scholarly journals Positive and Negative Impacts of Caring among Adolescents Caring for Grandparents. Results from an Online Survey in Six European Countries and Implications for Future Research, Policy and Practice

2020 ◽  
Vol 17 (18) ◽  
pp. 6593
Author(s):  
Sara Santini ◽  
Marco Socci ◽  
Barbara D’Amen ◽  
Mirko Di Rosa ◽  
Giulia Casu ◽  
...  
Keyword(s):  
Online Survey ◽  
Research Policy ◽  
Current Knowledge ◽  
Well Being ◽  
Care Recipient ◽  
Future Research ◽  
Policy And Practice ◽  
Young Carers ◽  
Logistic Regression Models ◽  
Positive Caregiving

Although up to 8% of European youngsters carry out high-intensity care for a family member, adolescent young carers (AYCs), especially those caring for their grandparents (GrPs), remain an under-researched group. This study aimed at addressing the current knowledge gap by carrying out an online survey in Italy, the Netherlands, Slovenia, Sweden, Switzerland, and the United Kingdom. The analysis included a final sample of 817 AYCs aged 15–17 years old. AYCs of grandparents (GrPs) were compared to AYCs of other care recipients (OCRs), in order to identify any difference in positive and negative caregiving outcomes and exposure factors between the two groups. Linear or logistic regression models were built, and multivariate analyses were repeated, including a fixed effect on the country variable. AYCs of GrPs experienced more positive caregiving outcomes than AYCs of OCRs across all six countries. Being female or non-binary, and having a migration background, were associated with more negative outcomes, regardless of the relationship with the care recipient. Further research on intergenerational caregiving outcomes is recommended for shaping measures and policies, which preserve the intergenerational emotional bonds, whilst protecting AYCs from inappropriate responsibilities, undermining their mental health and well-being.

scholarly journals EXPERIENCE OF LGBT PATIENTS AND FAMILY WITH HOSPICE AND PALLIATIVE CARE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S623-S624
Author(s):  
Gary L Stein ◽  
Cathy Berkman
Keyword(s):  
Palliative Care ◽  
Staff Training ◽  
Online Survey ◽  
Research Policy ◽  
Cross Sectional Study ◽  
Care Staff ◽  
Future Research ◽  
Policy And Practice ◽  
Cross Sectional ◽  
Hospice And Palliative Care

Abstract This study examines the degree to which hospice and palliative care staff observe or perceive inadequate, disrespectful, or abusive care to LGBT patients and family members. A cross-sectional study using an online survey completed by 865 providers, including social workers, physicians, nurses, and chaplains. Among respondents, 55% reported that LGB patients were more likely to experience discrimination at their institution than non-LGB patients; 24% observed discriminatory care; 65% reported that transgender patients were more likely than non-transgender patients to experience discrimination; 20% observed discrimination to transgender patients; 14% observed the spouse/partner of LGBT patients having their treatment decisions disregarded or minimized; and 13% observed the spouse/partner being treated disrespectfully. Findings reported also include: institutional non-discrimination policy, staff training, intake procedures, and comfort in assessing LGBT status. Implications for future research, policy, and practice will be presented.

The Nature and Extent of Qualitative Research Conducted With Children About Their Experiences of Domestic Violence: Findings From a Meta-Synthesis

2019 ◽  
pp. 152483801988888
Author(s):  
Debbie Noble-Carr ◽  
Tim Moore ◽  
Morag McArthur
Keyword(s):  
Qualitative Research ◽  
Domestic Violence ◽  
Partner Violence ◽  
English Language ◽  
Research Policy ◽  
Well Being ◽  
Qualitative Studies ◽  
Future Research ◽  
Policy And Practice ◽  
Research With Children

Domestic violence is a significant issue experienced by many children that can have a detrimental impact on their health, development, and well-being. This article reports on the findings of a meta-synthesis that examined the nature and extent of qualitative studies conducted with children about their experience of domestic violence. Studies were identified by a search of electronic databases and included gray literature. Studies were included for review if they were published between 1996 and 2016, were from countries considered as comparable Western nations to Australia and available in the English language, and reported on qualitative studies that directly engaged with children under the age of 18 years on their experiences of intimate partner violence involving one or more of their parents/carers. Forty peer-reviewed publications that reported on 32 studies were included for the review. This study was unique in that it included child participation measures to assess the quality of available studies. This article explores the contribution that research with children has made to our understandings of, and responses to, domestic violence, and provides a critique of the limitations and gaps evident in the extant qualitative research with children on the issue of domestic violence. The article considers implications for future research, policy, and practice and in particular focuses our attention on the need to engage more children more fully in participatory research in the field of domestic violence.

