Asking the Stakeholders: Perspectives of Individuals With Aphasia, Their Family Members, and Physicians Regarding Communication in Medical Interactions

2015 ◽  
Vol 24 (3) ◽  
pp. 341-357 ◽  
Author(s):  
Michael Burns ◽  
Carolyn Baylor ◽  
Brian J. Dudgeon ◽  
Helene Starks ◽  
Kathryn Yorkston
Keyword(s):  
Family Members ◽  
Qualitative Description ◽  
Future Directions ◽  
Face To Face ◽  
Know How ◽  
Speech Language Pathologist ◽  
Patient Interviews ◽  
Semistructured Interviews ◽  
The Family ◽  
Practicing Physicians

PurposeThe purpose of this study was to explore the experiences of patients with aphasia, their family members, and physicians related to communication during medical interactions.MethodFace-to-face, semistructured interviews were conducted with 18 participants—6 patients with aphasia, 6 family members involved in patient care, and 6 practicing physicians. A qualitative description approach was used to collect and summarize narratives from participants' perspectives and experiences. Participants were asked about experiences with communication during medical interactions in which the family member accompanied the patient. Interviews were audio- and/or video-recorded, transcribed, and then coded to identify main themes.ResultsPatients and family members generally described their communication experiences as positive, yet all participants discussed challenges and frustrations. Three themes emerged: (a) patients and family members work as a team, (b) patients and family members want physicians to “just try” to communicate with the patient, and (c) physicians want to interact with patients but may not know how.ConclusionsParticipants discussed the need for successful accommodation, or changing how one communicates, to help facilitate the patients' increased understanding and ability to express themselves. Over- and underaccommodation with communication were commonly reported as problems. Speech-language pathologists have a role to play in helping to improve communication during medical interactions. Implications for current speech-language pathologist practice and future directions of research are discussed.

scholarly journals Vanhuksen oikeus hoivaan ja omaisolettama

Gerontologia ◽  
2017 ◽  
Vol 31 (3) ◽  
pp. 227-242
Author(s):  
Laura Kalliomaa-Puha
Keyword(s):  
Family Members ◽  
Elderly Person ◽  
Social Health ◽  
Legal Responsibility ◽  
Public Authorities ◽  
The Public ◽  
Know How ◽  
The Family ◽  
The Right ◽  
To Receive

Jokaisella vanhuksella on Suomessa yksilöllinen, viime kädessä perustuslaissa taattu, oikeus riittävään hoivaan ja huolenpitoon. Silti tämä oikeus on usein käytännössä riippuvainen siitä, onko vanhalla ihmisellä omaisia tukenaan. Tässä artikkelissa tarkastellaan sitä, miten oikeus hoivaan ja hoitoon taataan lainsäädännössä. Omaisilla ei lain mukaan ole vastuuta hoivan järjestämisestä, mutta silti lainsäädäntö monessa kohdin ikään kuin olettaa omaisten olevan vanhuksen tukena. Vaikka omaiset usein ovatkin tukena, miten perusoikeus hoivaan ja huolenpitoon toteutuu niillä vanhuksilla, joilla ei ole omaisia? Artikkeli nostaa vakavimpana omaisolettaman riskinä esiin ne vanhukset, joilla on omaisia, mutta joiden omaiset eivät osaa tai halua auttaa. Right to care and presumption of family and friends in the Finnish legislation According to Finnish legislation the public authorities must guarantee adequate social, health and medical services for those old persons who cannot obtain means necessary for a life of dignity. Yet in practice this right to receive indispensable subsistence and care often depends on the fact whether the old person happens to have family or friends to help her or him. As if the legislation supposes there are friends and family to help, even though, according to Finnish law, family members do not have legal responsibility to take care of an elderly person. This article elaborates how the right to care is guaranteed in Finnish legislation and what the law says about the responsibilities of the family. Even though most of the relatives do help their elderlies, how is the right to care fulfilled for those old persons who do not have family? Perhaps the elderlies who have family and friends, which do not help or do not know how to, are in the most vulnerable situation.

scholarly journals A description of the guidelines for family members on how to cope and support a person with a head injury

2017 ◽  
Vol 5 (1) ◽  
pp. 82
Author(s):  
Maria Tegelela Iyambo ◽  
Louis Small ◽  
Agnes Van Dyk ◽  
Esther Kamenye
Keyword(s):  
Head Injury ◽  
Research Design ◽  
Family Members ◽  
Face To Face ◽  
The Family ◽  
Northern Regions ◽  
Taking Care

