Anemia Falciforme e o Comprometimento da Aprendizagem em Crianças e Jovens no Período Escolar

Author(s):  
Ivair Donizete Goncalves ◽  
Margareth M Cordeiro ◽  
Zaira Barbara da Silva

A doença falciforme - DF é uma hemoglobinopatia que afeta a cadeia da hemoglobina presente nas hemácias. Os indivíduos portadores apresentam a forma homozigótica da cadeia S da hemoglobina denominada de HbSS. A DF é considerada um problema de saúde pública no Brasil por ser uma doença frequente, grave e associada à elevada taxa de letalidade, especialmente, entre os jovens durante a idade escolar. Este trabalho teve como objetivo avaliar o impacto da DF em crianças e adolescentes de 5 a 18 anos acompanhados no Hemocentro de Cuiabá-MT, no período escolar. Para a execução deste estudo foram selecionados 55 pacientes de ambos os sexos, diagnosticados com Anemia Falciforme - AF e usuários de hidroxiureia por um período mínimo de seis meses. A qualidade de vida relacionada à saúde e a aprendizagem escolar dos pacientes foi avaliada através da aplicação do questionário “PedsQL”, específico para pacientes na faixa etária pediátrica. Os resultados demonstraram uma piora na qualidade de vida de pacientes com AF associada à demora do início do tratamento, principalmente, quando o mesmo se inicia após os oito anos de idade. A qualidade de vida é maior em pacientes mais novos (5 a 7 anos) por não apresentarem, ainda, os efeitos mais danosos da doença. O domínio escolar apresentou o pior score de qualidade de vida, demonstrando que quanto mais tarde a criança inicia o tratamento, pior será seu escore de qualidade de vida e maiores serão as dificuldades de aprendizagem, devido aos comprometimentos relacionados à doença. Este estudo mostrou que a AF afeta o desempenho de criança em período escolar e permitiu uma melhor compreensão de variáveis preditoras para elaboração de práticas pedagógicas socioeducacionais especializadas e adaptadas para doentes com AF.Palavras-chave: Anemia Falciforme. Qualidade de Vida. Escolaridade.AbstractSickle cell disease - DF is a hemoglobinopathy that affects the hemoglobin chain present in red blood cells. Carrier individuals exhibit the homozygous S-chain form of hemoglobin called HbSS. FD is considered a public health problem in Brazil because it is a frequent disease, severe and associated with a high lethality rate especially among young people during school age. The objective of this study was to evaluate the FD impact on children and adolescents aged 5 to 18 accompanied at the Blood Center of Cuiabá-MT, in the school period. For the execution of this study 55 patients of both sexes were selected, diagnosed with AF and users of hydroxyurea for a minimum period of six months. Quality of life related to patients' health was assessed through the application of the "PedsQL" questionnaire, specific for patients in the pediatric age group. The results demonstrated a worsening in the patients’ quality of life with AF associated with delayed onset of treatment, especially when it starts after eight years of age. Quality of life is higher in younger patients (5 to 7 years) because they do not present, still , the most harmful effects of the disease. This study showed that FA affects the children’s performance during the school period and allowed a better understanding of predictive variables for the elaboration of  specialized pedagogical educational practices and adapted for FA patients.Keywords: Sickle Cell Anemia. Quality of Life. Education

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
M Caicedo Roa ◽  
L Gabrielle Dalaqua ◽  
P Filizola ◽  
R Cordeiro

Abstract Introduction Violence against women is a public health problem with severe consequences. Most women in situations of domestic violence are emotionally involved and/or economically dependent of their intimate partners contributing to the perpetuation and acceptance of violence. Objectives 1) To characterize the women who join the Reference and Support Center for Women (Ceamo) in Campinas, Southeast Brazil. 2) To measure the quality of life in women victims of intimate partner violence 3) To determine the risk of feminicide. Methods The Ceamo is a public specialized service from the mayor of Campinas, it provides psychological, social and legal guidance to women in situations of gender violence. Inclusion criteria: Women attending Ceamo services, speaking Portuguese, age ≥18 years old and having experienced intimate partner violence. Measure instruments: Danger assessment Scale and WHOQOL-BREF. Results During the 11 months of the study, 78 new users were recruited. Average age 38.3 years old, mostly married/stable union, most of them with children (88%). 64% of women do not work and 36% live with the abusive partner. Prevalent types of violence suffered during by the victims in the last year were psychological n = 76, physical n = 62, moral n = 54 and sexual n = 23. The domain most affected in the assessment of quality of life was the environment (average 42% /100%) and psychological domain (42%/100%). 49% of women were classified with increased risk, 22% with severe risk and 1% with extreme risk of femicide. The questions with the most positive answers were those related to believing that the partner can kill her (77%), jealous of the partner (76%) and controlling behavior (73%), being followed/spied by the partner (67%) and threat death (65%). Conclusions The service in general receive very vulnerable women with low perception of their own quality of life, precarious material conditions and high risk of femicide. Key messages The women in domestic violence situation attended by the Ceamo service are at high risk of femicide. Service users have very low perception of their quality of life and poor social conditions.


