Factors associated with participating in formal support services among family caregivers of older adults with poor-prognosis cancers.

2017 ◽  
Vol 35 (31_suppl) ◽  
pp. 21-21
Author(s):  
J Nicholas Dionne-Odom ◽  
Allison Applebaum ◽  
Katherine Ornstein ◽  
Andres Azuero ◽  
Paula Warren ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Support Services ◽  
Service Use ◽  
High Stress ◽  
Mail Survey ◽  
Stage Iv ◽  
Support Service ◽  
Cross Sectional ◽  
Formal Support ◽  
Stress Burden

21 Background: Family caregivers of persons with cancer are at high risk for distress and may benefit from formal support services. The purpose of this study was to describe cancer family caregiver’s use of and desire for formal support services. Methods: Cross-sectional mail survey conducted in communities of eight cancer centers in Tennessee, Alabama, and Florida. Family caregivers of Medicare beneficiaries with pancreatic, lung, brain, ovarian, head and neck, hematologic, and stage IV cancers reported support service use and completed validated measures of depression, anxiety, burden, preparedness, and health. Results: Caregivers(n = 294) were on average age 65.5 years and mostly female (72.8%), white (91.2%), and care recipients’ spouse/partner (60.2%). Patients averaged 75.3 years and were mostly male (54.4%). Formal support services were used by 32.0% (n = 94) of all caregivers; 4.4% used therapy or counseling, 19.7% received education and training; and 11.2% received assistance from local, state, or national organizations. Twenty-eight percent of all caregivers were “mostly or “extremely” interested in receiving support services; of those, 44% had high depressive symptoms, 52.3% had high anxiety symptoms, and 36.4% in the lowest quartile of preparedness. In multivariate analyses, participation in services was significantly associated with lower objective burden, higher preparedness, not working, and not being the patient’s spouse. Being “mostly” or “extremely” interested in support services was significantly associated with being a minority, shorter durations of caregiving, and with higher stress burden. Conclusions: While distressed and underprepared family caregivers reported strong interest in formal support services, only a small proportion accessed these services. Strategies to increase service use may include targeting those caregivers who are still early in their caregiving experience and who report high stress burden.

scholarly journals Prevalence and Predictors of Social Support Utilization among Cancer Patients Undergoing Treatment

2014 ◽  
Vol 7 (4) ◽  
pp. 139-148
Author(s):  
John Hunninghake ◽  
Fanglong Dong ◽  
Robert B Hines ◽  
Elizabeth Ablah ◽  
Sarah Taylor
Keyword(s):  
Social Support ◽  
Cancer Patients ◽  
Support Services ◽  
Kansas City ◽  
Stage Iv ◽  
Final Analysis ◽  
Support Service ◽  
Cancer Stage ◽  
Cross Sectional ◽  
Social Support Services

Background. The purpose of this study was to quantify the prevalence of cancer patients utilizing social support services while undergoing treatment and to identify patient and clinical factors associated with utilization of such services. Methods. This was a cross-sectional study. Surveys were distributed to three cancer clinics at 11 locations in the greater Kansas City metropolitan area in 2010. Study inclusion criteria included being at least 18 years old and undergoing treatment for cancer at the time of survey completion. Results. A total of 465 oncology patients completed surveys. Two-thirds (67.5%, n = 314) were undergoing treatment for cancer and were included in the final analysis. More than half (63.7%, n = 198) were female, and the average age was 58.9 ± 13.3 years. More than one-third (37.4%, n = 117) reported using cancer-related social support services. Additionally, 22% (n = 69) reported not using support services but were interested in learning more about those services. Patients had increased odds of having used support services if they were female (OR = 2.67; 95% CI = 1.47, 4.82), were younger adults, or had stage I-III (OR = 2.67; 95% CI 1.32, 5.26) or stage IV cancer (OR = 2.3; 95% CI 1.14, 4.75) compared to those who did not know their cancer stage. Conclusions. More than one-third of patients reported using social support services. A substantial portion of participants reported not using support services but were interested in learning more about those services. Increasing social support service utilization might be especially important to explore for men, those who do not know their cancer stage, and older adults.

