scholarly journals Perspective of people with epilepsy about Epilepsy

2021 ◽  
Vol 20 (2) ◽  
pp. 374-378
Author(s):  
Zeighami Reza ◽  
Shokati M ◽  
Hossein Zadeh K ◽  
Sahar Parsipur
Keyword(s):  
Social Isolation ◽  
Patient Perspective ◽  
Medical Science ◽  
Epilepsy Patient ◽  
Structured Interviews ◽  
Targeted Sampling ◽  
Hermeneutic Approach ◽  
Divine Punishment ◽  
Study Participants ◽  
Disease Present

Objective: This study aims to define epilepsy patient perspective about epilepsy. Material & methods:Phenomenological hermeneutic approach is used by emphasizing on van Manon (2001) method. In this study participants have chosen by targeted sampling. Semi structured interviews as well as observation have deployed for data collection Results: Patient’s perspective explored by main four themes including: dumb concept, destructive agent of present and future’s life, the cause of social isolation and divine punishment. Conclusion:Epilepsy is a disorder which is bounded by ambiguity and unawareness among patients and societies. The disease also known by them as an incurable and destructive disease, present and future’s life destructive element, the cause of social isolation, divine punishment and atonement for sins. Bangladesh Journal of Medical Science Vol.20(2) 2021 p.374-378

Immunophenotyping and cytogenetic profile of children with acute lymphoblastic leukemia: A study from a tertiary care center from Kashmir.

JMS SKIMS ◽  
2020 ◽  
Vol 23 (2) ◽  
Author(s):  
Faisal R Guru ◽  
Nisar Ahmad Syed ◽  
Shumail Bashir ◽  
Sanudev Sadanandan Vp ◽  
Hashim Kunju Ismail ◽  
...  
Keyword(s):  
Acute Lymphoblastic Leukemia ◽  
Cytogenetic Study ◽  
Lymphoblastic Leukemia ◽  
Tertiary Care ◽  
Medical Science ◽  
Fish Analysis ◽  
Jammu And Kashmir ◽  
Mll Gene ◽  
Cytogenetic Profile ◽  
Study Participants

Background The complete cytogenetic and immunophenotyping data in children suffering from acute lymphoblastic leukemia (ALL) in Jammu and Kashmir is scarce. To bridge this knowledge gap the present study proposes to evaluate the immunophenotype and cytogenetic profile of pediatric ALL patients treated in our hospital. Material and methods This hospital-based observational study was conducted on 180 pediatric patients aged between 1  to 18 years who had visited the Paediatric unit of the  Department of Medical Oncology at Sher-I -Kashmir Institute of Medical Science, Srinagar ,Jammu and Kashmir between the January 2015 to December 2019. Result Among the study participants, 57.8% were male and 42.2% were female with a mean age of 9.24 years and median of 8 Years. Among the participants, 57.2% were below 10 years of age and 42.8% were above 10years of age. CNS disease was reported in 7.8%  of the study participants.  63.3% patients  had a TLC count of less than 20000. Immunophenotyping data revealed pre-B ALL in 77.8% of children. Cytogenetic study was conducted on 153 patients among them 74.4% had a normal karyotype, 7.2% s had hyperdiploidy and 3.3% had hypodiploidy. The FISH analysis showed that 23.3% of study participants were positive for the TEL-AML study, 11.1% were positive for BCR-ABL analysis and 4.4% of participants were positive for MLL gene analysis. The overall survival in the study population was 78.9% among the study participants. Only the MLL gene rearrangement analysis showed a statistically significant correlation with the survival analysis (P<0.5). Conclusion In summary, the present study reported the complete cytogenetic and immunophenotyping profile of the children suffering from acute lymphoblastic leukemia in Jammu and Kashmir.

Experience and expression of social isolation by inner-city high-rise residents

2014 ◽  
Vol 17 (3) ◽  
pp. 151-166 ◽  
Author(s):  
Love M. Chile ◽  
Xavier M. Black ◽  
Carol Neill
Keyword(s):  
Older Adults ◽  
Inner City ◽  
Social Isolation ◽  
Age Groups ◽  
Evidence Base ◽  
Structured Interviews ◽  
Content Type ◽  
High Rise ◽  
Starting Point ◽  
Health And Social Care

