Influence of pain on daily life of people with venous ulcers: evidence-based practice

ABSTRACT Objective: to evaluate the available evidence on the impact of pain on daily life of people with venous ulcers. Method: this is a study of integrative review followed the following steps: establishing the hypothesis and objectives, establishing criteria for inclusion or exclusion of articles, defining the information to be extracted from the selected items, results analysis, discussion and presentation of results. To select the articles we used three databases, Medline, Cinahl and ISI Web of Knowledge and the sample consisted of 18 articles. Results: in the works that were analyzed showed evidence that the pain of venous ulcers influences the patient's daily life. Among people with venous ulcers, we found that the pain is a major aggravating to decreased quality of life, especially as regards the loss of mood, sleep disturbance, social isolation and loss of physical mobility. Conclusion: The pain of the wound can lead to a huge impact on the daily life of a person and, as such, the need of each patient must be acknowledged and considered in a holistic manner. Descriptors: venous ulcers; quality of life; pain; nursing. RESUMOObjetivo: avaliar as evidências disponíveis sobre a influência da dor na vida diária da pessoa com úlcera venosa. Método: trata-se de um estudo de revisão integrativa obedeceu às seguintes etapas: estabelecimento da hipótese e objetivos; estabelecimento de critérios de inclusão e exclusão de artigos; definição das informações a serem extraídas dos artigos selecionados; análise dos resultados; discussão e apresentação dos resultados. Para a seleção dos artigos utilizou-se três bases de dados, Medline, Cinahl e Isi Web Of Knowledge e a amostra constituiu-se de 18 artigos. Resultados: nos trabalhos que foram analisados evidenciamos que a dor da úlcera venosa influencia na vida diária do paciente. Dentre as pessoas com úlcera venosa, verificamos que a dor é um dos grandes agravantes para a diminuição da qualidade de vida, principalmente no que diz respeito a perda do humor, distúrbios do sono, isolamento social e perda da mobilidade física. Conclusão: a dor da ferida pode levar a um enorme impacto na vida de uma pessoa diariamente e, como tal, a necessidade de cada paciente deve ser reconhecida e considerada de maneira holística. Descritores: úlcera venosa; qualidade de vida; dor; enfermagem.RESUMENObjetivo: evaluar la evidencia disponible sobre el impacto del dolor en la vida cotidiana de las personas con úlceras venosas. Método: se trata de un estudio de revisión integradora seguido los siguientes pasos: el establecimiento de la hipótesis y objetivos, el establecimiento de los criterios para su inclusión o exclusión de los artículos, la definición de la información que se extrae de los elementos seleccionados, la análisis de resultados, discusión y presentación de resultados. Para seleccionar los artículos que utilizaron tres bases de datos, Medline, CINAHL y el ISI Web of Knowledge y la muestra estuvo constituida por 18 artículos. Resultados: en las obras que fueron analizados mostraron evidencia de que el dolor de las úlceras venosas influye en la vida diaria del paciente. Entre las personas con úlceras venosas, se encontró que el dolor es una de las principales agravantes de disminución de la calidad de vida, especialmente en lo que respecta a la pérdida del estado de ánimo, trastornos del sueño, aislamiento social y pérdida de movilidad física. Conclusión: el dolor de la herida puede causar un gran impacto en la vida cotidiana de una persona y, como tal, la necesidad de cada paciente debe ser reconocida y considerada en forma integral. Descriptores: úlceras venosas; calidad de vida; dolor; enfermería.

