scholarly journals The lived experience of people newly diagnosed with dementia: A narrative study using a phenomenological approach

2013 ◽  
Vol 2 (1) ◽  
Author(s):  
Suzanne Holland ◽  
Angela Kydd
2010 ◽  
Vol 1 (1) ◽  
pp. 58-65
Author(s):  
Lis Engel ◽  
Rikke Schou Jeppesen

Abstract This article is about language and lived experiences and analysis of movement of dance within Physical Education studies in Denmark with a special focus on how the language of movement and dance can be related to lived body and movement experience. The issue of the challenges and possibilities of expressing movement experience and analysis in words is discussed at the general level and exemplified in the context of a dance educational event where the movement theory of Rudolf Laban is applied. A central question arising out of this example of working with language and lived experience of movement is: What influence does language have on our way of understanding and communicating a dance experience? The article proposes that a bodily anchored lived language – through an ethic-aesthetic phenomenological approach – may supplement, expand and broaden a given professional terminology in order to articulate, communicate and unfold the experiential dimensions of dance.


2014 ◽  
Vol 28 (1) ◽  
pp. 36-47 ◽  
Author(s):  
Jordan A. Blazo ◽  
Daniel R. Czech ◽  
Sarah Carson ◽  
Windy Dees

Sibling relationships are often regarded as among the longest lasting connections in a person’s life (Conger & Kramer, 2010). Sibling research has addressed topics such as socialization, support, and similarities and differences of siblings (e.g., Eaton, Chipperfield, & Singbeil, 1989; Horn & Horn, 2007; Whiteman, McHale, & Crouter, 2007). Scant attention has been given to how a younger sibling may be influenced by an older sibling’s sport involvement. The current study explored the lived experience of an older sibling’s sport achievement from the perspective of a younger sibling. An open-ended phenomenological approach (Kvale, 1983) was used to gain a description of the experience of sibling achievements in sport. Participant interviews revealed an overall thematic structure consisting of both positive and negative experiences: family influence, social influence, fondness, identity, abandonment, and jealousy. These findings broaden both sibling and sport literature, while providing valuable information for researchers and practitioners.


Author(s):  
Ali Karimi Rozveh ◽  
Alireza Nikbakht Nasrabadi ◽  
Shahrzad Ghiyasvandian ◽  
Leila Sayadi ◽  
Mohammad Vaezi ◽  
...  

Background: Hematopoetic stem cell transplantation is considered as a standard treatment for cancer patients to stay hopeful toward treatment outcome. However, these patients experience many complications which might affect different aspects of their life. The aim of this study was to investigate the lived experience of patients after hematopoetic stem cell transplantation and introduce supportive care strategies. Materials and Methods: In this study, Van Manen’s Hermeneutic phenomenological approach was used. Eleven patients (7 males and 4 females) were chosen by targeted sampling from visitors of Shariati Hospital’s outpatient clinic. Semi-structured interviews were conducted and the final data were analyzed by MAXQDA 10 software. Results: Data analysis revealed that the main theme was resiliency with two sub-themes of “not surrendering to disease” and “feeling closer to God”. Conclusion: Participants declared that transplantation was like a second chance for life and considered this opportunity as a gift from God to overcome their disease. According to our findings, spirituality aids can help patients control the disturbances following HSCT and health professionals can use constructive strategies to support patients with spiritual needs.


Author(s):  
Michael Cahapay

Asserting a responsive, appropriate, and relevant education has historically always been a problem for most learners from marginalized groups. This extant inequality has been magnified in the present novel crisis. Thus, drawing from the lived experience of college students belonging to the marginalized group of indigenous peoples, this research described the essence of education in the context of the current COVID-19 crisis. Following the phenomenological approach based upon the hermeneutic rule of Dahlberg et al. (2008), the researcher interviewed 10 Filipino college students who identify themselves as indigenous peoples. Four themes emerged: 1.) It surprised me: Education has a changed ecology; 2.) It overwhelmed me: Education is fraught with divides; 3.) It motivated me: Education is a driver of aspiration beyond crisis; and 4.) It taught me: Education has unintended positive outcomes. These themes form the structure of the essence of education amid the COVID-19 crisis from the perspectives of college students belonging to the group of indigenous peoples. This research underlines the practical significance of analyzing the state of the students amid a virulent crisis. Given the extant inequality and considering the anticipated educational recovery phase, measures should be planned towards the attainment of responsive, appropriate, and relevant education.


2017 ◽  
Vol 7 (2) ◽  
Author(s):  
Patrick Khor

This qualitative phenomenological approach examined the Generation X and Y cohorts in terms of their lived experience towards the  entrepreneurial journey in Singapore, which can consequently fill empirical gap on entrepreneurship among generational cohorts of Asian entrepreneurs.  The study sample comprised  15 generation X and 15 Y Singaporean entrepreneurs from 30 companies who identified their involvement in starting a business venture and in the day-to-day running of the business. Using NVIVO to cull down key components and ideas from the data, the study revealed that Generation X and Generation Y to have similar work attitudes, values and behaviours. The differences between the generations include differences in age, experience as well as obligations in life such as to one’s family. Further studies are needed to examine the differences of these cohorts in terms demographic, psychological and social variables to provide additional insights and identify contributing factors to successful entrepreneurial venture.


