Family Centeredness as Resource and Complication in Outpatient Care with Weak Adherence, Using Adolescent Diabetes Care as a Case in Point

2019 ◽  
pp. 137-146 ◽  
Author(s):  
Anders Herlitz ◽  
Christian Munthe

This case study illustrates how family members can assist in the care of teenagers with diabetes but that there are also serious risks actualized by such involvement. In particular, it highlights ethical complications that arise when the role of a family member is changed from ‘parent’ to ‘care provider’. The ‘counseling, self-care, adherence’ (CSA) approach offers a look at the role that family can play to improve these types of care.

2017 ◽  
Vol 4 ◽  
pp. 233339361771492 ◽  
Author(s):  
Kimberly Jarvis ◽  
Solina Richter ◽  
Helen Vallianatos ◽  
Lois Thornton

In northern Ghana, families traditionally function as the main provider of care. The role of family, however, is becoming increasingly challenged with the social shifts in Ghanaian culture moving from extended kinship to nuclear households. This has implications for the care of women post obstetric fistula (OF) repair and their family members who assist them to integrate back into their lives prior to developing the condition. This research is part of a larger critical ethnographic study which explores a culture of reintegration. For this article, we draw attention to the findings related to the experience of family caregivers who care for women post OF repair in northern Ghana. It is suggested that although family caregivers are pleased to have their family member return home, there are many unanticipated physical, emotional, and economic challenges. Findings lead to recommendations for enhancing the reintegration process and the need for adequate caregiving support.


2019 ◽  
Vol 11 (1) ◽  
pp. 62
Author(s):  
Amani Juma Abu-Irmies ◽  
Rajai Rasheed Al-Khanji

This study investigates factors motivating the Chechen people in Jordan to use their indigenous language in social media such as WhatsApp and Facebook. It also explores their attitudes towards using the Chechen language in social media. In order to achieve the aims of this study, the researchers have selected a sample that consists of 340 Chechen people who reside in the Jordanian cities and towns: Al-Suknah, Sweileh and Az zarqa. The instruments of the study were a sociolinguistic questionnaire and an open-ended interview. The findings reveal that Chechens use social media such as Facebook and WhatsApp to preserve the Chechen language and their culture. Also, Chechens of Jordan use their ethnic language to communicate with their friends who understand the Chechen language. Besides, the Chechen language has been used in whatsApp and Facebook to promote unity among family members. Moreover, many Chechen people use social media to communicate with other Chechen speakers regardless of familial ties. Results also indicate that Chechens of Jordan have a high positive attitude towards including the Chechen language in social media.


2020 ◽  
Vol 19 (1) ◽  
pp. 14-18
Author(s):  
Herlysse Jorghi Jorghi ◽  
Praba Ginandjar ◽  
Nissa Kusariana ◽  
Lintang Dian Saraswati

