scholarly journals Status, demand and practice models of palliative day-care clinics and day hospices: a scoping review

2021 ◽  
pp. bmjspcare-2021-003171
Author(s):  
Teresa Terjung ◽  
Stephanie Stiel ◽  
Nils Schneider ◽  
Franziska A Herbst
Keyword(s):  
Scoping Review ◽  
Day Care ◽  
Outcome Measurement ◽  
Healthcare Providers ◽  
Patient Characteristics ◽  
Models Of Care ◽  
Future Research ◽  
Discharge Process ◽  
Hand Search ◽  
Practice Models

BackgroundLittle is known about the structure, accessibility, service provision and needs of palliative and hospice day-care in Germany and abroad. Researchers, healthcare providers and policy makers would benefit from a systematic overview.AimThe aim was to identify, describe and summarise available evidence on status, demand and practice models of palliative day-care clinics and day hospices. A secondary aim was to disclose research gaps and present recommendations for clinical practice and future research.DesignThe scoping review followed the methodological framework of Arksey and O’Malley. The analysed publications included studies of varying kinds to describe the current state of the art.Data sourcesUsing a highly sensitive search strategy, the authors searched PubMed, Web of Science Core Collection, CINAHL and Google Scholar within the publication window of inception to 12 June 2020. An additional hand search of the reference lists of the identified review articles was conducted.ResultsThe authors screened the titles and abstracts of 2643 studies, retrieved 197 full texts and included 32 articles in the review. The review identified nine major themes: (1) the referral process, (2) models of care, (3) patient characteristics, (4) demand, (5) the discharge process, (6) perceptions of services, (7) funding and costs, (8) outcome measurement and (9) education.ConclusionsThere is a need for further research to identify groups of patients who would receive the most benefit from palliative and hospice day-care and to determine any necessary revisions in admission criteria.

scholarly journals Complexity In The Context of Palliative Care: A Scoping Review

2021 ◽  
Author(s):  
Hironori Ohinata ◽  
Maho Aoyama ◽  
Mitsunori Miyashita
Keyword(s):  
Palliative Care ◽  
Scoping Review ◽  
Healthcare Providers ◽  
The United States ◽  
Patient Specific ◽  
Future Research ◽  
Care Needs ◽  
Living Situation ◽  
Research Activities ◽  
Specific Factors

Abstract Background: Understanding the factors of complexity of patients in palliative care is very important for healthcare providers in addressing the care needs of their patients. However, the healthcare providers’ perception of the factors of complexity in palliative care lacks a common understanding. This study aimed to determine the scope of research activities and specific factors of complexity in the context of palliative care.Methods: A scoping literature review was performed, following the methods described by the Joanna Briggs Institute. We conducted an electronic literature search in MEDLINE (Ovid), PsycINFO, Web of Science Core Collection, and CINAHL, examining literature from May 1972 to 2020.Results: We identified 32 peer-reviewed articles published in English before 2020. The target literature mainly originated in Europe and the United States. The research methods included quantitative studies (n=13), qualitative studies (n=12), case studies (n=3), and reviews (n=4). We reviewed 32 studies and summarized the factors of complexity into three levels: the patient’s level, the healthcare setting level, and the socio-cultural landscape level. We identified factors affecting patient-specific complexity, including sex, race, age, living situation, family burden, resources, treatment, decision-making, communication, prognosis, disease, and comorbidity/complexity. Other factors identified as contributing to patient complexity were the interaction of physical, psychological, social, and spiritual categories, as well as the healthcare providers’ confidence and skills, and the socio-cultural components.Conclusions: This scoping review shows specific factors of complexity and future challenges in the context of palliative care. Future research should include the factors of complexity identified in this review and conduct longitudinal studies on the interactions among them. In addition, it is necessary to examine specific complexity factors in patients from various social and ethnic backgrounds.

scholarly journals Family-focused practices in addictions: a scoping review protocol

BMJ Open ◽  
2018 ◽  
Vol 8 (1) ◽  
pp. e019433 ◽  
Author(s):  
Toula Kourgiantakis ◽  
Rachelle Ashcroft
Keyword(s):  
Social Services ◽  
Family Involvement ◽  
Scoping Review ◽  
Web Sites ◽  
Addiction Treatment ◽  
Research Policy ◽  
Empirical Studies ◽  
Future Research ◽  
Family Interventions ◽  
Hand Search

