Quality of Life and Adjustment in Youths with Asthma: The Contributions of Family Rituals and the Family Environment

Down syndrome (DS) is a genetic disorder. From 1997 to 2015, 473 DS patients were born in Latvia. Prenatal diagnosis allows terminating pregnancies with high risk of DS. The aim of our research was to assess the impact of environmental quality (family and extra-familial care) on the child's development, range of services for DS patients, and to identify the optimal early support system. Families and specialists were interviewed to analyze differences between children in families and institutional care clients. State financial support for a DS child in the family is less than to a child in institutional care, and does not provide adequate rehabilitation services. Conclusion: the environment (family/institution, available resources, and rehabilitation services) where the child grows up after the birth, determines both their quality of life and level of independence development. If the somatic problem-solving path is clear, then social integration needs to be improved. Support of inter-professional teams for the families is necessary immediately after the diagnostic statement in order to ensure a more favourable family environment and to reduce the risk of institutionalization. Despite the potentially higher early intensive rehabilitation costs, in the course of time we can predict that it will provide an economic effect on the state and improve the patient and their family's quality of life.

Download Full-text

Transactional Analysis as a Method to Test the Quality of Life of a Family

Pedagogika Rodziny ◽

10.1515/fampe-2015-0003 ◽

2015 ◽

Vol 5 (1) ◽

pp. 27-38

Author(s):

Dorota Strzelczyk

Keyword(s):

Quality Of Life ◽

Complex System ◽

Interpersonal Communication ◽

Interpersonal Relationships ◽

Family Environment ◽

Family Members ◽

Transactional Analysis ◽

Open Disclosure ◽

The Family

Abstract One of the actions that affect the quality of life of the family as a complex system of relationships is interpersonal communication that takes place between the members of the family. In line with the transactional analysis, the trend in psychology founded by E. Berne, relationships between individuals should be based on honest and open disclosure of one’s desires and attitudes, i.e. variety of transactions. Otherwise, there are specific game leading to maintain and increase the distance between family members, weaken the ties between them and leading to a reduction in the quality of interpersonal relationships. The paper below aims to make closer the problems of transactional analysis, beginning from the explanation of the structure of “Ego” according to Berne and the terms “transactions”, “reinforcement” and “life scripts”. There will be presented also games played in family environment and their consequences for the proper functioning of the family.

Download Full-text

The person-environment relationship in the process of finitude

Psicooncología ◽

10.5209/psic.68246 ◽

2020 ◽

Vol 17 (1) ◽

pp. 131-148

Author(s):

Myrlanne Alves da Costa ◽

Renata Bezerra de Holanda ◽

Cynthia De Freitas Melo ◽

Karla Patrícia Martins Ferreira ◽

Ana Cristina Eberhardt Lins

Keyword(s):

Quality Of Life ◽

Family Environment ◽

Support Network ◽

Death With Dignity ◽

Descriptive Research ◽

Curative Care ◽

Narrative Interview ◽

The Family ◽

The Relationship

Objective: To understand the relationship between caregivers and patients who are undergoing the process of finitude with the environment where they are during this process. Method: This is a qualitative, exploratory and descriptive research. According to the saturation criterion, there were 19 participants: 10 patients (5 in palliative care at home and 5 in curative care in Intensive Care Units - ICU) and 9 relatives of the respective patients. They responded to a narrative interview, which is characterized as an instrument that makes it possible to understand how the participant perceives and experiences the environment around her/him. For the analysis of the material, the interview was interpreted through textual analysis using the Iramuteq software. Results: The results indicated great adversities in the process of finitude in both environments: ICU and home; however, the family environment is seen as promoting quality of life and of death with dignity by patients, due to the support network offered by family and friends. Conclusion: the person-environment relationship in the process of finitude is characterized by affections and meanings, and needs to be taken into account as a facilitator of quality of life.