The purpose of this article is to describe the guidelines for the family members on how to cope and support a person with a head injury. A qualitative explorative, descriptive and contextual research design was conducted utilizing individual in-depth face-to-face interview to gather data from family members of a person with a head injury. This study was conducted in three of the northern regions of Namibia, i.e. Oshana, Omusati and Ohangwena. Data was analyzed using Tech’s method for content analysis.The results of this study showed that family members of a person with head a injury had varied and different experiences varying from different feelings, challenges and support to them.Based on these findings, the guidelines were developed to assist the family members of a person with a head injury on how to cope and support the person with a head injury. These guidelines may be implemented by any family who are taking care of a person with a head injury.

scholarly journals Adherence Rate, Barriers to Attend, Safety, and Overall Experience of a Remote Physical Exercise Program During the COVID-19 Pandemic for Individuals After Stroke

2021 ◽  
Vol 12 ◽  
Author(s):  
Camila Torriani-Pasin ◽  
Gisele Carla dos Santos Palma ◽  
Marina Portugal Makhoul ◽  
Beatriz de Araujo Antonio ◽  
Audrea R. Ferro Lara ◽  
...  
Keyword(s):  
Physical Exercise ◽  
Family Members ◽  
Exercise Program ◽  
Adherence Rate ◽  
Stroke Survivors ◽  
Attendance Rate ◽  
Face To Face ◽  
The Family ◽  
The Government ◽  
Physical Program

Introduction: The actions taken by the government to deal with the consequences of the coronavirus diseases 2019 (COVID-19) pandemic caused different levels of restriction on the mobility of the population. The need to continue offering physical exercise to individuals after stroke became an emergency. However, these individuals may have barriers to adhere to the programs delivered remotely. There is a lack of evidence related to adherence, attendance, safety, and satisfaction of remote exercise programs for this population.Objective: The aim was to evaluate adherence and barriers to attend a remote physical exercise program for individuals after stroke. We aimed (a) to identify adherence and attendance rate of the remote physical exercise program (i.e., number of participants engaged, number of sessions attended, and exercise time in remote program); (b) to identify the safety of a remote physical exercise program (i.e., falls, pain, or dizziness when performing the exercises, fear, or insecurity); and (c) to identify the overall experience to participate in a remote program.Materials and methods: This is a longitudinal study, including 36 stroke survivors who already attended a face-to-face physical exercise program prior to the COVID-19 pandemic. The remote physical exercise program included sessions for 2 days/week for a duration of 22 weeks, with a total of 44 sessions, which were delivered asynchrony via recorded video sessions. As outcome measures, we performed two questionnaires (via weekly telephone calls) to identify attendance, barriers, safety, and overall experience related to the program.Results: The adherence rate was 86 (9%). The attendance rate was 19, with a total of 8 sessions (108.3 min/week). The main barriers for lower attendance rate were as follows: lack of motor skills and physical fitness to workout in 80 reports (20.6%), followed by no exercise companion in 44 reports (11.3%). The remote physical program has been shown to be safe, and the overall experience was positive from the perspectives of the participants and the family members.Conclusion: Although the adherence rate was high, the attendance rate was low on the remote physical exercise program. The main barriers to attending the program remotely reflect the need of tailoring individually an asynchrony mode of delivering the sessions to individuals after stroke. Our results also indicate how the COVID-19 impacted the health conditions of stroke survivors. The program was safe, and the overall experience indicated a change in the mental, physical, and social health of individuals after stroke and their family members.

scholarly journals The Quality of Family Interpersonal Communication during COVID-19

2021 ◽  
Vol 14 (1) ◽  
pp. 304-310
Author(s):  
Andaleep Ades
Keyword(s):  
Saudi Arabia ◽  
Interpersonal Communication ◽  
Family Members ◽  
Virtual Communication ◽  
Study Objective ◽  
Face To Face ◽  
Survey Form ◽  
The Family ◽  
Social Media Platforms

Background: The occurrence of the COVID-19 pandemic has significantly impacted the general lifestyle of people across the globe, especially with the new safety directives, which have affected people’s interactions in many different ways. Objective: The aim of the study was to examine the quality of interpersonal communication among family members during COVID-19 restrictions in Saudi Arabia. The study objective was achieved through investigating the three main questions: How is the pandemic influencing the connection and communication between the family members? How do the family members stay connected during the COVID-19 restrictions in Saudi Arabia? And lastly, what type of social media platforms are families using to stay connected with each other? Methodology: The present research used a Google survey form as a tool to receive responses from 400 participants in Saudi Arabia. Results The results have shown that COVID-19 has greatly affected people's interactions, including family interpersonal communication. Families have been forced to adapt modern forms of communication rather than indulging in normal face-to-face interactions, as various governments across the world encourage virtual communication. Conclusion: IMO has become very popular among various family members; however, some other applications have also been used to stay connected with the family, like Twitter, Facebook, and WhatsApp.