IntroductionFamilies are significantly impacted by addictions and family involvement in treatment can reduce the harms and can also improve treatment entry, treatment completion and treatment outcomes for the individual coping with an addiction. Although the benefits of family-focused practices in addictions have been documented, services continue to have an individual focus and research on this topic is also limited. The objective of this study is to map the extent, range and nature of evidence available examining family interventions in addictions and identify gaps to guide future research, policy and practice.Methods and analysisThis is a scoping review using the five-stage framework developed by Arksey and O’Malley. We will include published and unpublished empirical studies focusing on any type of family interventions in addiction treatment between 2000 and the present in English or French. A reviewer will search for literature that meets the inclusion criteria through the following electronic databases: MEDLINE, PsycINFO and Social Services Abstracts. For a comprehensive search, we will also hand-search reference lists, web sites and key journals. Data will be charted and sorted using a thematic analysis approach.Ethics and disseminationThis review will be the first to examine all forms of family-focused practices for both substance use and problem gambling treatment for adults. It will provide information about existing service provisions and gaps in practice. This review can be used to start moving towards the development of best practices for families in addiction treatment. The results will be disseminated through a peer-reviewed journal and at mental health and addiction conferences.

Health plan, physician, and medical care ratings among end-of-life (EOL) cancer survivors.

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 80-80
Author(s):  
Michael T. Halpern ◽  
Matthew Urato ◽  
Margot Schwartz ◽  
Erin E. Kent
Keyword(s):  
Mental Health ◽  
Medical Care ◽  
Healthcare Providers ◽  
Patient Characteristics ◽  
Cancer Site ◽  
Future Research ◽  
Health Plans ◽  
Fee For Service ◽  
Medicare Beneficiaries ◽  
Poor General Health

80 Background: High-quality EOL care is critical for patients and families. However, little is known about factors influencing patient satisfaction with their healthcare near EOL. This study’s objective is to assess the role of characteristics of individuals with cancer near EOL on their ratings for medical care, health plans, and physicians. Methods: Retrospective analyses of the Consumer Assessment of Healthcare Providers and Systems (CAHPS) Medicare Survey linked to NCI’s Surveillance, Epidemiology, and End Results (SEER) Program. CAHPS collected Medicare beneficiaries’ ratings for overall care, physicians, health plans, and 5 composite scores of aspects of care; SEER provided data on cancer diagnosis and characteristics. The study included 5,102 Medicare beneficiaries diagnosed with cancer in SEER regions 1997-2011 who completed CAHPS following diagnosis and within one year before death. Logistic regression was used to examine associations of EOL patient characteristics with their ratings. Results: Self-reported very good or excellent (vs. poor) general health significantly (p < 0.05) predicted greater likelihood of higher ratings for all measures (ORs ranged 1.5 to 2.2). Very good/excellent mental health also predicted increased likelihood of higher ratings for all except one category (ORs 1.8 to 2.7). Other patient factors were significantly associated with a subset of ratings. For example, Hispanics (vs. Whites) were more likely to provide higher ratings for health plans (OR 1.5) and specialist physicians (OR 1.7) but lower ratings for getting needed care (OR 0.62). Fee-for-service (vs. Medicare Advantage) beneficiaries were more likely to provide higher ratings for health plans, getting needed care, and getting care quickly (ORs 1.4, 1.3, 1.6). Patient age, cancer site, and time since diagnosis had few or no significant associations with any measure. Conclusions: Among cancer patients near EOL, better self-reported general and mental health consistently predicted higher ratings. Fee-for-service Medicare patients provided higher ratings for several important categories. These results may help guide future research on interventions to improve the EOL experience among Medicare beneficiaries.

scholarly journals Primary care-based models of care for osteoarthritis: a scoping review protocol

2021 ◽  
Vol 4 ◽  
pp. 48
Author(s):  
Joice Cunningham ◽  
Frank Doyle ◽  
Jennifer M. Ryan ◽  
Barbara Clyne ◽  
Cathal Cadogan ◽  
...  
Keyword(s):  
Primary Care ◽  
Scoping Review ◽  
Grey Literature ◽  
Models Of Care ◽  
Current Evidence ◽  
Future Research ◽  
Local Health ◽  
Prevalence Of Obesity ◽  
Specific Care ◽  
Local Health System

