scholarly journals iCanCope With Pain: Cultural Adaptation and Usability Testing of a Self-Management App for Adolescents With Persistent Pain in Norway (Preprint)

2018 ◽  
Author(s):  
Erik Grasaas ◽  
Liv Fegran ◽  
Sølvi Helseth ◽  
Jennifer Stinson ◽  
Santiago Martinez ◽  
...  
Keyword(s):  
Social Support ◽  
Chronic Pain ◽  
Cultural Adaptation ◽  
User Satisfaction ◽  
Usability Testing ◽  
Ease Of Use ◽  
Self Management ◽  
Home Based ◽  
Use Efficiency ◽  
Translation And Cultural Adaptation

BACKGROUND Persistent or chronic pain is a common health problem among adolescents. Thus, it is important that they receive evidence-based strategies for symptom management. iCanCope with Pain is a mobile phone app designed to help adolescents cope with chronic pain. The app comprises 5 evidence- and theory-based features: (I) symptom trackers for pain, sleep, mood, physical function, and energy; (II) goal setting to improve pain and function; (III) a coping toolbox of pain self-management strategies; (IV) social support; and (V) age-appropriate pain education. The iCanCope with Pain app is based on theory, identified health care needs, and current best practices for pain self-management. OBJECTIVE The objectives of this study were to describe the translation and cultural adaptation of the app into the Norwegian context and evaluate the app’s usability using a phased approach. METHODS Phase 1 included translation and cultural adaptation of the app into the Norwegian context. This process used an expert panel of researchers and target group representatives who were responsible for the linguistic quality assurance and assessment. In phases 2 and 3 the app’s usability was tested. For phase 2, the assessments of usability and user experiences included observation, the think aloud method, audiovisual recordings, questionnaires, and individual interviews in a laboratory setting. For phase 3, the assessment of usability and user experience over a 2-week home-based test included questionnaires and individual end-user interviews. Overall, app usability was determined based on ease of use, efficiency, and user satisfaction. Qualitative data were analyzed using deductive content analysis. Descriptive statistics were calculated for quantitative data. RESULTS End users did not report any misunderstandings or discrepancies with the words or phrasing of the translated and culturally adapted app. Participants in both the laboratory- and home-based usability tests found the app self-explanatory and reported that all 5 of its features were easy to use. All tasks were completed within the allocated time frame (ie, efficiency), with few errors. Overall System Usability Scale scores were high, with average scores of 82 and 89 out of 100 from laboratory- and field-based tests, respectively. Participants liked the idea of a social support function (feature IV), although qualitative and internet server data revealed that this feature was rarely used. CONCLUSIONS This study described the cultural and linguistic adaptation and usability testing of the Norwegian version of the iCanCope with Pain app. High user satisfaction, ease of use, efficiency, and only minor errors cumulatively indicated that no changes to the app were needed, with the exception of facilitating user interaction within the social support feature. The app will be used in an upcoming randomized controlled trial with a larger sample.

Translation, back-translation and cultural adaptation of the 8-item Stigma Scale for Chronic Illness to Portuguese

2019 ◽  
pp. 73-75
Author(s):  
Rosana Tieka Miyazaki Brancucci ◽  
Marcio Lima Pontes Natan ◽  
Aline Vitali da Silva ◽  
Arao Belitardo de Oliveira ◽  
Juliane Prieto Peres Mercante
Keyword(s):  
Chronic Pain ◽  
Chronic Illness ◽  
Cultural Adaptation ◽  
Neurological Disorders ◽  
Cross Cultural ◽  
Final Version ◽  
Stigma Scale ◽  
Back Translation ◽  
Translation And Cultural Adaptation ◽  
Cultural Validation

Cultural diversity limits cross cultural understanding of diseases. Stigma has been studied in neurological disorders, chronic pain and migraine, but instruments are not available in Portuguese. We aimed to translate the 8-item Stigma Scale for Chronic Illness to Portuguese. Methods: We followed the 5 steps advised by guidelines for transcultural validation. Results: Translation, backtranslation and cultural validation has been performed following the 5 steps, and a final version of the instrument was achieved. Discussion/Conclusion : Stigma is an important issue in migraine management. Measurement of stigma in headache sufferers in Brazil may be started. The final version of the instrument is provided.

