scholarly journals Adaptation of a live video mind-body program to a web-based platform for english-speaking adults with neurofibromatosis (NF): Protocol for the NF-Web study (Preprint)

2021 ◽  
Author(s):  
Ethan G Lester ◽  
Sarah W Hopkins ◽  
Paula J Popok ◽  
Ana-Maria Vranceanu
Keyword(s):  
Treatment Satisfaction ◽  
Qualitative Interviews ◽  
Efficacy Trial ◽  
Web Based ◽  
Live Video ◽  
The Past ◽  
English Speaking ◽  
Web Platform ◽  
Analyze Data ◽  
Video Program

BACKGROUND The neurofibromatoses (NF) are rare genetic conditions associated with lower, but modifiable quality of life (QoL). Despite having a virtual live video program (Relaxation Response Resiliency Program for NF [3RP-NF]; randomized controlled efficacy trial [RCT] underway), ongoing barriers impede some patients from engaging in this intervention. Therefore, a necessary next step is to develop a stand-alone web-based intervention that reduces barriers to accessing NF-specific psychosocial care. OBJECTIVE First, we aim to develop a web-based platform (NF-Web) of our mind-body resiliency program (3RP-NF) through qualitative interviews with participants from the adult efficacy RCT. Second, we aim to iteratively optimize the the feasibility, acceptability, credibility and satisfaction of the NF-Web platform through open pilot trials with participant exit interviews, and explore quantitative outcomes within this sample. Here, we describe the protocol/study design, intervention, and analysis plan. METHODS For Aim 1, we will invite completers from our efficacy trial to participate in qualitative interviews (N = 20). We will use data from these interviews to adapt the content of the live video program for asynchronous delivery and understand best format for the development of an engaging web platform. For Aim 2, we will enroll eligible participants recruited for the efficacy trial who could not enroll due to treatment barriers. Eligibile participants will complete QoL, depression, anxiety, pain, treatment satisfaction and program credibility measures at baseline and/or posttest. Inclusion criteria are identical to the efficacy trial, including stress and coping difficulties (self-report), no change in antidepressant medication in the past 3 months, no psychotherapy in the past 3 months, no major upcoming surgeries in the next 12 months, English speaking, able to complete questionnaires online and participate in live video interventions, and consented prior to participation. Primary outcomes are feasibility, treatment satisfaction, and credibility. Secondary outcomes include physical, psychological, social and environmental QoL, depression, anxiety, pain intensity and pain interference. We will enroll at least 2 group cohorts and iteratively refine the program based on participants feedback after each cohort. RESULTS The trial is currently ongoing. We are completing interviews (N = 23) and plan to analyze data to construct the website. Afterwards, we will recruit our cohorts of participants for the trial (N = ~15/cohort; T = 30). Recruitment will end May 2021 with plans to analyze data by October 2021. CONCLUSIONS We will develop the first web platform for people with NF with difficulties managing stress and NF symptoms and report on feasibility and preliminary effect in improving QoL and psychosocial functioning. NF-web has the potential to dramatically extend the reach of our 3RP-NF intervention by removing important barriers to care including lack of trained providers, scheduling difficulties, and appearance concerns.

scholarly journals Quantified Nostalgia: Social Media, Metrics, and Memory

2021 ◽  
Vol 7 (2) ◽  
pp. 205630512110088
Author(s):  
Benjamin N. Jacobsen ◽  
David Beer
Keyword(s):  
Social Media ◽  
Focus Group ◽  
Qualitative Interviews ◽  
The Past ◽  
Group Data ◽  
Focus Group Data ◽  
Social Media Platforms ◽  
Memory Practices ◽  
The Relationship

As social media platforms have developed over the past decade, they are no longer simply sites for interactions and networked sociality; they also now facilitate backwards glances to previous times, moments, and events. Users’ past content is turned into definable objects that can be scored, rated, and resurfaced as “memories.” There is, then, a need to understand how metrics have come to shape digital and social media memory practices, and how the relationship between memory, data, and metrics can be further understood. This article seeks to outline some of the relations between social media, metrics, and memory. It examines how metrics shape remembrance of the past within social media. Drawing on qualitative interviews as well as focus group data, the article examines the ways in which metrics are implicated in memory making and memory practices. This article explores the effect of social media “likes” on people’s memory attachments and emotional associations with the past. The article then examines how memory features incentivize users to keep remembering through accumulation. It also examines how numerating engagements leads to a sense of competition in how the digital past is approached and experienced. Finally, the article explores the tensions that arise in quantifying people’s engagements with their memories. This article proposes the notion of quantified nostalgia in order to examine how metrics are variously performative in memory making, and how regimes of ordinary measures can figure in the engagement and reconstruction of the digital past in multiple ways.