Background: The burden of osteoarthritis (OA) to individuals and health systems is substantial and is expected to increase due to population ageing and rising prevalence of obesity and multimorbidity. Primary care-based models of care (MoCs) are being increasingly developed in response to this growing burden. However, these MoCs have yet to be formally reviewed. A MoC can be defined as an ‘evidence-informed strategy, framework or pathway that outlines the optimal manner in which condition-specific care should be delivered to consumers within a local health system’. Objective: To identify and describe the available research regarding the extent, nature and characteristics of MoCs for OA that have been developed or evaluated in primary care. Methods: A scoping review will be conducted in accordance with the Arksey and O’Malley scoping review framework and the PRISMA-ScR guidelines. Systematic literature searches of MEDLINE, EMBASE, CINAHL, PsychINFO, Web of Science and LILACs will be conducted from 2010 to present, aligning with publication dates of recent clinical guidelines. A structured iterative search of grey literature will be conducted. Full-text original quantitative or mixed method studies which describe the development or evaluation of MoCs for OA in primary care will be considered. Data will be charted and synthesised and a narrative synthesis will be conducted. Conclusions: This scoping review will provide a broad overview regarding the extent, nature and characteristics of the available literature on primary care based MoCs for OA. Findings will be used to identify gaps in the current evidence to identify areas for future research.

A scoping review of palliative care for persons with severe persistent mental illness

2019 ◽  
Vol 17 (04) ◽  
pp. 479-487 ◽  
Author(s):  
Erin E. Donald ◽  
Kelli I Stajduhar
Keyword(s):  
Mental Illness ◽  
Palliative Care ◽  
Scoping Review ◽  
Research Question ◽  
Healthcare Providers ◽  
Premature Death ◽  
Future Research ◽  
Research Activity ◽  
Complex Needs ◽  
Persistent Mental Illness

AbstractObjectivePeople with severe persistent mental illness (SPMI) experience a greater burden and severity of chronic disease, late diagnosis, and premature death compared with the general population. Those with SPMI also receive fewer medical treatments, poor quality of care, and are less likely to receive palliative care. A systematic scoping review was undertaken to determine the extent, range, and nature of research activity about people with SPMI requiring palliative care, and to identify gaps and opportunities for future research.MethodA systematic scoping review was undertaken in September 2017 and updated in May 2018 to map literature on this topic, determine the extent and range of what has been published, and report the findings. This five-stage framework was conducted by (1) identifying the research question; (2) identifying relevant studies; (3) determining study selection; (4) charting the data; and 5) collating, summarizing, and reporting the results. A narrative approach to analysis was used to synthesize and interpret findings. A search of multidisciplinary healthcare databases resulted in 46 included articles.ResultFour major themes were identified from the included studies: complexity of care; limited access to care (both through systems and healthcare providers); competence and autonomy; and the potential for relationships between mental health and palliative care.Significance of resultsThis review reveals a highly vulnerable population with complex needs that are not reliably being met by the healthcare system and providers. Research in this area must continue to develop using rigorous qualitative and quantitative study designs, and interventions should be developed and tested based on existing knowledge to inform care. The voices of people with SPMI in need of palliative care must be represented in future studies to address gaps. To expand a body of literature addressing mainly individuals, system perspectives and sociocultural analysis can bring much to contextualizing the experience of living with SPMI in the palliative phase of care. Adoption of a palliative approach, which promotes the principles of palliative care across nonspecialized care settings provided by nonspecialist palliative providers, has the potential to increase access to high-quality palliative treatment for people with SPMI.

scholarly journals Developing an Education Model for an Effective Health Information System Implementation: Scoping Review (Preprint)

2020 ◽  
Author(s):  
Tharshini Jeyakumar ◽  
Sarah McClure ◽  
Mandy Lowe ◽  
Brian Hodges ◽  
Katharine Fur ◽  
...  
Keyword(s):  
Information System ◽  
Health Information ◽  
Scoping Review ◽  
Data Extraction ◽  
Healthcare Providers ◽  
Health Information System ◽  
Future Research ◽  
Clinical Environment ◽  
Educational Strategies ◽  
Qualitative Thematic Analysis

