scholarly journals Pengalaman Orang Tua dalam Merawat Anak Berkebutuhan Khusus : Literature Review

2021 ◽  
Vol 3 (1) ◽  
pp. 19-25
Author(s):  
Adisty Archi Artamevia Putri ◽  
Badrul Munif ◽  
Fransiska Erna D ◽  
Aulia Amalia ◽  
Ayu Ratna Ningrum ◽  
...  

Introduction: The presence of a child in the family is certainly very encouraging for parents. However, it is different from parents who have children with special needs. Children with special needs need different treatment from other children. This of course raises different experiences for each parent in their care. Objective: This study was to determine the psychosocial experience of parents in caring for children with special needs. Method: The method used in this paper is a literature review. With library sources, namely journal articles published in the 2020-2021 period which are full text. Search for journal articles using the Google Schoolar database with the keyword experience; parent; nurse; the child with special needs. Results: This study found 1,500 journal articles which the researchers then took according to the specified criteria, obtained as many as 10 articles. 10 articles reviewed by researchers found 3 journal articles on experiences of parents who can accept the condition of children with special needs and 7 articles found experiences of parents who have psychosocial problems in caring for children with special needs. Conclusion: This literature review found that the experience of parents in caring for children with special needs is divided into two where there are parents who can accept their child's condition sincerely and parents who experience psychosocial problems in the care of children with special needs such as stress, inferiority, shock, rejection, etc. How parents respond to their children with special needs is influenced by many factors such as age, environment, knowledge, etc.

2018 ◽  
Vol 2 (1) ◽  
pp. 31
Author(s):  
P.R Ujianti

To have children with special needs is a challenge for parents. Acceptance on the children condition is the main key in determining attitudes and taking steps needed for optimizing the children’s growth and development. Unfortunately, many parents experience obstructions in accepting the condition of their children. This results in conflict within the parents themselves, with their spouses, or with other members of the family. This acceptance process itself has to go through several stages, namely denial, bargaining, anger, depression and acceptance. Many parents live in denial and anger before they can accept their children’s condition. Parents’ knowledge and understanding about their children’s special needs is one of the supporting factors which lead to acceptance. Yet the fact is, many parents especially from the middle and lower classes lack of information and believe more in superstitions in society. This fact surely hinders the steps needed to accept their children’s special condition and take proper care of them. The presence of support group which consist of parents of children with special needs and those concerned in the development of special needs children is a place for comfort, emotional release and information exchange for the parents. 


1992 ◽  
Vol 59 (3) ◽  
pp. 151-158 ◽  
Author(s):  
Anita M. Unruh

Siblings of children with special needs have received little attention in the occupational therapy literature. However, siblings play an important role in the development of children with special needs. Siblings are also at risk for problems of emotional adjustment that have an impact on their own well-being as well as the well-being of the family. The research on siblings of special needs children is reviewed and followed by a description of the Ottawa Children's Treatment Centre sibling programme.


Author(s):  
Ujang Khiyarusoleh

ABSTRAK Penelitian ini dilatarbelakangi oleh adanya pendidikan yang diperuntukkan bagi semua anak, termasuk anak berkebutuhan khusus. Anak berkebutuhan khusus memiliki karakter yang berbeda-beda, khususnya slow learner dalam pembelajaran mengalami keterlambatan dalam memahami materi. Oleh karena itulah diperlukan peran orangtua dan guru pembimbing khusus untuk membantu memberikan pendidikan yang lebih baik sesuai dengan karakternya. Rumusan masalah penelitian ini yaitu bagaimana peran orangtua dan guru pembimbing khusus kepada slow learner di SD Negeri 5 Arcawinangun. Tujuan penelitian ini yaitu untuk mengetahui peran orangtua dan guru pembimbing khusus kepada slow learner di SD Negeri 5 Arcawinangun. Jenis penelitian ini yaitu penelitian kualitatif dengan pendekatan studi kasus. Teknik pengumpulan data yang digunakan adalah observasi, wawancara, dokumentasi dan triangulasi sumber. Hasil penelitian ini menunjukan bahwa terdapat beberapa peran orangtua yaitu meliputi: orangtua sebagai pendamping utama, orangtua sebagai advokat, orangtua sebagai guru, orangtua sebagai diagnostian. Serta peran guru pembimbing khusus yang meliputi: merancang dan melaksanakan program kekhususan, melakukan identifikasi, asesmen dan menyususn program pembelajaran individual, memodifikasi bahan ajar, melakukan evaluasi, dan membuat laporan program dan perkembangan anak berkebutuhan khusus. Dengan peran peran tersebut, maka sebagian besar anak berkebutuhan khusus di SD Negeri 5 Arcawinangun dapat memberikan layanan dengan baik. Saran untuk penelitian ini orangtua senantiasa mendorong anaknya untuk belajar bersungguh-sungguh di rumah dan di skolah, serta menyediakan fasilitas belajar yang mendukung perkembangan pendidikan bagi anaknya. Kata Kunci: peran guru pembimbing khusus, peran orangtua, slow learner   ABSTRACT Background of the study was the existence of education aimed at all children, including children with special needs. Children with special needs have different characters, thus affecting their learning achievement. Therefore, the role of parents and special tutors were needed to help them improve learning achievement. The research question of this research was how the role of parents and special guidance teachers towards learning achievement of children with special needs in SD Negeri 5 Arcawinangun. The focus of this research was the role of parents and special guidance teachers on learning achievement of children with special needs in grades 1, 2 and 3 of SD Negeri 5 Arcawinangun. The purpose of this study was to determine the role of parents and special guidance teachers on the learning achievement of children with special needs in Arcawinangun 5 Public Elementary School. This type of research was qualitative research with a case study approach. Technique of data collection was observation, interviews, documentation and source triangulation. The results of this research indicated that there were several roles of parents, namely: parents as the main companion, parents as advocates, parents as teachers, parents as diagnostics. As well as the role of a special mentor teacher which includes: designing and implementing specific programs, identifying, assessing and arranging individual learning programs, modifying teaching materials, evaluating, and making program reports and development of children with special needs.With this role, most of the children with special needs in SD Negeri 5 Arcawinangun can improve their learning achievement well.Suggestions of this research were parents always encourage their children to study seriously at home and at school, and provide learning facilities that support the development of education for their children. Keywords: role of parents, role of special guidance teachers, slow learner