Purpose – The purpose of this paper is to examine the significance of social isolation and the factors that create social isolation for residents of inner-city high-rise apartment communities. We critically examine how the physical environment and perceptions of safety in apartment buildings and the inner-city implicate the quality of interactions between residents and with their neighbourhood community. Design/methodology/approach – The authors used mixed-methods consisting of survey questionnaires supplemented by semi-structured interviews and focus group discussions using stratified random sampling to access predetermined key strata of inner-city high-rise resident population. Using coefficient of correlation we examine the significance of the association between social isolation, age and ethnicity amongst Auckland's inner-city high-rise residents. Findings – The authors found the experience and expression of social isolation consistent across all age groups, with highest correlation between functional social isolation and “being student”, and older adults (60+ years), length of tenure in current apartment and length of time residents have lived in the inner-city. Research limitations/implications – As a case study, we did not seek in this research to compare the experience and expressions of social isolation in different inner-city contexts, nor of inner-city high-rise residents in New Zealand and other countries, although these will be useful areas to explore in future studies. Practical implications – This study is a useful starting point to build evidence base for professionals working in health and social care services to develop interventions that will help reduce functional social isolation amongst young adults and older adults in inner-city high-rise apartments. This is particularly important as the inner-city population of older adults grow due to international migration, and sub-national shifts from suburbs to the inner-cities in response to governmental policies of urban consolidation. Originality/value – By identifying two forms of social isolation, namely functional and structural social isolation, we have extended previous analysis of social isolation and found that “living alone” or structural social isolation did not necessarily lead to functional social isolation. It also touched on the links between functional social isolation and self-efficacy of older adults, particularly those from immigrant backgrounds.

scholarly journals “I Spent Most of Freshers in my Room”—A Qualitative Study of the Social Experiences of University Students on the Autistic Spectrum

2021 ◽  
Author(s):  
Helen Goddard ◽  
Anna Cook
Keyword(s):  
University Students ◽  
Social Isolation ◽  
Social Life ◽  
Social Experiences ◽  
Mental Wellbeing ◽  
Structured Interviews ◽  
Social Lives ◽  
Social Events ◽  
University Life ◽  
The Impact

AbstractAutistic university students face extra challenges in both their academic and social life. Barriers to socialising appear to be less well understood and supported by universities than academic requirements. Semi-structured interviews were conducted with ten autistic university students to explore their social experiences. Questions explored their social experiences, satisfaction with social life, disclosure of ASD to others, and the impact of mental wellbeing on university life. Thematic analysis indicated most participants were unsatisfied with their social lives and experienced mental health issues. Factors exacerbating social isolation included lack of suitable social events, lack of social support and feeling unable to disclose to peers. Factors which reduced social isolation included joining an autism or special interest society and receiving social mentoring.

scholarly journals Profiles of Loneliness and Social Isolation in Physically Active and Inactive Older Adults in Rural England

2021 ◽  
Vol 18 (8) ◽  
pp. 3971
Author(s):  
Jolanthe de Koning ◽  
Suzanne H. Richards ◽  
Grace E. R. Wood ◽  
Afroditi Stathi
Keyword(s):  
Physical Activity ◽  
Older Adults ◽  
Social Isolation ◽  
Physical Environment ◽  
Vigorous Physical Activity ◽  
Social Contact ◽  
Physical Activity Behaviour ◽  
Rural Setting ◽  
Structured Interviews ◽  
Physically Active

Objective: Loneliness and social isolation are associated with higher risk of morbidity and mortality and physical inactivity in older age. This study explored the socioecological context in which both physically active and inactive older adults experience loneliness and/or social isolation in a UK rural setting. Design: A mixed-methods design employed semi structured interviews and accelerometer-measured moderate-to-vigorous physical activity (MVPA). Interviews explored the personal, social and environmental factors influencing engagement with physical activities, guided by an adapted-socioecological model of physical activity behaviour. Findings: Twenty-four older adults (MeanAge = 73 (5.8 SD); 12 women) were interviewed. Transcripts were thematically analysed and seven profiles of physical activity, social isolation and loneliness were identified. The high-MVPA group had established PA habits, reported several sources of social contact and evaluated their physical environment as activity friendly. The low MVPA group had diverse experiences of past engagement in social activities. Similar to the high MVPA, they reported a range of sources of social contact but they did not perceive the physical environment as activity friendly. Conclusions: Loneliness and/or social isolation was reported by both physically active and inactive older adults. There is wide diversity and complexity in types and intensity of PA, loneliness and social isolation profiles and personal, social and environmental contexts.

scholarly journals Diet, Nutrition, and Oral Health: What Influences Mother’s Decisions on What to Feed Their Young Children?

