, 2,370 participated in the first wave and 1,209 in the second wave of the survey. The WBA showed a good fitting (40 items, six factors), satisfactory reliability, test–retest correlation, and convergent/discriminant validity in relation to stability over time and relevant health measures, as well as a good fit to the data that were invariant over time, gender, age, education, and marital status. The instrument can be of use for scientists, practitioners, clinicians, public health officials, and patients. Adoption of more holistic measures of well-being that go beyond psychological well-being may help to shift the focus from health deficiencies to health and well-being promotion.

scholarly journals Walking Green: Developing an Evidence Base for Nature Prescriptions

2019 ◽  
Vol 16 (22) ◽  
pp. 4338 ◽  
Author(s):  
Elizabeth P.D. Koselka ◽  
Lucy C. Weidner ◽  
Arseniy Minasov ◽  
Marc G. Berman ◽  
William R. Leonard ◽  
...  
Keyword(s):  
Activities Of Daily Living ◽  
Daily Living ◽  
Evidence Base ◽  
Psychological Outcomes ◽  
Psychological State ◽  
Beneficial Effects ◽  
Time Commitment ◽  
Before And After ◽  
Mean Differences ◽  
Busy Road

Although the health benefits of exercise and exposure to nature are well established, most evidence of their interaction comes from acute observations of single sessions of activity. However, documenting improved health outcomes requires ongoing interventions, measurement of multiple outcomes, and longitudinal analyses. We conducted a pilot study to guide the development of a protocol for future longitudinal studies that would assess multiple physiological and psychological outcomes. Herein, we report psychological outcomes measured from thirty-eight participants before and after three conditions: a 50 min walk on a forest path, a 50 min walk along a busy road, and a period of activities of daily living. Changes in positive and negative affect, anxiety, perceived stress, and working memory are reported. We benchmark these results to existing studies that used similar protocols and also identify elements of the protocol that might impair recruitment or retention of subjects in longer-term studies. Linear mixed-models regression revealed that walking improved psychological state when compared to activities of daily living, regardless of walk environment (p < 0.05). Comparison of mean differences showed that forest walks yielded the largest and most consistent improvements in psychological state. Thus, despite a protocol that required a 3.5 h time commitment per laboratory visit, the beneficial effects of walking and exposure to a forested environment were observed.

scholarly journals Social Prescribing as ‘Social Cure’: A longitudinal study of the health benefits of social connectedness within a Social Prescribing pathway

2020 ◽  
pp. 135910532094499
Author(s):  
Juliet Ruth Helen Wakefield ◽  
Blerina Kellezi ◽  
Clifford Stevenson ◽  
Niamh McNamara ◽  
Mhairi Bowe ◽  
...  
Keyword(s):  
Social Connectedness ◽  
Well Being ◽  
Social Connections ◽  
Social Prescribing ◽  
Healthcare Needs ◽  
The Social ◽  
Group Memberships ◽  
The Relationship

We examined whether the Social Cure (SC) perspective explains the efficacy of a Social Prescribing (SP) pathway which addresses healthcare needs through enhancing social connections. Data were collected at pathway entry from patients with long-term health conditions, or who felt isolated/lonely/anxious ( N = 630), then again 4 months later ( N = 178), and 6-9 months later ( N = 63). Being on the pathway was associated with increased group memberships between T0 and T1. The relationship between increased group memberships and quality-of-life was serially mediated by belonging, support and loneliness. This study is the first to show SP enhances health/well-being via SC mechanisms.

International Diabetes Federation –Putting Women and Diabetes on the Global Agenda

2010 ◽  
Vol 6 (2) ◽  
pp. 10
Author(s):  
Ann Keeling ◽  
Katie Dain ◽  
◽  
Keyword(s):  
Women’S Health ◽  
Women's Health ◽  
International Diabetes Federation ◽  
Evidence Base ◽  
Reproductive Age ◽  
Political Commitment ◽  
Access To Health Services ◽  
Health Seeking ◽  
Middle Income ◽  
The Impact

Eighty per cent of the 300 million people with diabetes live in low- and middle-income countries and women represent half of this worldwide diabetes community. Gender roles and power dynamics shape vulnerability to diabetes, affect women’s health-seeking behaviour, access to health services and influence the impact of diabetes on women’s health. This creates a set of concerns that are specific to women. In addition, as the prevalence of type 2 diabetes in women of reproductive age has increased, so has the prevalence of gestational diabetes mellitus (GDM), a form of diabetes with onset or that is first recognised during pregnancy. GDM is a major cause of maternal and infant morbidity and mortality and a major factor in the intergenerational transmission of diabetes. The International Diabetes Federation (IDF) is responding to this aspect of the global diabetes epidemic by launching a new programme on women and diabetes. This programme will build the evidence base, promote awareness and political commitment, support gender-responsive health systems and empower women to take a leading role in diabetes prevention.

International Diabetes Federation—Putting Women and Diabetes on the Global Agenda

2010 ◽  
Vol 06 (01) ◽  
pp. 10 ◽  
Author(s):  
Ann Keeling ◽  
Katie Dain ◽  
◽  
Keyword(s):  
Women’S Health ◽  
Women's Health ◽  
International Diabetes Federation ◽  
Evidence Base ◽  
Reproductive Age ◽  
Political Commitment ◽  
Access To Health Services ◽  
Health Seeking ◽  
Middle Income ◽  
The Impact

Eighty percent of the 300 million people with diabetes live in low- and middle-income countries and women represent half of this worldwide diabetes community. Gender roles and power dynamics shape vulnerability to diabetes, affect women’s health-seeking behavior and access to health services, and influence the impact of diabetes on women’s health. This creates a set of concerns that are specific to women. In addition, as the prevalence of type 2 diabetes in women of reproductive age has increased, so has the prevalence of gestational diabetes mellitus (GDM), a form of diabetes with onset or that is first recognised during pregnancy. GDM is a major cause of maternal and infant morbidity and mortality and a major factor in the intergenerational transmission of diabetes. The International Diabetes Federation (IDF) is responding to this aspect of the global diabetes epidemic by launching a new program on women and diabetes. This programme will build the evidence base, promote awareness and political commitment, support gender-responsive health systems and empower women to take a leading role in diabetes prevention.

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