Latar belakang: Penyakit Filariasis merupakan penyakit yang disebabkan oleh cacing filaria. Kota Pekalonganmerupakan kota dengan endemis filariasis dan telah dilakukan Program Pemberian Obat secara Massal (POPM) sejak tahun 2011 hingga 2015, Namun, hasil Survei Darah Jari (SDJ) menunjukkan nilai Mikrofilaria Rate di Kota  Pekalongan  masih  >  1%.  Penelitian  ini  bertujuan  untuk  menggambarkan  peran  Tenaga  Pelaksana Eliminasi (TPE) filariasis dan hambatan yang ditemui pada pelaksanaan POPM di Kota Pekalongan.Metode: Penelitian ini merupakan penelitian cross sectiona. Jumlah sampel 95 orang petugas TPE dengan menggunakan simple ramdom sampling. Pengumpulan data dengan wawancara menggunakan kuesioner.  Hasil: Hasil penelitian menunjukkan bahwa EP dalam memilih anggota keluarga target yang akan dirawat adalah optimal (63,2%). EP dalam membantu puskesmas menentukan dosis dan pemberian obat-obatan untuk masing-masing keluarga yang dibantu (52,6%). EP dalam merekam keluarga yang dibantu yang minum obat pada kartu sudah optimal (55,8%). EP dalam memantau dan mencatat reaksi perawatan yang mungkin timbul dan melaporkan kepada petugas kesehatan adalah optimal (61,1%).Simpulan: Peran tenaga pelaksana eliminasi TPE di Kota Pekalongan dalam menyeleksi anggota keluarga binaan yang akan diobati, dalam membantu puskesmas menentukan dosis dan pemberian obat pada setiap keluarga binaan, dalam pencatatan keluarga binaan yang meminum obat pada kartu, dan dalam pengawasan dan pencatatan reaksi pengobatan yang mungkin timbul serta pelaporan kepada petugas kesehatan sudah optimalKata kunci: Filariasis, Tenaga Pelaksana EliminasiABSTRACT Title: The role of Elimination Personnel (EP) implementing filariasis MDA in Pekalongan City Background: Filariasis is a disease caused by filarial worms, Pekalongan City has carried out filariasis MDA (Mass Drug Administration) since 2011-2015. However, the results of the Finger Blood Survey (SDJ) showed that the microfilaria rate was > 1%. This study aims to describe the role of Elimination Personnel (EP) and the obstacles faced in implementing filariasis MDA in Pekalongan City.Method: This study used a cross sectional research method. Sampling in this study used simple random side, total 95 respondents. Data obtained by structure interviews using questionnaires.Result: The results showed that EP in selecting the target family members to be treated is optimal (63.2%). EP in helping puskesmas determine the dosage and administration of medicines for each of the assisted families (52.6%). EP in recording the assisted families who drank the medicine on the card was optimal (55.8%). EP in monitoring and recording treatment reactions that may arise and reporting to health workers was optimal (61.1%).Conclusion: The roles of TPE elimination workers of Pekalongan City were optimum, such as selecting family member who will be treated, helping Puskesmas in deciding the dosage and giving the medicine to every treated family, record of treated family who take the medicine in the given card, and in the supervision and record of medical reaction that might happen and reporting it to health workers.Keywords: Filariasis, Elimination Personnel  


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Börje Boers ◽  
Thomas Andersson

PurposeThis article aims to increase the understanding of the role of individual actors and arenas in dealing with multiple institutional logics in family firms.Design/methodology/approachThis study follows a case-study approach of two family-owned newspaper companies. Based on interviews and secondary sources, the empirical material was analysed focussing on three institutional logics, that is, family logic, management logic and journalistic logic.FindingsFirst, the authors show how and in which arenas competing logics are balanced in family-owned newspaper companies. Second, the authors highlight that family owners are central actors in the process of balancing different institutional logics. Further, they analyse how family members can become hybrid owner-managers, meaning that they have access to all institutional logics and become central actors in the balancing process.Originality/valueThe authors reveal how multiple institutional logics are balanced in family firms by including formal actors and arenas as additional lenses. Therefore, owning family members, especially hybrid owner-managers, are the best-suited individual actors to balance competing logics. Hybrid owner-managers are members of the owner families who are also skilled in one or several professions.


2020 ◽  
Vol 46 (6) ◽  
pp. 552-558
Author(s):  
Jodi Krall ◽  
Vicki S. Helgeson ◽  
Eunjin Lee Tracy ◽  
MaryJane S. Campbell ◽  
Mary Korytkowski ◽  
...  

Purpose The purpose of this study was to examine parents’ perceptions of the role children play in their type 1 diabetes (T1DM) care. Family members are a resource to support T1DM self-management, but how children are involved in their parents’ diabetes has not been well explored. Methods Parents with T1DM (n = 85) and a subset of their romantic partners (n = 55) participated in interviews during which they described their children’s knowledge of and involvement in diabetes care. Interviews were transcribed, responses coded/tallied, and themes identified. Results All parents reported that children knew of their diabetes, which they learned about progressively from a young age. Most parents reported children to be accepting and understanding of the ways that diabetes affected their family experiences (eg, pause to treat low blood glucose). When asked about specific support, parents rated “making parent feel better about diabetes” as the most frequently occurring behavior. Some parents felt that children, particularly younger ones, occasionally detracted from T1DM management, but this was usually expected and considered transient. Regardless of child age, many parents did not want diabetes to burden children and limited their involvement. Both parents with T1DM and partners requested resources to enhance child awareness and preparedness to support diabetes. Respondents, particularly partners, were also interested in learning how to communicate better as a family and share perspectives on how diabetes affects individual family members. Conclusions Diabetes care and education specialists should consider developmentally and relationally appropriate ways to engage children of parents with T1DM in education and self-management.


