Living with Parkinson's—past, present and future: a qualitative study of the subjective perspective

2019 ◽  
Vol 28 (12) ◽  
pp. 764-771 ◽  
Author(s):  
Marina Maffoni ◽  
Antonia Pierobon ◽  
Giuseppe Frazzitta ◽  
Simona Callegari ◽  
Anna Giardini

Background: the social impact of Parkinson's is difficult to capture in quantitative research given the condition's variable presentation, so qualitative research is needed to support a person-centred approach. Aims: to describe how people with Parkinson's experience living with their condition over time. Methods: 27 audio-recorded verbatim-transcribed interviews were analysed through the grounded theory method. Findings: past, present and future were the core categories that emerged. Past is the dimension of regretted memories of past life overturned by the communication of diagnosis. Present is the time dimension in which patients concretely experience the hindrances associated with the condition (loss of autonomy, submissive acceptance and social embarrassment), and the resources (search for autonomy, serene or in-progress acceptance, and social support). Future is characterised by both positive visions of tomorrow and negative ones (worry, resignation, denial). Conclusion: these results, highlighting what living with Parkinson's means over time, may contribute to a better tailoring of nursing practice to the person's needs and rhythm, in a perspective of continuous adaptation.

2015 ◽  
Vol 12 (2) ◽  
pp. 97
Author(s):  
Gun Faisal ◽  
Dimas Wihardyanto

The Talang Mamak tribe, one of Indonesian tribe, still practices the hunting and gathering of natural produce despite the fact that among them have chosen to settle permanently and doing farming activities. The aim of this research is to study the characteristics of the Talang Mamak house. The method used in this research is grounded theory method, based on the open coding, axial coding as well selective coding techniques. The method used to find the variation layout of the houses and then evaluate the characters and concept of the layouts. The conclusion of this study is that the core of the Talang Mamak house is based on the connectivity of four rooms namely: Ruang Haluan, Ruang Tangah, Ruang Tampuan and Pandapuran. The house has an open layout where all daily household activities are done without barriers. The social status of the owner is identified by houses furniture and staf


Author(s):  
Angelos Zompras ◽  
Kerstin Siakas

Social Responsibility (SR) concerns the way in which organizations achieve their goals. This paper focuses on the overview of the SR as well as the endpoint of the continuous development of SR, the ISO 26000 standard and its core subjects. The aims are to give Information Technology (IT) professionals a better understanding of how to identify the core subjects of ISO 26000 relevant for their organizations and thus behave more responsible by taking actions towards sustainability. As stakeholders demand information and transparency from companies, it is imperative for companies them to report their environmental, economic, and social impact on the community. This paper examines the social responsibility reports, published from corporate websites of some the top IT companies in order to identify the issues that IT companies deal with, as well as in which issues related to the core subject of ISO 26000, they primary focus. The rest of the paper provides an overview on how IT companies can shift towards social responsibility and how they can integrate practices and technologies that benefit community, environment and stakeholders.


2016 ◽  
Vol 7 (3) ◽  
pp. 172-187 ◽  
Author(s):  
Niki Black

Purpose The purpose of this paper is to examine the contribution of small-scale, rural festivals to the social sustainability of their host communities. Small-scale, community originated festivals proliferate the rural landscape throughout the UK and yet despite this, festival research has focussed predominantly on large, urban events and on their economic impact (Wood, 2009; Gibson and Connell, 2011). This paper seeks to address the perceived research gap by examining these events through a lens of social sustainability. Design/methodology/approach The research uses a case study approach focussed on four festivals in Northumberland, UK. Individual interviews and focus groups were conducted with festival organisers, key figures and visitors. Following a constructivist grounded theory method four principle indicators were identified to determine festival contribution to community social sustainability. These indicators are: contribution to community pride and localness, enhancement of knowledge and understanding, contribution to the continuity of local culture and enablement of networks of connectivity. Findings The findings demonstrate the networks of connections which festivals enable between the culture, heritage and people (individuals and groups) of a place. By focussing on four indicators the paper shows the social impact of connections through the festival processes and content. The paper argues that small-scale festivals in rural locations can contribute to social sustainability if they demonstrate a balance of both consistency and innovation and accessibility and openness within the locale. Originality/value This paper addresses the gap in social impact research into rural festivals and presents an original approach to identify festival impact on community social sustainability.