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Percepciones de los residentes sobre el turismo deportivo: impactos, calidad de vida y apoyo al sector

Cuadernos de Psicología del Deporte ◽

10.6018/cpd.388431 ◽

2020 ◽

Vol 20 (2) ◽

pp. 174-188

Author(s):

Rómulo Jacobo González-garcía ◽

Paloma Escamilla-Fajardo ◽

Samuel López-Carril ◽

Juan Nuñez-Pomar

Keyword(s):

Quality Of Life ◽

Mediating Effect ◽

Gran Canaria ◽

Social Actors ◽

Calidad De Vida ◽

Tourism Sector ◽

Sports Tourism ◽

Relationship Of ◽

The Impact

El sector del turismo deportivo recibe cada vez una mayor atención por parte de los distintos agentes sociales, teniendo un alto impacto en distintas esferas de la sociedad. El turismo no sólo afecta a las actitudes de los residentes hacia su desarrollo, sino también a su calidad de vida en general. Una vez que una comunidad o población se convierte en un destino turístico, la calidad de vida de los residentes locales se ve afectada por el desarrollo del mismo. Por consiguiente, es relevante conocer cuáles son las percepciones de los residentes respecto al impacto que causa el turismo deportivo. Por ello, el objetivo del presente estudio es analizar las percepciones de los residentes de Gran Canaria hacia los efectos del turismo deportivo, en ámbitos como su impacto, la calidad de vida y el apoyo al sector. Los resultados del estudio indican que, a mayores niveles de percepción positivos de los residentes sobre los impactos sociales, culturales, ambientales y económicos, hay un mayor apoyo hacia el desarrollo del turismo. Por otra parte, también se produce un efecto mediador significativo de la variable calidad de vida de los residentes, entre la relación de impactos percibidos y el apoyo al desarrollo del turismo activo y deportivo en Gran Canaria. Estos resultados posibilitan un mejor entendimiento de la perspectiva que los residentes tienen hacía el sector turístico deportivo, algo que puede ayudar a orientar futuras decisiones sobre la práctica, desarrollo y planificación del turismo deportivo. The sports tourism sector is receiving increasing attention from different social actors, having a high impact on different spheres of society. Tourism not only affects residents' attitudes towards their development, but also their quality of life in general. Once a community or population becomes a tourist destination, the quality of life of local residents is affected by its development. It is therefore important to know what residents' perceptions are of the impact of sports tourism. Therefore, the aim of this study is to analyse the perceptions of the residents of Gran Canaria towards the effects of sports tourism, in areas such as its impact, quality of life and support for the sector. The results of the study indicate that, at higher levels of positive perception by residents of the social, cultural, environmental and economic impacts, there is greater support for the development of tourism. On the other hand, there is also a significant mediating effect of the variable quality of life of the residents, between the relationship of perceived impacts and the support for the development of active and sports tourism in Gran Canaria. These results make it possible to better understand the perspective that residents have towards the sports tourism sector, something that can help guide future decisions on the practice, development and planning of sports tourism. O sector do turismo desportivo está a receber cada vez mais atenção por parte de diferentes actores sociais, tendo um elevado impacto em diferentes esferas da sociedade. O turismo não afecta apenas as atitudes dos residentes em relação ao seu desenvolvimento, mas também a sua qualidade de vida em geral. Uma vez que uma comunidade ou população se torna um destino turístico, a qualidade de vida dos residentes locais é afectada pelo seu desenvolvimento. Por conseguinte, é importante conhecer a percepção que os residentes têm do impacto do turismo desportivo. Portanto, o objectivo deste estudo é analisar as percepções dos residentes da Gran Canária sobre os efeitos do turismo desportivo, em áreas como o seu impacto, qualidade de vida e apoio ao sector. Os resultados do estudo indicam que, em níveis mais elevados de percepção positiva dos residentes sobre os impactos sociais, culturais, ambientais e econômicos, há maior apoio para o desenvolvimento do turismo. Por outro lado, existe também um efeito mediador significativo da variável qualidade de vida dos residentes, entre a relação de impactos percebidos e o apoio ao desenvolvimento do turismo ativo e desportivo na Gran Canária. Estes resultados permitem compreender melhor a perspectiva que os residentes têm em relação ao sector do turismo desportivo, algo que pode ajudar a orientar futuras decisões sobre a prática, desenvolvimento e planeamento do turismo desportivo. Il settore del turismo sportivo sta ricevendo un'attenzione crescente da parte di diversi attori sociali, con un forte impatto sulle diverse sfere della società. Il turismo influenza non solo l'atteggiamento dei residenti nei confronti del loro sviluppo, ma anche la loro qualità di vita in generale. Una volta che una comunità o una popolazione diventa una destinazione turistica, la qualità della vita dei residenti locali è influenzata dal suo sviluppo. È quindi importante sapere quali sono le percezioni dei residenti sull'impatto del turismo sportivo. Pertanto, l'obiettivo di questo studio è quello di analizzare le percezioni degli abitanti di Gran Canaria nei confronti degli effetti del turismo sportivo, in settori quali l'impatto, la qualità della vita e il sostegno al settore. I risultati dello studio indicano che, a livelli più elevati di percezione positiva da parte dei residenti degli impatti sociali, culturali, ambientali ed economici, vi è un maggiore sostegno allo sviluppo del turismo. D'altra parte, c'è anche un significativo effetto mediatore della variabile qualità della vita dei residenti, tra la relazione degli impatti percepiti e il sostegno allo sviluppo del turismo attivo e sportivo a Gran Canaria. Questi risultati permettono di comprendere meglio la prospettiva che i residenti hanno nei confronti del settore del turismo sportivo, cosa che può aiutare a guidare le future decisioni sulla pratica, lo sviluppo e la pianificazione del turismo sportivo.

