scholarly journals Pemodelan Kausal Faktor-Faktor Beban Keluarga dalam Merawat Pasien Kanker Menggunakan Algoritma S2C-Latent

2021 ◽  
Vol 8 (1) ◽  
pp. 189
Author(s):  
Rizki Surtiyan Surya ◽  
Christantie Effendy ◽  
Ridho Rahmadi
Keyword(s):  
Family Caregivers ◽  
Causal Relationship ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Causal Modeling ◽  
Family Burden ◽  
Cross Sectional ◽  
Activity Factor ◽  
The Family ◽  
Specification Search

<p class="Abstrak">Pasien kanker memiliki kebutuhan yang kompleks mulai dari masalah fisik, psikologis, sosial dan spiritual. Keluarga yang merawat pasien kanker disebut<em> family car</em><em>egiver</em>. Seorang <em>family caregiver</em> membantu mengatasi hampir semua permasalahan yang dialami pasien baik saat dirawat di rumah maupun di rumah sakit. Keluarga mengalami suka dan duka dalam merawat pasien. Dalam merawat pasien dengan penyakit kronis, bukan hanya pasien tetapi kesejahteraan dan kualitas hidup <em>family car</em><em>egiver</em> juga penting. Oleh karena itu sangat penting untuk mengetahui bagaimana beban family caregiver dan faktor-faktor yang mempengaruhi beban keluarga dalam merawat pasien.  Beban <em>family car</em><em>egiver</em> dapat diukur menggunakan <em>Caregiver Reaction Assesment</em> (CRA), yang direpresentasikan oleh beberapa faktor. Dengan memahami hubungan kausal antara faktor-faktor beban keluarga, diharapkan dapat membantu untuk mengidentifikasi bagaimana beban <em>caregiver</em> bersumber dan berdampak. Untuk itu, penelitian ini bertujuan untuk mengidentifikasi hubungan kausal antara faktor-faktor yang berhubungan dengan beban family caregiver dalam merawat pasien. Penelitian ini menggunakan algoritma pemodelan kausal bernama <em>Stable Specification Search for </em><em>Cross-sectional Data with </em><em>Latent </em><em>Variable</em> (S3C-<em>Latent</em>) untuk mendapatkan model kausal antara faktor-faktor beban <em>family car</em><em>egiver</em> yang relevan. Dari hasil analisis  pemodelan  didapatkan ada 3 faktor yang memiliki hubungan kausal dan 2 faktor memiliki hubungan asosiasi. Gender memiliki hubungan kausal yang stabil terhadap kesiapan kesehatan dan kesiapan dalam merawat<em>.</em> Sedangkan faktor kesiapan merawat mempengaruhi faktor aktivitas <em>family caregiver</em>, selain itu faktor keuangan memiliki hubungan asosiasi yang kuat dengan faktor aktivitas dan hubungan keluarga. Pemodelan kausal ini dapat digunakan sebagai acuan bagi tenaga kesehatan dalam pelayanan kesehatan yang lebih tepat, efisien, dan efektif di dalam menangani permasalahan beban <em>caregiver</em><em>.</em></p><p class="Abstrak"> </p><p class="Abstrak"><em><strong>Abstract</strong></em></p><p class="Abstrak"><em><span lang="IN">Cancer patients have complex needs ranging from physical, psychological, social</span>,<span lang="IN"> and spiritual problems. Families who</span> take<span lang="IN"> care for cancer patients are called family caregivers. A family caregiver helps </span>to <span lang="IN">overcome almost all problems experienced by </span>the <span lang="IN">patients both while being treated at home and in the hospital. Families experience joy and sorrow in caring for patients. In treating patients with chronic diseases, not only the patient but the family caregiver's well-being and quality of life are also important. Therefore, it is very important to know how the family caregiver's burden is and the factors that affect the family burden in caring for patients. Caregiver family burden can be measured using Caregiver Reaction Assessment (CRA), which is represented by several factors. By understanding the causal relationship between family burden factors, it is hoped that it can help to identify how the caregiver burden is sourced and impacted. Therefore, this study aims to identify the causal relationship</span>s<span lang="IN"> between factors related to the burden on family caregivers in caring for patients. This study uses a causal modeling algorithm called Stable Specification Search for Cross-sectional Data with Latent Variable (S3C-Latent) to obtain a causal model between the relevant caregiver family load factors. The results of modeling analysis showed that there are 3 factors </span>which<span lang="IN"> have a causal relationship and 2 factors have an association relationship. Gender has a stable causal relationship to health readiness and readiness to care</span>, Moreover, t<span lang="IN">he caring readiness factor affects the family caregiver activity factor, </span>and the <span lang="IN">financial factor </span>has <span lang="IN">a strong association with the activity factor and family relationships. This causal modeling can be used as a reference for health workers so as to give health services which are precise, efficient, and effective in dealing with caregiver burden problems.</span></em></p>

