The Components of Information Literacy Treatment in Women Cancer Patients (Preprint)

2020 ◽  
Author(s):  
Mahboobeh Farzin ◽  
Hassan Behzadi ◽  
Azam Sanatjoo ◽  
Soodabeh Shahidsaleth

BACKGROUND The information literacy treatment, which comprises an important part of the process of disease, is one of the aspects of health literacy and this concept has been explored in fewer studies. OBJECTIVE The purpose of the present study is to investigate the state of the components of information literacy treatment in Women cancer patients. METHODS This is an applied, survey-based study. The population consists of 143 Women cancer patients were selected employing a cluster random sampling procedure. Data were collected through a researcher-made questionnaire. The questionnaire includes 37 questions consisting of six categories—medications, treatment methods, nutrition, medical tests, treatment costs, and sport exercise. RESULTS The findings showed that patients had the most information needs in the five components (except sport exercise). In addition to, the most important source of information for patients was the doctor and, of course, some of the other medical staff. Also, all the identified criteria for cancer patients were important in using the information sources for treatment. The problems such as: specialized content, unfamiliarity with the medical terms, the complexity of the treatment process, are very important to the patients. CONCLUSIONS The health professionals play an important role in shortening the interval between the patients` need for information and receiving information. It is recommended for the health authorities to hold free classes in health centers and prepare simple and comprehensible materials in these courses.

2021 ◽  
pp. 096100062098161
Author(s):  
Benedicta Boadi ◽  
George Tesilimi Banji ◽  
Patrick Adzobu ◽  
Stephen Okyere

Health information literacy plays a critical role in self-management practices among patients living with chronic health conditions. However, there are limited studies on information needs among breast cancer patients in Ghana. This paper therefore investigated the information needs of women living with breast cancer in Ghana and how educational status influenced their information needs. The study was conducted in two health facilities in Accra, Ghana (37 Military Hospital and Sweden Ghana Medical Centre). A total of 75 breast cancer patients were conveniently selected from the two health facilities for the study. The instrument used to elicit relevant data for this study was a questionnaire using the survey design. Data was analysed descriptively. The findings of the study revealed that the information needs of the breast cancer patients investigated were centred mainly around treatment and management information and less around preventive information. The patients also ranked diagnostic information as their highest need, followed by physical care information, treatment information, psychosocial information and disease-specific information in that order. Patients with higher education reported higher information need on all the five domains compared to those with lower education. The study therefore recommended that management of health facilities make health information literacy an integral component of their treatment and management of breast cancer.


Mousaion ◽  
2020 ◽  
Vol 38 (2) ◽  
Author(s):  
Rexwhite Tega Enakrire ◽  
Isaac Mpho Mothiba

Information literacy competencies indicate the ability of an individual to apply a certain search strategy of information discovery, to understand its design, to value judgement, and to use it in various contents and contexts. The influence of information literacy competencies plays an important role in enabling information users to meet their information needs and prepares them for lifelong learning. The purpose of this study was to examine the influence of information literacy competencies of users in the Saulsville public library, South Africa. The rationale was a lack of awareness and the inability of the users to find their information needs based on the task and decision at hand. The descriptive survey design adopted for this study made use of a questionnaire to collect data from 1 120 registered members of the Saulsville library. Of the 1 120 registered users being the population for the study, the authors purposively used 10 per cent (112 members) of the population as sample size. The findings revealed that users of the Saulsville public library had limited awareness and competencies of information literacy. The users were exposed to some form of library orientation and the use of library resources during their visit to the library. The findings further indicated that the users’ information literacy competencies were affirmed through the quality of information obtained and the satisfaction of library services rendered by library staff. The study recommends the acquisition of new technologies that could enhance users’ interactive information literacy training in public libraries and formal education settings.  


Author(s):  
Rhiannon Edge ◽  
Carolyn Mazariego ◽  
Zhicheng Li ◽  
Karen Canfell ◽  
Annie Miller ◽  
...  

