scholarly journals Socio – psychological factors of successful adaptation of adults with cerebral palsy at the community level

2021 ◽  
pp. 119-128
Author(s):  
Iryna Sarancha ◽  
Natalia Pastuh
Keyword(s):  
Cerebral Palsy ◽  
Young People ◽  
Low Income ◽  
Living Arrangements ◽  
Physical Disabilities ◽  
Adult Life ◽  
Self Evaluation ◽  
Independent Life ◽  
Marital Success ◽  
Developmental Features

Unfortunately, statistics on the birth of children with disabilities in the world are growing every year. Depending on the diagnosis and specifics of development, each child needs special care, upbringing and training. One of the types of institutions in Ukraine that provide training, upbringing, and correction of psychophysiological features of the development of children and teens is rehabilitation centres. Conditions in them are created following the needs of a particular group of people which is as comfortable as possible. Also, the specifics of training and rehabilitation provide an individual's psychological growth and development among people who have similar developmental features, and therefore the same "strengths" and "weaknesses". Cerebral palsy (CP) is defined as a persistent disorder of posture caused by a non-progressive pathological one of the developing brain. Every graduate of rehabilitation centres needs social support and assistance in adapting to an adult, independent life. Such support makes a person feel less alone reduces anxiety and feelings of loneliness and isolation. Social workers become guides from one social environment to another, mitigating such a transition as much as possible for people with mental and physical disabilities, who are one of the most vulnerable segments of the population. Individuals in later adolescence are on the verge of a crucial transition to adult life. This developmental stage involves the challenges of making living arrangements, setting goals, establishing independence, and forming social relationships (Spekman, Goldberg, & Herman, 1992). It may be a difficult period for young people with physical disabilities who face unemployment, low income, social isolation, and lack of advice (Hirst, 1982). Later adolescence also is a time of self-evaluation and comparison with others, and young people with disabilities may be forced to reflect on their physical differences and areas of competence. These developments ultimately affect their success in life and happiness. For instance, Clausen (1993) has shown that adolescent competence is linked to occupational, financial, and marital success.

DESIGN APPROACH TO REHABILITATION: DEVELOPING THERAPY ASSISTIVE PRODUCTS FOR CHILDREN WITH HEMIPLEGIC CEREBRAL PALSY

2018 ◽  
Vol 12 (2) ◽  
pp. 307
Author(s):  
G.Y.A. Shanya I. Perera ◽  
W.M.N. Dilshani Ranasinghe
Keyword(s):  
Cerebral Palsy ◽  
Functional Outcomes ◽  
Iterative Process ◽  
Participatory Design ◽  
Design Methodology ◽  
Physical Disabilities ◽  
Comprehensive Understanding ◽  
Constructive Feedback ◽  
Children With Disability ◽  
Hemiplegic Cerebral Palsy

Therapy plays an important role in rehabilitation of children suffering from physical disabilities. Disability conditions like Hemiplegic Cerebral Palsy require vigorous therapy measures, which could be unappealing to children. Using therapy assistive products for rehabilitation can make therapy activities engaging and appealing to children and yield effective outcomes. However, there is limited availability of context based therapy assistive products, which are engaging, and appealing to children suffering from Hemiplegic Cerebral Palsy. This study explores how design methodology can be used to develop therapy assistive products for rehabilitation of children with disability. The study is based on developing a set of therapy assistive products to improve the hand-skills of children with Hemiplegic Cerebral Palsy. Developing therapy assistive products require comprehensive understanding of therapeutic aspects, design aspects and careful integration of the two disciplines. Hence, practicing multidisciplinary and participatory design approaches in the design process is imperative. Usability of therapy assistive products are highly impactive in nature, and therefore an iterative process of prototyping, testing, receiving constructive feedback and developing the products based on feedback should be adopted to achieve feasible and  functional outcomes.