Download Full-text

Financial Education for Adults - Women beneficiaries of the Bolsa Família Program (BFP) and Retirees with income of up to two minimum salaries

International Journal for Innovation Education and Research ◽

10.31686/ijier.vol5.iss12.844 ◽

2017 ◽

Vol 5 (12) ◽

pp. 18-38

Author(s):

Claudia Márcia de Jesus Forte ◽

Fernanda Sanches Rocha

Keyword(s):

Quality Of Life ◽

Family Environment ◽

Financial Literacy ◽

Impact Evaluation ◽

Financial Education ◽

The Family ◽

Bolsa Familia ◽

The One ◽

The Impact

The article presents the Impact Evaluation results carried out in the Financial Education Program for Women Beneficiaries of the Bolsa Família Program (BFP) and Retirees with income of up to two minimum wages. This program aims to promote the increase of financial literacy and changes in habits and behaviors, in order to develop skills and abilities that help to manage the family budget efficiently. The methodology used was the one of experimental experience and made possible the coexistence with beneficiaries and retirees in their homes, seeking to understand the realities and the local needs. The change in behavior through the development of skills and abilities, as well as the acquired knowledge, demonstrated that decision making becomes more conscious, promoting autonomy and meaningful better in the quality of life of the family and the family environment.

Download Full-text

Bioethics: Care of the elderly with Parkinson

Mexican Bioethics Review ICSA ◽

10.29057/mbr.v3i5.7456 ◽

2021 ◽

Vol 3 (5) ◽

pp. 14-18

Author(s):

Georgina Lorena Fernández Fernández ◽

Raúl Rodarte García ◽

Joaquín García Hernández

Keyword(s):

Quality Of Life ◽

Older Adults ◽

Nervous System ◽

Family Environment ◽

The Elderly ◽

Ethical Beliefs ◽

The Family ◽

Professional Care ◽

Over Time

Over time, older adults become more vulnerable and undergo physical and mental changes that make them much more fragile. Diseases such as arthritis, osteoporosis, diabetes, eating imbalances, heart ailments, hearing, visual and nervous system problems appear that affect their quality of life, as well as their family environment. In this context, for doctors and the family, the task of caring for a patient with Parkinson's is not easy, it implies medication, as well as the need to involve values, principles and ethical beliefs when caring for them. In this sense, it is necessary to reflect on professional and non-professional care in patients with Parkinson's in a care that must be based on respect, tolerance, patience and solidarity. Therefore, it is bioethics that promotes these attitudes of compassion and empathy towards older adults in the medical and family spheres with the aim that they can live this stage of their life with greater optimism and hope.

Download Full-text

HUBUNGAN PERAN FAMILY CAREGIVER TERHADAP QUALITAS HIDUP LANSIA

Jurnal Keperawatan ◽

10.32583/keperawatan.v11i1.458 ◽

2019 ◽

Vol 11 (1) ◽

pp. 51-56

Author(s):

RIANI PRADARA JATI ◽

Sekar Farah Nabila

Keyword(s):