2018 ◽  
Vol 17 (1) ◽  
pp. 21-29
Author(s):  
Peter J Olagunju ◽  
Olukemi O Odukoya ◽  
Andrew T Olagunju ◽  
Mobolanle R Balogun

Background: Tuberculosis [TB] remains a major global public health problem, and particularly in resource-restricted settings with disproportionately high burden. This study is aimed at assessing quality of life [QoL] and the roles of HIV co-infection along with socio-demographic factors on QoL among subjects with TB.Methodology: This is a multi-center cross-sectional study among 440 participants recruited by multi-stage sampling technique across 40 Directly Observed Treatment Short-course [DOTS] centres. Interviews were done using designed questionnaire to collect information on socio-demographic and clinical details of respondents. Subsequently, the World Health Organization Quality of Life-BREF [WHOQOL-BREF] questionnaire was used to evaluate QoL.Results: Most (61.1%) of the participants was aged between 21 and 40 years, 61.6% were married and 74.5% had a paid job. Majority of the subjects reported fair QoL across all domains. Employment status and monthly income were significantly associated with participants overall QoL and their satisfaction with health (p<0.05). Also, age, gender, marital status, ethnicity and educational status were significantly associated with the social domain of QoL. The HIV co-infection was found to be significantly associated with the physical aspect of their QoL (p<0.05).Conclusion: Optimal treatment of HIV co-infection and incorporation of psychosocial medicine into TB management are indicated for improved QoL. Similarly, routine assessment of QoL is desirable.Bangladesh Journal of Medical Science Vol.17(1) 2018 p.21-29


2015 ◽  
Vol 61 (6) ◽  
pp. 553-556 ◽  
Author(s):  
Isabel Cristina Esposito Sorpreso ◽  
José Maria Soares Júnior ◽  
Angela Maggio da Fonseca ◽  
Edmund Chada Baracat

SUMMARY Female aging is a process that involves hypoestrogenism time, the individual impact on each woman, and what we can do as experts to reduce morbidity and provide quality of life. This natural process in the female life cycle has been of concern to women after menopause. Changes in different biophysical and psychosocial aspects, and their individual experiences, have repercussions on the lives of patients seeking specialized and multidisciplinary support to reduce the harmful effects of prolonged hypoestrogenism. Overweight and obesity, inadequate living habits and the presence of multi-morbidities cause damage to the quality of life and impact the functional capacity. Behavioral prescription and hormone therapy are among the treatments given to ease symptoms and reduce morbidity. A better understanding of these factors can help identify groups that require more care after menopause.


2021 ◽  
Vol 7 (1) ◽  
pp. 25
Author(s):  
Patricia Concheiro-Moscoso ◽  
Betania Groba ◽  
Sílvia Monteiro-Fonseca ◽  
Nereida Canosa ◽  
Cristina Queirós

(1) Background: Stress is a major public health problem due to its relevant health, social and economic repercussions. Moreover, stress can be associated with work; when stress increases over time, burnout can occur, an occupational phenomenon recognized by the WHO in 2019. There is interest in the use of wearable devices to monitor and control stressors and their influence on the condition of workers. This study aims to identify the level of job stress and its influence on the quality of life of workers. (2) Methods:This longitudinal study was carried out between the end of May and mid-July 2021. Three assessment tools along with a daily and a weekly questionnaire were computerized through the RedCap platform. The participants had to fill out the diary and weekly questionnaires and wear a Xiaomi Mi Band 5 during the project. (3) Results and discussion: Thirty-six workers from the University of Coruña and from the University of Porto participated in the project. This study promotes the awareness of workers regarding their work stress and the influence of this factor on their quality of life using physiological (e.g., activity, sleep, and heart rate) and psychological indicators (self-report questionnaires in different moments).


