scholarly journals The Experience of Locomotor Training From the Perspectives of Therapists and Parents of Children With Cerebral Palsy

2021 ◽  
Vol 2 ◽  
Author(s):  
Dayna Pool ◽  
Catherine Elliott ◽  
Claire Willis ◽  
Ashleigh Thornton
Keyword(s):  
Cerebral Palsy ◽  
Tertiary Hospital ◽  
Activity Level ◽  
Training Intervention ◽  
Locomotor Training ◽  
Personal Factor ◽  
Structured Interviews ◽  
Future Studies ◽  
Children With Cerebral Palsy ◽  
Perceived Outcomes

Objective: The objective of this study was to explore the experiences of intensive locomotor training from the perspective of therapists and parents of children with cerebral palsy.Design: A qualitative study using semi-structured interviews was employed to capture perspectives following an intensive locomotor training intervention. Data were analyzed thematically, systematically coding and interpreted by grouping information into themes and sub-theme categories.Participants: Five therapists and seven parents of children with high daily physical assistance and equipment needs participated in the study.Setting: A pediatric tertiary hospital.Results: Experiences of locomotor training were described with relation to the suitability of locomotor training with sub-themes of intervention length and time, engagement within sessions, the importance of support, and the utility of locomotor training beyond a research context. Motivation for participating in locomotor training was described in relation to the enjoyment of movement and for increasing activity level. The barriers and facilitators who participated in locomotor training provided environmental and personal factor subthemes. Finally, the outcomes from the intervention were related to improvements in physical health, sleep, affect and emotion, and ambulation in daily activities.Conclusion: The experience of intensive locomotor training from the perspectives of parents of children who have high physical assistance and equipment needs and the therapists providing the intervention was described. Future studies should consider outcome measures beyond motor capacity to quantify the perceived outcomes of interventions that are meaningful to families.

scholarly journals MOTHERS CARING FOR CHILDREN LIVING WITH CEREBRAL PALSY: SUGGESTIONS FOR PSYCHO-SOCIAL SUPPORT

2021 ◽  
Vol 57 (3) ◽  
Author(s):  
Phumudzo Raphulu ◽  
Modjadji Linda Shirindi ◽  
Mankwane Daisy Makofane
Keyword(s):  
Social Support ◽  
Cerebral Palsy ◽  
Data Analysis ◽  
Qualitative Study ◽  
Social Workers ◽  
Health Professionals ◽  
Snowball Sampling ◽  
Structured Interviews ◽  
Children With Cerebral Palsy ◽  
Thematic Data

Caring for children with cerebral palsy presents numerous circumstances which may contribute to mothers’ inability to cope with the demands of meeting their children’s needs. A qualitative study supported by explorative, descriptive and contextual designs was undertaken. Purposive and snowball sampling facilitated the identification of twelve participants who were interviewed through semi-structured interviews. The enquiry was based on the ecosystems approach. Thematic data analysis was followed through Tesch’s eight steps and Guba’s model was used for data verification. The findings highlighted the necessity to enhance the psycho-social functioning of mothers through collaboration of social workers, health professionals and various organisations.

FATHER'S INVOLVEMENT IN PARENTING CHILDREN WITH CEREBRAL PALSY

2021 ◽  
Vol 2 (2) ◽  
pp. 183-196
Author(s):  
Yubaedi Siron ◽  
Hana Sausan Ningrum ◽  
Lingga Gustiani ◽  
Fauziah Muaz
Keyword(s):  
Cerebral Palsy ◽  
Significant Influence ◽  
Active Role ◽  
Qualitative Approach ◽  
Special Treatment ◽  
Structured Interviews ◽  
High Expectations ◽  
Children With Cerebral Palsy ◽  
Routine Therapy

Cerebral palsy children need special treatment from their parents. The optimal caring from father has a significant influence on the development of children with cerebral palsy. This study aims to explore the role of fathers in caring for children with cerebral palsy. This research uses a qualitative approach. This study uses semi-structured interviews with fathers who have children with cerebral palsy. The results of this study found that fathers play an active role in childcare. Fathers help build good relationships with children by inviting them to play, sing, and read a child's favourite storybook. Even though he is busy at work, the father always tries to fulfil the children's needs such as bathing, eating, giving medication, changing diapers and routine therapy. Each participant in this study had their parenting challenges. Although sometimes the participants feel unwilling to do therapy on children, what makes them enthusiastic is their high expectations.

Early and Intensive Treadmill Locomotor Training for Young Children with Cerebral Palsy

1997 ◽  
Vol 9 (4) ◽  
pp. 158???165 ◽  
Author(s):  
Carol L. Richards ◽  
Francine Malouin ◽  
Francine Dumas ◽  
Sylvie Marcoux ◽  
Celine Lepage ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Young Children ◽  
Locomotor Training ◽  
Children With Cerebral Palsy

scholarly journals Evaluation of an Item Bank for a Computerized Adaptive Test of Activity in Children With Cerebral Palsy

2009 ◽  
Vol 89 (6) ◽  
pp. 589-600 ◽  
Author(s):  
Stephen M. Haley ◽  
Maria A. Fragala-Pinkham ◽  
Helene M. Dumas ◽  
Pengsheng Ni ◽  
George E. Gorton ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Computer Simulations ◽  
Computerized Adaptive Testing ◽  
Item Bank ◽  
Activity Level ◽  
Convenience Sample ◽  
Computerized Adaptive Test ◽  
Adaptive Test ◽  
Children With Cerebral Palsy ◽  
Stop Rules