2019 ◽  
Vol 20 (3) ◽  
pp. 168-178
Author(s):  
Magdalena Paul

Purpose The purpose of this paper is to present the methodological issues around developing a quantitative research instrument of the social impact of Polish public libraries. The results of the use of this instrument to survey users of Mazovian Province, Poland, are summarized as an example of its use. Design/methodology/approach The research focused on informational, educational and participatory aspects of social impact on the sidelines leaving cultural heritage issues. “Impact” and “social impact” were defined according to ISO 16439:2014. Information and documentation – methods and procedures for assessing the impact of libraries. The research instrument included questions both about the activities taken in libraries by its users and the benefits they gained. The questionnaire also contained questions which allowed to control the variables such as frequency of using libraries, socioeconomic factors and cultural practices. To describe dependencies, various statistical tests were applied. The study was conducted on the group of 1,098 users of 38 public libraries between February and June 2017. Findings Younger and people from smaller towns felt more benefits from using libraries. There are significant differences between types of benefits people of various age, financial status and household size experienced. People who went to libraries and other cultural institutions often experienced more benefits. The more a person performs activities in libraries, the more benefits he or she has. Some added value of particular activities is also visible. Research limitations/implications Despite the efforts and the size of the sample, it is not representative of the population of library users in the Mazovian Province (mainly due to the data collection method – auditory survey). Originality/value Studying the social impact of the libraries in Poland is still at its beginning. The presented research is, therefore, exploratory in terms of cognitive and methodological value.


2017 ◽  
Author(s):  
Valerio Capraro ◽  
Glorianna Jagfeld ◽  
Rana Klein ◽  
Mathijs Mul ◽  
Iris van de Pol

The conflict between pro-self and pro-social behaviour is at the core of many key problems of our time, as, for example, the reduction of air pollution and the redistribution of scarce resources. For the well-being of our societies, it is thus crucial to find mechanisms to promote pro-social choices over egoistic ones. Particularly important, because cheap and easy to implement, are those mechanisms that can change people’s behaviour without forbidding any options or significantly changing their economic incentives, the so-called “nudges”. Previous research has found that moral nudges (e.g., making social norms salient) can promote pro-social behaviour. However, little is known about whether their effect persists over time and spills across context. This question is key in light of research showing that prosocial actions are often followed by selfish actions, thus suggesting that some moral manipulations may backfire. Here we present a class of simple moral nudges that have a great positive impact on pro-sociality. In Studies 1-4, we use economic games to demonstrate that asking subjects to tell “what they think is the morally right thing to do” does not only increase pro-sociality in the choice immediately after, but also in subsequent choices, and even when the social context changes. In Study 5, we demonstrate that moral nudges increase charity donations by about 44 percent.


2021 ◽  
Vol 11 (2) ◽  
pp. 22-33
Author(s):  
Basrowi Basrowi

The purpose of this study is to test hypotheses about how the impact of financial technology (Fintech) and Islamic economic education in improving social welfare. Correlational quantitative research was chosen to reveal the social impact of the two variables. The research population is all people in Lampung Province, Indonesia who are educated in Islamic economics, who at the time of the study were at least sitting in the fifth semester undergraduate program. The sample is 308 people or 10% of the population of 3080 people. Data were collected using a questioner that was shared using Google Form. Data analysis was performed using a structural equation model (SEM) approach with the Lisrel 8.80 program. The results showed that, the social impact of utilizing financial technology and Islamic economic education includes two aspects, namely positive and negative impacts which are all related to people's economic behavior, economic learning, and psychological and spiritual health. Positive impacts dominate more than negative impacts.