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Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature

Health and Quality of Life Outcomes ◽

10.1186/s12955-021-01819-4 ◽

2021 ◽

Vol 19 (1) ◽

Author(s):

R. Shah ◽

F. M. Ali ◽

A. Y. Finlay ◽

M. S. Salek

Keyword(s):

Quality Of Life ◽

Family Members ◽

Unmet Need ◽

Reliability And Validity ◽

Chronic Health Condition ◽

Family Quality Of Life ◽

Good Reliability ◽

Huge Impact ◽

The Impact

Abstract Background A person’s chronic health condition or disability can have a huge impact on the quality of life (QoL) of the whole family, but this important impact is often ignored. This literature review aims to understand the impact of patients' disease on family members across all medical specialities, and appraise existing generic and disease-specific family quality of life (QoL) measures. Methods The databases Medline, EMBASE, CINHAL, ASSIA, PsycINFO and Scopus were searched for original articles in English measuring the impact of health conditions on patients' family members/partner using a valid instrument. Results Of 114 articles screened, 86 met the inclusion criteria. They explored the impact of a relative's disease on 14,661 family members, mostly 'parents' or 'mothers', using 50 different instruments across 18 specialities including neurology, oncology and dermatology, in 33 countries including the USA, China and Australia. These studies revealed a huge impact of patients' illness on family members. An appraisal of family QoL instruments identified 48 instruments, 42 disease/speciality specific and six generic measures. Five of the six generics are aimed at carers of children, people with disability or restricted to chronic disease. The only generic instrument that measures the impact of any condition on family members across all specialities is the Family Reported Outcome Measure (FROM-16). Although most instruments demonstrated good reliability and validity, only 11 reported responsiveness and only one reported the minimal clinically important difference. Conclusions Family members' QoL is greatly impacted by a relative's condition. To support family members, there is a need for a generic tool that offers flexibility and brevity for use in clinical settings across all areas of medicine. FROM-16 could be the tool of choice, provided its robustness is demonstrated with further validation of its psychometric properties.

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The impact of symptoms on daily life as perceived by patients with Charcot-Marie-Tooth type 1A disease

Neurological Sciences ◽

10.1007/s10072-021-05254-7 ◽

2021 ◽

Author(s):

Stefano Tozza ◽

Dario Bruzzese ◽

Daniele Severi ◽

Emanuele Spina ◽

Rosa Iodice ◽

...