Abstract Purpose This study aimed to explore the psychosocial impacts of the coronavirus disease (COVID-19) pandemic on cancer patients, survivors, and carers in Australia. Methods Using real-time insights from two Cancer Council NSW services—131120 Information and Support Line and Online Community (CCOC) forums—we assessed service demand trends, distress levels (using the distress thermometer), and content from 131120 calls and online posts between 01 December 2019 and 31 May 2020. Emergent themes were identified through an inductive conventional content analysis with 131120 call notes, followed by a deductive directed content analysis on CCOC posts. Results In total, 688 COVID-19-related 131120 calls (n = 496) and online posts (n = 192) were analysed. Service demand peaked in March 2020 and self-reported distress peaked in May 2020 at an average of 8/10 [Mean = 7.5; SD = 0.9]. Five themes emerged from the qualitative analysis: psychological distress and fear of virus susceptibility, practical issues, cancer service disruptions, information needs, and carer Issues. Conclusions The psychosocial impacts of COVID-19 on people affected by cancer are multifaceted and likely to have long-lasting consequences. Our findings drove the development of six recommendations across three domains of support, information, and access. Cancer patients, survivors, and carers already face stressful challenges dealing with a cancer diagnosis or survivorship. The added complexity of restrictions and uncertainty associated with the pandemic may compound this. It is important that healthcare providers are equipped to provide patient-centred care during and after this crisis. Our recommendations provide points of consideration to ensure care is tailored and patient oriented.


2013 ◽  
Vol 74 (3) ◽  
pp. 243-261 ◽  
Author(s):  
Kun Huang ◽  
Diane Kelly

A survey was conducted at Beijing Normal University to explore subjects’ motives for image seeking; the image types they need; how and where they seek images; and the difficulties they encounter. The survey also explored subjects’ attitudes toward current image services and their perceptions of how university libraries might provide assistance. Based on the findings, this article summarizes the features of Chinese undergraduate students’ daily image needs and their information behavior related to images. The findings reveal the need to improve the image services offered by academic libraries and strengthen undergraduates’ information literacy with respect to image search and use.


2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e22527-e22527
Author(s):  
Michael J. Hall ◽  
Paul D'Avanzo ◽  
Yana Chertock ◽  
Jesse A Brajuha ◽  
Sarah Bauerle Bass

e22527 Background: TGP is widely used to identify targetable mutations for precision cancer treatment and clinical trials. Many patients have poor understanding of TGP and are unaware of possible secondary hereditary risks. Lack of clarity regarding the relevance of informed consent and genetic counseling further magnify risks for patients. AA patients have lower genetic knowledge and health literacy and higher MM than Caucasian patients, making them especially vulnerable in the clinical setting. Perceptions of TGP in AA cancer patients have not been well-characterized. Methods: 120 AA pts from 1 suburban and 1 urban site (Fox Chase Cancer Center[FCCC] and Temple University Hospital[TUH]) were surveyed. A k-means cluster analysis using a modified MM scale was conducted; chi-square analysis assessed demographic differences. Perceptual mapping (PM)/multidimensional scaling and vector modeling was used to create 3-dimensional maps to study how TGP barriers/facilitators differed by MM group and how message strategies for communicating about TGP may also differ. Results: Data from 112 analyzable patients from FCCC (55%) and TUH (45%) were parsed into less MM (MM-L, n = 42, 37.5%) and more MM (MM-H, n = 70, 72.5%) clusters. MM-L and MM-H clusters were demographically indistinct with no significant associations by sex (p = 0.49), education (p = 0.3), income (p = 0.65), or location (p = 0.43); only age was significant (older = higher MM, p = 0.006). Patients in the MM-H cluster reported higher concerns about TGP, including cost (p < 0.001), insurance discrimination (p < 0.001), privacy breaches (p = 0.001), test performance/accuracy (p = 0.001), secondary gain by providers (p < 0.001) and provider ability to explain results (p = 0.04). Perceptual mapping identified both shared and contrasting barriers between MM clusters (Table). Conclusions: More than 2/3 of AA patients comprised a MM-H cluster. Communication strategies should focus on concerns about family and how to discuss TGP with an oncologist. PM can identify distinct and shared information needs of vulnerable populations undergoing TGP. [Table: see text]


