Key Factors of Family Adaptation to the Illness of Family Members: An Integrative Review

BACKGROUND: Increases in demands on patients' family members that are not reduced by family strengths may contribute to decreases in family adaptation and complicate patients' recovery after trauma. The purpose of this study was to examine family demands (prior stressors and severity of patients' injuries) and family strengths and capabilities (hardiness, resources, coping, and problem-solving communication) associated with outcomes of family well-being and adaptation. METHODS: A multivariate, descriptive design based on the Resiliency Model of Family Stress was used. A convenience sample of family members (N = 51) of adult patients participated within the first 2 days of critical injury. Family demands were measured with the Family Inventory of Life Events and Changes and the Acute Physiology, Age, and Chronic Health Evaluation III. Family strengths were measured with the Family Hardiness Index, Family Inventory of Resources for Management, Family Crisis Oriented Personal Evaluation Scale, and Family Problem Solving Communication Index. Family adaptation outcomes were measured with the Family Well Being Index and Family Adaptation Scale. RESULTS: Increases in family demands were significantly related to decreases in family strengths and family adaptation. Family demands scores accounted for 40% of the variance in family well-being scores. The only significant family strength variable influencing family adaptation was problem-solving communication. CONCLUSIONS: Increases in family demands seem to be an important indicator of the amount of assistance a family may need. Interventions that help mobilize family strengths, such as problem-solving communication, may be effective in promoting the adaptation of families of critically injured patients.

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Adaptation to Technology Use in Families of Children With Complex Communication Needs: An Integrative Review and Family Theory Application

Journal of Family Nursing ◽

10.1177/1074840720915536 ◽

2020 ◽

Vol 26 (2) ◽

pp. 153-178

Author(s):

Patricia West ◽

Marcia Van Riper ◽

Gwen Wyatt ◽

Rebecca Lehto ◽

Sarah N. Douglas ◽

...

Keyword(s):

Technology Use ◽

Augmentative And Alternative Communication ◽

Meta Analysis ◽

Integrative Review ◽

Future Research ◽

Alternative Communication ◽

Family Adaptation ◽

Complex Communication Needs ◽

Communication Needs ◽

Conceptual Foundations

Families with children who have developmental disabilities and complex communication needs (CCNs) face challenging demands affecting family adaptation. Many children with CCNs use augmentative and alternative communication (AAC) devices to support communication, yet little is known about family adaptation to such technology. To fill this gap, an integrative review, guided by the Resiliency Model of Family Stress, Adjustment, and Adaptation was conducted to assess conceptual foundations and the state of the science of family adaptation among children utilizing AAC. Web-based searches were conducted using the Preferred Reporting Items for Systematic Reviews and Meta-Analysis and the Mixed Methods Appraisal Tool. Thirty-three studies met eligibility. Findings demonstrated that to enhance the science underpinning family adaptation to AAC use, future research should be grounded conceptually and address important components of the Resiliency Model. Work in this emerging area will identify and facilitate nursing efforts to assist families as they adapt to communication technology.

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Coping by family members of critically ill hospitalised patients: An integrative review

International Journal of Nursing Studies ◽

10.1016/j.ijnurstu.2019.04.016 ◽

2019 ◽

Vol 97 ◽

pp. 40-54 ◽

Cited By ~ 6

Author(s):

Monica Rückholdt ◽

Geoffrey H. Tofler ◽

Sue Randall ◽

Thomas Buckley

Keyword(s):

Critically Ill ◽

Family Members ◽

Integrative Review ◽

Hospitalised Patients

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Indicators of Family Resilience after the Death of a Child

OMEGA - Journal of Death and Dying ◽

10.2190/om.63.4.c ◽

2011 ◽

Vol 63 (4) ◽

pp. 343-358 ◽

Cited By ~ 14

Author(s):

Abraham P. Greeff ◽

Alfons Vansteenwegen ◽

Tina Herbiest

Keyword(s):