BACKGROUND Supporting healthcare providers to optimize their use of a new Health Information System (HIS) requires effective HIS education; failure to do so can significantly thwart an organization’s HIS implementation and sustainability efforts. OBJECTIVE This scoping review aimed to understand the most effective educational strategies and approaches to enable healthcare providers to optimally use a Health Information System. METHODS Ovid Medline, Ovid, Embase, EBSCO Cumulative Index to Nursing and Allied Health Literature (CINAHL), and EBSCO Education Resources Information Center (ERIC) were searched to identify relevant articles. Relevant studies were systematically reviewed and analyzed, using a qualitative thematic analysis approach. RESULTS Of the 3539 studies screened, 17 studies were included for data extraction. The literature on the most effective approaches in enabling healthcare providers to optimally use an HIS emphasized the importance of investing in engaging and understanding learners in the clinical context; maximizing the transfer of learning to care; and designing continuous and agile evaluation to meet the emerging demands of the clinical environment. CONCLUSIONS This study supported the advancement of a new HIS learning model that organizational leaders and educators can use to guide HIS education design and development. Future research should examine how this model can be translated into practice.

scholarly journals What is known from the existing literature about self-management of pessaries for pelvic organ prolapse? A scoping review protocol

BMJ Open ◽  
2022 ◽  
Vol 12 (1) ◽  
pp. e055587
Author(s):  
Lucy Dwyer ◽  
Dawn Dowding ◽  
R Kearney
Keyword(s):  
Pelvic Organ Prolapse ◽  
Scoping Review ◽  
Pelvic Organ ◽  
Self Management ◽  
Future Research ◽  
Original Research ◽  
Reference List ◽  
Eligibility Criteria ◽  
Hand Search ◽  
Scoping Reviews

IntroductionPelvic organ prolapse (POP) can be managed with a pessary; however, regular follow-up may deter women from pessary management due to the inconvenience of frequent appointments, as well as preventing pessary users from autonomous decision-making. Pessary self-management, whereby the woman removes and inserts her own pessary may be a solution to these issues. However, there remains a number of uncertainties regarding the potential benefits and risks of pessary self-management. This scoping review aims to map available evidence about the subject of pessary self-management for POP to identify knowledge gaps providing the basis for future research.Methods and analysisThe scoping review will be conducted using the Joanna Briggs Institute scoping review methodology and reported in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews guidelines. A search of Medline, CINAHL, Embase and PsycInfo will be undertaken to identify relevant articles which meet the eligibility criteria using the search terms ‘pessary’ and ‘self-management’ or ‘self-care’. A hand search of the reference list of non-original research identified during the search but excluded, will be conducted for additional publications which meet the inclusion and exclusion criteria. Data relevant to the topic of pessary self-management will be extracted and critical appraisal of all included publications undertaken.Ethics and disseminationNo ethical or Health Research Authority approval is required to undertake the scoping review. However, it has been registered with The Open Science Framework (DOI 10.17605/OSF.IO/DNGCP). The findings will inform future research exploring pessary self-management and be disseminated via both a presentation at a national conference and publications in peer reviewed journals.

scholarly journals Scoping review: Understanding patients’ and healthcare providers’ perceptions of healthcare acceptability of HIV, TB and maternal healthcare services

2021 ◽  
Author(s):  
Joy Blaise Bucyibaruta ◽  
Carl Heese ◽  
Leah Maidment ◽  
Mmapheko Doriccah Peu ◽  
Lesley Bamford ◽  
...  
Keyword(s):  
Scoping Review ◽  
Search Strategy ◽  
Grey Literature ◽  
Healthcare Providers ◽  
Healthcare Services ◽  
Future Research ◽  
Research Projects ◽  
Maternal Healthcare ◽  
Eligibility Criteria ◽  
Psychology Literature