2017 ◽  
Vol 27 (2) ◽  
pp. 97-103 ◽  
Author(s):  
Kendra Fowler ◽  
Eileen Bridges

BMJ Open ◽  
2020 ◽  
Vol 10 (2) ◽  
pp. e034178
Author(s):  
Gek Phin Chua ◽  
Hiang Khoon Tan

ObjectivesTo qualitatively interpret the information and supportive care needs perceived by cancer patients undergoing treatment in order to get a deeper appreciation of patients’ needs and concerns. The intended outcome is to provide baseline knowledge for improving patient-centred strategies to better meet the information and supportive needs of patients.DesignA qualitative research approach, based on conventional content analysis, was used throughout the research process. The three open-ended questions obtained from a previous quantitative study guided the researchers to explore the information and supportive care needs of patients. Data from patients’ responses were analysed and coded in themes.Participants and settingPatients attending the Ambulatory Treatment Unit of the National Cancer Centre Singapore were invited to participate in the study. We determined from these subjects the type of information that cancer patients need, and to measure the extent to which these information needs are met by measuring patients’ level of satisfaction. Included in the quantitative study were three open-ended questions designed to gain a deeper understanding of their needs and concerns. All subjects were aged 21 years and above and able to understand and communicate in English/Mandarin. They were also aware of their diagnosis, they were not cognitively impaired and were not at the end-of-life situation.ResultsA variety of information and supportive care needs were identified, and three specific areas of concerns were identified: (1) psychosocial and supportive care needs, (2) information needs and (3) information delivery by professionals.ConclusionThe information and supportive care needs expressed were consistent with issues of cancer patients undergoing treatment. The strategies to improve patients’ coping abilities through patient-centred care are discussed. Further studies assessing the barriers of information provision by healthcare professionals should provide more detailed knowledge about unmet information needs.


Author(s):  
Shashikant Divakar ◽  
Chandan Kumar Panda ◽  
Anil Paswan

This study is to analyze information sources and information needs of women farmers of Banka and Bhagalpur district of Bihar. The research was undertaken for assessment of information needed for young farm women of age group of 18-35 years with respect to kharif paddy cultivation. Useful Information is the pivotal for successful kharif paddy cultivation. In the study area young farm women contribute immensely in kharif paddy cultivation.  Information helps in creating awareness about technologies and mobilize people to use them. It also helps in training people, organizing community and ultimately resulting in the development of the whole nation. Result of the study illustrated that farm women need more information about selling of product, pest control, nursery raising and disease management. The study also revealed that the most preferred source of information was personal localite i.e. Husband, Friend, Relatives and Neighbors and agri-input dealers.


2015 ◽  
Vol 84 (5) ◽  
Author(s):  
Mirjana Rajer ◽  
Luka Čavka ◽  
Amela Duratović

ABSTRACTBACKGROUNDNowadays cancer patients tend to be more involved in the medical decision process. Active participation improves health outcomes and patient satisfaction. To participate effectively patients require a huge amount of information, but time limits make it impossible to satisfy all information needs at clinics. We tried to find out which kind of media cancer patients use when searching for information and how often. Lastly, we try to find out how popular the Internet is in this regard.METODSIn this research we invited cancer patients, who had regular clinic examinations at the Oncology Institute between 21st and 25th May in 2012. We carried out a prospective research by anonymous questionnaires. We were investigating which media were used and how often. We analysed results with descriptive statistics, ANOVA, the χ²-Test and the t-test.RESULTS478 of 919 questionnaires distributed among cancer patients were returned. Mean age was 59.9 years. 61 % of responders were female, and the most common level of education was high school (33 %). Most common cancer type was breast cancer (33 %), followed by gastrointestinal and lung cancer. Patients search for information most often on television (81.4% responders), followed by specialized brochures (78%), internet (70.8%) and newspapers (67.6%). Patients who do not use media for information searching are older than average (62.5 years vs. 59.9 years; p<0,000).CONCLUSIONSAccording to our results patients search for information most often on television, followed by brochures, internet and newspapers. Older patients less often search for information. This data might help doctors in everyday clinical practice.


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