scholarly journals Attitudes and Preferences Toward a Hypothetical Trial of an Internet-Administered Psychological Intervention for Parents of Children Treated for Cancer: Web-Based Survey (Preprint)

2018 ◽  
Author(s):  
Joanne Woodford ◽  
Anna Wikman ◽  
Kim Einhorn ◽  
Martin Cernvall ◽  
Helena Grönqvist ◽  
...  
Keyword(s):  
Emotional Distress ◽  
Help Seeking ◽  
Trial Design ◽  
Response Rate ◽  
Psychological Intervention ◽  
Psychological Support ◽  
Feasibility Trial ◽  
Willingness To Participate ◽  
Cross Sectional ◽  
Web Based

BACKGROUND Clinical trials are often challenged with issues of recruitment and retention. Little is known concerning general attitudes and preferences toward trial design and willingness to participate among parents of children treated for cancer. Furthermore, willingness to participate in internet-administered psychological interventions remains unexplored. In this study, we examined attitudes and preferences of the population regarding study procedures for a hypothetical trial of an internet-administered psychological intervention. In addition, differences in the response rate between modes of study invitation and willingness to engage in internet-administered interventions were examined. OBJECTIVE The primary objective of this study was to examine attitudes and preferences toward participating in an internet-administrated psychological intervention. The secondary objective was to examine the response rates and help-seeking behavior among parents of children treated for cancer. METHODS A cross-sectional, Web-based survey was conducted with parents of children who had completed cancer treatment. This Web-based survey examined self-reported emotional distress, prior help-seeking and receipt of psychological support, past research participation, attitudes toward research, preferences concerning recruitment procedures, and attitudes toward different types of trial design. RESULTS Of all the parents invited, 32.0% (112/350) completed the survey, with no difference in response rate between modes of study invitation (χ21=0.6, P=.45). The majority (80/112, 71.4%) of parents responded that they had experienced past emotional distress. Responses indicated high (56/112, 50.0%) or somewhat high trust in research (51/112, 45.5%), and the majority of parents would accept, or maybe accept, internet-administered psychological support if offered (83/112, 74.1%). In addition, responses showed a preference for postal study invitation letters (86/112, 76.8%), sent by a researcher (84/112, 75.0%) with additional study information provided on the Web via text (81/112, 72.3%) and video (66/112, 58.9%). Overall, parents responded that trials utilizing a waiting list control, active alternative treatment control, or a patient-preference design were acceptable. CONCLUSIONS Parents of children treated for cancer appear willing to participate in trials examining internet-administered psychological support. Findings of this study will inform the design of a feasibility trial examining internet-administered psychological support for the population.

scholarly journals Attitudes and Preferences Toward a Hypothetical Trial of an Internet-Administered Psychological Intervention for Parents of Children Treated for Cancer: Web-Based Survey

10.2196/10085 ◽  
2018 ◽  
Vol 5 (4) ◽  
pp. e10085
Author(s):  
Joanne Woodford ◽  
Anna Wikman ◽  
Kim Einhorn ◽  
Martin Cernvall ◽  
Helena Grönqvist ◽  
...  
Keyword(s):  
Emotional Distress ◽  
Help Seeking ◽  
Trial Design ◽  
Response Rate ◽  
Psychological Intervention ◽  
Psychological Support ◽  
Feasibility Trial ◽  
Willingness To Participate ◽  
Cross Sectional ◽  
Web Based