2020 ◽  
Vol 1 (7) ◽  
pp. 152-158
Author(s):  
N. M. BURYKINA ◽  

This article discusses the role of the family in the social development of children with special needs in an inclusive educational environment, in connection with which the study addresses a new aspect of the interaction between the teacher and the child’s family, the interaction of the teacher (teacher) and parents of children with developmental disabilities is highlighted in a variety of areas, students in secondary schools or attending kindergartens. The purpose of the study is to assess the role of the family in the adaptation of children with developmental disabilities, studying in secondary schools or attending kindergartens. To achieve this goal, the author defines a range of research tasks: to study the historical and philosophical foundations of the role of the family in raising children with special needs; highlight the role of the family in implementing early intervention programs in secondary schools; substantiate the main stages that any school must go through, striving to create a more fruitful relationship between the school, family and community. The author stated the following results as a scientific novelty: general recommendations have been developed so that parents feel confident, competent and can work more productively together with teachers (educators) when children visit kindergarten groups (classes). As a result of the study, the author came to the conclusion that the process of teaching children with special needs in a comprehensive school is most effective in the interaction of the teacher and the family of the child.


2022 ◽  
pp. 123-138
Author(s):  
Orly Idan ◽  
Orna Braun-Lewensohn ◽  
Bengt Lindström ◽  
Malka Margalit

AbstractIn this chapter on salutogenesis and sense of coherence (SOC) in families and children, the authors deal with the contributions of children’s environments to the adjustment of children with typical development, and the development of children with special needs. The authors report on their comprehensive literature review covering 20 years of research and 44 studies from 15 countries, including children from infants and toddlers through preschool to school-aged children up to 12 years of age.


2019 ◽  
Vol 12 (1) ◽  
pp. 55
Author(s):  
Melda Rumia Rosmery Simorangkir

ABSTRACT A happiness when a woman in a family gives birth. Moreover, the baby who wasborn has been waiting long enough. However, sometimes what is expected byhumans is not always the same as what was presented by the creator. Thenwhat if it turns out that children who are present in the family are specialchildren? These children need special attention due to physical and mentaldisorders. Not a few parents must have children with special needs (ABK)confused, shocked or even blame each other. This is certainly not something thatis expected from children. ABK requires education, attention, assistance, speciallearning methods. Thus ABK parents must get special assistance so that theycan accept their child and educate the child with great attention and love. ABKparents must be assisted from early childhood, so that education and care aremore optimal. Counseling for ABK parents is done so parents do not feel alone,not ashamed, willing to accept and have a great readiness to accompany theirchildren in the future. The counselor is expected to be able to help ABK's parentsby providing counseling services specifically to guide parents. The guidance alsoserves to help parents provide alternative education and therapy that can begiven to children with special needs from an early age. Keywords: children with special needs, counselling, and guidance ABSTRAK Sebuah kebahagian ketika seorang perempuan dalam sebuah keluargamelahirkan. Apalagi buah hati yang dilahirkan telah ditunggu cukup lama.Namun, terkadang apa yang diharapkan manusia tidak selalu sama dengan apayang dihadirkan oleh pencipta. Lalu bagaimana apabila ternyata anak yang hadirdalam keluarga adalah anak yang special?. Anak tersebut memerlukan perhatiankhusus baik disebabkan kelainan fisik maupun mental. Tidak sedikit Orangtuaharus anak berkebutuhan khusus (ABK) mengalami kebingungan, kaget ataubahkan saling menyalahkan. Hal ini tentu bukan hal yang diharapkan dari anak.ABK memerlukan pendidikan, perhatian, bantuan, metode belajar khusus.Demikian orangtua ABK harus mendapatkan pendampingan khusus agarmereka bisa menerima anak mereka dan mendidik anak tersebut dengan penuhperhatian dan cinta yang besar. Orangtua ABK harus dibantu sejak anak usiadini, agar pendidikan dan pengasuhan lebih optimal. Konseling bagi orangtuaABK dilakukan agar orang tua tidak merasa sendiri, tidak malu, mau menerimadan memiliki kesiapan hati yang besar untuk mendampingi anak mereka dikemudian hari. Konselor di harapkan mampu menolong orang tua ABK denganmemberikan layanan-layan konseling khususnya membimbing orangtua.Bimbingan tersebut juga berfungsi untuk membantu orangtua memberikanalternatif pendidikan dan terapi yang dapat diberikan pada anak berkebutuhankhusus sejak usia dini. Kata kunci: anak berkebutuhan khusus konseling, dan bimbingan