scholarly journals Association Between Family Caregiver Burden and Affiliate Stigma in the Families of People with Dementia

2020 ◽  
Vol 17 (8) ◽  
pp. 2772 ◽  
Author(s):  
Jian-An Su ◽  
Chih-Cheng Chang
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Affiliate Stigma ◽  
People With Dementia ◽  
The Family ◽  
Male Caregivers ◽  
Family Caregiver Burden

Family caregivers of people with dementia (PWD) have a heavy care burden. Affiliate stigma is the stigma internalized by individuals associated with PWD. Limited research has addressed the affiliate stigma among caregivers of PWD and its influence on caregiver burden. Thus, our study investigated the burden of caregivers of PWD and its relationship with affiliate stigma. In addition, we examined the factors related to affiliate stigma. This cross-sectional study was conducted in a general hospital in Taiwan. We recruited 270 PWD and their family caregivers from the outpatient department. Relevant demographic and clinical assessment data of the patients and caregivers were evaluated. Regression analysis was performed to examine the factors associated with affiliate stigma. In total, 23.7% of the family caregivers had depression and 37.4% had anxiety. Male caregivers had higher levels of anxiety and heavier care burdens related to affiliate stigma compared with female caregivers. Moreover, characteristics such as younger age and low levels of dependence in daily activities among PWD were associated with increased affiliate stigma. A higher family caregiver burden was related to more severe affiliate stigma. Interventions for decreasing the family caregiver burden might reduce the effect of affiliate stigma.

scholarly journals The Burden and Perceived Stress on Family Caregivers of Patients With Orofacial Cleft Deformities in The Perioperative Period of Cleft Repair

2020 ◽  
Vol 7 (6) ◽  
pp. 1602-1609
Author(s):  
Olalere Omoyosola Gbolahan ◽  
Ogunmuyiwa Stella Amiede ◽  
Olowookere Anu Samuel
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Perceived Stress ◽  
Perioperative Period ◽  
Contributing Factors ◽  
Cross Sectional ◽  
Interview Score ◽  
The Family ◽  
Cross Sectional Design ◽  
Family Caregiver Burden

Different stages along the trajectory of cleft care may present with different and peculiar challenges that may negatively impact family caregivers, leading to considerable stress and burden. This study aims to evaluate the family caregiver burden and perceived stress of caring for patients with cleft deformities. Contributing factors to family caregivers’ burden in the perioperative period of cleft repair was also identified. A cross-sectional design that included 90 adult caregiver–patient pairs was employed. Semi-structured questionnaire was used to collect necessary information. The level of caregiver’s burden was assessed using the Zarit burden interview score. The results demonstrated the levels of caregiver burden as severe (4.4%), moderate to severe (21.1%), mild to moderate (40%), and little or none (34.5%). The only significant and independent predictor of caregiver burden was earning less than US$50/month (odds ratio = 2.30, 95% CI = 0.95-5.61, P = .066). Coping strategy was mainly family support (98.9%), while the greatest need expressed was financial assistance (66.7%). Our findings suggests that efforts geared at reducing direct and indirect cost of cleft care may help in reducing caregivers’ burden.