Background Clinical trials are often challenged with issues of recruitment and retention. Little is known concerning general attitudes and preferences toward trial design and willingness to participate among parents of children treated for cancer. Furthermore, willingness to participate in internet-administered psychological interventions remains unexplored. In this study, we examined attitudes and preferences of the population regarding study procedures for a hypothetical trial of an internet-administered psychological intervention. In addition, differences in the response rate between modes of study invitation and willingness to engage in internet-administered interventions were examined. Objective The primary objective of this study was to examine attitudes and preferences toward participating in an internet-administrated psychological intervention. The secondary objective was to examine the response rates and help-seeking behavior among parents of children treated for cancer. Methods A cross-sectional, Web-based survey was conducted with parents of children who had completed cancer treatment. This Web-based survey examined self-reported emotional distress, prior help-seeking and receipt of psychological support, past research participation, attitudes toward research, preferences concerning recruitment procedures, and attitudes toward different types of trial design. Results Of all the parents invited, 32.0% (112/350) completed the survey, with no difference in response rate between modes of study invitation (χ21=0.6, P=.45). The majority (80/112, 71.4%) of parents responded that they had experienced past emotional distress. Responses indicated high (56/112, 50.0%) or somewhat high trust in research (51/112, 45.5%), and the majority of parents would accept, or maybe accept, internet-administered psychological support if offered (83/112, 74.1%). In addition, responses showed a preference for postal study invitation letters (86/112, 76.8%), sent by a researcher (84/112, 75.0%) with additional study information provided on the Web via text (81/112, 72.3%) and video (66/112, 58.9%). Overall, parents responded that trials utilizing a waiting list control, active alternative treatment control, or a patient-preference design were acceptable. Conclusions Parents of children treated for cancer appear willing to participate in trials examining internet-administered psychological support. Findings of this study will inform the design of a feasibility trial examining internet-administered psychological support for the population.

Use of Mobile Device Applications In Canadian Dietetic Practice

2014 ◽  
Vol 75 (1) ◽  
pp. 41-47 ◽  
Author(s):  
Jessica R.L. Lieffers ◽  
Vivienne A. Vance ◽  
Rhona M. Hanning
Keyword(s):  
Mobile Device ◽  
Response Rate ◽  
Access To Information ◽  
Personal Factors ◽  
Cross Sectional ◽  
Web Based ◽  
Content Quality ◽  
Information Tools ◽  
Device Applications ◽  
Workplace Factors

Purpose A cross-sectional web-based survey of dietitians was used to explore topics related to mobile devices and their applications (apps) in Canadian dietetic practice. Methods A survey was drafted, posted on SurveyMonkey, and pretested with dietitians and dietetic interns. Dietitians of Canada (DC), a supporter of this work, promoted the survey to members through its monthly electronic newsletters from January 2012 to April 2012. Results Of 139 dietitians who answered some survey questions, 118 finished the survey; this represents a response rate of approximately 3%. Overall, 57.3% of respondents reported app use in practice, and 54.2% had a client ask about or use a nutrition/food app. About 40.5% of respondents had recommended nutrition/food apps to clients. Respondents were enthusiastic about apps, but many described challenges with use. From the survey data, three themes emerged that can affect dietitians’ use of apps and whether they recommend apps to clients: mobile device and app factors (access to information/ tools, content quality, usability, accessibility/compatibility, and cost), personal factors (knowledge, interest, suitability, and willingness/ability to pay), and workplace factors. Conclusions Apps are now infiltrating dietetic practice. Several factors can affect dietitians’ use of apps and whether they recommend them to clients. These findings will help guide future development and use of apps in practice.

The Prevalence of Coworker Conflict Including Bullying in a Unionized U.S. Public Sector Workforce

2015 ◽  
Vol 30 (5) ◽  
pp. 813-829 ◽  
Author(s):  
Jane Lipscomb ◽  
Matt London ◽  
Kate M. McPhaul ◽  
Mazen El Ghaziri ◽  
Alyson Lydecker ◽  
...  
Keyword(s):  
Public Sector ◽  
Participatory Action Research ◽  
State Government ◽  
Workplace Violence ◽  
Response Rate ◽  
Participatory Action ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Web Based ◽  
A Current

Workplace violence is an enormous problem worldwide; incidents where the perpetrator is a current or former employee are an important dimension. This large cross-sectional survey examined the prevalence of this problem among a U.S. state government unionized public sector workforce. Using participatory action research methods, we conducted a web-based survey of members of that workforce from a single northeast U.S. state, receiving 11,874 completed surveys (response rate: 71.8%). Overall, 10.0% of the respondents indicated that they had been bullied at work during the prior 6 months, with 71.9% of those who reported regular bullying identifying the perpetrator as a supervisor and/or top management. The prevalence of bullying was similar to the rates reported in Europe and Scandinavia (5%–30%). Those reports also identified the person(s) responsible for the behavior as being predominantly of higher status within the organization.

