scholarly journals Interventions for improved diabetes control and self-management among those experiencing homelessness: protocol for a mixed methods scoping review

2019 ◽  
Vol 8 (1) ◽  
Author(s):  
David J. T. Campbell ◽  
Rachel B. Campbell ◽  
Carolyn Ziegler ◽  
Kerry A. McBrien ◽  
Stephen W. Hwang ◽  
...  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Stijn Crutzen ◽  
Tessa van den Born-Bondt ◽  
Petra Denig ◽  
Katja Taxis

Abstract Background Hypoglycaemia is a common and potentially avoidable adverse event in people with type 2 diabetes (T2D). It can reduce quality of life, increase healthcare costs, and reduce treatment success. We investigated self-management issues associated with hypoglycaemia and self-identified causes of hypoglycaemia in these patients. Methods In this mixed methods study qualitative semi-structured interviews were performed, which informed a subsequent quantitative survey in T2D patients. All interviews were audio recorded, transcribed verbatim and coded independently by two coders using directed content analysis, guided by the Theoretical Domains Framework. Descriptive statistics were used to quantify the self-management issues and causes of hypoglycaemia collected in the survey for the respondents that had experienced at least one hypoglycaemic event in the past. Results Sixteen participants were interviewed, aged 59–84 years. Participants perceived difficulties in managing deviations from routine, and they sometimes lacked procedural knowledge to adjust medication, nutrition or physical activity to manage their glucose levels. Grief and loss of support due to the loss of a partner interfered with self-management and lead to hypoglycaemic events. Work ethic lead some participant to overexerting themselves, which in turn lead to hypoglycaemic events. The participants had difficulties preventing hypoglycaemic events, because they did not know the cause, suffered from impaired hypoglycaemia awareness and/or did not want to regularly measure their blood glucose. When they did recognise a cause, they identified issues with nutrition, physical activity, stress or medication. In total, 40% of respondents reported regular stress as an issue, 24% reported that they regularly overestimated their physical abilities, and 22% indicated they did not always know how to adjust their medication. Around 16% of patients could not always remember whether they took their medication, and 42% always took their medication at regular times. Among the 83 respondents with at least one hypoglycaemic event, common causes for hypoglycaemia mentioned were related to physical activity (67%), low food intake (52%), deviations from routine (35%) and emotional burden (28%). Accidental overuse of medication was reported by 10%. Conclusion People with T2D experience various issues with self-managing their glucose levels. This study underlines the importance of daily routine and being able to adjust medication in relation to more physical activity or less food intake as well as the ability to reduce and manage stress to prevent hypoglycaemic events.


Author(s):  
Patrick Alexander Wachholz ◽  
Deborah Cristina De Oliveira ◽  
Kathryn Hinsliff-Smith ◽  
Reena Devi ◽  
Paulo José Fortes Villas Boas ◽  
...  

This scoping review aimed to explore the characteristics, strengths, and gaps in research conducted in Brazilian long-term care facilities (LTCFs) for older adults. Electronic searches investigating the residents (≥60 years old), their families, and the LTCF workforce in Brazil were conducted in Medline, EMBASE, LILACS, and Google Scholar, within the timescale of 1999 to 2018, limited to English, Portuguese, or Spanish. The reference lists were hand searched for additional papers. The Mixed Methods Appraisal Tool (MMAT) was used for critical appraisal of evidence. Data were reported descriptively considering the study design, using content analysis: 327 studies were included (n = 159 quantitative non-randomized, n = 82 quantitative descriptive, n = 67 qualitative, n = 11 mixed methods, n = 6 randomized controlled trials, and n = 2 translation of assessment tools). Regardless of the study design, most were conducted in a single LTCF (45.8%), in urban locations (84.3%), and in non-profit settings (38.7%). The randomized trials and descriptive studies presented the lowest methodological quality based on the MMAT. This is the first review to provide an overview of research on LTCFs for older people in Brazil. It illustrates an excess of small-scale, predominantly qualitative papers, many of which are reported in ways that do not allow the quality of the work to be assured.