Keyword(s):

Quality Of Life ◽

Daily Life ◽

Short Form ◽

Lower Limbs ◽

Charcot Marie Tooth ◽

Rank Analysis ◽

Sf 36 ◽

Tooth Type ◽

The Impact

Abstract Introduction In Charcot-Marie-Tooth type 1A (CMT1A) patients, daily life is mainly influenced by mobility and ambulation dysfunctions. The aim of our work was to evaluate the perception of disturbances that mostly impact on daily life in CMT1A patients and its difference on the basis of age, gender, disability, and quality of life. Methods Forty-one CMT1A patients underwent neurological assessment focused on establishing clinical disability through the Charcot-Marie-Tooth Neuropathy Score (CMTNS) and quality of life through the Short Form-36 (SF-36) questionnaire. We identified from CMT disturbances 5 categories [weakness in lower limbs (WLL), weakness in upper limbs (WUL), skeletal deformities (SD), sensory symptoms (SS), balance (B)] and patients classified the categories from the highest to the lowest impact on daily life (1: highest; 5: lowest). Ranking of the 5 categories, in the overall sample and in the different subgroups (dividing by gender, median of age and disease duration, CMTNS, domains of SF-36), was obtained and differences among subgroups were assessed using a bootstrap approach. Results Rank analysis showed that WLL was the most important disturbance on daily life whereas WUL had the lowest impact. In the older CMT1A group, the most important disturbance on daily life was B that was also the most relevant disturbance in patients with a greater disability. SD influenced daily life in younger patients. SS had less impact on daily life, with the exception of patients with a milder disability. Discussion Our findings demonstrated that the perception of disturbances that mostly impact on CMT1A patients’ daily life changes over the lifetime and with degree of disability.

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El impacto de la valoración de la importancia en la evaluación de la calidad de vida en adolescentes chilenos

Universitas Psychologica ◽

10.11144/javeriana.upsy14-2.iisr ◽

2015 ◽

Vol 14 (2) ◽

pp. 723

Author(s):

Alfonso Urzúa ◽

Alejandra Caqueo-Urízar ◽

María Fernanda Bravo ◽

Karen Carvajal ◽

Claudio Vera

Keyword(s):

Quality Of Life ◽

Self Report ◽

State Universities ◽

Quantitative Methodology ◽

The North ◽

Calidad De Vida ◽

Gender And Age ◽

The Impact ◽

The City

While self-report of overall quality of life has been widely examined, there are no studies that explore the impact of the relative importance people give to the various categories of their quality of life. Therefore, with a quantitative methodology and a co-relational transverse design, we analyze differences in the assessment when the importance given to each category is evaluated. Participants were 530 students from the city of Antofagasta in the North of Chile, aged between 15 and 18 years. They were from subsidized, public secondary schools and private and state universities in the city who were assessed using the KIDSCREEN-27 questionnaire. Results: Differences were found in the assessment of categories when results were analyzed based on gender and age and when incorporating an assessment of importance. Even when the results were not conclusive, there was evidence of a need to incorporate an importance variable when assessing quality of life.

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Malignant Bowel Obstruction in Advanced Gynecologic Cancers: An Updated Review from a Multidisciplinary Perspective

Obstetrics and Gynecology International ◽

10.1155/2018/1867238 ◽

2018 ◽

Vol 2018 ◽

pp. 1-10 ◽

Cited By ~ 5

Author(s):

Yeh Chen Lee ◽

Nazlin Jivraj ◽

Catherine O’Brien ◽

Tanya Chawla ◽

Eran Shlomovitz ◽

...

Keyword(s):

Quality Of Life ◽

Bowel Obstruction ◽

Treatment Guidelines ◽

Clinical Trial Design ◽

Major Complication ◽

Evidence Based ◽

Malignant Bowel Obstruction ◽

Gynecologic Cancers ◽

The Impact

Malignant bowel obstruction (MBO) is a major complication in women with advanced gynecologic cancers which imposes a significant burden on patients, caregivers, and healthcare systems. Symptoms of MBO are challenging to palliate and result in progressive decompensation of already vulnerable patients with limited therapeutic options and a short prognosis. However, there is a paucity of guidelines or innovative approaches to improve the care of women who develop MBO. MBO is a complex clinical situation that requires a multidisciplinary approach to ensure the appropriate treatment modality and interprofessional care to optimally manage these patients. This review summarizes the current literature on the different approaches targeting MBO management including surgical intervention, chemotherapy, total parenteral nutrition, and pharmacological treatment. In addition, the impact of MBO management on patients’ quality of life (QOL) is examined. This article focuses on the challenges in developing evidence-based treatment guidelines for MBO and barriers in clinical trial design for MBO and proposes strategies to advance the MBO management. Collaboration is essential to design studies that may improve the overall care and quality of life for these patients. Prospective data are needed to inform clinical practice, establish a new benchmark for evidence-based MBO management, and better understand the biology of MBO.