scholarly journals Knowledge and perceptions of cardiopulmonary resuscitation amongst New Zealand podiatrists: a web-based survey

2021 ◽  
Vol 14 (1) ◽  
Author(s):  
Angela Brenton-Rule ◽  
Daniel Harvey ◽  
Kevin Moran ◽  
Daniel O’Brien ◽  
Jonathon Webber
Keyword(s):  
New Zealand ◽  
Cardiopulmonary Resuscitation ◽  
Life Support ◽  
Survival Rates ◽  
Sudden Cardiac Arrest ◽  
Cross Sectional Study ◽  
Trial Registration ◽  
Cross Sectional ◽  
Web Based ◽  
The Past

Abstract Background Podiatrists in New Zealand have a duty of care to assist patients in an emergency, and current cardiopulmonary resuscitation (CPR) certification is a requirement for registration. However, it is unknown how competent and confident podiatrists are in administering CPR and how they would respond in an emergency. Having a health professional who has a competent knowledge of CPR and skills in basic life support, can improve survival rates from sudden cardiac arrest. Therefore, the aim of this study was to survey New Zealand podiatrists to determine their CPR knowledge and qualifications; beliefs about the application of CPR; and perceptions of their competency in CPR. Methods This cross-sectional study used a web-based survey. Participants were New Zealand registered podiatrists with a current annual practising certificate. The 31-item survey included questions to elicit demographic information, CPR practice and attitudes, and CPR knowledge. Responses were collected between March and August 2020. Results 171 podiatrists responded to the survey. 16 % of the podiatrists (n = 28) had performed CPR in an emergency, with a 50 % success rate. Participants were predominantly female (n = 127, 74 %) and working in private practice (n = 140,82 %). Nearly half of respondents were younger than 40 years (n = 75,44 %) and had less than 10 years of clinical experience (n = 73, 43 %). Nearly all (n = 169,97 %) participants had received formal CPR training in the past two years, with 60 % (n = 105) receiving training in the past 12 months. Most respondents (n = 167,98 %) self-estimated their CPR ability as being effective, very effective, or extremely effective. Participants’ knowledge of CPR was variable, with the percentage of correct answers for CPR protocol statements ranging between 20 and 90 %. Conclusions This study provides the first insight into New Zealand podiatrists’ CPR knowledge and perceptions. Podiatrists were found to have high levels of CPR confidence but demonstrated gaps in CPR knowledge. Currently, New Zealand registered podiatrists require biennial CPR re-certification. However, resuscitation authorities in New Zealand and overseas recommend an annual update of CPR skills. Based on this study’s findings, and in line with Australia and the United Kingdom, the authors recommend a change from biennial to annual CPR re-certification for podiatrists in New Zealand. Trial registration The study was registered with the Australian New Zealand Clinical Trials Registry (ACTRN12620001144909).

scholarly journals WebRTC - Realtime Communication for the Open Web Platform

Queue ◽  
2021 ◽  
Vol 19 (1) ◽  
pp. 77-93
Author(s):  
Niklas Blum ◽  
Serge Lachapelle ◽  
Harald Alvestrand
Keyword(s):  
High Speed ◽  
Network Access ◽  
The Past ◽  
Human Contact ◽  
High Speed Network ◽  
The World ◽  
Web Platform

In this time of pandemic, the world has turned to Internet-based, RTC (realtime communication) as never before. The number of RTC products has, over the past decade, exploded in large part because of cheaper high-speed network access and more powerful devices, but also because of an open, royalty-free platform called WebRTC. WebRTC is growing from enabling useful experiences to being essential in allowing billions to continue their work and education, and keep vital human contact during a pandemic. The opportunities and impact that lie ahead for WebRTC are intriguing indeed.