Clinical Validation of the Nursing Outcome “Pain: Disruptive Effects” in People With Chronic Pain in Spain

2019 ◽  
Vol 27 (3) ◽  
pp. 384-400
Author(s):  
Pedro Luis Pancorbo-Hidalgo ◽  
José Carlos Bellido-Vallejo
Keyword(s):  
Chronic Pain ◽  
Internal Consistency ◽  
Cultural Adaptation ◽  
Content Validity ◽  
Reliability And Validity ◽  
Observer Agreement ◽  
Clinical Validation ◽  
Content Validation ◽  
Harmful Effects ◽  
Translation And Cultural Adaptation

Background and PurposeThe measurement of the effects of chronic pain on the patients is a challenge for nurses. The purpose was to translate into Spanish and to assess the psychometrics of the indicators of the nursing outcome “Pain: disruptive effects.”MethodsA three-stage study: (a) translation and cultural adaptation, (b) content validation, (c) clinical validation in 10 healthcare centers.ResultsThe Spanish version of the outcome “Pain: disruptive effects” has high content validity (CVI = .90) with 17 indicators organized into three factors. The Inter-observer agreement was good (kappa = .66) and the internal consistency high (alpha = .90).ConclusionsThe 17 indicators of the outcome “Pain: disruptive effects” has evidence of reliability and validity for assessing the harmful effects of chronic pain.

scholarly journals Digital Self-Management in Support of Patients Living With Chronic Pain: Feasibility Pilot Study

10.2196/23893 ◽  
2020 ◽  
Vol 4 (10) ◽  
pp. e23893
Author(s):  
Katrine Bostrøm ◽  
Elin Børøsund ◽  
Cecilie Varsi ◽  
Hilde Eide ◽  
Elise Flakk Nordang ◽  
...  
Keyword(s):  
Chronic Pain ◽  
Pilot Study ◽  
Outcome Measures ◽  
Ease Of Use ◽  
Completion Rate ◽  
Perceived Usefulness ◽  
Self Management ◽  
Management Intervention ◽  
System Use ◽  
System Usability

Background Chronic pain can be complex and taxing to live with, and treatment and support require a multicomponent approach, which may not always be offered or available. Smartphones, tablets, and personal computers are already incorporated into patients’ daily lives, and therefore, they can be used to communicate, educate, and support self-management. Although some web-based self-management interventions exist, research examining the evidence and effect of digital solutions supporting self-management for patients living with chronic pain is limited, findings are inconclusive, and new innovative ideas and solutions are needed. Objective This feasibility pilot study aimed to explore the system use, perceived usefulness, ease of use, and preliminary effects of EPIO, an app-based cognitive-behavioral pain self-management intervention program for patients living with chronic pain. Methods The EPIO intervention was delivered in a blended-care model containing (1) one face-to-face introduction session, (2) nine cognitive behavior–based pain self-management modules, delivered in an app-based format for smartphones or tablets, and (3) one follow-up phone call at 2 to 3 weeks after the introduction session. Patients living with chronic pain (N=50) completed pre-post outcome measures at baseline and 3 months after the introduction session, with registration of system use (ie, log data) until 6 months. The use, perceived usefulness, and ease of use of the EPIO program were examined through system use data, as well as a study-specific use/usability questionnaire and the System Usability Scale (SUS). Outcome measures to test feasibility of use and estimate preliminary effects included the Brief Pain Inventory, health-related quality of life (HRQoL) scale, Hospital Anxiety and Depression Scale, Self-Regulatory Fatigue scale, Pain Catastrophizing Scale, and Chronic Pain Acceptance Questionnaire. Results Participants (N=50) had a median age of 52 years (range 29-74 years) at inclusion and were mainly female (40/50, 80%). Thirty-one participants completed at least six of the nine modules within the 3-month study period (62% completion rate). Forty-five participants completed outcome measures at 3 months, and the EPIO program was rated as useful (ie, “totally agree” or “agree”; 39/45, 87%) and easy to use (42/45, 93%), and as having easily understandable exercises (44/45, 98%). The average overall system usability (SUS) score was 85.7, indicating grade A and excellent system usability. Preliminary psychosocial outcome measure estimates showed primarily nonsignificant pre-post intervention improvements at 3 months, but with significant positive effects related to some aspects of HRQoL (bodily pain, P=.02 and change, P=.049). Conclusions  Digital self-management intervention programs may be of use and support for patients living with chronic pain. In this feasibility study, EPIO showed an acceptable program completion rate and was rated as useful and easy to use, with excellent user satisfaction. Program optimization and efficacy testing in a large-scale randomized controlled trial are warranted and in progress. Trial Registration ClinicalTrials.gov NCT03705104; https://clinicaltrials.gov/ct2/show/NCT03705104