scholarly journals Adolescent Well-Being Gap Maps: What We Know and Opportunities for Future Research

2021 ◽  
Vol 16 (2-3) ◽  
pp. 124-158
Author(s):  
Prerna Banati ◽  
Christina Bacalso
Keyword(s):  
Youth Development ◽  
Research Policy ◽  
Emotional Health ◽  
Research Priorities ◽  
Well Being ◽  
Sub Saharan Africa ◽  
Future Research ◽  
Policy And Practice ◽  
Middle Income ◽  
Sub Saharan

Designing and delivering effective programs for adolescents and youth requires high-quality evidence that is easily available to decision makers. Yet while adolescence as a unique development period has gained policy attention in recent years, and there has been a growth in research, priorities for research investment remain unclear. This paper provides a panoramic view of adolescent development research to review what evidence exists and how evidence is mapped. Our approach interrogated studies mapped by evidence maps (including the subset evidence gap maps or EGMs). Our findings have implications for future directions of research on positive youth development (PYD) in low- and middle-income countries (LMICs): The analysis showed that while most evidence maps exist in the adolescent protection, safety, and security domain, most studies focus on outcomes related to well-being and social and emotional health. There are gaps in demographic groupings and contexts studied. For example, while gender and sex inequities were the most prevalent in the studies identified, though seen in less than 1/5 of the studies analyzed, disability appears in only 3%. Housing, participation, and information communication technologies are researched relatively rarely. Rigorous research in conflict or humanitarian settings is absent. Additionally, while most impact evaluations are conducted in sub-Saharan Africa, followed by Latin America, the Middle East and North America were poorly represented regions. This article reflects on the state of the evidence, argues for a more thoughtful approach to equity in adolescent research, and calls for a stronger link between research, policy, and practice in LMICs.

scholarly journals Examining the Range and Scope of Artists’ Professional Practices With Individuals With Palliative Care Needs: An International, Cross-Sectional Online Survey

2021 ◽  
Vol 12 ◽  
Author(s):  
Jenny Baxley Lee ◽  
Sonja McIlfatrick ◽  
Lisa Fitzpatrick
Keyword(s):  
Palliative Care ◽  
Online Survey ◽  
Research Policy ◽  
Well Being ◽  
Professional Practices ◽  
Future Research ◽  
Care Needs ◽  
Cross Sectional ◽  
Wide Range ◽  
Palliative Care Needs

Background: Internationally, it is recognized that artists facilitate arts engagement with individuals with palliative care needs. There is a gap in the literature describing the range and scope of artists’ professional practices in palliative care. The aim of this study was to examine an international range of professional practices among artists who work in palliative care including key professionals’ perceptions of these practices.Methods: An international, cross-sectional, online survey was conducted with health professionals, artists, and program coordinators with experience with artists working in palliative care. This survey was part of a larger mixed methods study. An instrument was systematically developed to examine artists’ professional practices. Descriptive statistics were reported for the total sample including frequencies, means and standard deviations and open-ended items were analyzed thematically.Results: 101 valid surveys were analyzed. Findings outlined: (1) who delivers the arts; (2) where and with whom; (3) practice descriptors; and (4) perceptions of practice. Themes identified from open-ended items on benefits and risks of practice revealed impacts on patients and artists alike, including: (1) enhanced well-being; (2) vulnerabilities; and (3) facilitators and barriers.Conclusion: Findings demonstrated a wide range of artists’ practices in palliative and end-of-life care, featuring notable consistencies in international practice worth further exploration. Ongoing and international efforts examining artists’ practices in palliative care contribute to the development of future research, policy and practice.

scholarly journals Updated systematic review and meta-analysis of studies examining the relationship between reported racism and health and well-being for children and youth: a protocol

