scholarly journals The quality of life in the relatives of Wolfram’s syndrome patients

2014 ◽  
Vol 5 (1) ◽  
pp. 89-97
Author(s):  
Gema Esteban ◽  
Mónica Ruano ◽  
Isabel Motero
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Genetic Basis ◽  
Clinical Symptoms ◽  
Daily Life ◽  
Wolfram Syndrome ◽  
Clinical Aspects ◽  
The Family ◽  
Low Prevalence

Wolfram Syndrome (WS) is a rare disease (RD) with an estimated prevalence of 1/770,000 inhabitants. It is considered a multisystemic, chronic and progressive disease.WS diagnosis implies devastating consequences at physical, educational and emotional levels. WS is also known by the acronym DIDMOAD, derived from the first letters of the main clinical symptoms: Diabetes Insipidus, Diabetes Mellitus, Optic Atrophy, and Deafness. Rare diseases are characterized by their low prevalence and the lack of knowledge on the pathophysiology and treatment of them. Interestingly, around 80% of RD have a genetic basis, and this fact causes doubts and uncertainties in the couples, about the idea of having another child. The existence of a RD in a family, alters significantly the relationships and the quality of life within the family. The present work remarks the huge value of psychosocial aspects in order to pay an adequate attention to these patients, not only taking care of the clinical aspects. The main purpose of this study has been to ascertain the quality of life of Wolfram’s syndrome affected patients, and its impact in the daily life.

scholarly journals The quality of life in the relatives of Wolfram’s syndrome patients

2014 ◽  
Vol 5 (1) ◽  
pp. 89-97
Author(s):  
Gema Esteban ◽  
Mónica Ruano ◽  
Isabel Motero
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Genetic Basis ◽  
Clinical Symptoms ◽  
Daily Life ◽  
Wolfram Syndrome ◽  
Clinical Aspects ◽  
The Family ◽  
Low Prevalence

Wolfram Syndrome (WS) is a rare disease (RD) with an estimated prevalence of 1/770,000 inhabitants. It is considered a multisystemic, chronic and progressive disease.WS diagnosis implies devastating consequences at physical, educational and emotional levels. WS is also known by the acronym DIDMOAD, derived from the first letters of the main clinical symptoms: Diabetes Insipidus, Diabetes Mellitus, Optic Atrophy, and Deafness. Rare diseases are characterized by their low prevalence and the lack of knowledge on the pathophysiology and treatment of them. Interestingly, around 80% of RD have a genetic basis, and this fact causes doubts and uncertainties in the couples, about the idea of having another child. The existence of a RD in a family, alters significantly the relationships and the quality of life within the family. The present work remarks the huge value of psychosocial aspects in order to pay an adequate attention to these patients, not only taking care of the clinical aspects. The main purpose of this study has been to ascertain the quality of life of Wolfram’s syndrome affected patients, and its impact in the daily life.

scholarly journals “Complications of Gastrointestinal System in Diabetes Mellitus”- Neglected Part of Diabetic Management

2020 ◽  
Author(s):  
Jayanta Paul ◽  
Ambalathu Veettil Hussain SHIHAZ
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Daily Life ◽  
Clinical Suspicion ◽  
Complications Of Diabetes ◽  
Gi Symptoms ◽  
Liver And Pancreas ◽  
Proper Diagnosis ◽  
Prevalence Of Diabetes Mellitus

The incidence and prevalence of diabetes mellitus and its complications are increasing. Like other complications, most of the diabetes patients have gastrointestinal (GI) symptoms but in majority of cases GI complications are under diagnosed and not treated properly, resulting in impairment of the quality of daily life. GI system including liver and pancreas are involved in diabetes mellitus. These GI complications of diabetes mellitus need proper diagnosis and treatment to get a quality of life and clinician needs clinical suspicion to identify and proper knowledge to treat.

scholarly journals PELATIHAN TENTANG GAYA HIDUP SEHAT PENDERITA DIABETES MELLITUS PADA KELOMPOK PKK DI KELURAHAN KAUMAN KOTA MALANG

