scholarly journals Maternal care in the preterm child’s family context: A comprehensive look towards the sibling

2019 ◽  
Vol 72 (suppl 3) ◽  
pp. 50-57
Author(s):  
Soraya Cirilo Carvalho ◽  
Beatriz Castanheira Facio ◽  
Bruna Felisberto de Souza ◽  
Flávia Corrêa Porto de Abreu-D’Agostini ◽  
Adriana Moraes Leite ◽  
...  
Keyword(s):  
Maternal Care ◽  
Neonatal Intensive Care ◽  
Narrative Research ◽  
Physical Distance ◽  
Family Context ◽  
Structured Interviews ◽  
Premature Child ◽  
Thematic Units ◽  
Preterm Babies ◽  
And Coping

ABSTRACT Objective: To analyze maternal care for siblings of preterm babies hospitalized in the neonatal intensive care unit. Method: Qualitative research using symbolic interactionism as a theoretical reference and narrative research as a methodological reference. Ten mothers were surveyed through semi-structured interviews. Results: Three thematic units emerged from the analysis of data: “social support in the sharing of child care”; “promotion of adaptation to the arrival of a sibling” and “maternal feelings and coping”. Final considerations: Care for the premature child’s sibling is developed under mothers’ physical distance from him/her, justified by the need to remain close to the premature child due to risks and fragility related to the condition.

scholarly journals Experiences of Parents of Preterm Children Hospitalized Regarding Restrictions to Interact with Their Children Imposed Because of the COVID-19 Pandemic

2021 ◽  
Vol 39 (2) ◽  
Author(s):  
Sandra Patricia Osorio Galeano ◽  
Ángela María Salazar Maya
Keyword(s):  
Neonatal Intensive Care ◽  
Virus Transmission ◽  
Physical Distance ◽  
Professional Support ◽  
Health Staff ◽  
Structured Interviews ◽  
Preterm Children ◽  
Preterm Child ◽  
Opportunities For Learning ◽  
Axial Coding

Objective. To describe the experiences of parents of hospitalized preterm children regarding the restrictions implemented in the neonatal intensive care unit -NICU- during the COVID-19 pandemic. Methods. Qualitative study. Semi-structured interviews were conducted between April and October 2020 with 12 parents of preterm children, whose children were hospitalized and discharged from NICU during the pandemic. The analysis was performed with tools from grounded theory through open and axial coding. Results. The study identified four categories regarding the experience: 1) needing information: refers to the need for clear and close information to compensate for the physical distance; 2) limiting the interaction with the children: expressed as a painful situation, which minimizes opportunities for learning to care at home for their preterm child; 3) the pandemic: adding to the fears: in which the virus appears as a new threat for the children, who are vulnerable given their premature condition; and 4) limiting social support after discharge: identifies that the parents had less family and professional support for care after discharge during times of pandemic. Conclusion. Parents of preterm children lived a difficult experience that became complex within the context of the pandemic. The experiences of parents of preterm children during times of COVID-19 indicate that restrictions to enter neonatal units to prevent the virus transmission limited the interaction with the preterm child and with the health staff and increased the needs for information.

“You Can Only Give Warmth to Your Baby When It’s Too Late”: Parents’ Bonding With Their Extremely Preterm and Dying Child

2017 ◽  
Vol 27 (14) ◽  
pp. 2100-2115 ◽  
Author(s):  
Andrea Abraham ◽  
Manya J. Hendriks
Keyword(s):  
End Of Life ◽  
Neonatal Intensive Care ◽  
Primary Caregivers ◽  
Physical Distance ◽  
End Of Life Decisions ◽  
Extremely Preterm ◽  
Study Experience ◽  
Preterm Babies ◽  
Child's Death ◽  
Bereavement Care

This study on end-of-life decisions in extremely preterm babies shows that the parents under study experience a multitude of stressors due to the immediate separation after birth, the alienating setting of the neonatal intensive care unit (NICU), the physical distance to the child, medical uncertainties, and upcoming decisions. Even though they are considered to be parents (assigned parenthood), they cannot act as primary caregivers. Instead, they depend on professional instructions for access and care. Embodied parenthood can be experienced only at the end-of-life, that is, during the dying trajectory and after the child’s death. Professionally supporting parents during this compressed process (from assigned and distant to embodied parenthood) contributes fundamentally to their perception of being a family and supports their mourning. This calls for the further establishment of palliative and bereavement care concepts in neonatology.

scholarly journals Not in my face please. Stress caused by the presence of smokers in places with restorative qualities