2018 ◽  
Vol 39 (1) ◽  
pp. 20-28 ◽  
Author(s):  
Marita Gabre ◽  
Birgitta Wireklint Sundström ◽  
Sepideh Olausson

Increased knowledge is needed about what self-care means from the patients’ perspective, especially since the patient population with type 2 diabetes has been rising. The aim was to describe self-care, as experienced by patients with newly diagnosed type 2 diabetes. This study adopted a phenomenological approach. Eight patients were interviewed. A combination of photos and interviews were used. The essential meaning of self-care was found to be an existential struggle that evokes feelings of being in-between one’s old unhealthy life and a new healthier one. In this in-between condition, tension exits between contradictorily emotions of anxiety, hopelessness and hope. This struggle also means questioning one’s identity. It is important that diabetes nurses create an opening for reflection and dare to challenge their patients to reflect on this existential struggle.


2019 ◽  
Vol 43 (3) ◽  
pp. 293-300 ◽  
Author(s):  
Catrinna Amorelli ◽  
Kathleen Yancosek ◽  
Ruth Morris

Background: Alongside physical impairment, psychosocial health issues may arise after amputation, impacting quality of life. Traditional psychosocial care models provide services in a linear fashion, with limited supports upon discharge. A novel program entitled Amputees Unanimous is a 12-step program provided for amputees by amputees. Objective: To shape the final content of Amputees Unanimous by identifying personal beliefs and opinions of healthcare professionals and amputees. Study Design: Qualitative design utilizing a phenomenological approach. Method: Five focus groups were held: four with amputees and one with healthcare providers. A phenomenological approach shaped the inquiry of the lived experience of limb loss in relation to the content of Amputees Unanimous. Results: Three themes emerged: (1) accepting limb loss, (2) peer inspiration, and (3) regaining prior level of function. Conclusion: Limb loss may alter one’s self-image, both physically and psychologically, having a profound effect on how an individual copes throughout his or her lifetime. The content and delivery format of Amputees Unanimous could be tested for effectiveness as a program tailored to facilitate coping after limb loss and to provide encouragement, support, and hope for the future of amputees. Clinical relevance A dynamic, amputee-led, mutual help program may provide individuals with limb loss a place for encouragement, support, and optimism for the future.


2019 ◽  
Vol 9 (4) ◽  
pp. 637-649
Author(s):  
Victoria Stewart ◽  
Matthew Campbell ◽  
Sara S. McMillan ◽  
Amanda J. Wheeler

Purpose The purpose of this paper is to explore the experiences of students and teachers who had participated in a postgraduate work-based praxis course within a Master of mental health practice qualification. Design/methodology/approach This qualitative study used an interpretative phenomenological approach to understand the lived experience of students and course convenors participating in a work-based praxis course. Seven students and two convenors were recruited. Interview and reflective portfolio data were analysed thematically. Findings The main themes identified were the importance of planning, the value of partnerships, the significance of learning in the workplace and how the facilitation of work-based learning differs from coursework. Originality/value Work-based learning within postgraduate coursework qualifications can support higher-level learning, knowledge and skills has received limited attention in the literature. This study supported the value of providing postgraduate students with work-based learning opportunities, resulting in the application of new or advanced skills, within their existing work roles. This study is important, because it provides insights into the student experience of postgraduate work-based learning and the impact of this learning on professional practice.


2007 ◽  
Vol 5 (4) ◽  
pp. 367-376 ◽  
Author(s):  
Roz Mckechnie ◽  
Rod Macleod ◽  
Sally Keeling

ABSTRACTObjective:This qualitative research study listens to the narratives of people experiencing the dying process who attended the Otago Community Hospice, Dunedin, New Zealand.Methods:Ten people, aged between 51 and 65, were approached; two declined and one died sooner than expected. All were women (although this was not part of the original design) and all had carcinoma. Data for the study was sought through qualitative research interviews, considering the development of each participant's illness in relation to her perception of her embodiment in the palliative care setting, and concluding with questions about what she wants the people who care for and about her to learn from her experience. Consistent with this phenomenological approach, the method of analysis was thematic and interpretive.Results:The main theme was the uncertainty that all participants felt throughout the diagnostic process and during treatment. Uncertainty, too, was a factor in how they managed their day, whether they would be able to sustain an outing or an activity or not and whether they would be pain free. None were afraid of dying but hoped that when they did die, they would do so comfortably. The relationship with their general practitioners varied. Where fatigue or the effects of medication were not an issue, they could think clearly, but their bodies were experienced as letting them down and limiting their activities. The ideal of “living until you die” was not able to be fulfilled. The increasing approach of social death as they withdrew from their employment and social responsibilities affected them.Significance of results:Whether one has a “good death” or not is determined not only by the progression and management of the disease process by health professionals, but also by the way in which one is perceived, by self and others. There are no guidelines for the dying role; everybody dies differently and individually.


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