Cancer clinical trials (CCT) awareness and attitudes in cancer survivors (Ca surv)

2006 ◽  
Vol 24 (18_suppl) ◽  
pp. 6061-6061 ◽  
Author(s):  
R. L. Comis ◽  
D. Colaizzi ◽  
J. D. Miller

6061 Background: A web-based survey of attitudes and awareness of Ca surv towards CCT was performed from 3–4, 2005. The survey instrument was developed jointly by the Coalition of Cancer Cooperative Groups (CCCG) and Northwestern Univ (NU) and executed by NU and Knowledge Networks (KN). Methods: Ca surv were obtained from a panel of 40,000 adults through KN, based on a US households national probability sample who agree to weekly surveys in exchange for a free WebTV box and ISP service. 2,029 panel members reported a cancer diagnosis. 1,788/2,029 (88%) agreed to participate. Results: Ten-percent of Ca surv were aware that CCT participation was an option. In 73%, a physician was the source of the CCT awareness. Awareness was related to time since diagnosis (< 9 yrs vs > 9yrs); gender (females > males); age (younger > older), and education (baccalaureate vs less). Awareness varied according to cancer type: leukemia, 26%; breast, 15%; lymphoma and lung, 14%; prostate, 12%; melanoma and renal cell, 10%; colorectal and bladder; 6–3%. Awareness was dependent (p < .01) on type of treatment: surgery 5% (n, 880); surgery and RT, 7% (n, 181); RT, 10% (n, 107); chemotherapy, 18% (n, 488). Of the last group, 44% enrolled into CCT; 33% declined and 11% were either ineligible or not offered a CCT. Those who declined were concerned that the new approach might be “less effective” (40%) and about “randomization” (18%). CCT Ca surv reported a high level of satisfaction on a 0 (worst) to 10 (best) scale: “treated with dignity and respect”, 9.6; “overall very positive experience”, 9.3; “recommend to a family member or friend”, 8.8. Conversely, the response to “I felt like a guinea pig” was 1.7. Conclusions: In summary, assessing issues such as awareness, participation and accrual onto CCT must adjust for key demographic, disease and treatment related factors. The CCT experience is valued and appreciated by Ca surv as they move the field forward. No significant financial relationships to disclose.

2007 ◽  
Vol 25 (18_suppl) ◽  
pp. 6567-6567 ◽  
Author(s):  
R. L. Comis ◽  
D. D. Colaizzi ◽  
J. D. Miller

6567 Background: A web based survey of attitudes and awareness of cancer survivors (Ca. surv) towards CCT was performed from 3–4, 2005. The survey was developed jointly by the Coalition of Cancer Cooperative Groups and Michigan State University (MSU) and executed by MSU and Knowledge Networks (KN). Methods: Ca surv. were obtained from a panel of 40,000 adults through KN based on a US household probablility sample who agree to weekly surveys in exchange for a free MSN box and ISP service. 2,029 panel members reported a cancer diagnosis (dx); 1,788/2,029 (88%) agreed to participate. Results: About 10% of Ca surv. are aware of CCT opportunities at the time of dx. 73% become aware through a physician (ASCO 2006: 6061). Ca surv. were asked to rank the most trusted sources of health care information from a list of 23 categories on a 0 (least) to 10 (most) scale. Physicians scored the highest (8.6) followed by information from the NCI (8.4) and reports from societies of cancer physicians/researchers (8.3). Although not significantly different from each other, all were significantly different from the other 20 sources (p<.05). CCT aware Ca surv. were asked whether the physician discouraged, was neutral or encouraged participation or made a little, moderate or great deal of effort to educate them and find a CCT. Enrollment (%) was directly related (p< 0.01) to the perceived physician involvement as follows: Encouragement: discouraged (0); neutral (16); encouraged (84); Educate: little (22); moderate (41%); great deal (64%); Find trial: little (23); moderate (39); great deal (82%). Of the 90% of Ca surv. who were not aware of CCT, 65% indicated that they would be somewhat or very receptive to enrollment if they had been made aware of an opportunity. Conclusion: Ca surv. are not CCT averse a priori. The physician is the most trusted, primary source of awareness and influence in decisions concerning CCT. Although there are myriad reported barriers to CCT participation, increased CCT participation hinges upon physician commitment and communication; conversely, a lack thereof may be the greatest barrier to increased CCT participation. No significant financial relationships to disclose.