Review of performance assessment frameworks of e-government projects

2020 ◽  
Vol 14 (1) ◽  
pp. 31-64 ◽  
Author(s):  
Harjit Singh ◽  
Purva Grover ◽  
Arpan Kumar Kar ◽  
P. Vigneswara Ilavarasan
Keyword(s):  
Performance Assessment ◽  
User Satisfaction ◽  
Information Quality ◽  
Ease Of Use ◽  
Electronic Government ◽  
Future Research ◽  
Content Type ◽  
Use Efficiency ◽  
Scopus Database ◽  
Practical Implications

Purpose The purpose of this paper is to summarize the literature of electronic government frameworks and models to identify various constructs and their relationship to measure the performance of e-government projects. Design/methodology/approach In total, 77 publications were identified from Scopus database after using exclusion and inclusion criteria. A total of 136 constructs were mapped across five categories. Further using network science, communities of usage of these constructs across different studies were identified. Findings Dominant constructs used across studies were ease of use, usefulness, user satisfaction, infrastructure, website maturity, security, user trust, transparency, empowerment, operational efficiency, service quality and information quality. This review offers directions for future research in terms of potential for constructs, which have been explored lesser in the existing literature. Research limitations/implications The study provides direction for the usage of theoretical lenses, constructs and association among usage for the evaluation of e-government projects, which have been used less in existing literature, and thus, has higher needs for greater exploration. Search scope is limited to Scopus database, which is one of the largest citation database. Practical implications It gives information to the policymakers about the importance of the dominant constructs such as user satisfaction, usefulness, ease of use, efficiency and quality, which have been used across the spectrum of studies of e-government performance assessment frameworks and models. Practitioners need to accommodate the relevance of these factors while designing processes and key performance indicators. Originality/value This study analyzes the e-government assessment frameworks and gives direction to theory building for future studies.

A systematic review on usability of smart devices and mobile health application for monitoring physical activity and weight management (Preprint)

2020 ◽  
Author(s):  
Aisha Salamh Alshammari ◽  
Sehar Un Nisa Hassan
Keyword(s):  
Physical Activity ◽  
Social Support ◽  
Systematic Review ◽  
Weight Management ◽  
Goal Setting ◽  
User Satisfaction ◽  
Physical Activities ◽  
Self Management ◽  
Exclusion Criterion ◽  
Smart Devices

BACKGROUND Decreased engagement in physical activities and obesity are global public health problems of modern age. At the same time, m-health interventions were introduced to support monitoring of physical activities to enhance weight control through self-management. There is lack of updated systematic review of studies on the usability, effectiveness and user satisfaction of these smart devices applications. OBJECTIVE This systematic review aims at synthesizing latest research findings about effectiveness of mobile applications in physical activity and weight management, and the level of usability and user satisfaction. METHODS Data was collected from four databases including IEEE, Scopus, Cochrane and PubMed. The inclusion criterion includes original research published between 2008-2018 focusing on the use of smart devices in physical activity and the significance of mobile-based applications in influencing user involvement in physical activities and weight management RESULTS We retrieved 2,553 published studies from the databases out of which (n=15) meet inclusion/exclusion criterion of this systematic review. Analysis of study findings revealed user’s perceptions regarding effectiveness, usability and acceptance of mobile-based apps associate with increased involvement in physical activities and weight management practices. Studies demonstrated factors such as social support, reinforcement and goal setting enhance self-monitoring and users’ motivation to gain new skills of engagement in physical activities and weight self-management. CONCLUSIONS This review validates the effectiveness of m-interventions for engagement in physical activities and weight self-management. Smartphones and devices features have been instrumental in monitoring physical activity with additional components such as social support, social connections, feedback, goal setting and tracking activity CLINICALTRIAL null

scholarly journals Translation and cultural adaptation of the Multidimensional Scale of Perceived Social Support for Greece