2021 ◽  
Vol 18 (15) ◽  
pp. 8159
Author(s):  
Amit Arora ◽  
Louise Chew ◽  
Kaye Kang ◽  
Lily Tang ◽  
Mohamed Estai ◽  
...  
Keyword(s):  
Young Children ◽  
Food Choices ◽  
Time Constraints ◽  
Birth Cohort Study ◽  
Critical Factors ◽  
Structured Interviews ◽  
Educational Materials ◽  
Nutrition And Health ◽  
Access To Health ◽  
Study Participants

The purpose of this study was to learn about mothers’ experiences with food choices for their pre-school children in underprivileged communities in Greater Western Sydney (GWS). A total of 20 mother-child dyads living in GWS were recruited to a qualitative study from an ongoing birth cohort study. Participants’ houses were visited for semi-structured interviews, which were recorded, transcribed verbatim, and analysed thematically. The interviews yielded five main themes: (i) food choices, nutrition, and health; (ii) accessibility and availability of foods (iii) buying time for parents; (iv) child’s age and their preference on food choices; (v) conditioning certain behaviours by family and cultural factors. Nutrition literacy, child’s preferences, unhealthy food intake by family members, child’s demand, advertising and availability of harmful foods, and time constraints were all mentioned as hurdles to mothers making appropriate meal choices for their children. However, some identified facilitators were promoting parents’ knowledge, increasing access to health educational materials, upskilling mothers to providing healthier alternatives, regulating the marketing of unhealth foods. Although, the present study identified critical factors that influence mothers’ food choices for their young children, making healthy food choices is a complex practice as it is shaped by individual, social and environmental influences.

‘They’re a very sick group of individuals’: Correctional officers, emotions, and sex offenders

2016 ◽  
Vol 21 (3) ◽  
pp. 380-394 ◽  
Author(s):  
Dale Spencer ◽  
Rose Ricciardelli
Keyword(s):  
Sex Offenders ◽  
New Brunswick ◽  
Prince Edward Island ◽  
Prison Population ◽  
Correctional Officers ◽  
Occupational Culture ◽  
Structured Interviews ◽  
Men And Women ◽  
Hermeneutic Approach

In this article, we analyze the politics of emotions within the occupational culture of correctional officers by focusing attention on how sex offenders are constituted as objects of fear and disgust. We draw on in-depth semi-structured interviews with 100 Canadian men and women with experience working as correctional officers in provincial prisons (e.g. New Brunswick, Ontario, Alberta, Nunavut, Prince Edward Island) to understand how sex offenders are viewed within their occupational culture. Utilizing an interpretive hermeneutic approach, this article analyzes Canadian correctional officers’ interpretations of sex offenders. We show the effects of sex offenders’ construction as objects of fear and disgust, in terms of their identities and positionality in the general prison population, and the level of protection and services they receive while in prison.

scholarly journals Pharmacists in advanced clinical practice roles in emergency departments (PARED)

2021 ◽  
Author(s):  
David Terry ◽  
Shalini Ganasan ◽  
Matthew Aiello ◽  
Chi Huynh ◽  
Veronica Wilkie ◽  
...  
Keyword(s):  
Emergency Departments ◽  
Phase 1 ◽  
Career Transition ◽  
Support Service ◽  
Clinical Activity ◽  
X Rays ◽  
Structured Interviews ◽  
Clinical Supervisors ◽  
Practitioner Training ◽  
Study Participants

AbstractBackground Following evidence published in the Pharmacists in Emergency Departments (PIED 2016) study Health Education England funded novel advanced clinical practitioner training for pharmacists (ACP-p), to support service delivery.Objective To explore experiences and clinical activity of trainee ACP-p, and opinions and recommendations of both trainees and clinical supervisors.Setting Five Urgent/Emergency Care Departments in London UK.Method Longitudinal mixed-methods study in three phases of registered UK pharmacists appointed as trainee ACP-p. Phase 1 (May-July 2019) – early semi-structured interviews and focus group using an experiences, opinions and recommendations (EOR) framework, Phase 2 (January-December 2019) – prospective recording of trainee clinical activity, standardised using bespoke spreadsheet, Phase 3 (November-December 2019) – as Phase 1 but at conclusion of training.Main outcome measure Experiences, clinical activity, opinions and recommendations of study participants.Results Twelve (92 %) eligible trainee ACP-p and five supervisors were recruited. Identified themes were: trainee personality, educational components, length of programme, support/supervision, career transition, university and placement training alignment, recommendations. Success was dependent on effective support and supervision. Clinical supervisors should be allocated adequate supervision time. Trainees, their supervisors and emergency department staff should be given a clear brief. Study participants agreed that the programme could be successful. Trainee ACP-p reported that they could manage 82 % of 713 pre-selected clinical presentations. Additional training needs include: ECGs, X-rays and CT scans.Conclusions Pharmacists can successfully train as ACP-p in this setting over a two-year period. This career transition needs careful management and clear structures. Training ACP-p is a useful way of enhancing skills and supporting clinical services to large numbers of patients.

scholarly journals Context-Specific Challenges, Opportunities, and Ethics of Drones for Healthcare Delivery in the Eyes of Program Managers and Field Staff: A Multi-Site Qualitative Study