Social Support ◽

Coping Strategies ◽

Family Members ◽

Family Resilience ◽

Adaptation Process ◽

Family Strengths ◽

Family Adaptation ◽

Family Coping ◽

Death Of A Child ◽

The Family

The aim of this study was to identify and describe resilience qualities in families after losing a child. Questionnaires, including an open-ended question, were utilized to collect data independently from the parents and siblings of the deceased in 89 Belgian families. The results indicate that family strengths in general, and commitment to the family in particular, helped the families' adaptation after the loss. In addition, the adaptation process after the loss was aided if the family members viewed the crisis as a challenge. Both the siblings and the parents indicated that the extent to which a family experienced support from the community was directly related to family adaptation after the loss. Redefining the situation and utilizing social support from friends and family were underlined as effective family coping strategies. The findings could be used in interventions to promote family resilience, thereby affirming the reparative potential of families.

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The key factors for the engagement of primary stakeholders in decision-making for the future care of people with dementia living in the community: a systematic integrative review

International Psychogeriatrics ◽

10.1017/s104161021900005x ◽

2019 ◽

Vol 31 (12) ◽

pp. 1731-1746 ◽

Cited By ~ 3

Author(s):

Michelle Lai ◽

Yun-Hee Jeon ◽

Heather McKenzie

Keyword(s):

Decision Making ◽

Healthcare Professionals ◽

Integrative Review ◽

Key Factors ◽

People With Dementia ◽

The Future ◽

Future Care ◽

Decision Making Processes ◽

Primary Key ◽

Person With Dementia

ABSTRACTBackground:Engagement of people with dementia who are living in the community, their family or carers, and healthcare professionals in decision-making related to their future care is an area yet to be explored in the literature. In particular, little is known about the factors most likely to underpin their engagement.Objectives:To identify key factors for the engagement of the person with dementia living in the community, as well as their family or carer and their healthcare professionals in decision-making processes related to future care.Design:This is an integrative review guided by the PRISMA guidelines; the Mixed Methods Appraisal Tool was used to assess study quality. MEDLINE, PubMed, CINAHL, PsycINFO and Embase databases were searched for articles published from 2012 to 2018 that focused on people with dementia who live in the community, their family or carers, and community-based healthcare professionals.Results:Twenty articles were included in the review, and six key factors were identified through thematic analysis: knowledge and understanding of dementia and decision-making for the future, valuing decision-making for the future, healthcare professionals’ communication skills, timing of initiating conversations, relationship quality, and orientation to the future.Conclusion:This review identifies the six key factors required for the engagement of the three primary key stakeholders in decision-making about the future care of people with dementia. It also situates the factors within the complex context in which people with dementia, their family or carers, and healthcare professionals typically find themselves.

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What Speech-Language Pathologists and Caregivers Can Do to Encourage the Eating Process

Perspectives on Swallowing and Swallowing Disorders (Dysphagia) ◽

10.1044/sasd17.2.67 ◽

2008 ◽

Vol 17 (2) ◽

pp. 67-73

Author(s):

Paul Cooke

Keyword(s):

Health Care ◽

Nursing Home ◽

Health Care Professionals ◽

Family Members ◽

Daily Basis ◽

Key Factors ◽

Speech Language Pathologists ◽

Hospital System ◽

Rehabilitation Facility ◽

Present Focus

Abstract This article highlights key factors individuals with dysphagia face on a daily basis and discusses ways in which speech-language pathologists, other health care professionals, and family members can encourage these individuals to eat and drink. The present focus is on those patients who are partially or totally eating and drinking orally. They may or may not be feeding themselves and may reside in a variety of settings, including: their home, with family members, at various levels within the hospital system, in a rehabilitation facility, and/or in a nursing home. Various proactive strategies are provided that will benefit caregivers assisting individuals with dysphagia.