Background: Contemporary clinical assessments of activity are needed across the age span for children with cerebral palsy (CP). Computerized adaptive testing (CAT) has the potential to efficiently administer items for children across wide age spans and functional levels. Objective: The objective of this study was to examine the psychometric properties of a new item bank and simulated computerized adaptive test to assess activity level abilities in children with CP. Design: This was a cross-sectional item calibration study. Methods: The convenience sample consisted of 308 children and youth with CP, aged 2 to 20 years (X=10.7, SD=4.0), recruited from 4 pediatric hospitals. We collected parent-report data on an initial set of 45 activity items. Using an Item Response Theory (IRT) approach, we compared estimated scores from the activity item bank with concurrent instruments, examined discriminate validity, and developed computer simulations of a CAT algorithm with multiple stop rules to evaluate scale coverage, score agreement with CAT algorithms, and discriminant and concurrent validity. Results: Confirmatory factor analysis supported scale unidimensionality, local item dependence, and invariance. Scores from the computer simulations of the prototype CATs with varying stop rules were consistent with scores from the full item bank (r=.93–.98). The activity summary scores discriminated across levels of upper-extremity and gross motor severity and were correlated with the Pediatric Outcomes Data Collection Instrument (PODCI) physical function and sports subscale (r=.86), the Functional Independence Measure for Children (Wee-FIM) (r=.79), and the Pediatric Quality of Life Inventory–Cerebral Palsy version (r=.74). Limitations: The sample size was small for such IRT item banks and CAT development studies. Another limitation was oversampling of children with CP at higher functioning levels. Conclusions: The new activity item bank appears to have promise for use in a CAT application for the assessment of activity abilities in children with CP across a wide age range and different levels of motor severity.

scholarly journals Bagaimana menjadi orang tua anak dengan cerebral palsy? A parent acceptance

2020 ◽  
Vol 3 (2) ◽  
pp. 90-104
Author(s):  
Yubaedi Siron ◽  
Veda Ria Perdana ◽  
Sri Rahayu Saputri ◽  
Dewi Nur Hanifah
Keyword(s):  
Down Syndrome ◽  
Cerebral Palsy ◽  
Data Collection ◽  
Qualitative Approach ◽  
Parental Acceptance ◽  
Phenomenological Method ◽  
Essential Factor ◽  
Structured Interviews ◽  
Children With Cerebral Palsy ◽  
Data Collection Technique

Parents who have down syndrome children find it challenging to accept the presence in their early stages of life, even though parental acceptance becomes the primary factor of the successful parenting of children with cerebral palsy. This study aims to describe the acceptance of parents who have children with cerebral palsy. This study uses a qualitative approach using the phenomenological method for revealing the phenomenon of parents' compliance with cerebral palsy children. The data collection technique uses structured interviews involving 5 participants. The results of this study indicated that parents are trying to accept the child's condition by being grateful, surrendering, socializing, and sharing information with fellow parents of children with cerebral palsy. Support from the closest relatives and friends is an essential factor that makes the process of acceptance easier for parents to undertake.

scholarly journals A qualitative study to conceptualize levels of awareness, acceptance and expectations in parents of children with cerebral palsy in Gujarat, India

2018 ◽  
Vol 5 (2) ◽  
pp. 442
Author(s):  
Vivek H. Ramanandi ◽  
Maitry D. Jayswal ◽  
Dhara N. Panchal
Keyword(s):  
Cerebral Palsy ◽  
Care Program ◽  
Family Centered Care ◽  
Structured Interviews ◽  
Rehabilitation Team ◽  
Wide Range ◽  
Children With Cerebral Palsy ◽  
Centered Care ◽  
Family Centered

Background: Caring for a child with a disability presents a multifaceted challenge for managing and coping with the child’s functional limitations and possible long term dependence to the caregiver and family. A wide range of psychosocial problems are experienced by the parents of children with CP. As an important member of the rehabilitation team, Physiotherapists comes in regular and long term contact with family and care givers of the CP child. This increase responsibilities of a physiotherapist from more than just dealing with sensory-motor rehabilitation of a CP child to understand need and expectations and guide/counsel the caregiver, parents or family as and when needed. Studies like this can provide valuable information for designing a family centered care program for children with CP. Objective of present study was to identify the main concepts which represent levels of awareness, acceptance and their expectations in parents of children with cerebral palsy in Gujarat.Methods: Qualitative research design using in-depth semi structured interviews was used for the study. Total 21 parents were selected using purposive sampling and were interviewed till data saturation was achieved. The main descriptive elements regarding their levels of awareness, acceptance and expectations were extracted using content analysis method.Results: Common themes such as disturbed social relationships, health problems, financial problems, worries about future of the child, need for more support services, and lack of adequate number of trained physiotherapists were experienced by the parents.Conclusions: A wide range of experiences were described by the parents of children with CP. Studies like this can provide valuable information for improving depth and quality of rehabilitation services by a physiotherapist through a family centered care program for children with CP. 

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