2021 ◽  
Vol 5 (1) ◽  
pp. 854
Author(s):  
Ellyvina Setya Dhini ◽  
Wibowo Wibowo ◽  
Mamiek Wilastri
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Community Service ◽  
Healthy Lifestyle ◽  
Daily Life ◽  
Healthy Lifestyles ◽  
Surrounding Environment ◽  
Post Test ◽  
The City

ABSTRAKAngka prevalensi Diabetes Mellitus (DM) di Jawa Timur lebih tinggi dibandingkan dengan daerah lain di Indonesia. Hal ini tergambar  di kota Malang  Jawa Timur tepatnya di Kelurahan Kauman yang berdomisili ditengah kota diketahui jumlah penderita DM cukup tinggi sedangkan pengetahuan warganya dalam pemahaman gaya hidup sehat penderita DM (diabetisi) masih kurang. Tujuan dari pengabdian kepada masyarakat (PKM) ini adalah memberikan pengetahuan tentang gaya hidup sehat diabetisi, dengan metode melakukan pelatihan melalui media zoom kepada kelompok PKK Kelurahan Kauman Malang. Dalam pelatihan tersebut juga dilakukan pre dan post test serta pengisian kuisioner menggunakan google form oleh peserta pelatihan. Hasil dari pre dan  post test serta kuisioner dianalisa sehingga diperoleh persentase untuk mengetahui gambaran pemahaman dan kemampuan peserta dalam memberikan informasi dan melaksanakan gaya hidup sehat diabetisi kepada keluarga/ tetangga disekitarnya. Dari hasil pre dan post test diperoleh gambaran terjadinya peningkatan pengetahuan tentang gaya hidup sehat diabetisi dari rata rata 46% menjadi 98,8%. Peserta yang memahami dan menyatakan bahwa gaya hidup sehat diabetisi memungkinkan untuk diterapkan dalam kehidupan sehari hari sebanyak 94%. Seluruh peserta (100%) bersedia menerangkan, menerapkan, melaksanakan dan telah terjadi perubahan gaya hidup sehat diabetisi kepada keluarga dan orang – orang dilingkungan sekitarnya. Hasil dari pelatihan ini memberikan harapan tejadinya perbaikan kualitas hidup diabetisi di Kelurahan Kauman kota Malang. Kata kunci : gaya hidup; diabetes mellitus; kelompok PKK ABSTRACTPrevalence of Diabetes Mellitus (DM) in East Java is higher than other regions in Indonesia. That illustrated in the city of Malang, East Java, precisely in the Kauman Village, which is domiciled in the middle of the city, it is known that number of DM sufferers is quite high, while the knowledge of  citizens in understanding of healthy lifestyle of DM patients) is still lacking.The purpose of this community service (PKM) is to provide knowledge about healthy lifestyles with diabetes, with the method of conducting training through zoom media to the PKK group in Kauman Malang Village. In the training, pre and post tests were also carried out as well as filling out questionnaires using google forms by the trainees to get a picture of the participants' understanding and ability in providing information and implementing a healthy lifestyle with diabetes to their families/neighbors around them. The results of pre and post tests, it was obtained  there was an increase in knowledge about a healthy lifestyle with diabetes from an average of 46% to 98.8%. Participants who understand and state that a healthy lifestyle with diabetes allows it to be applied in daily life as many as 94%. All participants (100%) are willing to explain, implementation and there have been changes to a healthy lifestyle with diabetes to their families and people in the surrounding environment. The results of this training provide hope for an improvement in the quality of life for people with diabetes in Kauman Village, Malang City. Keywords : lifestyle; diabetes mellitus; PKK group

scholarly journals Comments from the Editor of the Special Issue “Clinical Research on Diabetic Complications”

2019 ◽  
Vol 8 (12) ◽  
pp. 2193
Author(s):  
Didac Mauricio
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Natural History ◽  
Clinical Research ◽  
Diabetic Complications ◽  
Clinical Aspects ◽  
Special Issue ◽  
Chronic Complications ◽  
Complications Of Diabetes