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e043722
Author(s):  
Naomi Priest ◽  
Kate Doery ◽  
Mandy Truong ◽  
Shuaijun Guo ◽  
Ryan Perry ◽  
...  
Keyword(s):  
Systematic Review ◽  
Health Outcomes ◽  
Research Policy ◽  
Meta Analysis ◽  
Well Being ◽  
Children And Youth ◽  
Effect Sizes ◽  
Future Research ◽  
Critical Determinant ◽  
Health And Well Being

IntroductionRacism is a critical determinant of health and health inequities for children and youth. This protocol aims to update the first systematic review conducted by Priest et al (2013), including a meta-analysis of findings. Based on previous empirical data, it is anticipated that child and youth health will be negatively impacted by racism. Findings from this review will provide updated evidence of effect sizes across outcomes and identify moderators and mediators of relationships between racism and health.Methods and analysisThis systematic review and meta-analysis will include studies that examine associations between experiences of racism and racial discrimination with health outcomes of children and youth aged 0–24 years. Exposure measures include self-reported or proxy reported systemic, interpersonal and intrapersonal racism. Outcome measures include general health and well-being, physical health, mental health, biological markers, healthcare utilisation and health behaviours. A comprehensive search of studies from the earliest time available to October 2020 will be conducted. A random effects meta-analysis will examine the average effect of racism on a range of health outcomes. Study-level moderation will test the difference in effect sizes with regard to various sample and exposure characteristics. This review has been registered with the International Prospective Register of Systematic Reviews.Ethics and disseminationThis review will provide evidence for future research within the field and help to support policy and practice development. Results will be widely disseminated to both academic and non-academic audiences through peer-review publications, community summaries and presentations to research, policy, practice and community audiences.PROSPERO registration numberCRD42020184055.

scholarly journals Corruption in Construction Projects: Bibliometric Analysis of Global Research

2021 ◽  
Vol 13 (8) ◽  
pp. 4400
Author(s):  
Zhao Zhai ◽  
Ming Shan ◽  
Amos Darko ◽  
Albert P. C. Chan
Keyword(s):  
Construction Projects ◽  
Research Policy ◽  
Mitigation Strategies ◽  
Future Research ◽  
Policy And Practice ◽  
Policy Makers ◽  
Research Areas ◽  
Body Of Knowledge ◽  
Emerging Trends ◽  
Global Research

Corruption has been identified as a major problem in construction projects. It can jeopardize the success of these projects. Consequently, corruption has garnered significant attention in the construction industry over the past two decades, and several studies on corruption in construction projects (CICP) have been conducted. Previous efforts to analyze and review this body of knowledge have been manual, qualitative and subjective, thus prone to bias and limited in the number of reviewed studies. There remains a lack of inclusive, quantitative, objective and computational analysis of global CICP research to inform future research, policy and practice. This study aims to address this lack by providing the first inclusive bibliometric study exploring the state-of-the-art of global CICP research. To this end, a quantitative and objective technique aided by CiteSpace was used to systematically and computationally analyze a large corpus of 542 studies retrieved from the Web of Science and published from 2000 to 2020. The findings revealed major and influential CICP research journals, persons, institutions, countries, references and areas of focus, as well as revealing how these interact with each other in research networks. This study contributes to the in-depth understanding of global research on CICP. By highlighting the principal research areas, gaps, emerging trends and directions, as well as patterns in CICP research, the findings could help researchers, practitioners and policy makers position their future CICP research and/or mitigation strategies.

scholarly journals Historical Racist Violence and Intergenerational Harms: Accounts from Descendants of Lynching Victims

2021 ◽  
Vol 694 (1) ◽  
pp. 78-91
Author(s):  
Shytierra Gaston
Keyword(s):  
African Americans ◽  
Research Policy ◽  
Well Being ◽  
Policy And Practice ◽  
Violent Event ◽  
History Of ◽  
Racialized Violence ◽  
Depth Interviews ◽  
The U.S

African Americans are disproportionately victimized by various forms of racialized violence. This long-standing reality is rooted in America’s history of racist violence, one manifestation being racial lynchings. This article investigates the long-term, intergenerational consequences of racial lynchings by centering the voices and experiences of victims’ families. The data comprise in-depth interviews with twenty-two descendants of twenty-two victims lynched between 1883 and 1972 in the U.S. South. I employed a multistage qualitative analysis, revealing three main domains of harmful impacts: psychological, familial, and economic. The findings underscore that racist violence has imposed harm beyond victims and for many decades and generations after the violent event. These long-term, intergenerational harms, especially if multiplied across countless incidents, can fundamentally impact the well-being of individuals, families, and communities as well as contribute to structural and macrolevel forces. Findings from this study have implications for research, policy, and practice, including efforts toward redress and reparations.