2020 ◽  
Author(s):  
Suli Zhao ◽  
Jing Cao ◽  
Lin Zhang ◽  
Beibei Liu ◽  
Rongcan Sun

Abstract As Coronavirus Disease 2019 (COVID-19) has exerted impact on every aspect of daily life, it is important to adopt appropriate measures to cope with the situation. Since dental healthcare personnel (DHCP) are characterized with high level of stress and have the potential for exposure to infectious materials, the mental state of them requires concern. This study used two web-based questionnaires to compare the anxiety state of DHCP to that of the general public after dental settings in Yichang, China returned to a full scope of services. Subsequently, potential factors influencing the anxiety state of DHCP were analyzed. Results indicated that they were more likely to suffer from anxiety disorders than the general public were. For DHCP, those who were at a younger age, provided care without level three protective measures, had conflicts with patients or colleagues, and/or had less knowledge of COVID-19 were more prone to anxiety disorders. Practical suggestions were proposed at the end of this study to help DHCP maintain better mental health conditions. As COVID-19 continues to spread, this study could provide data support for adopting appropriate measures at dental settings.


2014 ◽  
Vol 2014 ◽  
pp. 1-6
Author(s):  
Rod P. Bonello ◽  
Marc Cohen ◽  
John Reece ◽  
Arun Aggarwal ◽  
Curtis Rigney

The Electro-Neuro-Adaptive-Regulator (ENAR) device is a hand-held electrotherapy which is applied using energetic medicine principles and aspects of acupuncture theory. The aim of this paper is to report the findings of a postmarket survey of persons who have used the ENAR device. The conditions for which the therapy was used and its perceived effectiveness are discussed. A web-based survey of Australian recipients of ENAR therapy was completed by 481 respondents. Most (76%) used ENAR exclusively for pain relief for musculoskeletal disorders, especially back, shoulder, and neck pain; 8% used ENAR exclusively for nonmusculoskeletal disorders; while 16% used ENAR for both. Respondents reported a mean reduction in pain of 70% (t(423) = 38.73,P<.001) and functional improvement of 62% (t(423) = 10.45,P<.001) using 11-point numerical rating scales. Following ENAR treatment, medication reduction was reported by 91% of respondents. Most respondents reported high satisfaction following ENAR therapy, with between 15 and 20% achieving complete pain relief. The self-delivery of ENAR may, in part, account for the high level of satisfaction.


2020 ◽  
Vol 15 (2) ◽  
pp. 87-90
Author(s):  
Nazik L Kadium

Background: Patient satisfaction is of increasing importance and widely recognized as an important indicator of quality of the medical care. There was no homogeneous definition of patient satisfaction, since satisfaction concerns different aspects of care or settings, as well as care given by various professions. Objective: The objective of this study is to assess the patients’ level of satisfaction with diabetes care and to identify the underlying factors influencing it. Methods: This cross-sectional study had been conducted in the Specialized Center for Diabetes and Endocrinology in Baghdad Al- Rusafa 2018. Where150 type two diabetic patients attending their follow-up were requested to fill the questionnaire. The questionnaire identified patients, doctors, and practice related factors. For statistical analysis of the data, SPSS Version 24 was used, and the Chi-square statistical test was applied, A p-value less than 0.05 was considered statistically significant. Results: The study showed that the overall level of satisfaction was 79.3%. There was a statistically significant association between age group, gender, profession, educational level and marital status where P value 0.001 for all variables. Conclusion: It was concluded from the study that patients’ satisfaction was high. Majority of the diabetic patients were satisfied with health services, the level of satisfaction increases with age, female gender, and married patients, but it decreases with a high level of education and profession. High level of dissatisfaction seen on treatment services  


2021 ◽  
Vol 11 ◽  
Author(s):  
Carla Assenza ◽  
Hilenia Catania ◽  
Clementina Antenore ◽  
Tiziana Gobbetti ◽  
Paola Gentili ◽  
...  

