Patients' experiences of living with multiple myeloma

2020 ◽  
Vol 29 (2) ◽  
pp. 103-110
Author(s):  
Clare Horgan Cuffe ◽  
Mary B Quirke ◽  
Catherine McCabe
Keyword(s):  
Multiple Myeloma ◽  
Haematological Malignancy ◽  
Symptom Burden ◽  
Descriptive Study ◽  
Professional Help ◽  
Information And Communication ◽  
Qualitative Descriptive ◽  
Patients Experience ◽  
Multiple Relapses ◽  
Purposive Sample

Background: Multiple myeloma is a B-cell haematological malignancy characterised by uncontrolled plasma cell proliferation. Patients with the disease often undergo periods of remission followed by multiple relapses. Understanding patients' experience of living with this chronic condition is key to providing effective patient-centred care. Aims: This qualitative descriptive study explored the experiences of patients living with multiple myeloma. Methods: A purposive sample of 6 patients was used. Data were collected using in-depth unstructured interviews and analysed using Colaizzi's (1978) thematic framework. Findings: The emergent themes included: information and communication; treatment and symptom burden; the importance of support from family/friends and professional help; psychosocial elements of survivorship. Conclusion: The complex symptoms of multiple myeloma need to be treated holistically to manage the unpredictable nature of this disease.

scholarly journals The lived experience with idiopathic pulmonary fibrosis: a qualitative study

2016 ◽  
Vol 47 (5) ◽  
pp. 1472-1480 ◽  
Author(s):  
Dorthe Overgaard ◽  
Gudrun Kaldan ◽  
Kristoffer Marsaa ◽  
Thyge Lynghøj Nielsen ◽  
Saher Burhan Shaker ◽  
...  
Keyword(s):  
Idiopathic Pulmonary Fibrosis ◽  
Pulmonary Fibrosis ◽  
Lived Experience ◽  
Family Caregivers ◽  
Symptom Burden ◽  
Disease Course ◽  
The Family ◽  
Qualitative Descriptive ◽  
Role Shift ◽  
Patients Experience

The disease course in idiopathic pulmonary fibrosis (IPF) is variable, but patients experience a progressive decline in lung function and increased symptom burden leading to death. Little is known about the patients' experience and their needs during the disease course or about the burden on family caregivers. Both patients and family caregivers face an altered life as the disease progresses. The aim of our study was to increase knowledge of life with IPF for patients and family caregivers.This study had a qualitative descriptive design using in-depth dyadic interviews with IPF patients (n=25) and family caregivers (n=24). We used the five-step analysis from the framework method and analysed the data on three levels: the patient, the family caregivers and couple level.The following six themes emerged as the main results: information and disclosure, reactional dyssynchrony, perpetual vigilance, emotional ambivalence, gradual and tacit role shift, and adapted coping strategies.Our findings suggest that IPF patients need information at the time of diagnosis, but some issues should be paced as the disease progresses. A palliation plan was demanded by patients and their caregivers. Further efforts are required to provide palliative care to IPF patients starting at the time of diagnosis.

scholarly journals Aljabar: Bagaimana Kemampuan Pemahaman Matematis Siswa Kelas VII?

2021 ◽  
Vol 8 (1) ◽  
pp. 63
Author(s):  
Ali Noeruddin ◽  
Piyanto Piyanto
Keyword(s):  
Cognitive Abilities ◽  
Research Method ◽  
Sample Selection ◽  
Descriptive Study ◽  
Mathematical Understanding ◽  
Process Understanding ◽  
Qualitative Descriptive ◽  
Sample Method ◽  
Purposive Sample ◽  
Reasoning And Argument