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Dementia Caregiver Grief and Bereavement: An Integrative Review

Western Journal of Nursing Research ◽

10.1177/0193945916658881 ◽

2016 ◽

Vol 39 (6) ◽

pp. 825-851 ◽

Cited By ~ 16

Author(s):

Elizabeth H. Arruda ◽

Olimpia Paun

Keyword(s):

Alzheimer’S Disease ◽

Alzheimer's Disease ◽

Long Term Care ◽

Family Members ◽

Integrative Review ◽

Term Care ◽

Dementia Caregiver ◽

Grief And Bereavement ◽

Caregiver Grief

Alzheimer’s disease and related dementias make up the fifth leading cause of death for individuals of 65 years of age and older in the United States. Seventy percent of these individuals will die in long-term care settings. The aim of this integrative review was to examine and synthesize the evidence on grief and bereavement in Alzheimer’s disease and related dementias caregivers. This review identified five critical gaps in the existing evidence: (a) a lack of ethnic and gender diversity among caregivers studied, (b) limited use of valid instruments to study dementia caregiver grief and bereavement, (c) no substantive research examining dementia caregiver grief and bereavement for caregivers whose family members die in long-term care, (d) a lack of evidence examining the effect of hospice services on dementia caregiver grief and bereavement, and (e) a lack of grief and bereavement interventions for dementia caregivers whose family members die in long-term care.

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Reasons for Accident and Emergency department attendance by people with chronic obstructive pulmonary disease or heart failure: recipients and providers’ perspectives. An exploratory study

BMJ Open Respiratory Research ◽

10.1136/bmjresp-2017-000244 ◽

2018 ◽

Vol 5 (1) ◽

pp. e000244 ◽

Cited By ~ 1

Author(s):

Jeong Su Lee ◽

Heidi Lempp ◽

Vivek Srivastava ◽

Elizabeth Barley

Keyword(s):

Heart Failure ◽

Chronic Obstructive Pulmonary Disease ◽

Pulmonary Disease ◽

Exploratory Study ◽

Family Members ◽

Chronic Obstructive ◽

Key Factors ◽

Obstructive Pulmonary Disease ◽

Accident And Emergency ◽

Gp Services

IntroductionFifteen million people are affected by one or more long-term conditions in England. The cost of caring for this patient group increases every year. Several studies have been conducted to find out why people with those conditions choose to access Accident and Emergency (A&E) frequently. To our knowledge, there is no study that compares the three groups (patients, family members and hospital clinicians), and this approach may enhance understanding of A&E admissions in England. Therefore, an exploratory study was undertaken to identify key factors that contribute to A&E admissions as perceived by patients with chronic obstructive pulmonary disease (COPD) and heart failure (HF), their family members (or carers) and hospital clinicians.MethodsA mixed methods approach was undertaken: (1) semistructured interviews with patients and their family members (or carers) and (2) a self-developed survey with hospital clinicians. A purposive sample of 15 patients (9 COPD, 6 HF), 6 family members and carers (2 COPD, 4 HF) and 13 hospital clinicians (5 doctors, 8 nurses) participated in the study.ResultsThe patients’ main reason for A&E admission was severe exacerbation of their symptoms and all three parties (patients, family members or carers, hospital clinicians) agreed with this decision. Three key factors were highlighted in relation to A&E attendance: (1) patients’ health-seeking behaviour, (2) perceptions about general practitioner (GP) and A&E services by patients and (3) patients’ attitudes towards managing their own conditions.ConclusionsImproving patients’ perceptions of GP services in the management of exacerbations of HF and COPD will be important to increase patients’ trust in GP services so that patients will access primary care in a timely manner to prevent exacerbations of symptoms that require A&E admission. This may be achieved by developing a close collaboration between the patients, family members (carers) and hospital clinicians over time.