Crisis ◽  
2008 ◽  
Vol 29 (1) ◽  
pp. 11-19 ◽  
Author(s):  
Diego de Leo ◽  
Travis Heller

Abstract. Evidence from twin, adoption, and family studies suggests that there is strong aggregation of suicidal behaviors in some families. By comparison, the role of social modeling through peers has yet to be convincingly established. This paper uses data from four large studies (the WHO/EURO Multicentre Study on Suicidal Behaviour, the WHO/SUPRE-MISS, the CASE study, and the Queensland Suicide Register) to compare the effects of exposure to fatal and nonfatal suicidal behavior in family members and nonfamilial associates on the subsequent suicidal behavior of male and female respondents of different ages. Across all studies, we found that prior suicidal behaviors among respondents' social groups were more important predictors of suicidal behavior in the respondents themselves than previous research had indicated. Community-based suicide attempters in the WHO SUPRE-MISS had higher rates of exposure to prior suicide in nonfamilial associates than in family members. In an adolescent population, exposure to prior fatal suicidal behavior did not predict deliberate self-harm when exposure to nonfatal suicidal behavior (both familial and social) were controlled for, but exposure to nonfatal suicidal behaviors in family and friends was predictive of deliberate self-harm and suicide ideation, even after controlling for exposure to fatal suicidal behavior. The potential impact of “containment” of information regarding suicidal behaviors as a prevention initiative is discussed, in light of information behavior principles of social marketing.


2021 ◽  
pp. 193229682110439
Author(s):  
Jessica L. Watterson ◽  
Auriel August ◽  
Jesse Fourt ◽  
Talya Brettler

Insulin pens have made a dramatic impact on diabetes care, with evidence suggesting that they promote performance of self-care and reduce negative health outcomes for people with diabetes. Human-centered design (HCD), practiced by IDEO for over 40 years and together with Eli Lilly for over 15 years, has helped to design insulin pens that evolved with the needs of people with diabetes. HCD employs unique methods that help to uncover people’s needs and design with them in mind. The future of diabetes care is bright with the ongoing application of HCD methodology in this space.


10.12737/5744 ◽  
2014 ◽  
Vol 3 (5) ◽  
pp. 34-39
Author(s):  
Гогулина ◽  
N. Gogulina ◽  
Вэньцзя ◽  
Wang Vncz

The article deals with the problem of comparative study of Russian and Chinese proverbs. The paper is an analysis of some nouns of persons through relationship and Proverbs with nouns and conceptually important for Russian and Chinese philology and culture. The work is done at the interface between Linguistics and culture experts and is aimed at identifying national cultural specifics of Russian and Chinese Proverbs with the names of persons on the basis of kinship. It is in the axiological notions of gender, kinship and family in Russian and Chinese cultures reflected in paremias that the national specifics is detected. The article gives logical and thematic classification of the collected material, which includes the following semantic groups: characterization of the role of a family member, their emotionally estimated characteristics, relationships between family members.


2020 ◽  
Vol 38 (2) ◽  
pp. 165-178
Author(s):  
Arapa Efendi ◽  
Katharina E. Sukamto

This qualitative preliminary study highlights a common linguistic practice of politeness in the Javanese family circle called mbasaaké, which refers to addressing or referring to a family member with a kinship term that does not necessarily portray the actual family relationship. This study aims to demonstrate that this pragmatic practice of mbasaaké requires the role of adult speakers in the family circle to novice members of the family. The adult members in the family intentionally deployed this act as a strategy to socialize politeness in the Javanese culture. A small number of naturally occurring interactive turns which involves four family members are presented in this paper to illustrate this mbasakaké practice. The four persons who participated in the casual conversations originally come from East Java, but they have resided in Yogyakarta for many years. The data presented in this paper prove that this linguistic socialization is continuously practiced within the family circle with or without the presence of the novice members of the family. Another important finding is that a respectful kinship term is also given to a family member in absentia.


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