Abstract: A learning process, understanding is a prerequisite for improving cognitive abilities. To find out the extent of students' mathematical understanding ability by describing based on indicators used by researchers. The purpose of this study was to describe the five abilities of students towards mathematical understanding of algebra material in grade 7 MTs. This research method is a qualitative descriptive study. The sample selection uses the purposive sample method, namely three 7th grade students at MTs Manbaul Islam Soko, Tuban Regency. The research instrument used was a UAS test and interview questions, while to ensure the validity of the data, the researcher analyzed the data in two ways, namely the triangulation of data sources and triangulation of methods. The results of the study describe five students' mathematical understanding abilities on algebra material, namely  reasoning and  argument,  devising  strategies  for  solving  problems, mathematizing, and communication.  Keywords: Mathematical understanding ability, algebra Abstrak: Suatu  proses  belajar,  pemahaman  merupakan  prasyarat  untuk meningkatkan kemampuan kognitif. Untuk mengetahui sejauh manakah kemampuan pemahaman matematis siswa dengan menguraikan berdasarkan indikator yang digunakan peneliti. Tujuan penelitian ini adalah untuk mendeskripsikan lima kemampuan siswa terhadap pemahaman matematis pada materi aljabar di kelas 7 MTs. Metode penelitian ini adalah penelitian deskriptif kualitatif. Pemilihan sampel menggunakan metodhe sampel bertujuan (Purposive Sample) yaitu tiga siswa kelas 7 di MTs Manbaul Islam Soko Kabupaten Tuban. Instrumen penelitian yang digunakan adalah tes soal UAS dan wawancara, sedangkan untuk memastikan kevalidan data, peneliti menganalisis data dengan dua cara yaitu triangulasi sumber data dan triangulasi metode. Hasil penelitian memaparkan lima kemampuan pemahaman matematis siswa pada materi aljabar yaitu reasoning and argument, devising strategies for solving problems, mathematizing, dan communication. Kata Kunci: kemampuan pemahaman matematis, aljabar

KHALIFAH FI AL-’ARD UNTUK MEWUJUDKAN KESADARAN ENERGI

1970 ◽  
Vol 13 (2) ◽  
Author(s):  
Muhamad Iqbal
Keyword(s):  
Natural Resources ◽  
Descriptive Study ◽  
Research Library ◽  
Energy Awareness ◽  
Library Research ◽  
Comprehensive Knowledge ◽  
Qualitative Descriptive

Tulisan ini menjelaskan konsep khalifah fil’ardi sebagai wakil Tuhan dalam melestarikan alam. Penelitian ini bertujuan untuk menanamkan kesadaran energi yang berasal dari sumber daya alam. Jenis penelitian ini adalah penelitian kepustakaan (Library Research) dan penelitian ini merupakan penelitian deskriptif kualitatif. Berdasarkan analisis dan data yang penulis teliti, penulis menyimpulkan bahwa pengetahuan yang komprehensif tentang kesadaran energi menjadi dasar mengenai khalifah fil’ardi. Mewujudkan kesadaran energi di tengah masyarakat menjadi konsep termutakhir dari “khalifah fil ‘ardi” This paper describes the concept of khalifah fil’ardi as representatives of God in conserving nature. This study aims to instill awareness of energy derived from natural resources. This type of research is the research library (Library Research) and this research is a qualitative descriptive study. Based on the analysis and the data that I researched, the author concludes that a comprehensive knowledge about energy awareness is the basis of the khalifah fil’ardi. Realizing energy awareness in society becomes the latest concept of khalifah fil’ardi.

The Zoning System for Strategy Development of SMEs Go Online: A Literature Review

2018 ◽  
Author(s):  
Sumitro Sarkum
Keyword(s):  
Development Strategy ◽  
Online Marketing ◽  
Strategy Development ◽  
Future Research ◽  
Information And Communication ◽  
Qualitative Descriptive ◽  
The Government ◽  
Market Needs ◽  
Marketing Information ◽  
Relationship Of

This study aims to figure out what the relationship of empowerment of SMEs through methods of zoning as marketing strategy of SMEs in two different markets (offline and online). The zoning strategy with information and communication system integrated brings together socialization and promotion in a market. This system can help the government in taking and formulating policies to unite SMEs in a new market by not leaving the old market. The method in this study uses qualitative descriptive. There are three propositions produced in this initial research, the first; Offline and online marketing is very relevant for SMEs in Indonesia. Second; marketing information system is access for SMEs to find out the demand or market needs both domestically and internationally. And third; The zoning system can be used as an online development strategy for SMEs to synchronize two different markets, namely offline and online. Further research is needed to validate the propositions found, to generate hypotheses and empirical evidence, we recommend using mix methods for future research.