Evaluation of the new ICHD-III beta cluster headache criteria

Cephalalgia ◽  
2015 ◽  
Vol 36 (6) ◽  
pp. 547-551 ◽  
Author(s):  
IF de Coo ◽  
LA Wilbrink ◽  
J Haan ◽  
MD Ferrari ◽  
GM Terwindt
Keyword(s):  
Cohort Study ◽  
Cluster Headache ◽  
Response Rate ◽  
Headache Disorders ◽  
Facial Flushing ◽  
Cross Sectional ◽  
Web Based ◽  
Additional Value ◽  
Headache Patients

Aim In the revised criteria of the International Classification of Headache Disorders (ICHD-III beta) the following items are added to the diagnostic criteria of cluster headache: ipsilateral sensation of fullness in the ear and ipsilateral forehead/facial flushing. We evaluated the possible additional value of these symptoms for diagnosing cluster headache. Methods In this cross-sectional cohort study of (potential) cluster headache patients we investigated these additional symptoms using a Web-based questionnaire. Patients not fulfilling the ICHD-II criteria for cluster headache but fulfilling the ICHD-III beta criteria were interviewed. Results Response rate was 916/1138 (80.5%). Of all 573 patients with cluster headache according to ICHD-II criteria, 192 (33.5%) reported ipsilateral ear fullness and 113 (19.7%) facial flushing during attacks. There was no difference in reporting ipsilateral ear fullness and facial flushing between patients who received a diagnosis of cluster headache and patients who did not. None of the patients who did not fulfill all ICHD-II criteria could be categorized as cluster headache according to the ICHD-III beta criteria. Conclusion The results of this study do not support the addition of ear fullness and facial flushing to the new ICHD-III beta criteria.

scholarly journals Clinical Trials Perception in Rheumatology Patients: Experience from a Single Rheumatology Tertiary Center

2015 ◽  
Vol 42 (6) ◽  
pp. 988-993 ◽  
Author(s):  
Coziana Ciurtin ◽  
Maria Leandro ◽  
Halina Fitz-Clarence ◽  
Hanh Nguyen ◽  
Stephen B. Walsh ◽  
...  
Keyword(s):  
Clinical Trials ◽  
Response Rate ◽  
Willingness To Participate ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Tertiary Center ◽  
The Mean ◽  
Open Question ◽  
Patients Experience ◽  
Correct Response Rate

Objective.To investigate the perception and willingness of rheumatology patients to participate in clinical trials. No previous similar studies are available.Methods.We conducted a cross-sectional survey of rheumatology patients using a questionnaire, which comprised 2 demographic questions, two 5-point Likert opinion questions, 19 true/false/unsure knowledge questions, and 1 open question addressing what would help the participant to gain a better understanding about clinical trials.Results.Eighty-five patients returned the questionnaires (response rate 84.1%). The mean number of correct answers to the 19 knowledge questions was 10.5 ± 2.87. Patients with higher versus lower levels of education had significantly higher knowledge scores (mean correct answers 59.4 ± 13.1 vs 39.8 ± 20.4, p = 0.013). They also expressed greater willingness to take part in research (87.5% vs 48.2%, p < 0.001). The patients who agreed to participate in research provided significantly more correct answers (59.4 ± 15.3% vs 47.7 ± 27.2%, p = 0.032). Poor disease control as the main reason to join a clinical trial correlated well with patients’ previous participation in research (r = 0.71; p < 0.05) and the lack of understanding of research principles (defined as less than 50% correct answers to the knowledge questions) correlated with the lack of willingness to participate in clinical trials (r = 0.72; p < 0.05).Conclusion.The results of our study revealed that patients lack information about clinical trials (the correct response rate was only slightly above 50%), and that they had a moderate willingness to take part in clinical trials. The need for educational programs about clinical research was highlighted by the participants to the survey.

scholarly journals Web-Based Decision Aid to Assist Help-Seeking Choices for Young People Who Self-Harm: Outcomes From a Randomized Controlled Feasibility Trial