With this Editorial, we are hereby presenting to the reader the Special Issue on “Clinical Research on Diabetic Complications”. Chronic complications of diabetes mellitus have a major impact on the life of subjects with the disease, resulting in decreased quality of life and increased morbidity and mortality. This Special Issue includes contributions addressing different clinical aspects of the natural history, prevention and prediction, and characterization and management of diabetes-related complications.

scholarly journals The Relationship Between Family Support and Quality of Life Improvement of Patients with Diabetes Mellitus in Semarang

Jurnal NERS ◽  
2020 ◽  
Vol 14 (3) ◽  
pp. 327
Author(s):  
Iskim Luthfa ◽  
Moch Aspihan ◽  
Muhammad Rifqi Lathif
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Health Workers ◽  
Sampling Technique ◽  
Rank Test ◽  
P Value ◽  
The Family ◽  
Spearman Test ◽  
The Relationship

Introduction: Diabetes mellitus (DM) is known as the silent killer, where sufferers often do not realize its signs and symptoms and are frequently diagnosed during another health complication. To maintain quality of life, the family is required to provide support, therefore, this study aims to determine the relationship between family and the patient through observational analytic research.Methods: 120 people with DM make up the research sample using an accidental sampling technique, and data analysis was carried out using the Spearman rank test. The results found that 62 respondents (51.7%) agreed to their families providing good support, and 102 (85%) were satisfied with their quality of life.Results: The Spearman test resulted in a P value of 0,000 and R of 0.334. This means the higher the support provided by the family, the greater the increase in quality of life.Conclusion: The suggestions proposed from this study is for health workers to advocate and encourage family in the planning management of DM sufferers in order to improve their quality of life.

scholarly journals NON PHARMACOLOGICAL APPROACHES IN THE MANAGEMENT OF DIABETES MELLITUS

2019 ◽  
pp. 27-33
Author(s):  
RAMAM SRIPADA ◽  
HEMANTH KUMAR VANGALA ◽  
SUDEEPTHI PADALA ◽  
DASARATHA DHANARAJU MAGHARLA
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Insulin Secretion ◽  
Stress Management ◽  
Healthy Individual ◽  
Metabolic Disorder ◽  
Lifestyle Modification ◽  
Daily Life ◽  
Healthy Life

Diabetes can be defined as a metabolic disorder characterized by resistance to the action of insulin, insufficient insulin secretion, or both. In this article, we reviewed about the non-pharmacological approaches in the management of diabetes mellitus that includes diet and stress management programs such as Pranayama, meditation, and exercises along with the lifestyle modification which has to be followed by the diabetics for the better management of diabetes in natural ways. By following, these approaches besides regular usage of medications one can lead a healthy life with very less complications. The quality of life can be increased in the patients who follow these methods when compared to those patients who do not consider any of these methods in their daily life. Not only the patient, a healthy individual but can also prefer these methods to prevent chronic diseases and make their day to day life happy and healthy.

scholarly journals Quality of life related to clinical aspects in people with chronic wound

2018 ◽  
Vol 52 (0) ◽  
Author(s):  
Maicon Henrique Lentsck ◽  
Tatiane Baratieri ◽  
Maria Regiane Trincaus ◽  
Aline Padilha Mattei ◽  
Carine Teles Sangaleti Miyahara
Keyword(s):  
Quality Of Life ◽  
Chronic Wounds ◽  
Pain Medication ◽  
Clinical Aspects ◽  
Life Index ◽  
Health Domain ◽  
Significant Difference ◽  
The Family ◽  
Quality Of Life Index

ABSTRACT Objective: To evaluate the quality of life of people with chronic wounds and to compare this index with clinical parameters. Method: A cross-sectional study conducted between July 2014 and February 2015, evaluating people with chronic wounds in outpatient care during a nursing consultation, in the city of Guarapuava, Paraná. Quality of life was assessed by the Quality of Life Index - wounds version. Data were analyzed using the Mann Whitney test and T-test. Results: 53 people participated. The mean quality of life score was 22.65±3.08. The most significant scores in the analyzes were the family domain (27.71±2.94) with the highest mean score, and the health domain (18.91±4.58) had the lowest. Pain in walking (p=0.031) and using pain medication (p=0.002) presented a significant relation with overall score. There was a significant difference between the groups for the items pain at rest (p=0.022), pain in moving (p=0.006), using pain medication (p<0.001) and presence of infection (p=0.004), in the rest item (p=0.015) in the socioeconomic domain, and type of wound (p=0.05) and rest (p=0.041) in the psychological domain. Conclusion: The overall Quality of Life Index and by domains was classified as good and very good, where the family domain was better evaluated to the deriment of the health domain due to the clinical parameter of pain.