Objective: To explore professionals', adult patients', and children's caregivers' perception and satisfaction with telerehabilitation during COVID-19 lockdown.Design: An observational transversal study on a web-based survey was conducted in order to explore participants' perception and satisfaction of telerehabilitation during COVID-19 lockdown.Setting: The study was conducted at our Outpatient Neurorehabilitation Service.Subjects: All rehabilitation professionals, adult patients, and children's caregivers who accepted telerehabilitation were recruited.Interventions: Participants had to respond to the Client Satisfaction Questionnaire-8 and to a purpose-built questionnaire on their perception and satisfaction of the service provided.Main Measures: Data were analyzed by qualitative statistics and logistic regression models.Results: All 144 caregivers, 25 adult patients, and 50 professionals reported a medium-high level of perception and a high level of satisfaction. Results showed a correlation among caregivers of children aged 0–3 and feeling overwhelmed with remote care (OR = 3.27), a low perception of telerehabilitation for enhancing goals (OR = 6.51), and a high perception of feeling helped in organizing daily activity (OR = 2.96). For caregivers of children aged over 6 years, changes in the therapy plan were related to a low perception of feeling in line with the in-person therapy (OR = 2.61 and OR = 9.61) and a low satisfaction (OR = 5.54 and OR = 4.97). Changes in therapy were related to concern (OR = 4.20). Caregivers under 40 and professionals showed a high probability to perceive telerehabilitation as supportive (OR = 2.27 and OR = 5.68). Level of experience with remote media was shown to influence perception and satisfaction.Interpretation: Telerehabilitation can be a useful practice both during a health emergency and in addition to in-presence therapy.


2018 ◽  
Vol 9 (01) ◽  
Author(s):  
Parul Gill ◽  
Poonam Malik ◽  
Pankaj Gill

The present study was undertaken to explore the decision making patterns of college girls in relation to clothing and their satisfaction level with these decision making patterns. Thirty under graduate college girls from Panipat city were approached to record their responses regarding decision making in relation to clothing and satisfaction level through a well structured questionnaire. It was found that most of the girls (56.66%) themselves made the decisions about the type of garment (Indian, western or both) they wear and majority of girls (70%) were highly satisfied with this decision making. Parents performed the role of buyers for their college going daughters' garments in most of the cases (63.33%) and the 73.33% girls had high level of satisfaction with this. In most of the cases (60%) the decision about the garment design was made by the girls themselves and they were highly satisfied with it. Keywords: clothing, college, girls, decision making.


2020 ◽  
Vol 7 (1) ◽  
pp. 41-49
Author(s):  
Ajat Sudrajat

Patient satisfaction at the hospital is a benchmark that is a benchmark for patients in getting health care. Each hospital must run a variety of strategies so that patients feel satisfied with health services, one of the strategies is through a good corporate image and trust, where a good corporate image can increase trust. So that affecting patient satisfaction Mitra Medika Narom Hospital Kabupaten Bekasi.             This research was conducted with descriptive and verification methods, namely knowing, analyzing, explaining and testing hypotheses, and making conclusions and suggestions. The sample in this study amounted to 240 respondents using the Eksplanary Survey method. Data analysis techniques used are ordinal scale techniques and path analysis using the Method of Successive Interval (MSI) tool, Microsoft Excel 2016 computer programs and SPSS 16.             The results of this study reveal that the company's image at the Mitra Medika Narom Hospital in Kabupaten Bekasi is in the agreed criteria, meaning that Mitra Medika Narom Hospital has built and made a good company image so that it is better known to all people. Furthermore, trust in Mitra Medika Narom Hospital in Kabupaten Bekasi is in the agreed criteria, meaning that Mitra Medika Narom Hospital has succeeded in building a good and optimal Trust so that patients trust Mitra Medika Narom Hospital to obtain health services. Then the patient satisfaction at the Mitra Medika Narom Hospital in Kabupaten Bekasi is in the agreed criteria, meaning that the patients as respondents feel a high level of satisfaction after completing treatment at the Mitra Medika Narom Hospital. There is a positive, strong and two-way correlation between company image and trust variables of 0.646. There is a partial influence of company image on patient satisfaction at Mitra Medika Narom Hospital significantly by 11.98%. There is a partial influence of trust on patient satisfaction at Mitra Medika Narom Hospital significantly by 25.08%. Then there is a simultan influence of corporate image and trust on patient satisfaction at Mitra Medika Narom Hospital positively and significantly by 37.06% while the remaining 62.94% is contributed by other variables not examined


2020 ◽  
Vol 6 ◽  
pp. 237796082098178
Author(s):  
Sumana Lama ◽  
Jintana Damkliang ◽  
Luppana Kitrungrote