2018 ◽  
Vol 5 (1) ◽  
pp. e10
Author(s):  
Sarah L Rowe ◽  
Krisna Patel ◽  
Rebecca S French ◽  
Claire Henderson ◽  
Dennis Ougrin ◽  
...  
Keyword(s):  
Young People ◽  
Help Seeking ◽  
Controlled Trial ◽  
Qualitative Interviews ◽  
School Setting ◽  
Feasibility Trial ◽  
Parental Consent ◽  
Web Based ◽  
Randomized Controlled ◽  
Self Harm

Background Adolescents who self-harm are often unsure how or where to get help. We developed a Web-based personalized decision aid (DA) designed to support young people in decision making about seeking help for their self-harm. Objective The aim of this study was to evaluate the feasibility and acceptability of the DA intervention and the randomized controlled trial (RCT) in a school setting. Methods We conducted a two-group, single blind, randomized controlled feasibility trial in a school setting. Participants aged 12 to 18 years who reported self-harm in the past 12 months were randomized to either a Web-based DA or to general information about mood and feelings. Feasibility of recruitment, randomization, and follow-up rates were assessed, as was acceptability of the intervention and study procedures. Descriptive data were collected on outcome measures examining decision making and help-seeking behavior. Qualitative interviews were conducted with young people, parents or carers, and staff and subjected to thematic analysis to explore their views of the DA and study processes. Results Parental consent was a significant barrier to young people participating in the trial, with only 17.87% (208/1164) of parents or guardians who were contacted for consent responding to study invitations. Where parental consent was obtained, we were able to recruit 81.7% (170/208) of young people into the study. Of those young people screened, 13.5% (23/170) had self-harmed in the past year. Ten participants were randomized to receiving the DA, and 13 were randomized to the control group. Four-week follow-up assessments were completed with all participants. The DA had good acceptability, but qualitative interviews suggested that a DA that addressed broader mental health problems such as depression, anxiety, and self-harm may be more beneficial. Conclusions A broad-based mental health DA addressing a wide range of psychosocial problems may be useful for young people. The requirement for parental consent is a key barrier to intervention research on self-harm in the school setting. Adaptations to the research design and the intervention are needed before generalizable research about DAs can be successfully conducted in a school setting. Trial Registration International Standard Randomized Controlled Trial registry: ISRCTN11230559; http://www.isrctn.com/ISRCTN11230559 (Archived by WebCite at http://www.webcitation.org/6wqErsYWG)

scholarly journals Different Techniques for Rubber Dam Isolation: A Cross-Sectional Study

2021 ◽  
Vol 2 (3) ◽  
pp. 5
Author(s):  
Syed Fatima Zahra ◽  
Ajmal Yousaf ◽  
Sana Ashfaq ◽  
Fatima Ali ◽  
Maha Aslam
Keyword(s):  
Response Rate ◽  
Armed Forces ◽  
High Volume ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Web Based ◽  
Rubber Dam ◽  
Isolation Techniques ◽  
Methods Of Isolation

Objective: To assess knowledge, regarding use of rubber dam during root canal treatment among dentists in Rawalpindi and Islamabad.Study Design: Descriptive cross-sectionPlace and Duration of Study:  Operative Department Armed Forces Institute of Dentistry (AFID) Rawalpindi from 1st March 2020 to 31st May 2020. Materials and Methods:  A web-based questionnaire, comprising of close-ended questions in the categories of demographics, clinical experience, usage of isolation techniques and knowledge regarding rubber dam (RD) use, procedures, and contraindications was sent through internet to 387 dentists of Rawalpindi and Islamabad. The response rate was 77.5%. Data was analyzed using SPSS version 20, and was displayed as numbers and percentages.Results: 79 out of 300 i.e. 26.33% respondents used rubber dam in restorative and endodontic procedures. 73.3% were using other methods of isolation such as cotton rolls, saliva ejectors and high volume suction. All the respondents were aware about the importance of rubber dam. The most challenging factor for dentists (57.3%) was high influx of patients per day.Conclusion: Rubber dam is not being used commonly by participating dentists of tertiary dental hospitals of Rawalpindi and Islamabad mainly because of high patient turnover per day, combination of cotton rolls and saliva high-volume ejector or gauze is the most common alternative to rubber dam isolation. Rubber dam isolation is highly recommended.  