BMJ Open ◽  
2017 ◽  
Vol 7 (8) ◽  
pp. e015452 ◽  
Author(s):  
Elaine Toomey ◽  
James Matthews ◽  
Deirdre A Hurley

Objectives and designDespite an increasing awareness of the importance of fidelity of delivery within complex behaviour change interventions, it is often poorly assessed. This mixed methods study aimed to establish the fidelity of delivery of a complex self-management intervention and explore the reasons for these findings using a convergent/triangulation design.SettingFeasibility trial of the Self-management of Osteoarthritis and Low back pain through Activity and Skills (SOLAS) intervention (ISRCTN49875385), delivered in primary care physiotherapy.Methods and outcomes60 SOLAS sessions were delivered across seven sites by nine physiotherapists. Fidelity of delivery of prespecified intervention components was evaluated using (1) audio-recordings (n=60), direct observations (n=24) and self-report checklists (n=60) and (2) individual interviews with physiotherapists (n=9). Quantitatively, fidelity scores were calculated using percentage means and SD of components delivered. Associations between fidelity scores and physiotherapist variables were analysed using Spearman's correlations. Interviews were analysed using thematic analysis to explore potential reasons for fidelity scores. Integration of quantitative and qualitative data occurred at an interpretation level using triangulation.ResultsQuantitatively, fidelity scores were high for all assessment methods; with self-report (92.7%) consistently higher than direct observations (82.7%) or audio-recordings (81.7%). There was significant variation between physiotherapists’ individual scores (69.8% - 100%). Both qualitative and quantitative data (from physiotherapist variables) found that physiotherapists’ knowledge (Spearman's association at p=0.003) and previous experience (p=0.008) were factors that influenced their fidelity. The qualitative data also postulated participant-level (eg, individual needs) and programme-level factors (eg, resources) as additional elements that influenced fidelity.ConclusionThe intervention was delivered with high fidelity. This study contributes to the limited evidence regarding fidelity assessment methods within complex behaviour change interventions. The findings suggest a combination of quantitative methods is suitable for the assessment of fidelity of delivery. A mixed methods approach provided a more insightful understanding of fidelity and its influencing factors.Trial registration numberISRCTN49875385; Pre-results.


2016 ◽  
Vol 2016 ◽  
pp. 1-10 ◽  
Author(s):  
Bernadette Bartlam ◽  
Trishna Rathod ◽  
Gillian Rowlands ◽  
Joanne Protheroe

This article reports a mixed methods process evaluation of a pilot feasibility randomised controlled trial comparing a Lay Health Trainer (LHT) intervention and usual care for those with poorly controlled Type 2 Diabetes Melitus (T2DM). Set in a deprived area in the UK, this research explores patient and health care practitioner (HCP) views on whether a structured interview between a patient and a Lay Health Trainer (LHT), for the purpose of developing a tailored self-management plan for patients, is acceptable and likely to change health behaviours. In doing so, it considers the implications for a future, randomised controlled trial (RCT). Participants were patients, LHTs delivering the intervention, service managers, and practice nurses recruiting patients to the study. Patients were purposively sampled on their responses to a baseline survey, and semistructured interviews were conducted within an exploratory thematic analysis framework. Findings indicate that the intervention is acceptable to patients and HCPs. However, LHTs found it challenging to work with older patients with long-term and/or complex conditions. In order to address this, given an ageing population and concomitant increases in those with such health needs, LHT training should develop skills working with these populations. The design of any future RCT intervention should take account of this.


Author(s):  
Elīna Zelčāne ◽  
Anita Pipere

In the field of psychology resilience of the chronically ill has been studied mostly using quantitative research methods, but there are much fewer qualitative studies. This scoping review aims to collect definitions of resilience, find out, whether resilience development strategies are mentioned and what research approaches are used in qualitative studies about the resilience of the chronically ill. The review was conducted, following the 5-stage framework by Arksey and O’Malley, PRISMA guidelines, and searching in PubMed, PsychInfo, and Scopus databases. The main keywords (patients with chronic illness, resilience, strategies, qualitative studies) were selected according to the Participants/Concept/Context (PCC) framework, 21 articles were included in the review. Resilience mostly was defined as the ability to recover, return to normality, and adapt to new conditions after experiencing stress, illness, or other negative events. In several studies, other terms like coping, personal strength, self-management, and psychological growth were used instead. Lived experiences of the chronically ill show that resilience is not a stable ability, it changes over time. Resilience can be developed, using different strategies, such as having a positive mindset, learning new skills, accepting help, or promoting a healthy lifestyle. Qualitative content analysis and thematic analysis were the most often used research approaches in qualitative studies about the resilience of the chronically ill.  