2011 ◽  
Vol 59 (2_suppl) ◽  
pp. 93-112 ◽  
Author(s):  
Emma Uprichard

Typically in longitudinal quantitative research, classifications are tracked over time. However, most classifications change in absolute terms in that some die whilst others are created, and in their meaning. There is a need, therefore, to re-think how longitudinal quantitative research might explore both the qualitative changes to classification systems as well as the quantitative changes within each classification. By drawing on the changing classifications of local food retail outlets in the city of York (UK) since the 1950s as an illustrative example, an alternative way of graphing longitudinal quantitative data is presented which ultimately provides a description of both types of change over time. In so doing, this article argues for the increased use of ‘dirty data’ in longitudinal quantitative analysis, a step which allows for the exploration of both qualitative and quantitative changes to, and within, classification systems. This ultimately challenges existing assumptions relating to the quality and type of data used in quantitative research and how change in the social world is measured in general.


Author(s):  
Ryan Wallace

Noting the significant impact that tourism has on ecosystems and their local communities, ecotourism has emerged as an alternative that seeks to find a “win-win” strategy for all parties involved. With growing tourism throughout Asia and active development of many ecosystems, ecotourism has the promise to mend the social and economic gap while also ensuring a positive ecological impact over time. This chapter seeks to understand how sustainability and conservation fit into the core values of the ecotourism industry, as well as, how the industry plans for the short-term and long-term effects of their actions. Two important relationships are then explored in-depth because of their significance to the current and future state of ecotourism in Asia. Working with mass media, a strong brand may be created, thus increasing tourism to a destination site and ensuring that it is sustained over time. And through key partnerships, like those of local communities, ecotourism may have the potential to mutually benefit the people and the places tourists come to visit.


2014 ◽  
Vol 18 (05) ◽  
pp. 1450037
Author(s):  
CAMILLE D. RYAN ◽  
MICHAEL ST. LOUIS ◽  
PETER W. B. PHILLIPS

Major investments in science and technology are designed to generate something beyond the science itself. Government-funded big science infrastructure, exemplified by the Canadian Light Source Synchrotron (CLS), offers places for scientists both to conduct their scientific investigations and to do things that more directly add economic and social value. Scientists, however, do not work in isolation. They are usually part of larger networks or communities that can generate bigger net effects for the affiliated individuals and institutions. Understanding the structure and scale of these scientific networks provides insights into the impacts of big science on the scientific community (locally and globally) and the potential opportunities that may be realised. This study applies the social network analysis (SNA) methodology and combines it with a survey and statistical analysis to assess the network of scholars attached to the CLS, to explore the evolution of collaborative behaviour over time and to explore the relationships between the network and specific output and outcome variables. The study concludes that the CLS has generated a large and growing scholarly community; at the core of the network is a group of highly linked and engaged scholars who have the aptitude and experience to extend their research results into application and use.


2015 ◽  
Vol 14 (4) ◽  
pp. 555-568 ◽  
Author(s):  
Katy Wright

This article draws on case study research of a low-income neighbourhood in Leeds to explore experiences of, and attitudes towards, place-based community. Through tracing social relations in the neighbourhood over time, from the early twentieth century to the present day, the ways in which community is embedded in everyday activities and social interactions, and the social impact of socioeconomic change on local neighbourhoods, is demonstrated. It is argued that the relentless and nostalgic focus on local communities as an idealised form of social solidarity has meant that the reasons why place-based community has declined over time have been overlooked. The article challenges the assumption that social fragmentation on neighbourhood levels necessarily indicates antisocial trends or a lack of a sense of duty towards others, and draws attention to the constraints people face in developing relationships with others. Questions are raised about the viability of top-down attempts to shape social relations in particular ways.


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