Drones ◽  
2020 ◽  
Vol 4 (3) ◽  
pp. 44
Author(s):  
Vyshnave Jeyabalan ◽  
Elysée Nouvet ◽  
Patrick Meier ◽  
Lorie Donelle
Keyword(s):  
Thematic Analysis ◽  
Health Program ◽  
Healthcare Delivery ◽  
Health It ◽  
Structured Interviews ◽  
Field Staff ◽  
Program Managers ◽  
Context Specific ◽  
Diverse Context ◽  
Study Participants

Unmanned aerial vehicles (UAVs), also known as drones, have significant potential in the healthcare field. Ethical and practical concerns, challenges, and complexities of using drones for specific and diverse healthcare purposes have been minimally explored to date. This paper aims to document and advance awareness of diverse context-specific concerns, challenges, and complexities encountered by individuals working on the front lines of drones for health. It draws on original qualitative research and data from semi-structured interviews (N = 16) with drones for health program managers and field staff in nine countries. Directed thematic analysis was used to analyze interviews and identify key ethical and practical concerns, challenges, and complexities experienced by participants in their work with drones for health projects. While some concerns, challenges, and complexities described by study participants were more technical in nature, for example, those related to drone technology and approval processes, the majority were not. The bulk of context-specific concerns and challenges identified by participants, we propose, could be mitigated through community engagement initiatives.

scholarly journals Finding common (research) ground between general practitioners and neuroscientists: the vital role of knowledge circulation in closing the evidence-to-practice gap

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Astrid Eich-Krohm ◽  
Bernt-Peter Robra ◽  
Yvonne Marx ◽  
Markus Herrmann
Keyword(s):  
General Practitioners ◽  
Research Collaboration ◽  
Knowledge Exchange ◽  
Research Process ◽  
Structured Interviews ◽  
Joint Research ◽  
Treatment Pathways ◽  
Hermeneutic Approach ◽  
Knowledge Circulation ◽  
Practice Gap

Abstract Background It may take 15 years or longer before research evidence is integrated into clinical practice. This evidence-to-practice gap has deleterious effects on patients as well as research and clinical processes. Bringing clinical knowledge into the research process, however, has the potential to close the evidence-to-practice gap. The NEUROTRANS-Project attempts to bring research and practice together by focusing on two groups that usually operate separately in their communities: general practitioners and neuroscientists. Although both groups focus on dementia as an area of work, they do so in different contexts and without opportunities to share their expertise. Finding new treatment pathways for patients with dementia will require an equal knowledge exchange among researchers and clinicians along with the integration of that knowledge into research processes, so that both groups will benefit from the expertise of the other. Methods The NEUROTRANS-Project uses a qualitative, multi-stage research design to explore how neuroscientists and general practitioners (GPs) approach dementia. Using a grounded theory methodology, it analyzes semi-structured interviews, case vignettes, focus groups with GPs in Saxony-Anhalt, Germany, and informal conversations with, and observations of, neuroscientists from the German Center for Neurodegenerative Diseases in Magdeburg. Results The NEUROTRANS-Project identified a clear division of labor between two highly specialized professional groups. Neuroscientists focus abstractly on nosology whereas general practitioners tend to patient care following a hermeneutic approach integrating the patients’ perspective of illness. These different approaches to dementia create a barrier to constructive dialogue and the capacity of these groups to do research together with a common aim. Additionally, the broader system of research funding and health care within which the two groups operate reinforces their divide thereby limiting joint research capacity. Conclusions Overcoming barriers to research collaboration between general practitioners and neuroscientists requires a shift in perspective in which both groups actively engage with the other’s viewpoints to facilitate knowledge circulation (KC). Bringing ‘art into science and science into art’, i.e. amalgamating the hermeneutic approach with the perspective of nosology, is the first step in developing joint research agendas that have the potential to close the evidence-to-practice gap.

Sudden violent death: social workers’ strategies for coping with a traumatic event in a Bedouin community

2021 ◽  
Author(s):  
Nuzha Allassad Alhuzail ◽  
Merav Moshe Grodofsky
Keyword(s):  
Social Workers ◽  
Cultural Values ◽  
Traumatic Event ◽  
Violent Death ◽  
Structured Interviews ◽  
Negative Effects ◽  
Traumatic Death ◽  
And Coping ◽  
Study Participants

Abstract This qualitative study used semi-structured interviews to explore challenges and coping strategies of social workers following the traumatic death of eight women from a Bedouin village in southern Israel. The data highlight how religion and indigenous Bedouin knowledge and customs both assisted and impeded the study participants’ strategies. The findings suggest that familiarity with religion and indigenous knowledge and customs may be useful to social workers in helping to manage traumatic events. However, the findings also suggest that religious and cultural values that encourage suppression of emotion may have long-term negative effects on social workers.

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