Quality Of Life ◽

Family Caregiver ◽

Random Sampling ◽

Simple Random Sampling ◽

The Elderly ◽

Chi Square ◽

The Poor ◽

The Family

Penempatan peran yang baik bagi Family Caregiver sangatlah membantu lansia dalam meningkatkah qualitas hidupnya, meningkatkan motivasi dalam menjalankan hidup Penelitian ini bertujuan Mengetahui hubungan peran Family Caregiver dalam pemenuhan qualitas hidup bagi lansia di Kelurahan Langenharjo Kabupaten Kendal. DesainPenelitianDeskriptifKorelasional menggunakan pendekatan Krosectional,tehnikSamplingStratified Simple Random Sampling dengan karakteristik heterogen, dari populasi mempunyai hak yang sama untuk diseleksi sebagai sampel teknik undianPengambilan data dengan menggunakan kuesioner yang telah diuji validitas dan reliabilitasnya. Uji statistik Chi-square, dengan taraf signifikasi 5%jumlah sampel pada penelitian ini 70 sampel pada Family Caregiver dari 213 populasi yang ada. Hasil penelitian dari 70 responden didapatkan Peran Family Caregiver tidak baik dengan qualitas hidup tidak baik 33 (47,1%), sedangkan Peran Family Caregiver kurang baik dengan qualitas hidup lansia baik 3 (4,3%). Untuk distribusi Peran Family Caregiver kurang baik dengan qualitas hidup lansia tidak baik sebanyak 6 responden (8,6%) sedangkan untuk distribusi Peran Family Caregiver kurang baik dengan qualitas hidup lansia baik sebanyak 23 responden (32,9%). Terakhir, untuk distribusi Peran Family Caregiver baik dengan qualitas hidup lansia tidak baik didapatkan hasil 2 responden (2, 9%) sedangkan untuk distribusi Peran Family Caregiver baik dengan qualitas hidup lansia baik didapatkan hasil 3 responden (4,3%)Menunjukkan nilai ρ value 0,001 (ρ < 0,05) berarti ada hubungan antara dukungan keluarga dengan kepatuhan lansia dalam keikutsertaan posyandu lansia. Disarankan kepada semua Family Cregiver lansia untuk mampu memahami pentingnya perhatian, dukungan bagi lansia dalammeningkatkan qualitas hidup yang lebih baik bagi lansia. Kata kunci : Peran family caregiver, qualitas hidup, lansia. ABSTRACT Placement of a good role for Family Caregiver is very helpful for the elderly to improve their quality of life, increase motivation in living life Research Objective: To know the relationship between the role of Family Caregiver in fulfilling quality of life for the elderly in Langenharjo Village, Kendal Regency. Descriptive Correlational Research Design uses a cross sectional approach, Sampling Stratified Simple Random Sampling technique with heterogeneous characteristics, from the population has the same right to be selected as a sample lottery technique Retrieving data using a questionnaire that has been tested for validity and reliability. Test Chi-square statistics, with a significance level of 5% the number of samples in this study 70 samples on the Family Caregiver from 213 populations. Results of the Study Of 70 respondents found the role of Family Caregiver was not good with poor quality of life 33 (47.1%) , while the role of the Family Caregiver is not good with the quality of life of a good elderly 3 (4.3%). For the distribution of the role of Family Caregiver is not good with the quality of life of the poor family as many as 6 respondents (8.6%) while for the distribution of the Role of Family Caregiver is not good with the quality of life of good elderly as many as 23 respondents (32.9%). Finally, the distribution of the Role of Family Caregiver with good quality of life for the poor is obtained by 2 respondents (2, 9%), while the distribution of the Role of Family Caregiver with good quality of life for the elderly is obtained by 3 respondents (4.3%). 0.001 (ρ <0.05) means that there is a relationship between family support and the compliance of the elderly in the participation of the elderly posyandu. It is recommended to all elderly Cregiver families to be able to understand the importance of attention, support for the elderly in improving the quality of life better for the elderly Keywords: Role of Family Caregiver, Quality of Life, Elderly

Download Full-text

Family Environment, Sibling Relationship and Rivalry towards Quality of Life

Environment-Behaviour Proceedings Journal ◽

10.21834/e-bpj.v1i3.300 ◽

2016 ◽

Vol 1 (3) ◽

Author(s):

Rugayah Hashim ◽

Hashim Ahmad

Keyword(s):

Quality Of Life ◽

Family Environment ◽

Quantitative Research ◽

Publishing House ◽

Sibling Rivalry ◽

Sibling Relationship ◽

Family Quality Of Life ◽

Research Approach ◽

Economic Developments

Kinship, family composition and household dynamics among siblings are developed positively or negatively in early life right through adulthood. Hence, the purpose of this paper is highlight the importance of family environment in influencing sibling relationship, with emphasis on sibling rivalry. Determining the factors that contribute towards sibling competition is important in counselling and assisting individuals with family issues. From a quantitative research approach, the findings showed that sibling relationships are problematic and has led to jealousies and prejudices especially if parents take sides. Family ties depend on happy sibling interactions which indirectly affects socio-economic developments as social ills are resolved. In ameliorating these private and sensitive issues among family members, the holistic society will benefit psychologically and happiness as well as a better quality of life will be attained.© 2016. The Authors. Published for AMER ABRA by e-International Publishing House, Ltd., UK. Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians) and cE-Bs (Centre for Environment-Behaviour Studies, Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia.Keywords: Sibling rivalry; family; quality of life; socio-economic impact

Download Full-text

Quality of Life (QOL) of Balinese Women Working in Spa Tourism Industry

Journal of Business on Hospitality and Tourism ◽

10.22334/jbhost.v1i1.16 ◽

2015 ◽

Vol 1 (1) ◽

pp. 13

Author(s):

Putu Sucita Yanthy ◽

Luh Gede Leli Kusuma Dewi ◽

W. Citra Juwitasari

Keyword(s):