Professional judgements of risk and capacity in situations of self-neglect among older people

2010 ◽  
Vol 30 (6) ◽  
pp. 1055-1072 ◽  
Author(s):  
SHANNON MCDERMOTT
Keyword(s):  
Critical Theory ◽  
Older People ◽  
Cultural Context ◽  
Sociological Theory ◽  
Qualitative Interviews ◽  
Medical Illness ◽  
The Past ◽  
The Social ◽  
Professional Intervention ◽  
Sydney Australia

ABSTRACTOver the past 50 years, self-neglect among older people has been conceptualised in both social policy and the academy as a social problem which is defined in relation to medical illness and requires professional intervention. Few authors, however, have analysed the concept of self-neglect in relation to critical sociological theory. This is problematic because professional judgements, which provide the impetus for intervention, are inherently influenced by the social and cultural context. The purpose of this article is to use critical theory as a framework for interpreting the findings from a qualitative study which explored judgements in relation to older people in situations of self-neglect made by professionals. Two types of data were collected. There were 125 hours of observations at meetings and home assessments conducted by professionals associated with the Community Options Programme in Sydney, Australia, and 18 professionals who worked with self-neglecting older people in the community gave in-depth qualitative interviews. The findings show that professional judgements of self-neglect focus on risk and capacity, and that these perceptions influence when and how interventions occur. The assumptions upon which professional judgements are based are then further analysed in relation to critical theory.

Contacts between the Late Roman Empire and North-Central Europe

1996 ◽  
Vol 76 ◽  
pp. 31-50 ◽  
Author(s):  
Aleksander Bursche
Keyword(s):  
Roman Empire ◽  
Central Europe ◽  
The Baltic Sea ◽  
European Continent ◽  
North Central ◽  
The Past ◽  
Vistula River ◽  
English Speaking ◽  
English Speaking World ◽  
The Baltic

The concept of Central Europe is understood here to cover the geographical centre of the European continent (i.e. the territory between the Elbe, Bug and Neman rivers, that is, eastern Germany, Poland, Bohemia, Slovakia and Lithuania), formerly treated in much of the English-speaking world as ‘Eastern Europe’. In the past six years, however, this area has been moving closer to the West. This paper shall concentrate on the region north of the Carpathian mountains, particularly the Vistula river-basin and Scandinavia (without Norway), in other words the territory round the Baltic Sea.

Glocal riddim: cultural production and territorial identity in Caribbean music videos

2017 ◽  
Vol 17 (1) ◽  
pp. 91-111
Author(s):  
Murali Balaji ◽  
Thomas Sigler
Keyword(s):  
Cultural Production ◽  
Contemporary Music ◽  
Regional Identity ◽  
Intimate Relationship ◽  
Music Videos ◽  
Pop Music ◽  
Web Based ◽  
Territorial Identity ◽  
The Past ◽  
Musical Genres

Over the past two decades, several musical genres have transcended their Caribbean origins to achieve global recognition and success. Among these are soca, dancehall and reggaeton, all forms that had been inextricably tied to native cultural expressions, but have become increasingly popular as global commodities, particularly as web-based streaming platforms (e.g. YouTube) enhance their global audiovisual mobility. Numerous artists within these genres have become internationally recognized superstars, and many of the most recent tracks reflect an increasing co-mingling with American ‘pop’ music, as record companies seek to invigorate mainstream sounds with these ‘exotic’, yet widely popular artists. This article explores representations of scalar territorial identity as articulated in music videos from within these genres so as to evaluate how identity intersects with profit-driven models applicable to the contemporary music industry. By evaluating imagery from a regionally representative sample of music videos, they identify the intimate relationship between identity, scale and cultural production. Ultimately, we interrogate how place-based identity is commodified in these representations and whether certain images are constructed more for transnational consumption than an articulation of a coherent local national, or regional identity.

From Nowhere to “Partyslava”

2015 ◽  
Vol 42 (2-3) ◽  
pp. 299-320
Author(s):  
Peter Barrer
Keyword(s):  
Central Europe ◽  
Slovak Republic ◽  
Urban Spaces ◽  
Cultural Perspective ◽  
Popular Imagination ◽  
East Central Europe ◽  
East Central ◽  
The Past ◽  
German Speaking ◽  
English Speaking

Over the past two decades, Prague has cemented itself as a tourist hotspot in the popular imagination. But what of Bratislava, long considered a “poor cousin” to Prague? What images of Bratislava have foreign publics been presented with since the fall of communism in East-Central Europe and the establishment of the Slovak Republic? Building on previous research which has examined visitors’ historical perceptions of Bratislava primarily from a German-speaking perspective, this paper seeks to map the development of Bratislava’s image in media texts from English-speaking countries since 1989 by focusing on two central motifs: Bratislava as a post-communist space and Bratislava as a locus of touristic pleasures (“Partyslava”). The images presented herein will be evaluated and contrasted with local descriptions of Bratislava, thus offering a cross-cultural perspective which will contribute to the wider discussion of popular perceptions of post-communist urban spaces in East-Central Europe.

