Latinas’ Amniocentesis Decision-Making Process Semi-Structured Interview Guide

2011 ◽  
Author(s):  
Sarah Guerra Seth ◽  
Thomas Goka ◽  
Andrea Harbison ◽  
Lisa Hollier ◽  
Susan Peterson ◽  
...  
Circulation ◽  
2018 ◽  
Vol 138 (Suppl_2) ◽  
Author(s):  
Sarah M Perman ◽  
Bonnie Siry ◽  
Jennifer A Reich ◽  
Benjamin S Abella ◽  
Stacie L Daugherty ◽  
...  

Introduction: Out-of-hospital cardiac arrest (OHCA) is an unexpected event that can render patients incapable of decision-making, requiring a surrogate decision maker (SDM), most often a family member, to be engaged. Yet how SDMs understand the information provided, and how they view their experience of making decisions for cardiac arrest patients is not well understood. Methods: This inductive qualitative study utilized data from semi-structured open-ended interviews with SDMs for OHCA patients. SDMs were approached: 1) at the bedside for consent to contact; and 2) 30 days after discharge/death to consent to interview. Interviews were conducted using a semi-structured interview guide, recorded, and transcribed for analysis. Transcripts were read in entirety and thematically coded by two investigators. Results: Over a 5-month period (1/18-5/18), 7 SDMs consented; however, 11 individuals were interviewed, as 3 SDMs invited family members to join the interviews. SDMs were living spouses (2), adult children (2), a parent (1) and siblings (2). Within this sample, 71.4% (5/7) of SDMs decided to withdraw life sustaining therapy or discontinue resuscitative efforts for their family member. Overall, experiences varied dramatically, with some families reporting a positive experience and others clearly reporting concerns about how the decision making process occurred. Major themes identified that affected the experience of decision-making include how SDMs perceived provider communication style, how they processed medical uncertainty from the providers, confidence in their decisions, and finally, conflict/discordance between the medical team and family. Families identified the following factors that might improve the decision making process for future SDMs; 1) updated “goals for the day”; 2) access to medical records; 3) Access to protocols for post-arrest patients; 4) a consistent liaison to the medical team; 5) consistent messaging amongst the care team. Conclusions: In this sample of SDMs, experiences with decision-making were variable. Notably, communication factors predominated in SDMs experience with decision-making. Finally, multiple important factors were identified to assist future SDMs in decision making for post-OHCA patients.


2018 ◽  
Vol 6 (1) ◽  
pp. 515
Author(s):  
Inayah Hidayati

Objective: This research aims to explain the impact of social media on the migration decision-making process of Indonesian student migrants in University of Groningen who used a social media account. In detail, this research will consider the role of social media in the migration decision-making process of students who emigrated from Indonesia and how they uses social media in the context of the migration decision-making process. Methods: The data collected included qualitative data from in-depth interviews and supported by study literatures. An interview guide was formulated to facilitate the indepth interviews and generate a better understanding of migration behavior. Expectation: Social media help Indonesian student migrants on migration decision making process and they use social media for searching information about destination area. Result: Student migrant in University of Groningen use their social media to gain information before they choose that university for study. They use Facebook to making contact with their friends and collagues in the destination country. Student group on Facebook help Indonesian student to get information about school and daily life.


Retos ◽  
2020 ◽  
pp. 341-348
Author(s):  
Aquiles Alejandro Almonacid-Fierro ◽  
Miguel Martinez Romero ◽  
Manuel Alberto Almonacid Fierro

El estudio tiene como objetivo, identificar los elementos que influyen en el proceso de toma de decisión en deportistas de alto rendimiento, durante el momento de la competición, desde la mirada subjetiva de los propios atletas. Existirían principalmente dos teorías que explicarían la toma de decisión, por un lado, el modelo de procesamiento de la información y, por otro lado, la dimensión ecológica. No obstante, en ambas estarían involucrados una diversidad de elementos que generan como producto final una determinada decisión, generando una conducta intencional y, por ende, una consecuencia que puede ser negativa o positiva. El estudio consideró a doce deportistas de Natación, Ciclismo y Canotaje. La investigación tuvo un enfoque cualitativo utilizando una metodología de recolección de datos mediante el método inductivo realizado a través de una entrevista semi-estructurada. Los datos se analizaron mediante la codificación abierta circunscrita a la teoría fundamentada en los datos, que permite el análisis de contenido mediante fases de organización y sistematización. Como conclusión del estudio, se puede señalar que la toma de decisión en el deporte es un proceso, en donde se conjugan aspectos tales como autoconfianza, motivación, expectativas de autoeficacia, concentración y emociones, con sus respectivas subcategorías. La elección tomada por el deportista sería el punto final de todo el proceso de toma de decisión, donde debe analizar la información interna como las variables del ambiente, el momento de cada competencia, las características de cada deporte y los aspectos cognitivos-emocionales que emergen en tan decisiva instancia deportiva.Abstract. The main objective of the study is to identify the elements that influence the decision-making process in high-performance athletes during de time of competitions, from de subjective view of the athletes themselves. There would be mainly two theories that would explain the decision making process, on de one hand, the information processing model and the other hand the ecological dimension. However, in both of them a diversity of elements would be involved that generate as a final product a certain decision, generating an intentional behavior and, therefore, a consequence that can be negative or positive. The study considered twelve athletes from Swimming, Cycling and Canoeing. The research had a qualitative approach using a data collection methodology by means of the inductive method carried out through a semi-structured interview. The data was analyzed through open coding limited to the Theory based on the Data, which allows content analysis through organizational and systematization phases. As conclusion of the study, it can be noted that decision-making in sport is a process, where aspects such as self-confidence, motivation, expectations of self-efficacy, concentration and emotions are combined with their respective subcategories. The choice made by the athlete would be the end point of the entire decision-making process, where he must analyze the internal information such as the environmental variables, the moment of each competition, the characteristics of each sport and the cognitive-emotional aspects that emerge in such a decisive sports instance.