scholarly journals Support service use and interest in support services among distressed family caregivers of lung cancer patients

2012 ◽  
Vol 22 (7) ◽  
pp. 1549-1556 ◽  
Author(s):  
Catherine E. Mosher ◽  
Victoria L. Champion ◽  
Nasser Hanna ◽  
Shadia I. Jalal ◽  
Achilles J. Fakiris ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Support Services ◽  
Service Use ◽  
Support Service ◽  
Lung Cancer Patients

scholarly journals Older Emergency Department Patients: Does Baseline Care Status Matter?

2020 ◽  
Vol 23 (4) ◽  
pp. 289-296
Author(s):  
Fabrice Immanuel Mowbray ◽  
Komal Aryal ◽  
Eric Mercier ◽  
George Heckman ◽  
Andrew P. Costa
Keyword(s):  
Older Adults ◽  
Emergency Department ◽  
Nursing Home ◽  
Home Care ◽  
Support Services ◽  
Service Use ◽  
Secondary Analysis ◽  
Nursing Home Residents ◽  
Post Discharge ◽  
Formal Support

Background Little is known about the prognostic differences between older emergency department (ED) patients who present with different formal support requirements in the community. We set out to describe and compare the patient profiles and patterns of health service use among three older ED cohorts: home care clients, nursing home residents and those receiving no formal support. Methods We conducted a secondary analysis of the Canadian cohort from the interRAI multinational ED study. Data were collected using interRAI ED contact assessment on patients 75 years of age and older (n = 2,274), in eight ED sites across Canada. A series of descriptive statistics were reported. Adjusted as­sociations were determined using logistic regression. Results Older adults receiving no formal support services were most stable. However, they were most likely to be hospitalized. Older home care clients were most likely to report depressive symptoms and distressed caregivers. They also had the great­est odds of frequent ED visitation post-discharge (OR=1.9; 95% CI=1.39–2.59). Older adults transferred from a nursing home were the frailest but had the lowest odds of hospital admission (OR=0.14; 95% CI=0.09–0.23). Conclusion We demonstrated the importance of inquiring about commu­nity-based formal support services and provide data to support decision-making in the ED.  

scholarly journals HUBUNGAN BEBAN PENGASUHAN DENGAN POLA INTERAKSI KELUARGA ORANG DENGAN GANGGUAN JIWA (ODGJ) DI RUMAH

2019 ◽  
Vol 1 (2) ◽  
pp. 64
Author(s):  
Yosevin Karunia Nababan ◽  
Ah Yusuf ◽  
Lailatun Nimah
Keyword(s):  
Mental Health ◽  
Mental Disorder ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Significant Relationship ◽  
High Stress ◽  
Sampling Technique ◽  
Abnormal Behavior ◽  
Interaction Patterns ◽  
Cross Sectional