The Fight against Idleness

2018 ◽  
Author(s):  
Anthony F. Heath ◽  
Elisabeth Garratt ◽  
Ridhi Kashyap ◽  
Yaojun Li ◽  
Lindsay Richards
Keyword(s):  
Young People ◽  
Labour Market ◽  
Ethnic Minorities ◽  
Unemployment Rate ◽  
Low Income ◽  
Young Men ◽  
Dark Side ◽  
Educational Expansion ◽  
Left Behind ◽  
Wide Range

Unemployment has a wide range of adverse consequences over and above the effects of the low income which people out of work receive. In the first decades after the war Britain tended to have a lower unemployment rate than most peer countries but this changed in the 1980s and 1990s, when Britain’s unemployment rate surged during the two recessions—possibly as a result of policies designed to tackle inflation. The young, those with less education, and ethnic minorities have higher risks of unemployment and these risks are cumulative. The evidence suggests that the problems facing young men with only low qualifications became relatively worse in the 1990s and 2000s. This perhaps reflects the dark side of educational expansion, young people with low qualifications being left behind and exposed in the labour market.

A Cross-sectional Study of the Clinical Profile of Children With Cerebral Palsy in Benin, a West African Low-Income Country

2019 ◽  
Vol 34 (13) ◽  
pp. 842-850
Author(s):  
Emmanuel Segnon Sogbossi ◽  
Damienne Houekpetodji ◽  
Toussaint G. Kpadonou ◽  
Yannick Bleyenheuft
Keyword(s):  
Risk Factors ◽  
Cerebral Palsy ◽  
Low Income ◽  
Classification System ◽  
West African ◽  
Low Income Countries ◽  
Cross Sectional ◽  
Common Cause ◽  
Low Income Country ◽  
Children With Cerebral Palsy

Cerebral palsy is a common cause of pediatric motor disability. Although there are increasing amounts of data on the clinical profile of children with cerebral palsy in high-income countries, corresponding information about low-income countries and developing countries is lacking. Therefore, we aimed to describe the clinical spectrum of cerebral palsy in children in Benin, a representative West African low-income country. Our cross-sectional observational study included 114 children with cerebral palsy recruited from community-based rehabilitation centers and teaching hospitals (median age: 7 years, range 2-17; sex: 66% male). Data were collected through review of medical records and interviews with children’s mothers. Assessment included risk factors, clinical subtypes according to the Surveillance of CP in Europe criteria, severity of motor outcome scored by the Gross Motor Function Classification System (GMFCS) and Manual Ability Classification System, comorbidities, and school attendance. We recorded a high prevalence of intrapartum adverse events. Seventeen percent of children had postneonatal cerebral palsy, with cerebral malaria being the most common cause. Most children were severely affected (67.5% as bilateral spastic; 54.4% as GMFCS IV or V), but severity declined substantially with age. Only 23% of the children with cerebral palsy had attended school. Poor motor outcomes and comorbidities were associated with school nonattendance. These results suggest that intrapartum risk factors and postnatal cerebral malaria in infants are opportune targets for prevention of cerebral palsy in Sub-Saharan low-income countries.

scholarly journals Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol

BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Catherine Arnaud ◽  
Carine Duffaut ◽  
Jérôme Fauconnier ◽  
Silke Schmidt ◽  
Kate Himmelmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Cerebral Palsy ◽  
Young People ◽  
General Population ◽  
Transition Period ◽  
Well Being ◽  
Personal Factors ◽  
The Impact