SPEECH THERAPY CONSULTANCY FOR FAMILY MEMBERS OF PATIENTS WITH APHASIA

2016 ◽  
Vol 11 (2) ◽  
pp. 46-50
Author(s):  
ZHANNA PAYLOZYAN ◽  
SILVARD DAVTYAN
Keyword(s):  
Speech Therapy ◽  
Family Members ◽  
Speech Communication ◽  
Know How ◽  
The Social ◽  
The Family ◽  
Psychological Harm ◽  
Speech Restoration ◽  
And Behavior ◽  
Essential Prerequisite

The participation of the patient’s family with aphasia in the process of speech therapy is necessary and essential prerequisite for speech recovery. However, our society is not sufficiently informed about aphasia. As a result, the family members of a person with aphasia often do not know how to deal with a relative who has lost his/her speech. As a consequence, there is oftena misunderstanding regarding the patient’s activities and behavior. The essential content of the speech therapy consultancy with the family members of the patients with aphasia is introduced in the article. The authors stress the importance of providing information to the family members of people with aphasia, regarding aphasia symptoms and its overcoming features. Particularly it is mentioned, that aphasia is not an indication of a mental disorder or dementia. In case of aphasia, the social and speech isolation of a person who has lost his/her speech, is troubling. In the article, recommendations aimed at the establishment of contact between the patient and his/her relatives, as well as increasing the effectiveness of speech restoration process are introduced. Following the speech therapy recommendations will help the relatives to avoid common mistakes in the process of communication, which cause psychological harm. Taking into account the fact, that the speech restoration is a long-lasting process, the article also provides examples of assignments and exercises for supporting the speech restoration at home. The essential goal of speech therapy consultation is the establishment of speech-communication environment, which supports the restoration of speech and communication of patients with aphasia.

A purposeful Yet Nonimposing Approach: How Japanese Home Care Nurses Establish Relationships With Older Clients and Their Families

2017 ◽  
Vol 23 (4) ◽  
pp. 534-561 ◽  
Author(s):  
Takako Iwasaki ◽  
Noriko Yamamoto-Mitani ◽  
Kana Sato ◽  
Yoshie Yumoto ◽  
Maiko Noguchi-Watanabe ◽  
...  
Keyword(s):  
Home Care ◽  
Family Relationships ◽  
Nursing Practice ◽  
Family Members ◽  
Relationship Development ◽  
Building Relationships ◽  
Family Nursing ◽  
Semistructured Interviews ◽  
The Family ◽  
Home Care Nurses

Relationship development is crucial to nursing practice with families. However, little is known about the process of building relationships with multiple family members in home care settings and in various cultures. The objective of this study was to explore the experiences of home care nurses about how they established relationships with older clients and their families in Japan. Grounded theory was used to guide the research. Twenty-three expert home care nurses participated in semistructured interviews concerning their family nursing practice. The establishment of relationships with clients/family members was based on a purposeful yet nonimposing approach composed of four aspects: keeping a mindful distance from the family, not being a threat to family life, being a comfortable neighbor, and gaining trust as a competent nurse. Through a purposeful nonimposing approach, Japanese home care nurses promoted and nurtured nurse–family relationships and became involved in the life of the family. These findings provide a useful foundation to guide practice with families and grow knowledge about the process of establishing relationships with multiple family members in home settings.

scholarly journals Perception of Family Functioning Among Relatives of Women Who Survived Breast Cancer: Gender Differences

2010 ◽  
Vol 18 (2) ◽  
pp. 269-277 ◽  
Author(s):  
Raquel Gabrielli Biffi ◽  
Marli Vilela Mamede
Keyword(s):  
Breast Cancer ◽  
Qualitative Research ◽  
Family Members ◽  
Functional Model ◽  
Adaptation Process ◽  
Know How ◽  
Family Balance ◽  
The Family ◽  
Healthy Family ◽  
Clear Communication

The aim of this study was to know how female and male family members perceive their family dynamics after breast cancer. Barnhill's proposal of a healthy family functional model served as the theoretical framework for this qualitative research. The data was obtained through interviews and submitted to content analysis. The results showed that, in the adaptation process to breast cancer, both genders use clear communication in order to achieve family balance and present interactions characterized by mutual and individual feelings. The responsibility for maintaining the family is attributed to the daughters, whereas the male elements show more disorganization with regard to family functions. The bond between family members of both genders who are affected by breast cancer shows important interactions in the identity process.

scholarly journals Family Health Conversations Conducted by Telephone in Heart Failure Nursing Care: A Feasibility Study