2019 ◽  
pp. 33-44
Author(s):  
Chamila Subasinghe
Keyword(s):  
Physical Distance ◽  
Landscape Configuration ◽  
Structured Interviews ◽  
Verbal Cues ◽  
Work Related ◽  
Break Time ◽  
Environmental Deprivation ◽  
Related Stress ◽  
And Coping ◽  
The Impact

Non-smokers’ spatial transactions with smokers in semi-outdoor areas with restorative qualities have been investigated. In the process, the impact of smoking in break spaces on non-smokers’ behavior in negotiating mutual spatial boundaries was studied. The areas with restorative qualities were defined as places where regular visitors spend their break time to relieve work-related stress or seek temporary relaxation. Regularly used as break areas, three covered-overhead walkways located in different building precincts in the same academic setting were sampled in order to elicit narratives relating to perceived environmental deprivation among regular visitors. In-depth, semi-structured interviews had the aim of eliciting and unfolding these narratives where they emerged as a result of different modes of environmental deprivation. Discourse analysis of the transcribed interviews led to a systematic distillation of five themes associated with the presence of smokers in the studied restorative settings. The study revealed that participating non-smokers had devised both control and coping mechanisms to deal with the smokers’ behaviors, such as sending subtle non-verbal cues and repositioning their gaze. Moderated by furniture and landscape configuration, spaciousness, and visual and physical distance, smokers and non-smokers passively negotiated these spatial transactions in each of the respective walkways.

scholarly journals Identifying a space for young Black Muslim women in contemporary Britain

Ethnicities ◽  
2021 ◽  
pp. 146879682110018
Author(s):  
Sheymaa Ali Nurein ◽  
Humera Iqbal
Keyword(s):  
Black Community ◽  
Muslim Women ◽  
Structured Interviews ◽  
Negative Effects ◽  
Race And Gender ◽  
The United Kingdom ◽  
Different Dimensions ◽  
And Gender ◽  
Black Muslim ◽  
And Coping

Young Black Muslim Women (BMW) have complex, intersectional identities and exist at the margins of various identity groupings. Given this, members of the community can face societal relegation across, not only race and gender lines, but across religious ones, too. This paper explores the lived experiences of intragroup discrimination, identity and belonging in 11 young Black Muslim Women in the United Kingdom. In-depth, semi-structured interviews were conducted with participants and thematically analysed through the lens of intersectionality. The use of an intersectional framework facilitated an understanding of the manner in which the sample was multiply marginalised. Two key themes emerged from the interviews: firstly, around experiences of intragroup and intersectional discrimination and, secondly, around the challenges of responding to and coping with the negative effects of such discrimination. Participants discussed the cross-cutting nature through which they faced discrimination: from within the Black community; from within the Muslim community; and as a result of their gender. The non-exclusivity of these three identities result in constant encounters of discrimination along different dimensions to their personal identity. They also developed diverse means of coping with this marginalisation including drawing from religious beliefs and mobile identifications, i.e. performing different aspects of their identities in different contexts. The present study contributes to existing knowledge in its focus on an under-researched group and emphasises the negative effects of intragroup discrimination. The paper importantly highlights the diversity within the Black community and considers the (in)visibility of Black Muslim Women within society.

Living with Heart Failure during the COVID-19 Pandemic: An Interpretative Phenomenological Analysis

2021 ◽  
pp. 105477382110166
Author(s):  
Alessia Martina Trenta ◽  
Davide Ausili ◽  
Rosario Caruso ◽  
Cristina Arrigoni ◽  
Massimo Moro ◽  
...  
Keyword(s):  
Heart Failure ◽  
Coping Strategies ◽  
Lived Experience ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Hospital Organization ◽  
Challenging Situation ◽  
And Coping ◽  
Negative Feelings

This study aimed to explore lived experience of patients with heart failure (HF) during the COVID-19 pandemic. A qualitative study was conducted using an interpretative phenomenological analysis (IPA). Data collection performed in March-May 2020, using in-depth, semi-structured interviews on a purposive sample. Data were analyzed according to the IPA methodology, and triangulation, bracketing, journaling, and member checking were used to assure rigor. 14 patients with HF were enrolled, and three main themes described their lived experience during the COVID-19 pandemic: Vulnerability, Hanging in the balance, and Coping strategies. These people felt particularly vulnerable to the novel virus and experienced uncertainty due to hospital organization changes. Because of this, they felt like they were hanging in the balance, experiencing various negative feelings. Nevertheless, they managed to deal with this challenging situation by implementing some peculiar coping strategies. The COVID-19 represents a significant challenge for patients with HF, impacting significantly on their lives.