2015 ◽  
Vol 3 (1) ◽  
Author(s):  
Paraskevi Theofilou
Keyword(s):  
Multiple Sclerosis ◽  
Social Support ◽  
Cultural Adaptation ◽  
Perceived Social Support ◽  
Greek Version ◽  
Back Translation ◽  
Translation And Cultural Adaptation

Recently, there is a surge of interest in the use of the Multidimensional Scale of Perceived Social Support (MSPSS) to measure perceived social support across cultures. The objective of this study was to translate and make the cultural adaptation of the Greek version of the MSPSS. The study counted with a sample of 10 patients diagnosed with multiple sclerosis. The process involved the following steps of translation back translation and semantic evaluation. The former revealed good acceptance of the translated version of the instrument, which participants considered having items of easy understanding. After completing the process of validation in the country, the instrument will become available to Greek researchers to measure social support, as well as to compare results from Greece to that of other cultures in which the instrument has already been validated.

scholarly journals iCanCope with Pain™: User-Centred Design of a Web- and Mobile-Based Self-Management Program for Youth with Chronic Pain Based on Identified Health Care Needs

2014 ◽  
Vol 19 (5) ◽  
pp. 257-265 ◽  
Author(s):  
Jennifer N Stinson ◽  
Chitra Lalloo ◽  
Lauren Harris ◽  
Lisa Isaac ◽  
Fiona Campbell ◽  
...  
Keyword(s):  
Social Support ◽  
Health Care ◽  
Chronic Pain ◽  
Pain Management ◽  
Health Care Providers ◽  
Barriers To Care ◽  
Management Strategies ◽  
Management Program ◽  
Self Management ◽  
Care Providers

BACKGROUND: While there are emerging web-based self-management programs for children and adolescents with chronic pain, there is currently not an integrated web- and smartphone-based app that specifically addresses the needs of adolescents with chronic pain.OBJECTIVES: To conduct a needs assessment to inform the development of an online chronic pain self-management program for adolescents, called iCanCope with Pain™.METHODS: A purposive sample of adolescents (n=23; 14 to 18 years of age) was recruited from two pediatric chronic pain clinics in Ontario. Interdisciplinary health care providers were also recruited from these sites. Three focus groups were conducted with adolescents (n=16) and one with pediatric health care providers (n=7). Individual adolescent interviews were also conducted (n=7).RESULTS: Qualitative analysis uncovered four major themes: pain impact; barriers to care; pain management strategies; and transition to adult care. Pain impacted social, emotional, physical and role functioning, as well as future goals. Barriers to care were revealed at the health care system, patient and societal levels. Pain management strategies included support systems, and pharmacological, physical and psychological approaches. Transition subthemes were: disconnect between pediatric and adult systems; skills development; parental role; and fear/anxiety. Based on these identified needs, the iCanCope with Pain™ architecture will include the core theory-based functionalities of: symptom self-monitoring; personalized goal setting; pain coping skills training; peer-based social support; and chronic pain education.CONCLUSIONS: The proposed iCanCope with Pain™ program aims to address the self-management needs of adolescents with chronic pain by improving access to disease information, strategies to manage symptoms and social support.

scholarly journals Healthy for Life Pilot Study: A Multicomponent School and Home Based Physical Activity Intervention for Disadvantaged Children

2019 ◽  
Vol 16 (16) ◽  
pp. 2935
Author(s):  
Pearce ◽  
Dollman
Keyword(s):  
Physical Activity ◽  
Social Support ◽  
Outcome Expectancy ◽  
Self Management ◽  
Control School ◽  
Data Sets ◽  
Intervention School ◽  
Disadvantaged Children ◽  
Home Based