Abstract Background Effective inclusion in society for young people with disabilities is increasingly seen as generating opportunities for self-development, and improving well-being. However, significant barriers remain in the vast majority of activities meaningful for young adults. Research argues that various personal (disabilities, health) and environmental (access to the resources needed, accessible environment, discrimination, lack of personal economic independence) factors contribute to limited participation. However, previous studies conducted in young people with cerebral palsy (CP) mainly investigated the transition period to adulthood, and did not fully consider the whole range of impairment severity profiles or environmental barriers. In this study, we will use the follow-up of the SPARCLE cohort and a comparison group from the general population (1) to investigate the impact of the environment on participation and quality of life of young adults with CP, (2) to determine predictors of a successful young adulthood in educational, professional, health and social fields, (3) to compare quality of life and frequency of participation in social, work and recreational activities with the general population, (4) to document on participation and quality of life in those with severe disabilities. Methods The SPARCLE3 study has a combined longitudinal and cross-sectional design. Young adults with CP aged 22 to 27 years in 6 European regions previously enrolled in the SPARCLE cohort or newly recruited will be invited to self-complete a comprehensive set of questionnaires exploring participation (daily life and discretionary activities), health-related quality of life, body function, personal factors (health, personal resources), and contextual factors (availability of needed environmental items, family environment, services provision) during home visits supervised by trained researchers. Proxy-reports or adapted questionnaires will be used for those with the most severe impairments. The recruitment of a large group from the general population (online survey) will enable to identify life areas where the discrepancies between young people with CP and their able-bodied peers are the most significant. Discussion This study will help identify to what extent disabilities and barriers in environment negatively affect participation and quality of life, and how previous valued experiences during childhood or adolescence might modulate these effects.

scholarly journals Holiday Club Programmes in Northern Ireland: The Voices of Children and Young People

2021 ◽  
Vol 18 (3) ◽  
pp. 1337
Author(s):  
Jackie Shinwell ◽  
Ellen Finlay ◽  
Caitlin Allen ◽  
Margaret Anne Defeyter
Keyword(s):  
Northern Ireland ◽  
Young People ◽  
School Children ◽  
Low Income ◽  
Primary School Children ◽  
Older Children ◽  
Children And Young People ◽  
Self Confidence ◽  
Low Income Families ◽  
High Level

In Northern Ireland, nearly 30% of children are thought to be at risk of going hungry in the summer holidays when they are unable to access free school meals. Community groups, voluntary groups, local authorities, and faith groups have responded to this concern by developing and delivering holiday programmes that enable children from low-income families to take part in activities and access food. The current study used purposive sampling to investigate children’s and young people’s views of holiday provision, from across three holiday clubs, in Northern Ireland. Both primary school children (n = 34; aged 4–11) and secondary school children (n = 31; aged 12–17) showed high levels of awareness of poverty and food insecurity and associated pressures and stresses on households. Importantly, children and young people did not feel stigmatised about attending holiday provision, suggesting a positive and inclusive culture towards holiday club attendance. Children reported that they enjoyed the range of activities provided at holiday clubs and reported that attendance improved their self-confidence, especially for some older children, who acted as peer mentors to younger attendees, helped them to develop new skills, and provided them with opportunities to socialise with peers in a safe environment, out with their normal social groupings in school. Older children showed a high level of shrewdness and knowledge of sectarian divides in communities but spoke positively about how different religious or cultural backgrounds did not matter in terms of meeting and making new friends in holiday club settings. In terms of food provision, the findings of this study suggest that further work needs to be done to support children to access and eat healthy, nutritious food.

Institutional Care and Family Reintegration: The Transition Process in the Voices of Young Brazilians

2022 ◽  
pp. 234930032110156
Author(s):  
Marlene Schüssler D’Aroz
Keyword(s):  
Young People ◽  
Institutional Care ◽  
Transition Process ◽  
Structured Interviews ◽  
Clinical Method ◽  
Family Reintegration ◽  
Parents And Children ◽  
The Family ◽  
Independent Life ◽  
Life Trajectory

This article aims to present reflections on the transition from being institutionalised to autonomous life, from the perspective of deinstitutionalised young Brazilians. Five young adults participated in the pilot study. The Piagetian clinical method was used. Through semi-structured interviews, the following were investigated: causes of institutionalisation, preparation for transition, deinstitutionalisation and perspectives of present and future life. The results indicate that there was no effective preparation for transition from the institution to the family and/or independent life. Biological families have difficulties in achieving (re) integration and overcoming conflicts between parents and children. In conclusion, when leaving institutions, some young people manage to build their own arrangements for a new life trajectory, while others return to contexts of risk and life on the street. Public policies to assist these young people should be prioritised.

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