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THE IMPACT OF COGNITIVE IMPAIRMENT AFTER STROKE ON QUALITY OF LIFE AND DAILY LIFE ACTIVITIES

International journal of Research science and Management - September-2020 ◽

10.29121/ijrsm.v7.i8.2020.2 ◽

2020 ◽

Vol 7 (8) ◽

pp. 6-11

Keyword(s):

Quality Of Life ◽

Cognitive Impairment ◽

Daily Living ◽

Daily Life ◽

Cross Sectional Study ◽

Cross Sectional ◽

Post Stroke ◽

Daily Life Activities ◽

The Impact

Stroke is a major cause of death and disability worldwide. Cognitive impairment is commonly seen after stroke and might significantly affect the functional outcome. The study aimed to investigate the impact of cognitive impairment after stroke on quality of life and daily life activities. This was a cross-sectional study involving 38 post stroke patients, consisted of 23 males (60.5%) and 15 females (39.5%). All patients underwent neuropsychology examination and assessment of quality of life and activity daily living. The proportion of post-stroke cognitive impairment was 44.7%. Cognitive impairment after stroke affects several domains, including attention, memory, executive function and visuospatial. Cognitive impairment was significantly associated with worse performance in daily life activities

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Calidad de vida en pacientes con fibromialgia. Revisión bibliográfica

ENE 2018 - Revista Española de Enfermería de Salud Mental ◽

10.35761/reesme.2019.8.02 ◽

2019 ◽

pp. 4-10

Author(s):

Carla Del Olmo Climent ◽

María Cuerda Ballester ◽

David Sancho Cantus

Keyword(s):

Quality Of Life ◽

Sedentary Lifestyle ◽

Fibromyalgia Impact Questionnaire ◽

State Of Health ◽

Level Of Education ◽

Calidad De Vida ◽

Comprehensive Knowledge ◽

Observational Design ◽

The Impact

Abstract Objective: To describe the impact of fibromyalgia on the state of health and quality of life of people affected by fibromyalgia (FM). Method: Literature review of studies on the quality of life related to health in people with FM, evaluated with validated instruments. Results: Thirty-one studies were analyzed, which were mainly of transversal observational design. The most affected dimensions were physical function, pain and mental state. The factors like sedentary lifestyle and physical activity were significant in this population. The prevalence of Fibromyalgia was significantly higher in women, married, with low level of education and housewives. The most used instrument to measure quality of life related to health was the Fibromyalgia Impact Questionnaire (FIQ). Conclusions: the parameters studied have allowed to assess the needs of patients and achieve a more comprehensive knowledge of the process of this disease. Keywords: fibromyalgia, quality of life, pain, rheumatic diseases.

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Evidence-Based Minireview: Abnormal uterine bleeding in users of rivaroxaban and apixaban

Hematology ◽

10.1182/hematology.2020000166 ◽

2020 ◽

Vol 2020 (1) ◽

pp. 538-541

Author(s):

Amanda E. Jacobson-Kelly ◽

Bethany T. Samuelson Bannow

Keyword(s):