2016 ◽  
Vol 3 (2) ◽  
pp. 118-122
Author(s):  
Rizky Firman ◽  
Sri Mugianti ◽  
Imam Sunarno ◽  
Sri Winarni

Chronic renal failure (CRF) is a public health problem in the world and is now recognized ascommon diseases with risk of hemodialysis therapy. Hemodialysis can have an impact to the patientquality of life. The aim of the research was to describe the patient quality of life with renal failure underghemodialysis at Mardi Waluyo Blitar hospital. The research used a descriptive research design. Thepopulation was all patients with renal failure which registered in Hemodialysis of Mardi Waluyo Blitarhospital on October-December 2014 as many as 84 patients. The sample was 34 patients selected byaccidental sampling. The data collection was conducted on March 30th – April 4th, 2015. The datacollecting used questionnaires of The World Health Organization Quality of Life (QoL WHO) whichdescribed physical health, psychological, social relationships, and environment. In general the qualitylife of renal failure patient underrgo hemodialysis in bad category was 55.9% (19 patients). Thiscondition was due to a chronic disease and its complications potentially stressors including renalfailure patient. Stressors that arise caused by environmental conditions, psychological state, and physicalhealth. The study recommended that health services were expected to provide comfortability, improvemaintenance functions, improve interpersonal relationships, and counseling.


2021 ◽  
Vol 141 (5) ◽  
pp. 81-89
Author(s):  
Tran Quynh Anh ◽  
Pham Thi Thu Trang ◽  
Do Vu Minh Ha

Caring for an aging population is an emerging public health problem, and the quality of life (QoL) among the elderly is a significant concern. Our study aimed to describe the health - related quality of life (HRQoL) and factors associated with good HRQoL among the elderly in three communes of Hanam province in Vietnam. A cross - sectional design was used with a sample size of 479 participants aged 60 and above. HRQoL was measured using the SF - 36. Comparison of characteristics between those with high HRQoL and those with low HRQoL was done using Pearson chi - square tests. Results were reported using descriptive statistics and odds ratios with 95% CI (Confidence Interval). Many of the elderly had moderate HRQoL (41.3%), and elderly men were more likely to have higher QoL in terms of physical health and psychological health than elderly women. Our findings also indicated that some factors including older age, low educational level, those not living with their spouse, poor financial condition, having more than two health problems and possessing unhealthy drinking behaviors were significantly positive associated with HRQoL. Findings suggest interventions are needed to improve the quality of life among the elderly in rural areas of Vietnam.


2020 ◽  
Author(s):  
Shelui Collinson ◽  
Joseph Timothy ◽  
Samuel K Zayay ◽  
Karsor K Kollie ◽  
Eglantine Lebas ◽  
...  

AbstractBackgroundScabies is known to be a public health problem in many settings but the majority of recent data is from rural settings in the Pacific. There is a need for high quality data from sub-Saharan Africa and peri-Urban settings to inform scale up of scabies control efforts. There have been anecdotal reports of scabies being a public health problem in Liberia but robust data are lacking.MethodsWe conducted a cross-sectional cluster-randomised prevalence survey for scabies in a peri-urban community in Monrovia, Liberia in February-March 2020. Participants underwent a standardised examination conducted by trained local health care workers. Health related quality of life (HRQoL) was assessed using age-appropriate dermatology life quality indices (DLQIs). Prevalence estimates were calculated accounting for clustering at community and household levels and associations with key demographic variables assessed through multivariable random-effects logistic regression.Results1,318 participants from 477 households were surveyed. The prevalence of scabies prevalence was 9.3% (95% CI: 6.5-13.2%), across 75 (19.7%) households; impetigo or infected scabies prevalence was 0.8% (95% CI: 0.4-1.9%). The majority (52%) of scabies cases were classified as severe. Scabies prevalence was lower in females and higher in the youngest age group; no associations were found with other collected demographic or socio-economic variables. DLQI scores indicated a very or extremely large effect on HRQoL in 29% of adults and 18% of children diagnosed with scabies.ConclusionsOur study indicates a substantial burden of scabies in this peri-Urban population in Liberia. This was associated with significant impact on quality of life, highlighting the need for action to control scabies in this population. Further work is needed to assess the impact of interventions in this context on both the prevalence of scabies and quality of life.Plain English summaryScabies is an infestation with a microscopic mite which affects many people living in low-resource tropical countries. It causes intense itching, which can lead to complications through bacterial infection and poor quality of life. To help develop global scabies control programmes, we need a better understanding of how common it is across different tropical settings. We conducted a survey to assess the burden of scabies and bacterial skin infection in a random sample of people living in a community in Monrovia, Liberia. Information about participants and their household were collected and their skin was examined; those with skin conditions were asked about its impact on quality of life.We examined 1,318 participants and found that almost 10% of people had scanies. Scabies was more common in young children, and was more common in male children than female children. We found that there was a large impact on quality of life due mostly to the itching that scabies causes and to people feeling embarrassed or sad because of their skin condition. This scabies survey is one of the first conducted across all age groups in recent years in sub-Saharan Africa and indicates a substantial burden and impact on quality of life. More work is needed to understand how common scabies is in different settings and the impact that different treatment strategies may have.


