scholarly journals FROM DYSTOPIA TO UTOPIA: THE PERCEPTIONS OF OSTOMY CLIENTS

2018 ◽  
Vol 2 (2) ◽  
pp. 1-7
Author(s):  
Adrian A. Moreno ◽  
Julius C. Dano

Following ostomy surgery, patients experience overwhelming changes which often affect their overall well-being (Ito et al., 2012). Surprisingly, there is paucity on the perceptions and views of clients with an ostomy in a Filipino understanding. A phenomenological lens anchored on the philosophy of Husserl was used to discover and describe the lived experience of clients with ostomy. Purposive-Snowball sampling was utilized in the study. Conversational, formal and semi-structured interviews were the methods used as means to unravel the experience of the participants. Data analysis was based on Colaizzi’s methodology. The whole process was based on the data, transcribed interviews, sorting, categorizations (cool analysis), categories as thematized (warm analysis) and a repertory grid or a dendrogram that paved the way to discovering the value of the lived experiences of clients with ostomy. The description of the experience revealed two major themes namely, the Dystopia experience that emanate from the participants’ negative perceptions of alienation, desolation and desperation. Moreover, the second theme is the Utopia experience that derives from the participants’ understanding of acceptance, gratitude, and enlightenment. It is imperative that there is a need to understand the perceptions of clients with ostomy to devise an appropriate plan of care that addresses the main goal of a healthy transition.

Author(s):  
Helen Johnson

Dementia is arguably one of the biggest challenges facing society today, impacting millions of people worldwide. Nonetheless, there is only a relatively small body of research exploring what it is like to live with dementia from the perspectives of people who have this condition. This is partly because of the (implicit or explicit) belief that people with dementia lack insight into their condition and cannot talk about their experiences clearly. In this article, I argue that such beliefs are typically both erroneous and unhelpful, and that there is great value in seeking to illuminate the lived experiences of people with dementia. I present an interpretative phenomenological analysis of data from semi-structured interviews with six participants who had moderate dementia. I elicit five themes from this analytic process, and discuss the three most prominent here: awareness and understanding of dementia, clarity and confusion, and social support and relationships. I mobilise these themes to narrate the lived experiences of people with dementia, demonstrating their awareness both of the difficulties presented by dementia and of the negative perceptions of others.


Author(s):  
Amalia De Leo ◽  
Eloisa Cianci ◽  
Paolo Mastore ◽  
Caterina Gozzoli

The COVID-19 pandemic put the Italian health system under great stress. The sudden reorganization of work practices and the emotional impact of the large number of the victims had many consequences on the well-being of the healthcare professionals (HCPs) involved in managing the crisis. In the available literature, most studies have focused on the risk aspects while only few studies also take into account protective factors. For this reason, it was decided to conduct, within psycho-sociological perspective, a qualitative study with the aim to explore in depth the protective and risk factors as experienced by HCPs who worked in the Italian healthcare system during the COVID-19 outbreak. A total of 19 semi-structured interviews were conducted with HCPs–9 nurses and 10 physicians (7M and 12F) with an average age of 43 (SD = 13.4)–selected using snowball sampling. Considering three different levels of analysis the results highlight the protective and risk factors: personal history level (intrinsic/ethical motivation and flexible role versus extrinsic motivation and static role), interpersonal level (perception of supportive relationships with colleagues, patients, and family versus bad relationships), and organizational level (good leadership and sustainable work purpose versus absence of support from management and undefined or confused tasks).