Quality Of Life ◽

Observational Studies ◽

Oral Anticoagulants ◽

Abnormal Uterine Bleeding ◽

Uterine Bleeding ◽

Evidence Based ◽

Substantial Impact ◽

Menstruating Women ◽

The Impact

Abstract Up to two-thirds of menstruating women experience abnormal uterine bleeding (AUB) when treated with oral anticoagulants. However, the true prevalence of AUB for specific agents remains uncertain, as many of these episodes, while interfering significantly with quality of life and overall health, are not captured by definitions of major bleeding (MB) or clinically relevant nonmajor bleeding (CRNMB) used in clinical trials. A 2017 systematic review determined that women taking rivaroxaban, but not edoxaban or apixaban, had a twofold higher risk of AUB than women taking warfarin. Since then, new data have become available from extension trials, cancer-associated venous thromboembolism trials, pediatric trials, and a few observational studies specifically examining AUB as an outcome. Reported rates of uterine CRNMB were low (around 1%) and similar for rivaroxaban and apixaban in all these studies, and no episodes of uterine bleeding meeting MB criteria were reported. Rates of AUB not meeting MB or CRNMB criteria were much higher, affecting up to 50% of women on rivaroxaban. Only 1 such study included women on apixaban, and no AUB was reported. In pediatric trials, 19% of girls experienced menorrhagia when treated with rivaroxaban. In conclusion, rates of uterine MB and CRNMB were low in all studies, but rates of other types of AUB not meeting these criteria ranged from 15.8% to 50%. We conclude that AUB is underreported due to the limitations of MB/CRNMB criteria despite its substantial impact on quality of life. We urge future investigators to include broader definitions of AUB to better capture the impact of this outcome in menstruating women treated with oral anticoagulants.

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Clinic risk associated with comorbidity of (subclinical) psychosis, anxiety and depressive symptoms: A case for stratified medicine in psychiatry

European Psychiatry ◽

10.1016/j.eurpsy.2016.01.913 ◽

2016 ◽

Vol 33 (S1) ◽

pp. S49-S49 ◽

Cited By ~ 1

Author(s):

M. van Nierop ◽

I. Myin-Germeys ◽

R. van Winkel

Keyword(s):

Quality Of Life ◽

Social Functioning ◽

Childhood Trauma ◽

Life Stress ◽

Stress Reactivity ◽

Daily Life ◽

Clinical Severity ◽

Psychotic Symptoms ◽

The Impact

BackgroundMeta-analyses link childhood trauma to depression, mania, anxiety, and psychosis. It is unclear, however, whether these outcomes truly represent distinct disorders following childhood trauma, or that childhood trauma is associated with admixtures of affective, psychotic, anxiety and manic psychopathology throughout life.AimTo investigate the impact of trauma on psychopathological phenotype, functional outcome, and daily life stress reactivity.MethodsWe used data from a representative general population sample (NEMESIS-2; n = 6646), of whom respectively 1577 and 1120 had a lifetime diagnosis of mood or anxiety disorder, as well as from a sample of patients with a diagnosis of schizophrenia (GROUP; n = 825). Multinomial logistic regression was used to assess whether childhood trauma was more strongly associated with isolated affective/psychotic/anxiety/manic symptoms than with their admixture. Additionally, we examined these groups in terms of social functioning, clinical severity, and quality of life. In a separate sample (n = 621), daily life (emotional and cortisol) stress reactivity was assessed, using ambulatory assessment.ResultsIn all samples, childhood trauma was considerably more strongly associated with an admixture of symptoms of depression, anxiety, psychosis, and mania, rather than with these symptoms in isolation. Individuals exposed to childhood trauma, who also had an admixture of symptoms, had a lower quality of life, more help-seeking behaviour, higher prevalence of substance use disorders, and lower social functioning, compared with individuals not exposed to trauma, without an admixture of symptoms, or neither. Furthermore, trauma-exposed individuals with an admixed psychopathological phenotype show a higher daily emotional stress reactivity.ConclusionChildhood trauma increases the likelihood of a specific admixture of affective, anxiety and psychotic symptoms cutting across traditional diagnostic boundaries. Stratifying according to childhood trauma exposure thus identifies an admixed phenotype, possibly induced by continuous daily life stress reactivity, that has important clinical relevance. Identification of functionally meaningful aetiological subgroups may aid clinical practice.Disclosure of interestThe authors have not supplied their declaration of competing interest.

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