scholarly journals CARE SKILL AND OVERLOAD OF THE FAMILY CAREGIVER OF PATIENTS IN CANCER TREATMENT

2020 ◽  
Vol 29 ◽  
Author(s):  
Larissa de Carli Coppetti ◽  
Nara Marilene Oliveira Girardon-Perlini ◽  
Rafaela Andolhe ◽  
Angélica Dalmolin ◽  
Steffani Nikoli Dapper ◽  
...  
Keyword(s):  
Cancer Treatment ◽  
Family Caregivers ◽  
Significant Relationship ◽  
Family Caregiver ◽  
Self Efficacy ◽  
Interpersonal Relationship ◽  
University Hospital ◽  
Cross Sectional ◽  
The Family ◽  
Perception Of Self

ABSTRACT Objective: to analyze the relationship between the characteristics of patients in cancer treatment, their family caregivers, the care provided with the overload, as well as between overload and the care skills. Method: a cross-sectional study conducted at the chemotherapy and radiotherapy services of a university hospital in Rio Grande do Sul (Brazil) from March to August 2017, with 132 family caregivers of patients in cancer treatment. Data was collected by an instrument that characterizes patients, caregivers and care (the Brazilian version of the Caring Ability Inventory) and the Zarit Overload Scale. The following coefficients were used: Spearman correlation, Mann-Whitney or Kruskal-Wallis. Results: there was a significant relationship between the total overload and the patient’s level of dependence (p=0.021) and help from others (p=0.009). The “care impact” factor was significantly related with the patient’s level of dependence (p=0.006), the caregiver’s gender (p=0.035) and the care help (p=0.043). Regarding the “perception of self-efficacy” factor, there was a significant relationship involving the caregiver’s age (p=0.036) and, in the “caregiver expectation” factor, a significant relationship was observed with the care help (p=0.002). There was a significant and negative correlation between the total care skill and the overload factor related to interpersonal relationship (p=0.035); and between the “courage” dimension and the “perception of self-efficacy” (p=0.032) and “interpersonal relationship” (p=0.008) factors. Conclusion: the characteristics of the patient, the caregiver and the care provided influence the overload of the family caregiver, and this overload, in turn, interferes with the care skills. These results should be considered when planning interventions that aim to guide and prepare family caregivers for home care.

scholarly journals The Relationship between Family Attitude and Family Caregiver Burden of Patients with Schizophrenia in Tangerang

2020 ◽  
Vol 3 (1) ◽  
pp. 67
Author(s):  
Nurul Fitri ◽  
Karina Megasari Winahyu ◽  
Yudhia Frathidina
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Positive Attitude ◽  
Family Burden ◽  
Psychiatric Clinic ◽  
Care Providers ◽  
Family Attitudes ◽  
The Family ◽  
The Relationship ◽  
Family Attitude

Introduction: Schizophrenia is a mental disorder that occurs in the long term and affects the thought process which demanding for the required care. Negative attitudes can be one of the factors that influence the family burden that is getting heavier. This study aimed to determine the relationship of family attitudes to the family burden of caring for schizophrenic patients at the psychiatric hospital in Kota Tangerang. Methods: The study was a descriptive correlation with Cross-Sectional design. The population of this study was the family caregivers of patients with schizophrenia who visited the psychiatric clinic at Kota Tangerang Hospital. This study used the accidental sampling method, recruited as many as 64 people. The instrument of this study was the Burden Assessment Schedule (BAS) questionnaire and the Family Attitude Scale (FAS) had been examined the validity and reliability test. The Chi-square test was used for the statistical analysis to identify the relationship between family attitude and caregiver burden. Results: The results of this study were 23 respondents who had a positive attitude with a light burden of 52.2% while those with a negative attitude had 41 respondents with a heavy burden of 80.5. The p-value was 0.007 showed that there was a significant relationship between family attitudes and the burden of the family caring for patients with schizophrenia in psychiatric hospitals in Kota Tangerang Hospital. Conclusion: It suggests that health care providers need to consider the burden perceived by the caregivers so they are more likely to show a positive attitude in providing care for the beloved-one.Keywords: Caregiver Burden, Family Attitudes, Family Caregivers, Patients with Schizophrenia