2018 ◽  
Vol 34 (5) ◽  
Author(s):  
Ana Rosa Linde ◽  
Carlos Eduardo Siqueira

Zika virus infection during pregnancy is a cause of congenital brain abnormalities. Its consequences to pregnancies has made governments, national and international agencies issue advices and recommendations to women. There is a clear need to investigate how the Zika outbreak affects the decisions that women take concerning their lives and the life of their families, as well as how women are psychologically and emotionally dealing with the outbreak. We conducted a qualitative study to address the impact of the Zika epidemic on the family life of women living in Brazil, Puerto Rico, and the US, who were affected by it to shed light on the social repercussions of Zika. Women were recruited through the snowball sampling technique and data was collected through semi-structured interviews. We describe the effects in mental health and the coping strategies that women use to deal with the Zika epidemic. Zika is taking a heavy toll on women’s emotional well-being. They are coping with feelings of fear, helplessness, and uncertainty by taking drastic precautions to avoid infection that affect all areas of their lives. Coping strategies pose obstacles in professional life, lead to social isolation, including from family and partner, and threaten the emotional and physical well-being of women. Our findings suggest that the impacts of the Zika epidemic on women may be universal and global. Zika infection is a silent and heavy burden on women’s shoulders.


2012 ◽  
Vol 6 (2) ◽  
pp. 103-127 ◽  
Author(s):  
Helen Russell

This article is based on a qualitative study of later life computer learners and their learning experiences in Sydney, Australia. Participants who undertook lessons from peer tutors in non-formal learning environments were aged between 63 and 86. Sixteen later life learners were interviewed individually by using hermeneutic phenomenological methodology. The use of semi-structured interviews provided opportunities for participants to elaborate and reflect on their learning and lived experiences. The interviews took place over a period of seven years, from 2003 to 2010. The main aim of the study was to understand and interpret the lived experiences of information and communication technology (ICT) learning in later life. Interpretations from the study suggested that learning and using a computer contributed to a sense of well-being, furthered an understanding of the lifeworld and provided participants with a heightened sense of belonging. In this article, well-being is discussed in the context of ageing and learning in a modern developed country. The ontological and existential themes of being, becoming and belonging are explored and used as a framework to interpret the findings from the study.


2021 ◽  
Vol 57 (3) ◽  
Author(s):  
Phumudzo Raphulu ◽  
Modjadji Linda Shirindi ◽  
Mankwane Daisy Makofane

Caring for children with cerebral palsy presents numerous circumstances which may contribute to mothers’ inability to cope with the demands of meeting their children’s needs. A qualitative study supported by explorative, descriptive and contextual designs was undertaken. Purposive and snowball sampling facilitated the identification of twelve participants who were interviewed through semi-structured interviews. The enquiry was based on the ecosystems approach. Thematic data analysis was followed through Tesch’s eight steps and Guba’s model was used for data verification. The findings highlighted the necessity to enhance the psycho-social functioning of mothers through collaboration of social workers, health professionals and various organisations.


Author(s):  
Ana Cláudia Campos ◽  
Sofia Almeida

In this chapter, the construct of operant resource is explored in the context of young independent travel. The main purposes of the study are to analyze young travelers' perceptions about independent travel and operant resources that contribute the most to its success. A qualitative design was adopted, given the explorative nature of the research. Online semi-structured interviews were conducted to a sample of young travelers, using the snowball sampling procedure. Qualitative data analysis was conducted subsequently and main findings indicate that freedom, being in control, and authenticity are predominant feelings within this sample. They also show that most valued operant resources in the context of independent travel are informational and human. Conclusions drawn contribute to a better understanding of independent travel by youths and may help tourism businesses and destinations to strategically approach this market segment.