ANALISIS MCDONALDISASI BENTUK PELAYANAN PUBLIK PADA SISTEM E-FILING DIREKTORAT JENDERAL PAJAK (DJP) ONLINE

2018 ◽  
Vol 4 (1) ◽  
Author(s):  
Putri Maulina
Keyword(s):  
Communication Technology ◽  
Public Service ◽  
Service System ◽  
Easy Access ◽  
Theory Approach ◽  
The Public ◽  
Filing System ◽  
State Tax ◽  
Information And Communication ◽  
Qualitative Descriptive

In this contemporary era, the forms of public service in Indonesia have become increasingly practical and instant. Conditions like this to illustrate how the phenomenon of McDonaldization began to plague into public service systems, one of which is with the public service system e-Filing DJP Online. E-Filing DJP Online is an application of public services based on information and communication technology implemented by the state tax execution agency to provide easy access to services for the Taxpayers in Indonesia. The purpose of this study is to see how the principles of McDonaldization are applied in the public service system of tax agencies through the DGT Online e-Filing system. The theory approach used is McDonaldization Theory by George Ritzer, and the concept of Public Service. The method used is qualitative descriptive, with literature review approach. The results show that the DGT Online e-Filing system applies the principles of McDonaldization in the form of its services, namely: efficiency, quantified and qualified services, predictability, control, and ultimately the rationale for irrationality of service.Keywords: McDonaldization, Public Service, Tax, e-Filing

KUALITAS LAYANAN KETERBUKAAN INFORMASI PUBLIK BERBASIS WEBPORTAL PADA PEJABAT PENGELOLA INFORMASI DAN DOKUMENTASI (PPID) KABUPATEN SLEMAN TAHUN 2019

2020 ◽  
Vol 3 (1) ◽  
pp. 55-66
Author(s):  
Coni Wanprala ◽  
Isnaini Muallidin ◽  
Dewi Sekar Kencono
Keyword(s):  
Information Disclosure ◽  
Central Government ◽  
Public Information ◽  
Descriptive Study ◽  
Field Observations ◽  
Public Agencies ◽  
The Public ◽  
Qualitative Descriptive ◽  
The Government ◽  
Data Collection Technique

At present the development of technology and information has reached a very rapid level. Technology and information are used as a service media in the government environment which is also known as e-Government, one of which is the service of public information disclosure. The central government through Law No. 14 of 2008 concerning Openness of Public Information, encourages all Public Agencies including the Sleman Regency Government to make transparency in the administration of the state by utilizing information technology. This research is a qualitative descriptive study which aims to describe the reality that occurs. The object of research in this study is the official website of the Information and Documentation Management Officer (PPID) of Sleman Regency with the domain https://ppid.slemankab.go.id then the Sleman Regency Communication and Informatics Office as the organizer of the public information disclosure program. The data collection technique itself is carried out by means of interviews, documentation studies, and field observations (observations). After collecting and presenting data, then the data will be reduced first then analyzed and concluded. From the results of the study, in general the researchers concluded that the Sleman Regency PPID website had reached the level of qualification to become a quality website, however there were still some improvements and evaluations that had to be done by the relevant agencies in order to be better, namely (i) the website was still being assessed as a one-way service (ii) There are still many OPDs that are not ready to implement PPID (iii) data and information are still not updated (iv) lack of responsiveness of services in requests for information.

She “didn’t see my weight; she saw me, a mom who needed help breastfeeding”: Perceptions of perinatal weight stigma and its relationship with breastfeeding experiences

2021 ◽  
pp. 135910532098832
Author(s):  
Rachel Dieterich ◽  
Judy Chang ◽  
Cynthia Danford ◽  
Paul W Scott ◽  
Caroline Wend ◽  
...  
Keyword(s):  
Social Support ◽  
Healthcare Professionals ◽  
Body Image Dissatisfaction ◽  
Descriptive Study ◽  
Self Esteem ◽  
Weight Stigma ◽  
Depression And Anxiety ◽  
Self Confidence ◽  
Qualitative Descriptive ◽  
Suboptimal Breastfeeding

Weight stigmatization is related to emotional and psychological distress including low self-esteem, body image dissatisfaction, depression, and anxiety; all linked with suboptimal breastfeeding outcomes. This qualitative descriptive study explored postpartum individuals’ recalled experiences of weight stigma during interactions with perinatal healthcare professionals and its perceived influence on their breastfeeding experiences. Semi-structured phone interviews were conducted with (n= 18) participants. Three themes emerged: (1) “Size Doesn’t Matter: They Looked Beyond the Scale,” (2) “My Self-Confidence and Desire to Breastfeed is More Important than Weight,” and (3) “I Was on My Own”— Limited Social Support not Weight Stigma Influenced Breastfeeding.

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