Pendahuluan: Keluarga sebagai caregiver penderita ODGJ mengalami beban berupa gangguan fisik, emosional dan finansial karena perilaku abnormal pasien, disfungsi sosial serta ketidakmampuan untuk menghidupi dirinya sendiri. Akibat beban yang mereka alami, caregiver ODGJ menunjukkan gejala stress dan kecemasan yang tinggi hingga mempengaruhi pola interaksi. Metode: Rancangan penelitian ini adalah cross sectional . Sampel sejumlah 123 caregiver keluarga penderita ODGJ yang berkunjung di Poliklinik kesehatan jiwa RSJ Menur Surabaya dan didapatkan dengan menggunakan teknik konsekuetive sampling. Data diperoleh dari kuesioner Zarit Caregiver Burden Questionaire dan kuesioner pola interaksi kemudian dianalisis dengan uji statistik korelasi Spearman Rho. Hasil: Hasil penelitian menunjukkan bahwa ada hubungan yang signifikan antara beban pengasuhan dengan pola interaksi (p=0,032) pada nilai signifikansi < 0,05. Koefisien korelasi r=-0,194. Hal ini menunjukkan bahwa terdapat hubungan yang rendah dengan arah negatif, sehingga semakin tinggi beban pengasuhan yang dirasakan semakin rendah pola interaksi yang dialami oleh caregiver keluarga penderita ODGJ. Kesimpulan : Terdapat hubungan yang rendah dan bermakna antara beban pengasuhan dengan pola interaksi caregiver keluarga penderita ODGJ dengan arah negatif, yang berarti semakin tinggi beban pengasuhan yang dirasakan oleh caregiver, maka pola interaksinya semakin rendah. ABSTRACTIntroduction: Families as caregivers their family with mental disorder experience the burden of physical, emotional and financial disturbances due to the patient's abnormal behavior, social dysfunction and inability to support themselves. Due to the burden they experience, caregivers show symptoms of high stress and anxiety to affect patterns of interaction.Method: The design of this study was cross sectional. A sample of 123 family sufferers of mental disorder member who visited the mental health polyclinic at the Menur General Hospital in Surabaya was obtained using a consistent sampling technique. Data were obtained from the Zarit Caregiver Burden Questionaire and the interaction pattern questionnaire was then analyzed using the Spearman Rho correlation test.Results: The results showed that there was a significant relationship between the burden of caregiving with interaction patterns (p = 0.032) at a significance value <0.05. The correlation coefficient r = -0,194. This shows that there is a low relationship with a negative direction, so that the higher the burden of caregiving is felt the lower the interaction patterns experienced by family caregivers of people with mental disorder.Conclusion: There is a significant relationship between caregiving burden with the negative caregiver interaction patterns of mental disorder sufferers' families, which means that the higher the caregiver burden felt by caregivers, the lower the interaction patterns.

scholarly journals Enablers And Barriers To Utilisation Of Available Formal Support By Institutionalised Individuals With Alzheimer’s Disease And Related Dementias In Rural South Western Uganda: A Qualitative Descriptive Study

2019 ◽  
Author(s):  
VALLENCE NIYONZIMA ◽  
Samuel Maling ◽  
Zeina Chemali
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Rural Communities ◽  
Support Services ◽  
The Elderly ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Term Care ◽  
Formal Support ◽  
Western Uganda

Abstract Background: The world’s population is ageing resulting in a larger number of people living with dementia. Prevalence of dementia for persons aged above 60 years is expected to increase . There is paucity of information regarding formal support available for institutionalised individuals with AD/ADRD, enablers and barriers to its utilisation particularly South Western Uganda. Therefore this study, filling this knowledge gap, sought to assess formal support available for individuals with AD/ADRD, enablers and barriers to its utilisation in rural communities in South Western Uganda Methods: This study was conducted in two nongovernmental community based facilities for the elderly in South Western Uganda employing a qualitative cross sectional study design. Purposive sampling was used to recruit caretakers of individuals with Alzheimer’s disease and related dementias. A total of 28 in depth interviews and 6 key informant interviews were conducted. Results: Three arching themes emerged: 1) Formal support services available, 2) Enablers and 3) Barriers to the utilisation of the formal support services in institutionalised patients with AD/ADRD in rural communities in South Western Uganda. Conclusions: These findings highlight the importance of formal care in the long-term care of individuals with AD/ADRD. There is a dire need to equip caretakers involved in the care of patients with AD/ADRD with the required skill set and include formal support services in the mainstream primary health care to make the services accessible.

Examination of differences in quality of life and use of support services in urban versus rural breast cancer patients.