10.2196/33506 ◽  
2021 ◽  
Vol 10 (9) ◽  
pp. e33506
Author(s):  
Anna Hatzioannou ◽  
Andreas Chatzittofis ◽  
Virginia Sunday Koutroubas ◽  
Evridiki Papastavrou ◽  
Maria Karanikola


10.2196/18992 ◽  
2020 ◽  
Vol 9 (8) ◽  
pp. e18992
Author(s):  
Belinda Lovell ◽  
Mary Steen ◽  
Adrian Esterman ◽  
Angela Brown

Background The mother-child relationship is extremely important, and for mothers experiencing incarceration, this relationship has unique challenges. There is limited evidence currently available to identify the type and content of parenting education that would best suit women who are incarcerated. Objective This study aims to design and evaluate a parent education program for women experiencing incarceration in South Australia. The program must meet the specific needs of incarcerated women and considers the cultural needs of Aboriginal and or Torres Strait Islanders and migrant women. Hereafter Aboriginal and/or Torres Strait Islander peoples will be referred to as Aboriginal; the authors acknowledge the diversity within Aboriginal cultures. Methods This study will utilize a mixed methods approach, including six phases framed by a community-based theoretical model. This methodology provides a collaborative approach between the researcher and the community to empower the women experiencing incarceration, allowing their parenting education needs to be addressed. Results A scoping review was undertaken to inform this study protocol. This paper describes and discusses the protocol for this mixed methods study. Recruiting commenced in December 2019, results will be published in 2020, and the project will be completed by August 2022. This project has been supported by a Research Training Scholarship from the Australian Government. Conclusions The scoping review highlighted a lack of rigorous evidence to determine the most appropriate parenting education program to suit women experiencing incarceration specifically, and there was little consideration for the cultural needs of women. It also became clear that when quantitative and qualitative data are utilized, the women’s voices can assist in the determination of what works, what will not work, and what can be improved. The data collected and analyzed during this study, as well as the current evidence, will assist in the development of a specific parenting education program to meet the needs of women experiencing incarceration in South Australia and will be implemented and evaluated as part of the study. International Registered Report Identifier (IRRID) PRR1-10.2196/18992


2021 ◽  
Author(s):  
Ane van Schalkwyk ◽  
Sara Grobbelaar ◽  
Euodia Vermeulen

BACKGROUND There is a growing trend in the potential benefits and application of log data for the evaluation of mHealth Apps. However, the process by which insights may be derived from log data remains unstructured, resulting in underutilisation of mHealth data. OBJECTIVE We aimed to acquire an understanding of how log data analysis can be used to generate valuable insights in support of realistic evaluations of mobile Apps through a scoping review. This understanding is delineated according to publication trends, associated concepts and characteristics of log data, framework or processes required to develop insights from log data, and how these insights may be utilised towards evaluation of Apps. METHODS The PRISMA-ScR guidelines for a scoping review were followed. The Scopus database, the Journal of Medical Internet Research (JMIR), and grey literature (through a Google search) delivered 105 articles of which 33 articles were retained in the sample for analysis and synthesis. RESULTS A definition for log data is developed from its characteristics and articulated as: anonymous records of users’ real-time interactions with the application, collected objectively or automatically and often accessed from cloud-based storage. Publications for theoretical and empirical work on log data analysis have increased between 2010 and 2021 (100% and 95% respectively). The research approach is distributed between inductive (43%), deductive (30%), and a hybrid approach (27%). Research methods include mixed-methods (73%) and quantitative only (27%), although mixed-methods dominate since 2018. Only 30% of studies articulated the use of a framework or model to perform the log data analysis. Four main focus areas for log data analysis are identified as usability (40%), engagement (15%), effectiveness (15%), and adherence (15%). An average of one year of log data is used for analysis, with an average of three years from the launch of the App to the analysis. Collected indicators include user events or clicks made, specific features of the App, and timestamps of clicks. The main calculated indicators are features used or not used (24/33), frequency (21/33), and duration (18/33). Reporting the calculated indicators per ‘user or user group’ was the most used reference point. CONCLUSIONS Standardised terminology, processes, frameworks, and explicit benchmarks to utilise log data are lacking in literature. Thereby, the need for a conceptual framework that is able to standardise the log analysis of mobile Apps is determined. We provide a summary of concepts towards such a framework. CLINICALTRIAL NA


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