Author(s):  
R. Ratheesh ◽  
Bindu Mohandas ◽  
P. P. Venugopalan ◽  
A. K. Sarada ◽  
Suprej K. ◽  
...  

Background: Quality of life (QOL) is individuals' perceptions of their position in life. QOL of alcohol dependent patients is an area that has received relatively less attention compared to other alcohol related problems.Methods: A deaddiction centre based cross sectional study was done on 370 individuals using a predesigned questionnaire during the period of 2012-2013. The data was analyzed using SPSS version 17. Spearman’s rank correlation test was used to find association between the study variables.Results: The mean age of the study subjects was 38.08±8.46 years. The mean duration of drinking was 12.62±7.47 years. The overall score of the QOL and the perceived health in alcohol dependent patients was 3.19±0.89 and 3.01±0.98 respectively. The mean of the transformed scores of physical, psychological, social and environmental domains are 69.12±12.82, 57.84±12.81, 58.52±17.05, 68.62±10.23 respectively. Statistical analysis of age with physical, environmental and social domains showed a significant negative correlation; literacy status with QOL, perceived health, physical, psychological, social and environmental domains showed a significant positive correlation; socio economic status with QOL and psychological domain showed a significant positive correlation; duration of drinking with QOL, perceived health, physical and psychological domain showed a significant negative correlation.Conclusions: Harm from alcohol use is a major public health problem. Reducing the level of social and health harms from alcohol requires preparation and planning.


Author(s):  
Bruno Nunes Razzera ◽  
Angélica Nickel Adamoli ◽  
Maitê Freitas Ranheiri ◽  
Margareth da Silva Oliveira ◽  
Ana Maria Pandolfo Feoli

Abstract Introduction: Chronic kidney disease (CKD) is a serious public health problem worldwide, leading to a series of physical and psychological comorbidities, in addition to costly treatments, lifestyle and dietary restrictions. There is evidence that mindfulness-based interventions (MBIs) offer complementary treatment for people with chronic illnesses, including CKD, with the aim of improving overall health, reducing side effects and treatment costs. This review aims to investigate the MBIs impact on people with CKD undergoing hemodialysis, and to identify the methodological quality of the current literature in order to support future studies. Methods: We ran searches in five databases (MEDLINE via PubMed, PsycINFO, Embase, Web of Science and Scopus) in July 2020. The papers were selected and evaluated by two reviewers independently, using predefined criteria, including the Cochrane Group's risk of bias tool and its recommendations (CRD42020192936). Results: Of the 175 studies found, 6 randomized controlled trials met the inclusion criteria, and ranged from 2014 to 2019. There were significant improvements in symptoms of anxiety, depression, self-efficacy, sleep quality, and quality of life (n=3) in the groups submitted to the intervention, in addition to physical measures such as blood pressure, heart rate and respiratory rate (n=1). Conclusions: MBIs can offer a promising and safe complementary therapy for people with CKD undergoing hemodialysis, acting on quality of life and physical aspects of the disease.


2012 ◽  
Vol 46 ◽  
pp. 4598-4602 ◽  
Author(s):  
Vives Barceló Margarita ◽  
Orte Socías ◽  
M. del Carmen ◽  
Macías Gonzáles Liberto

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