2013 ◽  
Vol 31 (31_suppl) ◽  
pp. 98-98
Author(s):  
Sarah Roberts ◽  
Shahid Ahmed
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Cancer Patients ◽  
Support Groups ◽  
Support Services ◽  
Service Use ◽  
Support Service ◽  
Life Assessment ◽  
Significant Difference

98 Background: Many patients travel great distances, both for testing and for medical care. Previous studies have indicated that there can be significantly poorer quality of life in urban cancer patients. The purpose of this study was to determine any differences in support service use and quality of life in rural versus urban patients in Saskatchewan. Methods: This study is a survey based qualitative and quantitative analysis of women with breast cancer receiving treatment at the Saskatoon Cancer Center (SCC) in Saskatchewan, Canada. Surveys included demographic information, support service utilization and suggestions, as well as the WHO-QOL-bref quality of life assessment. Surveys were collected from 51 women with an age range of 43 to 87 years with a median age of 63. Participants travelled a mean distance of 99.2km to treatment center (range 1.9 – 307.6 km, SD 101 km) with 49% women travelling greater than 100 km (rural group) and 51% travelling less than 100 km (urban group). Results: Only 50% of urban participants and 56% of rural participants reported using support services at the SCC though this was found to be statistically non-significant by Fisher Exact Testing (p= 0.781). The support services reported to be most useful were nursing phone assessments, medication information, pharmacist support and mailing of medications. Further support services that participants would like to have available include: online support groups and blogs, local support groups, physician visits to rural communities and patient liaisons to help navigate the system. Overall, urban participants rated their quality of life on average at 3.96 with rural participants reporting 3.84 on a five-point scale, though non-significant by t-test (p=0.617). The WHO-QOL-bref study examines quality of life in 4 domains: physical health, psychological wellbeing, social and environment. Urban participants scored 68%, 72%, 76% and 77% in the 4 domains respectively while rural participants scored 61%, 73%, 79% and 78% in the 4 domains respectively. Conclusions: Our study did not find any significant difference between urban and rural patients in reported quality of life or support service use.

scholarly journals Support service use and interest in support services among lung cancer patients

Lung Cancer ◽  
2013 ◽  
Vol 82 (1) ◽  
pp. 162-167 ◽  
Author(s):  
Catherine E. Mosher ◽  
Nasser Hanna ◽  
Shadia I. Jalal ◽  
Achilles J. Fakiris ◽  
Lawrence H. Einhorn ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Cancer Patients ◽  
Support Services ◽  
Service Use ◽  
Support Service ◽  
Lung Cancer Patients

scholarly journals Family Caregivers in Rural Appalachia Caring for Older Relatives with Dementia: Predictors of Service Use

2021 ◽  
Author(s):  
Jyoti Savla ◽  
Karen A Roberto ◽  
Rosemary Blieszner ◽  
Aubrey L Knight
Keyword(s):  
Family Caregivers ◽  
Support Services ◽  
Structural Equation ◽  
Service Use ◽  
Structural Equation Models ◽  
Behavioral Model ◽  
Community Dwelling ◽  
Personal Services ◽  
Formal Services ◽  
Rural Appalachia

Abstract Background and Objectives Residents of rural Appalachia tend to experience poorer health and greater economic distress than rural dwellers elsewhere in the U.S. Although family is the first line of support for older adults needing care, it is unclear whether dementia caregivers in Appalachia assume these care responsibilities because of strong informal networks that support them in their caregiving role, under-resourced formal services for persons with dementia, or culture-based reluctance to accept help from outsiders. This research examines how rural residents of Appalachia manage the care of relatives with dementia. Research Design and Methods The study was grounded in the Andersen Behavioral Model, supplemented with culturally-relevant variables. Family caregivers from rural Appalachian counties in Virginia caring for community-dwelling relatives with dementia participated in a structured phone interview (N = 163). Generalized structural equation models were estimated, with predisposing, need, and enabling variables as predictors. Use of support services (e.g., meal delivery) and personal services (e.g., home health nurse) by family caregivers to care for the person with dementia were the dependent variables, and caregiver’s rural community identity and attitude toward services were moderators. Results Approximately half the sample utilized at least one support service and one personal service. Predisposing and need factors predicted the use of support services, whereas predisposing, need, and enabling factors predicted personal services. Caregivers who strongly identified with their cultural roots were less likely to use personal services unless they held a generally positive view of formal services. Discussion and Implications Although the extent of needs and the caregiver's economic situation were essential influences on formal service utilization, the main drivers were the caregiver's identification with rural Appalachian culture and attitude toward services. Findings point to within-group heterogeneity that requires differential approaches to delivery of community-based services accounting for varying attitudes, preferences, and family resources.