scholarly journals RELATIONSHIP SOCIAL SUPPORT AND RESILIENCE WITH STRESS LEVELS OF FAMILY CAREGIVERS HEMODIALYSIS PATIENTS SURABAYA

2020 ◽  
Vol 9 (2) ◽  
pp. 56
Author(s):  
A Fahmil Haq Aplizuddin ◽  
Harmayetty Harmayetty ◽  
Elida Ulfiana
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Negative Relationship ◽  
Cross Sectional Study ◽  
Hemodialysis Patients ◽  
Cross Sectional ◽  
The Social ◽  
The Family ◽  
Stress Levels

Introduction: Hemodialysis is a life-long treatment for end-stage renal disease (ESRD). ESRD has physical and psychosocial challenges to experience stress which not only affects but patients but also family members who care for them or also called family caregivers. Analyzing the relationship of social support and resilience to the level of stress in the family caregiver of hemodialysis patients at Haji Hospital Surabaya.Methods: A cross-sectional study with a population of family caregiver members of hemodialysis patients at RSU Haji Surabaya. The sample size was 92 respondents with criteria, namely families who treat hemodialysis patients at RSU Haji Surabaya, live in one house with patients, aged > 18 years, and can read and write. The variables of this study are social support, resilience, and stress levels. Data collection was performed using a questionnaire and analyzed using Spearman’s Rho test. Results : There was a significant negative relationship between social support and stress levels (p = 0.004 and r = -0.296) and resiliency with stress levels (p = 0.003 and r = -0.311).Discussion: The level of stress in a family caregiver hemodialysis patient can be influenced by the social support received and the level of resilience they have. The social support has an important role for family caregivers obtained from the family and significant other.

scholarly journals Predictors of Depressive Symptoms among Family Caregivers of Patients with Dementia in Java, Indonesia

2021 ◽  
Vol 73 (8) ◽  
pp. 549-558
Author(s):  
Yossie Susanti Eka Putri ◽  
Yajai Sitthimongkol ◽  
Virapun Wirojratana ◽  
Natkamol Chansatitporn
Keyword(s):  
Social Support ◽  
Depressive Symptoms ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Mental Health Problems ◽  
Psychological Symptoms ◽  
Healthcare Services ◽  
Cross Sectional ◽  
The Family ◽  
The Relationship

Objective: Depressive symptoms are common mental health problems among the family caregivers of patients with dementia. However, little is known about the prevalence of depressive symptoms among the family caregivers of patients with dementia in Indonesia. This study aimed to examine: 1) the factors predicting depressive symptoms, 2) the mediating role of social support in the relationship between burden and depressive symptoms, and 3) the association between depressive symptoms and healthcare utilization among family caregivers.Materials and Methods: This was a cross-sectional study involving 250 family caregivers of patients with dementia recruited from four hospitals in Java, Indonesia. Data were collected by Zarit Burden Interview (ZBI); the Neuropsychiatric Inventory Questionnaire (NPI-Q), the Mastery scale, the Multidimensional Scale of Perceived Social Support, and the Center for Epidemiologic Studies Depression (CES-D) Scale. Descriptive statistics, chi-square test, hierarchical multiple linear regression, and Baron and Kenny's regression method were used to analyze the data.Results: The results revealed that about a quarter of the participants (24.8%) experienced depressive symptoms. Caregiver burden, mastery, behavioral and psychological symptoms of dementia, and social support explained 45.5% of the variance in the prevalence of depressive symptoms among family caregivers (R2=0.455). Social support also partially mediated the association between caregiver burden and depressive symptoms. There was no association between depressive symptoms and the use of healthcare services among the family caregivers.Conclusion: The findings revealed that social support is a mediating factor affecting the relationship between caregiver burden and depressive symptoms. Interventions targeting social support to help alleviate caregiver burden would be effective in helping reduce depressive symptoms in the family caregivers of patients with dementia.