Herramientas digitales para recolección, procesamiento y presentación de datos de campo como instrumento para afrontar la contingencia COVID-19

2021 ◽  
Vol 5 ◽  
pp. 96-104
Author(s):  
Didier Haid Alvarado Acosta
Keyword(s):  
Learning Curve ◽  
Training Programs ◽  
Communication Technologies ◽  
Field Work ◽  
Web Based ◽  
Face To Face ◽  
The Past ◽  
Online Platforms ◽  
Virtual Libraries ◽  
Different Types

In March of 2020, the COVID-19 outbreak forced people to lock themselves inside their homes and begin the process of transitioning from face-to-face activities at work, schools and universities to a 100 % virtual method. Even when Communication Technologies (ICT) and online platforms have seen growth over the past two decades, including various virtual libraries developed by database publishers or web-based training programs that appear to shorten the learning curve (Lee, Hong y Nian, 2002), many people were unprepared for this transition and all of them are now dedicated to entering the new reality. In this order of ideas, the activities that have traditionally required the assistance of the staff have had to adapt with the use of new tools, which meet daily needs. A clear example is the field work collection tasks. In this group, there are different types such as surveys, photographs, reviews or on-site inspections. The current work presents the use of tools for collecting, validating, analysing and presenting data remotely and in real time. All of them based on the ArcGIS Online platform.

‘Ice’ flavoured e-cigarette use among young adults

2021 ◽  
pp. tobaccocontrol-2020-056416
Author(s):  
Adam Leventhal ◽  
Hongying Dai ◽  
Jessica Barrington-Trimis ◽  
Steve Sussman
Keyword(s):  
Young Adults ◽  
Los Angeles ◽  
Tobacco Use ◽  
Cross Sectional Study ◽  
Cigarette Use ◽  
Cross Sectional ◽  
Web Based ◽  
The Past ◽  
Frequency Of Use ◽  
Exposure Variable

Background‘Ice’ e-cigarette flavours—marketed as a combination of fruity/sweet and cooling flavours (eg, ‘blueberry ice’ or ‘melon ice’)—recently entered the US market. The prevalence and correlates of ice flavoured e-cigarette use in young adults are unknown.MethodsThis cross-sectional study of a Los Angeles, California, USA, cohort analysed data from the past 30-day e-cigarette (current) users (n=344; M (SD)=21.2 (0.4) years old) who completed web-based surveys from May–August 2020. The exposure variable was self-reported e-cigarette flavour used most often in the past month (menthol/mint, fruit/sweet or ice). Outcomes included self-reported combustible tobacco use, vaping dependence symptoms, frequency of use and device type used.ResultsAmong current e-cigarette users, 48.8% reported using ice flavours most often, 33.7% predominately used fruit/sweet and 17.4% used menthol/mint. Using primarily ice-flavour was associated with reporting more past-30-day vaping days (vs menthol/mint: b=4.4, 95% CI (1 to 7.7); vs fruit/sweet: b=3.6, 95% CI (0.8 to 6.4)) and more episodes per vaping day versus fruit/sweet users (b=2.4, 95% CI (0.5 to 4.3)). Ice-flavour users were less likely than menthol/mint users to use JUUL/cartridge-based rechargeable (OR=0.1, 95% CI (0.03 to 0.45)) and more likely than sweet/fruit users to use disposable non-cartridge (OR=3.9, 95% CI (2.1 to 7.4)) devices than refillable/rechargeable tank/pen or other devices. Ice users had greater odds of past 30-day combustible tobacco use versus menthol/mint users (OR=2.7, 95% CI (1.3 to 5.7)) and vaping dependence symptoms than versus sweet/fruit users (OR=2.6, 95% CI (1.5 to 4.4)).ConclusionYoung adult use of ice flavoured e-cigarettes may be common and positively associated with combustible tobacco use, nicotine vaping frequency and dependence and use of disposable e-cigarette devices. Further study of the prevalence, determinants and health effects of ice flavoured e-cigarette use is warranted.

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