2020 ◽  
Vol 22 (2) ◽  
pp. 71-81
Author(s):  
Harriet Dymond ◽  
Simon Duff

Purpose Research into paedophilia mainly uses offender samples; thus, little is understood about non-offending paedophiles. The limited body of research has been conducted in North America or Europe whose health and legal systems differ from those in the UK. Using semi-structured interviews, the purpose of this study is to explore the experience of three non-offending British paedophilic males. Design/methodology/approach The interview discussed their paedophilia, refraining from offending and perspectives on treatment initiatives. Data were analysed using interpretative phenomenological analysis. Findings Three superordinate themes emerged: “paedophilia as more than a sexuality,” “acceptance leads to management” and “barriers to support.” These encapsulated how paedophilia was understood, how accepting one’s sexual attraction is tantamount to well-being and the various obstacles to providing support were discussed. Research limitations/implications Acknowledging the sampling considerations (size and recruitment), the results implicate research into paedophilia. The onset of paedophilia was chronologically associated with typical sexual attraction, and not the result of sexual abuse as some theories suggest. Furthermore, the tenets of attraction to children extending beyond sexual desire were highlighted. Practically, the results influence future research into the area and highlight the dearth in our understanding of diverse behavioural management techniques (i.e. computerised images of children or human-like dolls). Originality/value This paper presents novel insight into the aspects of paedophilia, excluding offensive behaviour and highlights the need for affordable, UK-based services targeted towards people with a paedophilic attraction to manage child sexual abuse preventatively and not reactively.


2020 ◽  
Vol 11 (3) ◽  
pp. 299-317
Author(s):  
Shi Yin Chee

The COVID-19 pandemic has caused untold fear and suffering for older adults across the world. According to the World Health Organization, older adults in aged care homes are at a higher risk of the infection living in an enclosed environment with others. This article adopts a qualitative approach using Colaizzi’s phenomenological method to explore the lived experiences of older adults during COVID-19. Between December 2019 and June 2020, 10 in-depth, semi-structured interviews were conducted with participants aged 60 years and above in two aged care homes. The lived tension that has penetrated all participants’ stories in five themes of the meanings described as ‘disconnected in a shrinking world’ filled with uncertainties. COVID-19 has brought unprecedented challenges and disproportionate threat onto older adults’ lives, relationships and well-being. The overarching message was that older adults believe that ‘this too shall pass’ and regain their freedom that was lost during the pandemic.


2020 ◽  
pp. 105984052096601
Author(s):  
Malin Jakobsson ◽  
Karin Sundin ◽  
Karin Högberg ◽  
Karin Josefsson

Sleeping difficulties are increasingly prevalent among adolescents and have negative consequences for their health, well-being, and education. The aim of this study was to illuminate the meanings of adolescents’ lived experiences of sleeping difficulties. The data were obtained from narrative interviews with 16 adolescents aged 14–15 in a Swedish city and were analyzed using the phenomenological hermeneutic method. The findings revealed four themes: feeling dejected when not falling asleep, experiencing the night as a struggle, searching for better sleep, and being affected the next day. The comprehensive understanding illuminates that being an adolescent with sleeping difficulties means it is challenging to go through the night and to cope the next day. It also means a feeling of being trapped by circumstances. As the adolescents’ lived experiences become apparent, the possibility for parents, school nurses, and other professional caregivers to support adolescents’ sleep increases.


2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Laurie Long Kwan Ho ◽  
William Ho Cheung Li ◽  
Ankie Tan Cheung ◽  
Wei Xia ◽  
Ka Yan Ho ◽  
...  

Abstract Background Despite clear evidence for the effectiveness of musical training in promoting psychological well-being among underprivileged children, parents’ perceptions of the importance of such training for their children remains unknown. Methods Of the parents of 171 underprivileged preschool children in Hong Kong who had participated in a free musical training programme, 25 were randomly selected and invited to participate in individual semi-structured interviews. Colaizzi’s descriptive phenomenological data analysis strategy was followed for analysing the data. Results The results showed that parents identified numerous benefits of the programme for their child, including increased happiness, improved confidence, positive behavioural changes, and enhanced parent-child relationships. At the beginning of the programme, parents tended to disregard the usefulness of musical training but gradually came to recognise its importance for their children’s psychological and social well-being. However, children were limited by their parents’ financial constraints from participating in musical training after the free programme ended. Conclusions These findings imply that existing policy may overlook the psychosocial needs of underprivileged children and suggest that more resources should be allocated to facilitate the continuity and sustainability of such a free programme for this vulnerable population. Trial registration ClinicalTrials.gov NCT02762786, registered on May 5, 2016.


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