Introduction Community integration is an essential component for rehabilitation among traumatic brain injury (TBI) survivors, which yields positive outcomes in terms of social activities, community participation, and productive work. A factor that usually facilitates community integration among TBI survivors is social support, whereas physical environment and fatigue are most often found as barriers. Objectives This study aimed to (1) describe the level of community integration, fatigue, physical environment, and social support of persons after TBI, and (2) examine the relationship between community integration and these three factors. Methods This is a descriptive correlational study. One hundred and twenty TBI survivors living in the communities of Province Number Three, Nepal were enrolled using the stratified sampling technique. The data were collected using the Community Integration Questionnaire, Modified Fatigue Impact Scale, Craig Hospital Inventory of Environmental Factors, and the Multidimensional Scale of Perceived Social Support. Descriptive statistics and Pearson’s correlation were used to analyze the data. Results Community integration, fatigue, and physical environment showed a moderate level, while social support revealed a high level. Fatigue was significantly correlated with overall community integration, whereas physical environment was found to correlate with two subscales of community integration, home integration and productive activities. Conclusion To enhance the level of community integration among TBI survivors, health care providers, in particular rehabilitation nurses and community nurses, should plan and implement strategies such as follow-up appointments or continued rehabilitation at home.


2021 ◽  
Vol 9 (1) ◽  
Author(s):  
Rebecca Spigel ◽  
Jessica A. Lin ◽  
Carly E. Milliren ◽  
Melissa Freizinger ◽  
Julia A. Vitagliano ◽  
...  

Abstract Background Shelter-in-place orders and social distancing guidelines, in response to the COVID-19 pandemic, have limited traditional face-to-face interactions and led to many clinical providers transitioning to the use of videoconferencing platforms. The present study aims to assess how the COVID-19 pandemic has impacted adolescents’/young adults’ (AYA) eating disorder (ED)-related care, and how access to, changes in, perceived disruptions to, and quality of care are associated with ED thoughts and behaviors. Methods AYA enrolled in the RECOVERY study, a pre-existing web-based longitudinal study, and completed a COVID-19-specific survey (n = 89). We examined bivariate associations of four markers of care: i) access to care, ii) changes in care, iii) perceived disruption to care, and iv) quality of care. Using multiple logistic regression, we examined the associations of pandemic-related markers of care with changes in ED thoughts and behaviors. We excluded those not engaged in treatment pre-pandemic (n = 16). Results In the remaining 73 participants, reported access to care was high, with 92% of respondents continuing care with at least one ED provider during the pandemic; however, 47% stopped some treatment during the pandemic. Nearly one-third (32%) perceived a disruption in treatment. Quality of care remained high with 67% reporting care to be better than or as good as pre-pandemic. Respondents acknowledged heightened symptomatology: 81% reported increased ED thoughts and 81% reported increased ED behaviors due to COVID-19-related factors. However, none of the markers of care described were significantly associated with ED thoughts or behaviors in regression analyses adjusting for demographic variables and baseline characteristics, except our quality of care measure which was approaching significance (p = 0.07). Conclusions Our findings show the majority of AYA who had care prior to the pandemic continued receiving some element of their multi-disciplinary ED treatment and perceived their care as high quality. None of the markers of care described were statistically associated with increased ED thoughts and behaviors.


Sensors ◽  
2021 ◽  
Vol 21 (8) ◽  
pp. 2757
Author(s):  
W. Rudolf Seitz ◽  
Casey J. Grenier ◽  
John R. Csoros ◽  
Rongfang Yang ◽  
Tianyu Ren

This perspective presents an overview of approaches to the preparation of molecular recognition agents for chemical sensing. These approaches include chemical synthesis, using catalysts from biological systems, partitioning, aptamers, antibodies and molecularly imprinted polymers. The latter three approaches are general in that they can be applied with a large number of analytes, both proteins and smaller molecules like drugs and hormones. Aptamers and antibodies bind analytes rapidly while molecularly imprinted polymers bind much more slowly. Most molecularly imprinted polymers, formed by polymerizing in the presence of a template, contain a high level of covalent crosslinker that causes the polymer to form a separate phase. This results in a material that is rigid with low affinity for analyte and slow binding kinetics. Our approach to templating is to use predominantly or exclusively noncovalent crosslinks. This results in soluble templated polymers that bind analyte rapidly with high affinity. The biggest challenge of this approach is that the chains are tangled when the templated polymer is dissolved in water, blocking access to binding sites.


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