Family caregivers’ perceived communication self-efficacy with physicians

2020 ◽  
pp. 1-7
Author(s):  
Elaine Wittenberg ◽  
Anna M. Kerr ◽  
Joy V. Goldsmith
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Self Efficacy ◽  
Online Survey ◽  
Skill Training ◽  
Communication Skill Training ◽  
Cross Sectional ◽  
The Family

Abstract Objective Family-centered health care requires successful communication between patient, family caregivers, and healthcare providers. Among all providers, physicians are most likely to interact with caregivers. Using the Family Caregiver Communication Typology, this study examined perceived communication self-efficacy with physicians among four types of caregivers: Manager, Partner, Carrier, and Lone. Method A cross-sectional online survey included the Family Communication Typology Tool, Communication Perceived Self-Efficacy Scale, the Caregiver Quality of Life-Revised Index, and the Generalized Anxiety Disorder (GAD-2) questionnaire. Results An online survey of 220 family caregivers currently caring for an adult family member revealed significant differences in communication self-efficacy among family caregiver communication types, revealing that Partner caregivers have the highest perceived communication self-efficacy, and that for some caregiver types, higher perceived communication self-efficacy is associated with certain quality of life dimensions. Significance of results Differences in communication self-efficacy with physicians among the four caregiver communication types (Manager, Partner, Carrier, and Lone) provide further evidence that the typology represents variance in caregiver communication abilities. Development of future medical curricula targeting communication skill training should include an overview of the typology and communication strategies as these may increase effective communication between physicians and caregivers.

scholarly journals Burden and Depression among Jordanian Caregivers of Hemodialysis Patients: A Cross-sectional Study

2021 ◽  
Vol 15 (1) ◽  
pp. 29-37
Author(s):  
Eman Khamis Alnazly
Keyword(s):  
Travel Time ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Multinomial Logistic Regression ◽  
Cross Sectional Study ◽  
Patient Age ◽  
Cross Sectional ◽  
Caregiving Burden ◽  
Patient Âgé ◽  
The Family

Introduction: Caring for patients receiving hemodialysis places a burden on caregivers. Objectives: To examine caregiving burden and depression in the family caregivers of patients receiving hemodialysis and associated factors. Methods: A cross-sectional design was used. Participants were 204 adult caregivers of patients receiving hemodialysis. Questionnaires included sociodemographic characteristics, the Oberst Caregiving Burden Scale-Difficulty (OCBS-D) subscale, Bakas Caregiving Outcomes Scale (BCOS), and the Patient Health Questionnaire-9 to measure the burden and depression of caregivers. Descriptive statistics, two linear regression analyses, and multinomial logistic regression were used in data analysis. Results: The majority (59.0%, n = 120) of caregivers had a moderate level of depression with scores ranging from 11 to 16. The analysis showed that the mean score of OCBS-D was 42.0 (SD = 4.7) with scores ranging from 26.9 to 58.9 (range = 32.0), while the caregivers' mean score of BCOS was 52.1 (SD = 9.3) with scores ranging from 38.0 to 82.5 (range = 44.5). Given that the expected score of OCBS-D and BCOS ranged from 15 to 75 and 15 to 105, respectively, the analysis indicated a moderate to a high level of burden among caregivers. Age and travel time were associated with a higher likelihood of negative outcomes in the family caregivers, while higher patient age was associated with a greater caregiver burden. Relevance to Clinical Practice: It is important to assess and address the practical issues that caregivers experience, such as employment-related responsibilities, financial difficulties, and the need to learn specific skills related to patients’ chronic illnesses. Conclusion: Caregivers of patients receiving hemodialysis are likely to experience moderate depression and burden. Caregiver burden increases with patient age and travel time to the hemodialysis units.