Utilization of Formal Support Services for Elder Abuse: Do Informal Supporters Make a Difference?

2018 ◽  
Vol 59 (4) ◽  
pp. 619-624 ◽  
Author(s):  
David Burnes ◽  
Risa Breckman ◽  
Charles R Henderson ◽  
Mark S Lachs ◽  
Karl Pillemer
Keyword(s):  
New York ◽  
Support Services ◽  
Help Seeking ◽  
Elder Abuse ◽  
New York State ◽  
Population Based ◽  
Support Service ◽  
Third Party ◽  
Formal Support ◽  
Formal Services

Abstract Background and Objectives Few elder abuse (EA) victims ever seek or receive assistance from formal support services designed to mitigate risk and harm of revictimization. This study examined whether the presence of third-party “concerned persons” in victims’ personal social networks plays a role in enabling formal support service utilization. Research Design and Methods A representative population-based survey administered to adults (n = 800) in New York State identified 83 EA cases from the past year. Penalized likelihood logistic regression was used to examine the relationship between availability of a concerned person and victim formal support services usage. Results EA victims who had a concerned person in their personal life were significantly more likely to use formal EA support services than victims without a concerned person. EA victims who lived with their perpetrator were significantly less likely to use formal services. Discussion and Implications Third-party concerned persons represent a critical population to target in efforts designed to promote EA victim help-seeking.

scholarly journals COVID-19-related social support service closures and mental well-being in older adults and those affected by dementia: a UK longitudinal survey

BMJ Open ◽  
2021 ◽  
Vol 11 (1) ◽  
pp. e045889
Author(s):  
Clarissa Giebel ◽  
Daniel Pulford ◽  
Claudia Cooper ◽  
Kathryn Lord ◽  
Justine Shenton ◽  
...  
Keyword(s):  
Social Support ◽  
Older Adults ◽  
Support Services ◽  
Service Use ◽  
Well Being ◽  
Support Service ◽  
Vulnerable Groups ◽  
Service Usage ◽  
Social Support Services ◽  
Mental Well Being

BackgroundThe COVID-19 pandemic has had a major impact on delivery of social support services. This might be expected to particularly affect older adults and people living with dementia (PLWD), and to reduce their well-being.AimsTo explore how social support service use by older adults, carers and PLWD, and their mental well-being changed over the first 3 months since the pandemic outbreak.MethodsUnpaid dementia carers, PLWD and older adults took part in a longitudinal online or telephone survey collected between April and May 2020, and at two subsequent timepoints 6 and 12 weeks after baseline. Participants were asked about their social support service usage in a typical week prior to the pandemic (at baseline), and in the past week at each of the three timepoints. They also completed measures of levels of depression, anxiety and mental well-being.Results377 participants had complete data at all three timepoints. Social support service usage dropped shortly after lockdown measures were imposed at timepoint 1 (T1), to then increase again by T3. The access to paid care was least affected by COVID-19. Cases of anxiety dropped significantly across the study period, while cases of depression rose. Well-being increased significantly for older adults and PLWD from T1 to T3.ConclusionsAccess to social support services has been significantly affected by the pandemic, which is starting to recover slowly. With mental well-being differently affected across groups, support needs to be put in place to maintain better well-being across those vulnerable groups during the ongoing pandemic.

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