Healthcare acceptability is critical in global debates for improving service delivery across all health specialities. The concept of healthcare acceptability reflects interactions between patients and healthcare providers and is expressed through attitudes, beliefs, perceptions, experiences and expectations. These terms are often used to describe human behaviour in psychology science. The concept of healthcare acceptability is widely used in healthcare, particularly in psychology literature, and is still ill-defined and poorly conceptualized. This scoping review will explore and describe the depth and breadth of evidence on healthcare acceptability definitions, conceptual frameworks and applications through the lens of patients and healthcare providers in HIV, TB and maternal healthcare services. We will search electronic databases and grey literature, guided by a search strategy in accordance with eligibility criteria. Two researchers will independently screen and chart data from retrieved and included articles. An agreement of 80% between reviewers’ results will be considered appropriate and a third reviewer will resolve any conflict between them. The results will be presented in graphical, charted or tabular form accompanied by a summary linking the results to the objectives. The researchers will discuss and disseminate important findings, limitations and propose potential implications and future research projects.

scholarly journals Intergenerational Engagement in Residential Settings: A Scoping Review of the Literature

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 851-851
Author(s):  
Andrea Gardiola ◽  
Raza Mirza ◽  
Amanda Bull ◽  
Christopher Klinger ◽  
Jessica Hsieh ◽  
...  
Keyword(s):  
Older Adults ◽  
Health Outcomes ◽  
Scoping Review ◽  
Grey Literature ◽  
Age Groups ◽  
Future Research ◽  
Long Term Effects ◽  
Hand Search ◽  
Intergenerational Interactions ◽  
The Impact

Abstract Intergenerational engagement provides a rich environment for people of different ages to come together and exchange life stories, skills, and knowledge. Today, intergenerational interactions are decreasing, however, these exchanges can have positive implications for seniors in residential care homes (RCHs) and younger persons. A scoping review following Arksey and O’Malley’s five-step framework was conducted to investigate the impact of intergenerational engagement and programs (IGPs) on older adults in RCHs. A systematic search of ten electronic databases and hand search of references was carried out; thematic content analysis to established key themes. A total of 1,183 academic and grey literature sources were reviewed, with 66 full-text studies assessed for eligibility. Of these sources, 35 studies met inclusion criteria. Studies highlighted four main themes: 1. Types of IGPs, 2. Psycho-social benefits for older adults and improved status among elders with cognitive impairments, 3. Younger person benefits, suggesting reduced ageism and improved social and communication skills, and 4. Program recommendations, including the need for enthusiastic program facilitators, coordination between facilities, sensitivity training for younger persons, detailed advertisements, and appropriate activities for different age groups. Findings inform future practice and research, highlighting that IGPs are an effective strategy to alleviate negative health outcomes for seniors in RCHs. Future research is needed to evaluate long-term effects and further health outcomes. IGPs provide an opportunity to facilitate purposeful and reciprocal relationships between generations, fostering intergenerational understanding. By studying IGPs and intergenerational interactions, we can better determine practices that meaningfully engage elders in RCHs in Canada.

Self-management, self-management support needs and interventions in advanced cancer: a scoping review

2018 ◽  
Vol 9 (1) ◽  
pp. 12-25 ◽  
Author(s):  
Suman Budhwani ◽  
Walter P Wodchis ◽  
Camilla Zimmermann ◽  
Rahim Moineddin ◽  
Doris Howell
Keyword(s):  
Advanced Cancer ◽  
Scoping Review ◽  
Patient Population ◽  
Care Delivery ◽  
Models Of Care ◽  
Self Management ◽  
Cochrane Library ◽  
Future Research ◽  
Management Support ◽  
Wide Range

Patients with advanced cancer can experience illness trajectories similar to other progressive chronic disease conditions where undertaking self-management (SM) and provision of self-management support (SMS) becomes important. The main objectives of this study were to map the literature of SM strategies and SMS needs of patients with advanced cancer and to describe SMS interventions tested in this patient population. A scoping review of all literature published between 2002 and 2016 was conducted. A total of 11 094 articles were generated for screening from MEDLINE, Embase, PsychINFO, CINAHL and Cochrane Library databases. A final 55 articles were extracted for inclusion in the review. Included studies identified a wide variety of SM behaviours used by patients with advanced cancer including controlling and coping with the physical components of the disease and facilitating emotional and psychosocial adjustments to a life-limiting illness. Studies also described a wide range of SMS needs, SMS interventions and their effectiveness in this patient population. Findings suggest that SMS interventions addressing SMS needs should be based on a sound understanding of the core skills required for effective SM and theoretical and conceptual frameworks. Future research should examine how a patient-oriented SMS approach can be incorporated into existing models of care delivery and the effects of SMS on quality of life and health system utilisation in this population.

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