Quality Of Life ◽

Tourism Industry ◽

Family Needs ◽

Interesting Phenomenon ◽

Tourist Destinations ◽

Foreign Countries ◽

The Family ◽

Two Factors ◽

Material Factor

Bali is one of spa tourist destinations having various categories of spas and spa treatments, and the most important is the spa therapists. Spa development becomes an interesting phenomenon to be studied when it is associated with an involvement of Balinese women as spa therapists in foreign countries. The world’s demand for Balinese spa therapists has become the motivation of women to work in this area. The work and life of Balinese spa therapists while they are working in foreign countries serve as parameters to know their quality of life, and these parameters are also the main focus of this study. Through in-depth interviews and questionnaires distributed to 20 therapists it was found out that 85 percent of them have revealed an improvement in their quality of life that is influenced by two factors: the material and intimacy factors. The material factor in question refers to the economic improvement of the family as they could earn enough income to cover their family needs. The intimacy factor in question refers to closeness and a sense of solidarity fostered while they are working abroad and the relationship within the family. This study concludes that the most important part of the development of spa in Bali is its female Balinese spa therapists due to the image that Balinese women working as spa therapists are loyal, hard-working and honest making them in demand among tourists who are seeking spa treatments. Being a spa therapist can improve their quality of life, which means that subjectively both material and intimacy factors are the aspects that affect the quality of life of the Balinese spa therapists.

Download Full-text

The Association of Sources of Support, Types of Support and Satisfaction with Support Received on Perceived Stress and Quality of Life of Cancer Patients

Integrative Cancer Therapies ◽

10.1177/1534735421994905 ◽

2021 ◽

Vol 20 ◽

pp. 153473542199490

Author(s):

Iván Ruiz-Rodríguez ◽

Isabel Hombrados-Mendieta ◽

Anabel Melguizo-Garín ◽

Mª José Martos-Méndez

Keyword(s):

Quality Of Life ◽

Social Support ◽

Cancer Patients ◽

Perceived Stress ◽

Emotional Support ◽

Multidimensional Analysis ◽

Informational Support ◽

Cancer Data ◽

The Family

Introduction: The aim of the present study is to carry out a multidimensional analysis of the relationship of social support with quality of life and the stress perceived by cancer patients. Methods: The participants were 200 patients with cancer. Data was gathered on sociodemographic characteristics, health, quality of life, social support and perceived stress. Results: Frequency of and satisfaction with different sources and types of support are related positively with improvement of quality of life and negatively with perceived stress. The emotional support from the partner and the emotional and informational support from the family are significant predictors of quality of life. Emotional support from the family reduces patients’ perceived stress. Satisfaction with emotional support from the partner and with the informational support from friends and family increases quality of life. Satisfaction with emotional support from the family and with informational support from friends decreases patients’ perceived stress. Instrumental support and support provided by health professionals are not good predictors of quality of life and perceived stress. Satisfaction with the support received is more significantly related with quality of life and stress than the frequency with which the sources provide support. Conclusions: These results have important practical implications to improve cancer patients’ quality of life and reduce their perceived stress through social support. Designing intervention strategies to improve satisfaction with the support provided to patients by their closest networks results in a global benefit for the patient’s quality of life.

Download Full-text

Assessing Time of Eating in Commensality Research

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18062941 ◽

2021 ◽

Vol 18 (6) ◽

pp. 2941

Author(s):

Henrik Scander ◽

Maria Lennernäs Wiklund ◽

Agneta Yngve

Keyword(s):

Quality Of Life ◽

Systematic Reviews ◽

Time Use ◽

Scoping Review ◽

Search Term ◽

Working Population ◽

Nutritional Health ◽

The Family ◽

Use Studies

Commensal meals seem to be related to a better nutritional and metabolic health as well as an improved quality of life. The aim of this paper was to examine to what extent research was performed using the search term commensality related to assessment of timing of meals. A scoping review was performed, where 10 papers were identified as specifically addressing the assessment of timing of commensality of meals. Time use studies, questionnaires, and telephone- and person-to-person interviews were used for assessing meal times in relation to commensality. Four of the studies used a method of time use registration, and six papers used interviews or questionnaires. Common meals with family members were the most common, and dinners late at night were often preferred for commensal activities among the working population. In conclusion, the family meal seemed to be the most important commensal meal. It is clear from the collected papers and from previous systematic reviews that more studies of commensal meals in general and about timing aspects in particular and in relation to nutritional health are essential to provide a solid background of knowledge regarding the importance of timing in relation to commensal meals.

Download Full-text