2018 ◽  
Vol 4 ◽  
pp. 237796081880338
Author(s):  
Annelie K. Gusdal ◽  
Karin Josefsson ◽  
Eva T. Adolfsson ◽  
Lene Martin
Keyword(s):  
Heart Failure ◽  
Family Caregivers ◽  
Nursing Care ◽  
Family Relationships ◽  
Group Intervention ◽  
Family Health ◽  
Visual Contact ◽  
Face To Face ◽  
Semistructured Interviews ◽  
The Family

Registered nurses (RNs) in heart failure (HF) nursing care have a key role in providing family support, which positively affects the outcome for the patient. Telephone interventions conducted by RNs have been reported to be successful in HF nursing care, but Family Health Conversations (FamHCs) involving the patient and the family, have not previously been tested. The purpose of the current study was to explore the experiences and feasibility of nurse-led FamHCs conducted by telephone with patients and their family caregivers. A single-group intervention study with a pretest–posttest design was conducted in three regional hospitals that had a nurse-led HF clinic. Five RNs, eight patients, and eight family caregivers participated. Three FamHCs were conducted by telephone with each family every 2 weeks. Qualitative and quantitative data were collected through semistructured interviews and questionnaires. FamHCs improved the nurse–family relationships and relationships within the families and provided RNs with new knowledge about the families. FamHCs conducted by telephone were considered to be feasible for both families and RNs, although RNs preferred fewer and shorter FamHCs. The RNs preferred meeting face-to-face with the families as nonverbal communication between the family members could be missed because of lack of visual input. On the other hand, RNs appreciated to focus entirely on the conversation without the need to perform illness-related routine checks. In conclusion, the advantages of FamHCs conducted by telephone outweighed the disadvantages. Visual contact, provided by video telephony, and a shorter version of the tested FamHC would facilitate the use in HF nursing care.

Family members' experiences with decision making for incompetent patients in the ICU: a qualitative study

1998 ◽  
Vol 7 (1) ◽  
pp. 30-36 ◽  
Author(s):  
DA Jacob
Keyword(s):  
Family Member ◽  
Family Members ◽  
Grounded Theory Method ◽  
Semistructured Interviews ◽  
The Family ◽  
Life Sustaining Treatment ◽  
Supportive Interventions ◽  
Nurses And Physicians ◽  
Support Family

BACKGROUND: Understanding the challenges faced by family members involved in decisions about the use of life-sustaining treatment for incompetent patients in the ICU is necessary for developing empirically based supportive interventions. OBJECTIVES: To describe and explain the experiences of family members who were involved in decisions on behalf of their loved ones in order to promote understanding of such experiences and to suggest areas for effective, supportive intervention. METHODS: The grounded-theory method of qualitative research was used. Data collection involved semistructured interviews of 17 persons who had been involved in decisions about the use of life-sustaining treatment for a family member in the ICU. RESULTS: Family members discussed the need to arrive at a judgment of the patient's condition and to work with caregivers to have the family member's decision about life-sustaining treatment enacted. Data analysis suggests that clinicians can best support family members by helping the members arrive at a judgment about the patient's condition and treatment desires and by connecting with the family members to ensure that treatment goals are mutual. Supporting family members in this way helps them accept and go on in a positive way after the experience. CONCLUSIONS: Family members of patients in the ICU are willing and able to take responsibility for decisions about the use of life-sustaining treatment for their loved ones. The long-term acceptance of the experience and the decisions made depends greatly on the interactions between the family member who makes the decision and nurses and physicians in the clinical setting.

scholarly journals The experiences of family members of a person with a head injury

2016 ◽  
Vol 5 (1) ◽  
pp. 24
Author(s):  
Maria Tegelela Iiyambo ◽  
Louis Small ◽  
Agnes Van Dyk ◽  
Esther Kamenye
Keyword(s):  
Health Care ◽  
Intensive Care Unit ◽  
Head Injury ◽  
Health Care Providers ◽  
Family Members ◽  
Care Providers ◽  
Face To Face ◽  
The Family ◽  
Rehabilitation Period ◽  
Purposive Sample

The aim of this study was to understand what the family members of a person with a head injury go through during the pre-hospitalization, hospitalization and rehabilitation period. The objective set for this study was to explore and describe the experiences of family members of a person with a head injury.A purposive sample was selected from the records of the Intensive Care Unit at the Intermediate Hospital Oshakati where the addresses of the head injury patients were identified. A qualitative explorative, descriptive and contextual research design was conducted utilizing individual in-depth face-to-face interview to gather data from family members of a person with a head injury. Data was analyzed using Tech’s method for content analysis.The results of this study showed that family members of a person with head injury had varied and different experiences varying from different feelings, challenges and support to them.Recommendations based on the findings were made for both health care providers and family members of a person with a head injury.

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