scholarly journals Students’ perceptions of visibility in physical education

2021 ◽  
pp. 1356336X2110258
Author(s):  
Eli-Karin S Åsebø ◽  
Helga S Løvoll ◽  
Rune J Krumsvik
Keyword(s):  
Physical Education ◽  
Structured Interviews ◽  
Study Approach ◽  
Transaction Model ◽  
Lesson Content ◽  
Field Notes ◽  
Group Interviews ◽  
Ninth Grade Students ◽  
Past Experiences ◽  
And Coping

The purpose of this study is to explore students’ perceptions of visibility in physical education (PE) using a single cumulative case study approach. Data were generated from the descriptive field notes of seven participant observations ( n = 77), individual semi-structured interviews ( n = 13) and five focus group interviews ( n = 18) with ninth-grade students (ages 14–15 years) from three classes in a public lower secondary school in Norway. The findings show that students perceive visibility differently depending on the context; some students like being visible in PE, while others dread it. Perceptions change rapidly and are situation-specific, influenced by the lesson content, the way the teacher facilitates the lessons, self-perception shaped by past experiences, the presence, actions, and attitudes of fellow students, body pressure and societal body ideals. The findings actualise the relevance of the transaction model of stress and coping ( Lazarus and Folkman, 1984 ) in determining when visibility in PE is and is not perceived as stressful. Consequently, the organization of the PE environment benefits from these insights.

scholarly journals QOLP-04. PILOT STUDY OF A VIDEOCONFERENCE-BASED PSYCHOLOGICAL INTERVENTION FOR FAMILY CAREGIVERS OF PATIENTS WITH MALIGNANT GLIOMAS

2020 ◽  
Vol 22 (Supplement_2) ◽  
pp. ii175-ii175
Author(s):  
Deborah Forst ◽  
Michelle Mesa ◽  
Emilia Kaslow-Zieve ◽  
Areej El-Jawahri ◽  
Joseph Greer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Self Efficacy ◽  
Coping Skills ◽  
Malignant Gliomas ◽  
Anxiety Symptoms ◽  
Structured Interviews ◽  
Post Intervention ◽  
Clinically Significant ◽  
And Coping

Abstract BACKGROUND Caregivers of patients with malignant gliomas experience substantial anxiety symptoms while caring for someone with progressive neurological decline. Yet, interventions to reduce psychological distress and improve quality of life (QoL) in this caregiver population are lacking. METHODS We conducted an open pilot study evaluating feasibility and acceptability of a cognitive behavioral therapy-based intervention for caregivers of patients with malignant gliomas with clinically significant anxiety (Generalized Anxiety Disorder [GAD-7] score ≥ 5). Caregivers participated in six videoconference sessions with a mental health provider. We defined the intervention as feasible if ≥ 70% of eligible caregivers enrolled and ≥ 70% of those enrolled completed ≥ 50% of sessions. We evaluated intervention acceptability in semi-structured interviews. Caregivers completed baseline and post-intervention surveys assessing anxiety and depression symptoms (Hospital Anxiety and Depression Scale), QoL (Caregiver Oncology Quality of Life Questionnaire), caregiving burden (Caregiver Reaction Assessment), self-efficacy (Lewis Cancer Self-Efficacy Scale), and perceived coping skills (Measure of Current Status-Part A). We explored post-intervention changes using paired t-tests. RESULTS We obtained consent from 70.0% (21/30) of caregivers approached, of which 66.7% (14/21) had clinically significant anxiety and thus were eligible to participate (mean age=55.7 years, 64.3% female). Among enrolled caregivers, 71.4% (10/14) completed ≥ 50% of sessions. In semi-structured interviews, all participants found the intervention helpful and valued the ability to participate remotely via videoconference. Among caregivers who completed at least one session, 80.0% (8/10) completed all assessments and were included in analyses. Post-intervention, caregivers reported reduced anxiety symptoms (P=.02) and improved QoL (P=.03) and coping skills (P=.001). We found no significant change in depression, caregiving burden, or self-efficacy. CONCLUSION Our videoconference-based intervention is feasible and acceptable to caregivers. Participants reported significant improvements in anxiety symptoms, quality of life, and coping skills post-intervention, supporting further investigation of the intervention in a randomized controlled trial.

scholarly journals Longitudinal Study of Music Therapy’s Effectiveness for Premature Infants and Their Caregivers (LongSTEP): Feasibility Study With a Norwegian Cohort

2021 ◽  
Author(s):  
Claire M Ghetti ◽  
Bente Johanne Vederhus ◽  
Tora Söderström Gaden ◽  
Annette K Brenner ◽  
Łucja Bieleninik ◽  
...  
Keyword(s):  
Longitudinal Study ◽  
Feasibility Study ◽  
Premature Infants ◽  
Neonatal Intensive Care ◽  
Perinatal Period ◽  
First Year ◽  
Structured Interviews ◽  
Post Discharge ◽  
Critical Realist ◽  
Musical Interaction