scholarly journals Family caregivers of elderly with dementia Relationship between religiosity, resilience, quality of life and burden

2018 ◽  
Vol 12 (4) ◽  
pp. 408-414 ◽  
Author(s):  
Carla Fabiana Carletti Pessotti ◽  
Lineu Corrêa Fonseca ◽  
Gloria Maria de Almeida Souza Tedrus ◽  
Diana Tosello Laloni
Keyword(s):  
Quality Of Life ◽  
Depressive Symptoms ◽  
Family Caregivers ◽  
Neuropsychiatric Symptoms ◽  
The Elderly ◽  
Clinical Aspects ◽  
People With Dementia ◽  
The Family ◽  
Severity Of Dementia

ABSTRACT There are gaps in knowledge regarding how the family caregiver deals with the burden of caring for elderly people with dementia. Objective: To evaluate the family caregivers’ perception of quality of life (QoL), burden, resilience and religiosity and relate them with cognitive aspects and occurrence of neuropsychiatric symptoms of elderly with dementia. Methods: Data from the QoL-AD scale, caregivers’ version, burden interview, resilience scale, Beck depression inventory and PDUREL of 50 family caregivers were correlated with disability assessment for dementia, neuropsychiatric inventory and clinical aspects of 50 elderly with dementia. Results: Linear regression showed that resilience is related with better perceived QoL (p<0.001), severity of dementia (p=0.008), higher intrinsic religiosity (IR) (p=0.044) and lower occurrence of depressive symptoms (p=0.001). Increased burden of family caregivers was associated with a higher occurrence of neuropsychiatric symptoms, education of the elder with dementia, and worse perceived QoL (p<0.001). Lower level of organizational religiosity was associated with severity of dementia. Conclusion: The most resilient caregivers had higher QoL and IR, fewer depressive symptoms, and cared for elders with more severe dementia. Cognitive and sociodemographic aspects, as well as neuropsychiatric symptoms, in the elderly with dementia were associated with QoL and greater caregiver burden.

scholarly journals Families Role with Quality of Life (QOL) on Diabetes Mellitus Patients

2019 ◽  
Vol 6 (1) ◽  
pp. 006-013
Author(s):  
Noer Saudah ◽  
Enny Virda Yuniarti ◽  
Eka Ayu Wulandari
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Sample Selection ◽  
Lifestyle Changes ◽  
Family Roles ◽  
Cross Sectional ◽  
The Family ◽  
Patients With Diabetes

Diabetes Mellitus was a disease that not only requires treatment but also lifestyle changes, so that often patients tend to despair with a long therapy program that will have an impact on the quality of life of patients. This study aims to determine the relationship of family roles with quality of life (QOL) in patients with Diabetes Mellitus. Design of this study was cross sectional analytic type. The population in this study were all patients with diabetes mellitus and family on May-July 2018 at Dr Wahidin Sudiro Husodo General Hospital in Mojokerto as many as 96 people. Sample selection  done by purposive sampling as many as 57 respondents. Independent variable was family roles. Dependent variable was quality of life. The instrument used a questionnaire on family roles and quality of life. By used the Spearman statistical test. The results showed that almost half of the respondents had enough family roles as many as 32 respondents (56.7%), almost all respondents had a high quality of life of 38 respondents (66.7%), and the results of p <α = 0.05 are 0.046 <0.05. There was a relationship between the role of family and quality of life in patient with diabetes mellitus. The role of a good family can improve the quality of life of patients with Diabetes Mellitus. The better the role of the family, the higher the level of quality of life of the sufferer. Therefore the family can play a role in improving the quality of life Diabetes Mellitus sufferers.

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