2018 ◽  
Vol 13 (1) ◽  
pp. 31-40
Author(s):  
Adile Emel Sardohan Yildirim ◽  
Gonul Akcamete

Individualised education programmes (IEP) will be practiced with children with special needs (CWSN) and their families. The main factor for IEP’s success is the participation of the family and also, their children. In this study, views and suggestions about participation of families of CWSN in their IEP processes are examined. The research is based on qualitative research. Five mothers and a grandmother with CWSN were participated; data are collected via semi-structured interview technique and analysed with inductive analysis technique. This research uncovers that the participants didn’t participate in their children’s diagnosis, assessment, settlement and follow-up processes, and they were not content with the assessment results. Also, the participants who didn’t participate in the IEP weren’t even aware of the legal obligation that they had to and their children’s IEP, they weren’t in cooperation with the teacher in that process, and teachers didn’t show the progress in the children to the families even if they recorded that. Keywords: Children with special needs (CWSN), family, individualised education programmes (IEP).


2010 ◽  
Vol 12 (1) ◽  
pp. 75-84 ◽  
Author(s):  
Ženija Bērziņa

Teachers' Perceptions on What Inclusion NeedsA decade has passed since the equal right of all children to quality education regardless of their mental or physical abilities was declared by the Education Law (Izglītības likums, 1998). During that interlude, the Latvian educational system went through a period of tremendous change from total segregation of children with special needs in special schools to so-called "correction" classes in general schools, then to the special classes in general schools and finally to inclusion of special needs children in regular classrooms. Thus, the idea of inclusive education has been developed and implemented in various forms, which causes people to have a different understanding of what inclusive education means and impedes children with special needs from learning together with their peers in general classrooms. This article reflects on the findings of a qualitative study that was designed and conducted to investigate different perceptions of pre-school and primary school teachers on the preconditions for inclusive education.


2018 ◽  
Vol 1 (2) ◽  
pp. 82
Author(s):  
Kurniayu T.R.A Ratu

According to article 15 of Law No. 20 of 2003 on National Education System, that kind of education for children with special needs is Special Education. Article 32 (1) of Law No. 20 of 2003 imposes limits that Special Education is education for students who have difficulty in following the learning process because of physical, emotional, mental, social, and/or have the potential intelligence and special talents. The purpose of this study was to determine the treatment of children with special needs in inclusive schools in elementary school inclusion and know the resistance received by teachers in dealing with children with special needs in elementary school inclusion Glagah subdistrict in Lamongan district. Researchers used purposive sampling to choice of subjects in this study, to specialize in the subject in accordance with the purpose or goal of this study. Subjects in this study were three teachers who teach in the classroom who are children with special needs, the three principals in three schools as well as the inclusion of six parents whose children including children with special needs in inclusive schools in the District Glagah Lamongan. Technique data collecting by observation, interview techniques, and documentation techniques. The benefits of research to contribute about appropriate handler for special needs children who enroll in primary school inclusion. This study used a qualitative approach. This study was a qualitative descriptive.


2021 ◽  
Vol 1 (2) ◽  
pp. 153-157
Author(s):  
Rahmadhani Fitri ◽  
Hendra Fahruddin Siregar ◽  
Adi Sastra Pengalaman Tarigan

Covid-19 is a positive single strain RNA virus that infects the respiratory tract. This virus spreads quickly, the only way is to prevent it. As time progressed, the conditions of transmission became more widespread and took many victims, ranging from adults, teenagers to children. This virus can attack anyone, this virus can also attack children with special needs. Children with special needs are children with special characteristics that are different from children in general without always showing mental, emotional, or physical disabilities. One of them is mental retardation. The more widespread the spread of the COVID-19 virus, the application and knowledge of health protocols must also touch the mentally retarded. This obstacle will affect them to adjust to the implementation of health protocols every day and homework for SLB C Muzdalifah to provide a safe place for students. Prepare students and teaching units in the implementation of New Normal Education. And Educate students so that they apply health protocols at all times. The approach method used in this community service is socialization through posters of health protocols and placement of hand sanitizers. Information on preventing the spread of covid 19 through posters and placing hand sanitisers in the SLB C Muzdalifah area as a reminder and teaching regularity in implementing health protocols. This information is expected to become a habit in the New Normal.


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