Author(s):  
Yuin Jeong ◽  
Sangheon Oh ◽  
Younah Kang ◽  
Sung-Hee Kim

The decoy effect is a well-known, intriguing decision-making bias that is often exploited by marketing practitioners to steer consumers towards a desired purchase outcome. It demonstrates that an inclusion of an alternative in the choice set can alter one’s preference among the other choices. Although this decoy effect has been universally observed in the real world and also studied by many economists and psychologists, little is known about how to mitigate the decoy effect and help consumers make informed decisions. In this study, we conducted two experiments: a quantitative experiment with crowdsourcing and a qualitative interview study—first, the crowdsourcing experiment to see if visual interfaces can help alleviate this cognitive bias. Four types of visualizations, one-sided bar chart, two-sided bar charts, scatterplots, and parallel-coordinate plots, were evaluated with four different types of scenarios. The results demonstrated that the two types of bar charts were effective in decreasing the decoy effect. Second, we conducted a semi-structured interview to gain a deeper understanding of the decision-making strategies while making a choice. We believe that the results have an implication on showing how visualizations can have an impact on the decision-making process in our everyday life.


Author(s):  
Ankur Gupta ◽  
Anindita Saha ◽  
Ravi Kumar Gupta ◽  
Digvijay Singh Dhakre

The women folk are considered the backbone of the nation and better half of the men in almost all spheres of community development. Rural women constitute about 50% of the total rural population. The present study was conducted in Surguja district of Chhattisgarh to know the extent of participation of rural women in the decision-making process of dairy farming. Data were collected from 120 rural women using a structured interview schedule. 30 women farmers were chosen from each selected village thus constituting a sample size of 120 by simple random method. The study showed that the five components have greater than one Eigenvalues which was named constraint on social perception toward women, constraint on backwardness related, constraint of knowledge, Constraint on Resource Ownership and constraint on attitude. Dairy farming in the study area holds a very good future because certain dairy farming related operations and taking decisions farm women have better than male farmers. But due to many constraints and obstacles in the participation of rural women in the decision making process of dairy farming, which undermined the efficiency of rural women.


2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Mbuku Josephine Gibemba

In the Democratic Republic of the Congo as in several African countries, the news are made by several national media institutions. From the collection stage to the diffusion of news, several stages of decision-making are requested. The objective of this study is to analyse the decision-making process in the news production, its stages, the departments involved and the factors influencing the decision-making stages of news between collection, processing, selection, dissemination and evaluation of news. To achieve the objective and to verify the assumptions, the study adopted the mixed methodology combining the collection of qualitative and quantitative data in the continuous or simultaneous approach to presentation of results. A literature search allowed for the design of the theoretical model and a semi-structured interview survey was conducted to collect relevant data in a non-probabilistic, occasional or intentional sample consisting of 26 journalists of the Congolese national radio-television. The activities of collection, processing, selection, diffusion as well as evaluation and monitoring of news are the stages of the news production. These steps can be grouped into three: design and elaboration of news, publications of news and feedback. And several actors are involved. <p> </p><p><strong> Article visualizations:</strong></p><p><img src="/-counters-/edu_01/0894/a.php" alt="Hit counter" /></p>


Rheumatology ◽  
2019 ◽  
Vol 59 (8) ◽  
pp. 2052-2061 ◽  
Author(s):  
Julia Spierings ◽  
Femke C C van Rhijn-Brouwer ◽  
Carolijn J M de Bresser ◽  
Petra T M Mosterman ◽  
Arwen H Pieterse ◽  
...  