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CONFLICTOS FAMILIARES Y SU INCIDENCIA EN EL TRASTORNO DE CONDUCTA DE LOS NIÑOS

Revista Cognosis. ISSN 2588-0578 ◽

10.33936/cognosis.v5i0.1918 ◽

2020 ◽

Vol 5 ◽

pp. 71

Author(s):

Viviana Elizabeth Briones Arcentales ◽

Francisco Omar Cedeño Loor

Keyword(s):

Data Analysis ◽

Learning Process ◽

Family Members ◽

Behavior Disorder ◽

Key Factors ◽

Family Conflicts ◽

Survey Techniques ◽

Palabras Clave ◽

Teaching Learning ◽

The Relationship

El presente estudio se realizó con el objetivo de estimar la relación que existe entre los conflictos familiares y el trastorno de la conducta de los niños, es así que se pudo evidenciar que estos conflictos se convierten en factores claves para evidenciar problemas en el comportamiento de los niños y en los miembros de sus familias. Se aplicó una metodología de carácter exploratorio, utilizando las técnicas observación y encuesta, para realizar un análisis de datos de la conducta de los alumnos. Uno de los resultados más relevantes es la identificación de las causas que generan este tipo de conflicto en los hogares, de tal manera que se pueda aportar, de manera directa, a la mejora del proceso de enseñanza-aprendizaje y de la conducta de los estudiantes que sufren de tal ambiente familiar. PALABRAS CLAVE: conflicto; familia; conducta; comportamiento; trastorno. FAMILY CONFLICTS AND ITS INCIDENCE IN CHILDREN´S BEHAVIOR DISORDER ABSTRACT The present study was carried out with the objective of estimating the relationship between family conflicts and children's behavior disorder, so it was possible to show that these conflicts become key factors to show problems in the behavior of children and their family members. An exploratory methodology was applied, using the observation and survey techniques, to perform a data analysis of the students' behavior. One of the most relevant results is the identification of the causes that generate this type of conflict in the homes, in such a way that it can contribute, directly, to the improvement of the teaching-learning process and the behavior of the students which suffer from such family atmosphere. KEYWORDS: conflict; family; conduct; behavior; disorder.

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Perceptions of healthcare professionals about the presence of family members during cardiopulmonary resuscitation

Canadian Journal of Emergency Nursing ◽

10.29173/cjen144 ◽

2021 ◽

Vol 44 (1) ◽

pp. 11-19

Author(s):

Quentin Bévillard-Charrière ◽

Steve Gagné ◽

Laurence Bernard

Keyword(s):

Cardiopulmonary Resuscitation ◽

Family Members ◽

Research Strategy ◽

Integrative Review ◽

Collaborative Culture ◽

Step Method ◽

Interprofessional Team ◽

Respiratory Therapists ◽

Scientific Papers ◽

Search Data

Context: The inclusion of families during cardiopulmonary resuscitation procedures is a clinical challenge. Families are often overlooked in resuscitation protocols aimed at interventions by an interprofessional team, which includes physicians, nurses, respiratory therapists, and orderlies. The existing scientific literature has relatively little to say about the perception of the interprofessional team as to the inclusion of families during resuscitation Objective: The goal of this integrative review is to explore existing papers on the perception of members of an interprofessional team with regard to the presence of family members during emergency room cardiopulmonary resuscitation procedures. Method: This integrative review of the literature was carried out using the five-step method of Whittemore & Knafl (2005) comprising problem identification, literature search, data evaluation, data analysis, and presentation of a summary of the data. The research strategy focused on three key concepts: interprofessional, family and resuscitation. Scientific papers were found through the Cumulative Index to Nursing and Allied Health Literature (CINAHL), PsycINFO, Medline, Web of Science, Cochrane and the Joanna Briggs Institute ( JBI). To be included Conclusion: The results of this integrative review offer guidelines for improving the practice of inclusion of families during cardiopulmonary resuscitation procedures. Particular attention should be paid to the initial and continuing training of health professionals. Furthermore, this article allows for an initial reflection among managers and decision makers to promote a collaborative culture as well as a patient-centred approach. Keywords: interprofessional team, resuscitation, emergency department, family, integrative review

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