Abstract Premature infants and their parents experience significant stress during the perinatal period. Music therapy (MT) may support maternal–infant bonding during this critical period, but studies measuring impact across the infant’s first year are lacking. This nonrandomized feasibility study used quantitative and qualitative methods within a critical realist perspective to evaluate the feasibility, acceptability, and suitability of the treatment arm of the Longitudinal Study of music Therapy’s Effectiveness for Premature infants and their caregivers (LongSTEP) (NCT03564184) trial with a Norwegian cohort (N = 3). Families were offered MT emphasizing parent-led infant-directed singing during neonatal intensive care unit (NICU) hospitalization and across 3 months post-discharge. We used inductive thematic analysis of semi-structured interviews with parents at discharge from NICU and at 3 months and analyzed quantitative variables descriptively. Findings indicate that: (1) parents of premature infants are willing to participate in MT research where parental voice is a main means of musical interaction; (2) parents are generally willing to engage in MT in NICU and post-discharge phases, finding it particularly interesting to note infant responsiveness and interaction over time; (3) parents seek information about the aims and specific processes involved in MT; (4) the selected self-reports are reasonable to complete; and (5) the Postpartum Bonding Questionnaire appears to be a suitable measure of impaired maternal–infant bonding. Parents reported that they were able to transfer resources honed during MT to parent–infant interactions outside MT and recognized parental voice as a central means of building relation with their infants. Results inform the implementation of a subsequent multinational trial that will address an important gap in knowledge.

The Sexual Experience of Married Middle-Aged Women as a Source of Mental Wellbeing: Perceptions, Challenges and Coping Mechanisms

2021 ◽  
Vol 30 (1) ◽  
pp. 181-203
Author(s):  
Tal Braverman-Uriel ◽  
Tal Litvak-Hirsch
Keyword(s):  
Quantitative Research ◽  
Sexual Experience ◽  
Women's Leadership ◽  
Mental Wellbeing ◽  
Structured Interviews ◽  
Significant Development ◽  
And Coping ◽  
The Impact

The impact of sexuality on mental wellbeing in women in long-term relationships has only been partially investigated. Emphasis has been on quantitative research studies that do not capture the breadth of the field. The present study looked at how and to what extent women maintain sexual desire in long-term relationships, and how sexuality affects their mental wellbeing. The study used a qualitative narrative approach and included semi-structured interviews with approximately 20 Israeli women aged 40–55 from similar socioeconomic backgrounds and in longstanding, permanent relationships. The findings indicate significant development over the years in the perception of the role of sexuality and its impact on mental wellbeing. The path to good sexuality can and should follow women’s leadership and initiative. Such women have the desire to make an impact, willingness to make an effort, and even an actual ability to exert influence. The interviewees’ tools, strategies, insights and ways of coping can serve as models for other women seeking better sexuality in a long-term relationship.

Mock Research Proposal on Unregistered Syrian Climate Refugees in Jarraheih Camp of Bekaa, Lebanon

2018 ◽  
Author(s):  
Erin Silverberg
Keyword(s):  
Community Organization ◽  
Border Region ◽  
Refugee Camps ◽  
International Treaties ◽  
Structured Interviews ◽  
Local Actors ◽  
The Right ◽  
And Coping ◽  
Official Status ◽  
Climate Refugees

Climate change is one of the greatest challenges of the 21st century, displacing a global annual average of 26.4 million people due to climate-related disasters. Currently, over 1.1 million Syrian refugees have fled to Lebanon due to climate-related drought and subsequent war, with 320,000 who remain unregistered by the UNHCR. Unregistered refugees are restricted from accessing services, shelter, and financial means for survival and risk arrest, detention, and deportation by Lebanese authorities for not having proper documentation and paid residency fees. These consequences are felt the most in refugee camps along the Syrian-Lebanese border region such as Bekaa, Lebanon. Despite the presence of humanitarian aid, refugees in camps are left in legal limbo, deprived of accessing the right to have rights. Specifically, for climate refugees, international treaties or future mitigation mechanisms are lacking, exacerbating their vulnerability. Therefore, this research questions the physical and social experiences of unregistered Syrian climate refugees in the Jarrahieh camp, Bekaa, Lebanon. The intention is to determine how these refugees, without official status, are impacted and coping with current federal and international legislative measures. By working with the refugees and key local actors, this research aims to understand how solidary and community organization can be formed within the current legal system to facilitate smoother adaptation and resettlement for climate refugees. Using participatory observation, focus groups, semi-structured interviews, and archival research, the practical outcome is a solidarity group that is established, run, and evaluated by a sample of unregistered Syrian climate refugee men and women aged 18-65.

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