Abstract Objectives To examine the treatment decision-making process of patients with dcSSc in the context of haematopoietic stem cell transplantation (HSCT). Methods A qualitative semi-structured interview study was done in patients before or after HSCT, or patients who chose another treatment than HSCT. Thematic analysis was used. Shared decision-making (SDM) was assessed with the 9-item Shared Decision Making Questionnaire (SDM-Q-9). Results Twenty-five patients [16 male/nine female, median age 47 (range 27–68) years] were interviewed: five pre-HSCT, 16 post-HSCT and four following other treatment. Whereas the SDM-Q-9 showed the decision-making process was perceived as shared [median score 81/100 (range 49–100)], we learned from the interviews that the decision was predominantly made by the rheumatologist, and patients were often steered towards a treatment option. Strong guidance of the rheumatologist was appreciated because of a lack of accessible, reliable and SSc-specific information, due to the approach of the decision-making process of the rheumatologist, the large consequence of the decision and the trust in their doctor. Expectations of outcomes and risks also differed between patients. Furthermore, more than half of patients felt they had no choice but to go for HSCT, due to rapid deterioration of health and the perception of HSCT as ‘the holy grail’. Conclusion This is the first study that provides insight into the decision-making process in dcSSc. This process is negatively impacted by a lack of disease-specific education about treatment options. Additionally, we recommend exploring patients’ preferences and understanding of the illness to optimally guide decision-making and to provide tailor-made information.


Author(s):  
Deepa Routh ◽  
Suvendu Maji

This study was conducted to understand the fertility behavior between the two population groups speaking different languages: Bengali-speaking Hindus and Hindi-speaking Hindus. The study further attempts to study the perception and practice regarding contraception use and their decision-making ability. The present study was conducted in Kolkata, West Bengal. A total of 64 women (Bengali-speaking Hindus: 34 and Hindi-speaking Hindus: 30) ranging between 15 years and 44 years were chosen by convenience sampling method. Semi-structured interview schedule was employed to record the response of the participants. Sociodemographic profile of the participants and of their husbands and fertility history were collected using structured interview. Open-ended questions were asked to the participants to understand their perception about family planning. Case studies were also taken from each participant to know about their decision-making process of family planning. Descriptive statistic was carried out to analyze quantitative data, and for qualitative data, thematic analysis was carried out manually. Mean age of the participants was 33.1 years and that of their husbands was 40.2 years. Age at marriage was low in both the groups. Source of knowledge on contraceptives was mostly husband in both the populations. The husband (100%) played a dominant role in decision-making in both the groups. The role of in-laws played a dominant role in decision-making among the Hindi-speaking population. Withdrawal method was a common method of contraceptives in both the groups.


2021 ◽  
Vol 4 (1) ◽  
Author(s):  
Sara L. Hardman ◽  
Mahvish Q. Rahim ◽  
Meagan E. Miller ◽  
Scott L. Coven ◽  
Seethal A. Jacob ◽  
...  

Background: Adolescent/young adult (AYA) patients with hematologic and oncologic conditions are at increased risk for complications of COVID-19 and thus are important targets for vaccine outreach. AYA patients are transitioning from relying upon parental vaccine decision-making to independently making their own decisions. AYA with sickle cell disease (SCD) are of particular concern because a high proportion are African American and experience structural racism in addition to their illness. Further, AYA patients with chronic conditions may consider their past and present illness in their decision-making process. Methods: As part of a larger IRB-approved study, we recruited vaccine decision-makers for AYA patients aged 9-21 years attending SCD and oncology survivor clinics, including AYA patients 18-21 years old and parents of AYA patients 9-21 years old. After informed consent, participants completed a short demographic survey and a semi-structured interview regarding their vaccine decision-making process. Questions about the COVID-19 vaccine were incorporated given the ongoing pandemic. Results: Forty-nine parents and 21 AYA patients were recruited. The primary barriers reported regarding vaccination were concerns about its short-term side effects (57% AYAs; 37% parents) and potential to have unknown, long-term effects (10% AYAs; 14% parents). There were also concerns voiced about how rapidly the vaccine was developed (14% AYAs; 27% parents) and misconceptions about the vaccine (19% AYAs; 10% parents). Parents and AYA patients described the benefits of vaccination as lowering personal risk (62% AYAs; 35% parents) and several also mentioned the community benefits of preventing the spread of COVID-19 (19% AYAs; 8% parents) and a possible return to “normal” (14% AYAs; 10% parents). Potential Impact: The data from this study will further the understanding of how parents and young adults with chronic hematologic and oncologic conditions make decisions about COVID-19 vaccination, a vital tool for protecting medically and socially vulnerable populations during the COVID-19 pandemic.


Children ◽  
2021 ◽  
Vol 8 (4) ◽  
pp. 274
Author(s):  
Noriko Ozawa ◽  
Rieko Fukuzawa ◽  
Kayuri Furuya

Recently, proton beam therapy has been recommended in radiation therapy for child-hood cancer. However, facilities for children are limited, and parents who choose this treatment for their children face a variety of challenges. This study reveals mothers’ experiences about the decision to use the aforementioned therapy. A semi-structured interview was conducted with 16 mothers of children who received proton beam therapy in Japan, and a grounded theory approach was adopted. The results revealed that mothers were very worried about late complications concerning their children due to radiation. While the mothers strongly expected proton beam therapy to reduce the risk of late complications, they felt uncertainty and anxiety throughout the entire decision-making process. Despite having to deal with their feelings, they had to transfer to another hospital and prepare support for their children to begin treatment, and this put a lot of strain on them. From decision-making to start of treatment, these emotional fluctuations and the need for psychological support became apparent.


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