The study aimed to develop and evaluate a multicomponent school and home based physical activity (PA) intervention in children in grades 3–7 (aged 8–13 years) and determine the psychological variables that influence PA; 10 × 1 h school-based training sessions, a home-based activity program and 4 × 1 h lifestyle workshops for parents. PA was assessed at an intervention and nearby control school using accelerometers and self-report at 3-time points: baseline, post intervention and 10-week follow-up. Self-efficacy, self-management strategies, enjoyment, perceived barriers to PA, outcome-expectancy and social support were evaluated. The study showed 73% of the children with complete data sets at the intervention school (n = 27) did not increase device measured moderate to vigorous PA (MVPA) in the after-school period (3 p.m. to 6 p.m.) or over the whole day or during school break time immediately following the intervention or at follow-up, as compared to 70% of children with complete data sets at the control school (n = 35; p > 0.05 for all). Overall, 59% of boys attained more than double the recommended 120 min of MVPA each day compared to 42% of girls (p = 0.013). At the baseline, children’s self-reported PA in the intervention school positively correlated with: outcome expectancy (R = 0.240, p = 0.015), enjoyment (R = 0.339, p < 0.001), self-efficacy (R = 0.399, p < 0.001), self-management (R = 0.617, p < 0.001), social support at home (R = 0.406, p < 0.001), and social support at school (R = 0.407, p < 0.001). Similar relationships were observed after the intervention and at follow-up. Focus groups with the children, parents and interviews with teachers identified areas for improvement of the intervention. In conclusion, while the multifaceted approach to improve PA was ineffective over the time span of the study, important predictors of PA in this sample of disadvantaged children were identified.

scholarly journals Digital Self-Management in Support of Patients Living With Chronic Pain: Feasibility Pilot Study (Preprint)

2020 ◽  
Author(s):  
Katrine Bostrøm ◽  
Elin Børøsund ◽  
Cecilie Varsi ◽  
Hilde Eide ◽  
Elise Flakk Nordang ◽  
...  
Keyword(s):  
Chronic Pain ◽  
Pilot Study ◽  
Outcome Measures ◽  
Ease Of Use ◽  
Completion Rate ◽  
Perceived Usefulness ◽  
Self Management ◽  
Management Intervention ◽  
System Use ◽  
System Usability

BACKGROUND Chronic pain can be complex and taxing to live with, and treatment and support require a multicomponent approach, which may not always be offered or available. Smartphones, tablets, and personal computers are already incorporated into patients’ daily lives, and therefore, they can be used to communicate, educate, and support self-management. Although some web-based self-management interventions exist, research examining the evidence and effect of digital solutions supporting self-management for patients living with chronic pain is limited, findings are inconclusive, and new innovative ideas and solutions are needed. OBJECTIVE This feasibility pilot study aimed to explore the system use, perceived usefulness, ease of use, and preliminary effects of EPIO, an app-based cognitive-behavioral pain self-management intervention program for patients living with chronic pain. METHODS The EPIO intervention was delivered in a blended-care model containing (1) one face-to-face introduction session, (2) nine cognitive behavior–based pain self-management modules, delivered in an app-based format for smartphones or tablets, and (3) one follow-up phone call at 2 to 3 weeks after the introduction session. Patients living with chronic pain (N=50) completed pre-post outcome measures at baseline and 3 months after the introduction session, with registration of system use (ie, log data) until 6 months. The use, perceived usefulness, and ease of use of the EPIO program were examined through system use data, as well as a study-specific use/usability questionnaire and the System Usability Scale (SUS). Outcome measures to test feasibility of use and estimate preliminary effects included the Brief Pain Inventory, health-related quality of life (HRQoL) scale, Hospital Anxiety and Depression Scale, Self-Regulatory Fatigue scale, Pain Catastrophizing Scale, and Chronic Pain Acceptance Questionnaire. RESULTS Participants (N=50) had a median age of 52 years (range 29-74 years) at inclusion and were mainly female (40/50, 80%). Thirty-one participants completed at least six of the nine modules within the 3-month study period (62% completion rate). Forty-five participants completed outcome measures at 3 months, and the EPIO program was rated as useful (ie, “totally agree” or “agree”; 39/45, 87%) and easy to use (42/45, 93%), and as having easily understandable exercises (44/45, 98%). The average overall system usability (SUS) score was 85.7, indicating grade A and excellent system usability. Preliminary psychosocial outcome measure estimates showed primarily nonsignificant pre-post intervention improvements at 3 months, but with significant positive effects related to some aspects of HRQoL (bodily pain, <i>P</i>=.02 and change, <i>P</i>=.049). CONCLUSIONS  Digital self-management intervention programs may be of use and support for patients living with chronic pain. In this feasibility study, EPIO showed an acceptable program completion rate and was rated as useful and easy to use, with excellent user satisfaction. Program optimization and efficacy testing in a large-scale randomized controlled trial are warranted and in progress. CLINICALTRIAL ClinicalTrials.gov NCT03705104; https://clinicaltrials.gov/ct2/show/NCT03705104

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