Implementation of Pre–Employment Transition Services: A Content Analysis of Workforce Innovation and Opportunity Act State Plans

2021 ◽  
pp. 216514342199302
Author(s):  
Joshua P. Taylor ◽  
Holly N. Whittenburg ◽  
Magen Rooney-Kron ◽  
Tonya Gokita ◽  
Stephanie J. Lau ◽  
...  
Keyword(s):  
Content Analysis ◽  
Research Policy ◽  
Transition Services ◽  
Future Research ◽  
Policy And Practice ◽  
Youth With Disabilities ◽  
Individuals With Disabilities ◽  
Integrated Employment ◽  
Employment Transition ◽  
Workforce Innovation

Many youth with disabilities experience persistently low rates of competitive integrated employment (CIE) and participation in higher education. In 2014, the Workforce Innovation and Opportunity Act (WIOA) established a policy focus on CIE as the goal of vocational services for youth and individuals with disabilities. In addition, WIOA created provision for Pre–Employment Transition Services (Pre-ETS) to ensure that state vocational rehabilitation (VR) agencies focused sufficient resources toward transition-age youth. This study examined a sample of WIOA State Implementation Plans in depth using content analysis to identify how state VR agencies prioritized the provision of Pre-ETS services to youth with disabilities. Analysis of state plans resulted in three emergent themes: (a) instructional priorities, (b) instructional contexts, and (c) networks of stakeholders. We discuss the implications of these themes for future research, policy, and practice related to the employment of individuals with disabilities.

Using the Core Concepts Framework to Understand Three Generations of Inclusive Practices

Inclusion ◽  
2014 ◽  
Vol 2 (3) ◽  
pp. 237-247 ◽  
Author(s):  
Karrie A. Shogren ◽  
Michael L. Wehmeyer
Keyword(s):  
Research Policy ◽  
Future Research ◽  
Third Generation ◽  
Inclusive Practices ◽  
Policy And Practice ◽  
Inclusive Practice ◽  
The Core ◽  
Three Generations ◽  
Core Concepts ◽  
The Relationship

Abstract This article analyzes the relationship between the core concepts of disability policy and the three generations of inclusive practices. Specifically, we review the three generations of inclusive practice, highlighting the core concepts that have been most strongly emphasized during each generation of inclusive practices. Because we are early in the third generation of inclusive practices, we conclude by examining how the core concepts can guide and direct third generation inclusive practices and how future research, policy, and practice can actualize the aspirational values of all of the core concepts to enable desired outcomes.

The Work-Life Balancing Act

2021 ◽  
Vol 12 (3) ◽  
pp. 1-20
Author(s):  
Dhruva Pathak ◽  
Vijayakumar Bharathi S. ◽  
Padma Mala E.
Keyword(s):  
Online Survey ◽  
Healthy Lifestyle ◽  
Work Productivity ◽  
Well Being ◽  
Personal Life ◽  
Future Research ◽  
New Ways Of Working ◽  
Professional Attitude ◽  
Work From Home ◽  
The Impact

The study investigated the impact of mandatory work from home due COVID-19 on personal and professional lives of people with different demographics. Statistical analysis of an online survey data (N=237) reveals that the impact on personal life dimensions—healthy lifestyle, family bonding, and physical stress—does not differ across people within different demographics. However, impact on emotional well-being is sensitive to gender and industry groups. Family size is also an important demographic factor impacted upon personal life dimensions. Professional dimensions related to work productivity and adopting new ways of working does not differ across demographics except for occupational role. Dimensions related to new skill development and change in professional attitude does differ across occupational roles. The study concludes by stating future research directions for mandatory work from home situation, and prescription to post-COVID-19 strategies for organizations.

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