scholarly journals Beban pengasuahan Caregiver keluarga klien dengan Skizofrenia di Rumah Sakit Jiwa Naimata Kupang

2020 ◽  
Vol 11 (2) ◽  
pp. 183
Author(s):  
A. Nenobais ◽  
Ah. Yusuf ◽  
S.R.D Andayani
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Mental Hospital ◽  
Descriptive Study ◽  
Important Indicator ◽  
Zarit Burden Interview ◽  
It Impacts ◽  
The Family ◽  
Family Caregiver Burden

The primary caregiver of schizophrenia patients is a family member. Caring for schizophrenia patients with other routine activities makes the family as caregivers experiences substantive stress or burden. The aims of this study is to describe the burden of the family caregivers of patiens with schizophrenia. This study was a descriptive study with a sample of 104 family nurse patients with schizophrenia, who visited the outpatient and inpatient care of Naimata Mental Hospital in Kupang, East Nusa Tenggara. The burden of family caregivers was measured using The Zarit Burden Interview. The results showed mild to moderate burden was 23.1%, moderate to severe burden 49%, severe burden 22.1% and little or no burden 5.8%. Family caregiver burden is an important indicator for the provision of mental health services because it impacts on the ability of families to maintain their caregiving role. Keywords: family; caregiver; burden; schizophrenia ABSTRAK Pengasuh utama pasien Skizofrenia adalah anggota keluarga. Merawat pasien skizofrenia dengan kegiatan rutin lainnya menjadikan keluarga sebagai pengasuh mengalami stres atau beban yang substansial. Tujuan dari penelitian ini adalah untuk menggambarkan beban pengasuh keluarga pasien skizofrenia. Penelitian ini adalah penelitian deskriptis dengan sampel penelitian 104 perawat keluarga pasien dengan skizofrenia, yang berkunjung di rawat jalan dan rawat inap Rumah Sakit Jiwa Naimata di Kupang Nusa Tenggara Timur. Beban pengasuh keluarga diukur menggunakan The Zarit Burden Interview. Hasil penelitian menunjukkan beban ringan sampai sedang adalah 23,1%, beban sedang hingga berat 49%, beban berat 22,1% dan sedikit atau tidak ada beban 5,8%. Beban pengasuh keluarga merupakan indikator penting untuk penyediaan layanan kesehatan mental karena berdampak pada kemampuan keluarga untuk mempertahankan peran pengasuhan mereka. Kata kunci: keluarga; caregiver; beban; skizofrenia

Self-Perceived Burden to Others: Patient and Family Caregiver Correlates

2007 ◽  
Vol 23 (3) ◽  
pp. 135-142 ◽  
Author(s):  
Christine J. Mcpherson ◽  
Keith G. Wilson ◽  
Michelle M. Lobchuk ◽  
Susan Brajtman
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Psychological Symptoms ◽  
Sense Of Self ◽  
Family Members ◽  
Physical Symptoms ◽  
Perceived Burden ◽  
The Family ◽  
Burden Scale

Aims To provide further evidence about the prevalence and correlates of the sense of “self-perceived burden” (SPB) to others, and to examine its association with caregiver reports of burden. Methods The participants were 65 patients with advanced cancer and their family caregivers. Patients completed measures of SPB and family members completed a caregiver burden scale. Results SPB was experienced at minimal to mild levels by 35% of patients, and at moderate to extreme levels by another 28%. It was correlated with some physical symptoms, but more frequently with psychological symptoms. The family members of patients who reported that SPB was a significant problem had higher scores on the caregiver burden scale than family members of other patients (p=0.048), although the overall correlation was modest. Conclusions SPB is a common and distressing concern for many patients receiving palliative care and is associated with a number of other distressing concerns.

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