Weaning Strategy of Diuretics in Outpatient Preterm Infants with Bronchopulmonary Dysplasia: A National Survey

2020 ◽  
Author(s):  
Keren Armoni Domany ◽  
Israel Amirav ◽  
Efraim Sadot ◽  
Nir Diamant ◽  
Dror Mandel ◽  
...  
Keyword(s):  
Preterm Infants ◽  
Bronchopulmonary Dysplasia ◽  
Practice Patterns ◽  
Response Rate ◽  
Controlled Study ◽  
Cross Sectional ◽  
Web Based ◽  
Key Points ◽  
Wide Range

Objective Long-term diuretic treatment in patients with bronchopulmonary dysplasia (BPD) is common despite lack of data that support its use. We aimed to characterize the commonly used diuretics weaning strategies for outpatient clinically stable preterm infants with BPD. Study Design We conducted a cross-sectional web-based survey among all pediatric pulmonologists and neonatologists in Israel. Questionnaire included data regarding practitioners' different diuretics-weaning practice in this population. Results The response rate for pulmonologists and neonatologists were 35/50 (70%) and 36/120 (30%), respectively. When both oxygen and diuretics are used, 59% wean oxygen first and 32% wean diuretics first. If patients are solely on diuretics, 27% discontinue instantly, 34% decrease the dosage gradually, and 34% outgrow the discharge dosage. Significantly more pulmonologists decrease the dosage gradually, while more neonatologists discontinue at once (p < 0.001). Most participants (94%) reported being unsatisfied with the existing data and guidelines regarding these issues. Conclusion Our results showed a wide range of practice patterns in the weaning strategy of diuretics in outpatient preterm infants with BPD. Pulmonologists and neonatologists differ significantly in their weaning strategy. A prospective larger controlled study to explore the outcome of gradual tapering versus discontinuation without weaning is warranted. Key Points

scholarly journals COVID-19 Knowledge, Risk Perception, and Precautionary Behavior Among Nigerians: A Moderated Mediation Approach

2020 ◽  
Vol 11 ◽  
Author(s):  
Steven K. Iorfa ◽  
Iboro F. A. Ottu ◽  
Rotimi Oguntayo ◽  
Olusola Ayandele ◽  
Samson O. Kolawole ◽  
...  
Keyword(s):  
Risk Perception ◽  
Psychological Intervention ◽  
Health Belief ◽  
Sampling Technique ◽  
Moderated Mediation ◽  
Snowball Sampling ◽  
Cross Sectional ◽  
Web Based ◽  
Awareness Campaigns ◽  
Precautionary Behavior

The novel coronavirus has not only brought along disruptions to daily socio-economic activities, but sickness and deaths due to its high contagion. With no widely acceptable pharmaceutical cure, the best form of prevention may be precautionary measures which will guide against infections and curb the spread of the disease. This study explored the relationship between COVID-19 knowledge, risk perception, and precautionary behavior among Nigerians. The study also sought to determine whether this relationship differed for men and women. A web-based cross-sectional design approach was used to recruit 1,554 participants (mean age = 27.43, SD = 9.75; 42.7% females) from all geopolitical zones in Nigeria, through social media platforms using a snowball sampling technique. Participants responded to web-based survey forms comprising demographic questions and adapted versions of the Ebola knowledge scale, SARS risk perception scale, and precautionary behavior scale. Moderated mediation analysis of the data showed that risk perception mediated the association between COVID-19 knowledge and precautionary behavior and this indirect effect was in turn moderated by gender. Results indicate that having adequate knowledge of COVID-19 was linked to higher involvement in precautionary behavior through risk perception for females but not for males. It was also noted that awareness campaigns and psychological intervention strategies on COVID-19 related activities may be particularly important for males more than females. Drawing from the health belief model, we recommend that COVID-19 awareness campaigns should target raising more awareness of the risks associated with the infection to make individuals engage more in precautionary behaviors.

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